Print

Please login or register.
1 Hour 1 Day 1 Week 1 Month Forever
Login with username, password and session length

[Betall87]

Hey everyone,

I'm sharing my recent experience here, despite the challenges. I'm frustrated with the limb lengthening industry because there's a lack of genuine, honest experiences. I was one of the individuals who received media coverage deal at a very known limb lengthening center. However, these videos only capture a small fraction of the reality. They often use filters to hide scars and only film when you're smiling, even if you're in significant pain. The truth is, these videos represent only about 5-7% of the time, usually when strong painkillers are involved. Many patients don't share their real experiences online due to social reasons and a desire for privacy. Those who do share their experience with their face on often have incentives, such as discounts or financial compensation. This lack of transparency is frustrating, but I'm  :'(sharing my honest experience here anonymously because I believe it's important to shed light on the reality behind the scenes. So i’m sharing my story because I don't want others to go through what I've been experiencing, especially because of the misleading videos on social media from limb lengthening accounts.

I chose LON tibia for two reasons:
1) it's more popular and seemed less risky
2) it was cheaper
But now I regret it 

The surgery went fine, it’s painful but not crazy I had more painful surgeries. But the pain and discomfort afterward have been relentless. If you want to understand, imagine wearing shoes two sizes too small for weeks on and never get a chance to take them off. It's that kind of discomfort.
Dispute that the pain and discomfort is consistent and never ever stoped and that drive me nuts. Everyone at the center I am in, including myself are facing a big challenge with sleeping, the sleeping hours range between 5-7 hours inconsistent and divided into small number of naps. The pain of the lengenthing is painful sometime it can be tolerant and sometime even a strong painkiller won’t take the pain away. The surgery specially LoN tibia will require not only a desire and strong will but a good mental and emotional strength and even with that you can lose it so I suggest you enrol with a therapy already before the surgery date.

If anyone has questions about LON tibia, feel free to ask. Let's raise awareness and help each other out.

[MK2024]

Thanks for sharing your story and point of view. I always hear that monorail LON on the tibia is more painful and some centers prefer the LATN for a better experience. I hope you smooth journey and keep sharing with us your overview and pics.

[Hldrive]

where are you doing your surgery?

[Betall87]

In Turkey

[mirneeelnumber1ooye]

we didnt understand what exactly is it that you regret?

did you have any complications?
non union?
infections?
butcher buldu had you lengthen 1mm per day on the tibia for how many centimeters?

everyone here knows its difficult to sleep with LON so what exactly is the thesis of your post ?

[Betall87]

we didnt understand what exactly is it that you regret?

did you have any complications?
non union?
infections?
butcher buldu had you lengthen 1mm per day on the tibia for how many centimeters?

everyone here knows its difficult to sleep with LON so what exactly is the thesis of your post ?

I regret doing LON instead I wish I did the precies method.
I am still in the process so no complication so far (as mentioned the doctor seem very good) and so as the clinic, it’s the lengenthing pain and the discomfort that comes with the external fixator.

Yes we are doing 1ml per day and still in the process.

It’s not about the sleeping only it’s the whole experience of setting, standing, showering etc (yes everyone knows so am I) but I wish if someone told me that the discomfort and the pain of the external faxator attached to your body feels like this or that so I tried to do my best in sharing my experience.
In the end of the day, it’s a feeling that everyone have if you say (this surgery is difficult or hard or painful), yes but describe the type and that’s what I couldn’t find in any social media post. This feeling of your soul wishing to be in another body just because you can no longer breath with these external steal faxator. Let alone the sleeping part. Hope that helps ?

[mirneeelnumber1ooye]

eh

literally everyone says the process is hard and sucks and many of us have regretted it deeply once the frames were installed but then again think about how much it sucks to be short and that would motivate you to endure !

when you're done with the lengthening and start recovery your brain suppresses all the sleepless nights staring at the ceiling of your room contemplating your self inflicted disability and asking the dark void will you ever walk again normally

no two ways around it gotta suck it up and endure buddy boyo

better 2 months of pain and insomnia than a lifetime of being a short man and being seen as a joke and less of a man

[markr09]

Hey everyone,

I'm sharing my recent experience here, despite the challenges. I'm frustrated with the limb lengthening industry because there's a lack of genuine, honest experiences. I was one of the individuals who received media coverage deal at a very known limb lengthening center. However, these videos only capture a small fraction of the reality. They often use filters to hide scars and only film when you're smiling, even if you're in significant pain. The truth is, these videos represent only about 5-7% of the time, usually when strong painkillers are involved. Many patients don't share their real experiences online due to social reasons and a desire for privacy. Those who do share their experience with their face on often have incentives, such as discounts or financial compensation. This lack of transparency is frustrating, but I'm  :'(sharing my honest experience here anonymously because I believe it's important to shed light on the reality behind the scenes. So i’m sharing my story because I don't want others to go through what I've been experiencing, especially because of the misleading videos on social media from limb lengthening accounts.

I chose LON tibia for two reasons:
1) it's more popular and seemed less risky
2) it was cheaper
But now I regret it 

The surgery went fine, it’s painful but not crazy I had more painful surgeries. But the pain and discomfort afterward have been relentless. If you want to understand, imagine wearing shoes two sizes too small for weeks on and never get a chance to take them off. It's that kind of discomfort.
Dispute that the pain and discomfort is consistent and never ever stoped and that drive me nuts. Everyone at the center I am in, including myself are facing a big challenge with sleeping, the sleeping hours range between 5-7 hours inconsistent and divided into small number of naps. The pain of the lengenthing is painful sometime it can be tolerant and sometime even a strong painkiller won’t take the pain away. The surgery specially LoN tibia will require not only a desire and strong will but a good mental and emotional strength and even with that you can lose it so I suggest you enrol with a therapy already before the surgery date.

If anyone has questions about LON tibia, feel free to ask. Let's raise awareness and help each other out.

It's not uncommon to have only a few hrs of sleep in the first month or so. It's actually posted a lot here. That's why the painkillers are there, and why you eventually get weened off it as time goes on so you can get used to it to some good extent.

[AllinStryde]

There's no "easy" CLL procedure.  I went into the journey knowing it was gonna suck and be hard.  That being said, there were no surprises.  Lots of sleepless nights, loss of appetite, painful PT, immobility...but I knew all that was coming and went in mentally prepared to encounter all those.  Hang in there and just don't overlengthen and you'll be fine.   

[limby101]

I cant see the future but I think your opinion and regrets may change over time.
Once this surgery and all the difficulties are long gone, you may think differently on this overall.
For now I don't see you're having any reason to regret, other than just pure regret of doing a surgery to get taller (people may regret it even if their process went perfect)... And anyway regrets are useless...

[wantingtobetaller]

Well If you quit now, your biggest regret will be not lengthening enough because you fail to endure a measly pain.

[Beemer m3]

how tall are you? if u are growing taller than it might not be a big regret. your just in a difficult situation at the time because u miss doing things without a fixator attached to ur body.

[Body Builder]

No reason to do LON or LATN on tibias. For me is clearly a mistake. You have the drawbacks of both externals and internals without any benefit, except from a few less months with frames on.
It is more painful, expensive and risky than externals only and more risky and less convenient than internals only.

That said, it is nothing compared to being short and I wonder how many LLers nowadays are so soft and not really motivated as me or many other ones I knew back in my days.
So get yourself determined and go till the end. Your pain will be just a few months while the extra height will last till the end and it will literally change your life, at least if you are less than average height like the 95% of LLers.