Hello, I am a newbie to this forum and so glad I found it. I have been reading and just found a lot of useful info. I am going to post a somewhat lengthy bio about myself. Feel free to comment and answer my questions below.
Here it goes:
My name is Naimah, and if you think you're having many issues with your height (not saying that your issues aren't valid)..... Tryyyy being a 19 year old girl who is 4'8"/144 cm and has been teased her WHOLE life for being short, despite her good qualities and personality?!? I was always smaller than the rest of my peers at school, and although my parents noticed this, when we would go to the doctors they never saw it as a issue. The doctors told my parents that when I reached a certain age I could start "Growth Hormone Treatment" to help me reach my normal height potential. This happened when I lived in Colombia (where I was born). My family and I moved to the United States when I was about 8 years old. At this point nobody really bothered to get in touch with any doctors since we were trying to adjust to a new place. I do remember that once in a while when I would go to pediatricians for a check up, I was told that I was below the 5th percentile in height. No doctors ever took an initiative in informing my family and I about growth treatments to catch the issue IN TIME. Time went by and we kept moving from state to state. Every time I would see different doctors that had no prior knowledge on my growing conditions but they would all notice that I was short. They'd say "Don't worry honey, you'll grow someday". I got my menstrual cycle at the age of 10 years old (in 5th grade). My parents did see that it was a bit too early for me to go through puberty but they didn't think much of it. Although it seems like I wasn't taken care of, my parents were always seeking growth treatments and even took me back to Colombia to see if the doctors could recommend some treatments at a more affordable price. But by the time they took me to Colombia and by the time I got checked here in the U.S. by an Endocrinologist, all the doctors told me that my growth plates were closed and that I COULD NOT grow any more. That was it! I would be 4'8" for the rest of my life. We didn't seek any second opinions or any further help after this (partly because insurance wouldn't cover it) and we just kept going with our lives. Today I am 19 years old and I am still 4'8". I am seeking a second opinion for myself. I've also dealt with Hypothyroidism in the past and due to an abnormal metabolism I gained weight easily and developed an eating disorder. Not growing has brought me so much tragedy. More tragedy than my parents expected when they told us that my issue was irreversible. I was bullied, teased, and even got into some fights at school all due to my height. Kids thought they could pick on me and I was so insecure because of this matter. I never had a boyfriend, went to prom, or experienced a normal teenage life. I am a singer-songwriter, performer, aspiring actress, and athlete and I can say that being short has affected ALL of these areas of my life. That is why I am done suffering and I want to take charge of this issue, so I can live the rest of my life in peace! I know that I might sound unthankful or ungrateful because there are people who are much much shorter than me (suffering from dwarfism) but although I'm not as short as some of these people, height is STILL a big burden in my life. I've spoken to therapists about this and they all tell me that I should just accept what I cannot change, and for a while I did, but I am not taking anymore of this. I've also done a lot of research on how stem cells can help adults increase their height, and how gene therapy (CRISPR) can help but mostly in embryos. All of these other options are NOT available to the public, and I've tried reaching out to scientists who do medical trials but they never got back to me. So I found this surgery and this forum, and I am strongly considering this surgery as an option. My parents think that I am obsessed with growing taller and they don't really want to hear about this procedure. They also think that LL surgery is unrealistic for me because neither they nor do I, have the money to cover any surgery with many of the well reputed doctors. We are just struggling musicians who perform for a living and are trying to get by (I am also a college student). But I've read that you can get loans and funding or just plainly save up. Although by the time I save up for a surgery like this I'll probably be 50 and it won't matter anymore.
I want to live. I want to date. I want to feel more confident singing on stage.
I want to STOP having to buy kids clothes (I'm a size 3 in shoes and can't even find heels my size to look a bit taller!). I want to stop looking so chubby due to my height. I want to get back ALL those years I feel like I've lost!
That is why I am willing to do anything it takes to achieve my goal of getting the surgery.
Ok. My lengthy biography is over. Hope that made you feel some type of way or inspired to keep fighting!
Here are my questions, goals, etc...:
1.) I want to get "quadrilateral leg lengthening", which from what I understand means both femurs at one time and then both tibias. Two surgeries spaced apart not all together. I want to lengthen at least 3 inches in both my femurs and tibias. I have heard that it isn't recommended to lengthen the tibia this much, but I've read about people who've done it. I also know that this all depends on body type, and individuality of the patient. Getting at least 6 inches would put me at 5'2" which for me would be a glory coming up from 4'8". Still short but not ABNORMALLY short (my whole family is taller than me by the way).
2.) Method: With that being said, I want to find a doctor that uses the "STRYDE or PRECICE 3" method. As I've read that this will revolutionize LL. I am also considering the "PRECICE 2" method. I am terrified of the external method and fortunately for me, I was able to read @unicorn888 's diary about her tragic experience with Dr. Guichet. THANK GOD, because he was on the top of my list, since as of now I can't afford Dr. Paley. Now, Dr. Mahboubian I might be able to afford in the future.
3.) Financial Aspect: What should I do about the fact that I have no money for this but as you can see, this 4'8" girl needs this or wants this pretty bad.
4.) Doctors: Once I find a way to get the money for this, what would be my options for a still somewhat cheap but good option. I know Dr. Paley is the LL god lol but I don't think I can afford him and also he doesn't let his patient lengthen the tibias farther than 5cm. Also Dr. Rozbruch is really good from what I've heard, but is also expensive and will only do the surgery once, not twice (I need one surgery for the femurs and one for the tibias). As of now, ruling out all the CRAZY fiascos I've read about European and overseas doctors (Betz, Guichet, and other), I DO NOT want to take ANY risks of amputation, paralisis, etc... With my legs. I love my legs! I need my legs because I am a crossfit athlete. I know I may not get to full recovery to do crossfit after this but for being taller, I think it might be worth it. My only option right now for a doctor is Dr. Mahboubian because I've seen his webinar, some patient diaries, and he seems like a caring and nice guy. I hope I'm right. I think that maybe I can get the money for the femurs first and then do the tibias later on in life, but I really don't want to do that. I want to suffer twice but close to each other if that makes sense.
What are my options? PLEASE help this 4'8"/144cm girl get to at least 5'2 or taller
!
Sorry for this lengthy post, but the world needs to know that I exist and need help :-Xlol.
Here is a link to my YouTube videos in case you're interested in hearing my music/covers:
Channel -
https://www.youtube.com/user/naimabkOne of my covers: