Hello all,
I am thinking of creating a spreadsheet kind of form in which every CLLer would enter data with 1 row per person. The columns would be same for all CLLers such as name, country of origin, country of operation,date of surgery, kind of surgery (femur, tibia, internal, external), doctor, cost of surgery, date of surgery, expected goal, amount achieved finally, total time for lengthening, total time for consolidation, any implications along with their cure, post surgery duration when allowed for walk, post surgery duration when lengthening started, post surgery duration when walking with crutches allowedb independently, post surgery duration when walking unaided started, amount achieved per day(only avg not daily), post surgery costs , total cost of surgery, total time lost in achieving pre CLL condition (till walking normally), any other column one may want to add.
This would allow comparative studies of different types of surgeries, doctors, average time needed to regain preCLL ability, doctors efficiency, cost analysis etc.
I would also request ppl who have done CLL to fill the data to make available more data to allow future CLLers to take rational decisions.
Please give your thoughts and inputs.
Moderators please make this an announcement if possible.
