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[Hobbit99]

Another update. More problems start arising.
I have lost sensibility (or sensitivity?) in a small area of the skin around where the bone was broken. I hope it will return or at least it won't expand further.
Some times in that same area I have a sudden and intense pain of short duration, when I move the legs mostly but it's not really predictable.
Currently at 5cm

[Beemer m3]

i had like skin pain sometimes. kind of forgot what happen. when i ride the bike the next day my skin would react like a stretching of the skin and i would have pain there. it goes away like 3 days later.

[Hobbit99]

did you also experience loss of sensitivity on the skin?

[Tovarish İlizarov]

I had a Lon femur. There was a feeling of a cut at the bottom of the pins, it hurt a lot, and sometimes even though I had surgery on the femur, I had a burning sensation on the soles of my feet.

Don't worry too much about skin problems. It takes 2 to 3 days. However, if the pain and numbness are in the muscles, tendons and nerves, stop the extension. Because in Asian countries, the safe limit for the tibia is generally 5 cm. There are idiots in Turkey who make it 7 cm.

[Tovarish İlizarov]

I do not recommend 7 cm on the tibia, because it causes arthritis in the long run. I advise you to stay at 6 cm, arthritis will hurt you a lot in the long run.

[Tovarish İlizarov]

According to doctor Halil in Turkey, their height reached 7 centimeters, but there were also individuals with bad effects in the long term. You can find it on the forums. The safe limit is 6 cm.
There are other things doctors don't tell you: As you extend your leg, you lose your ability to run, you have difficulty climbing stairs, you have difficulty walking on hills, your weight-bearing capacity decreases. Doctors generally do not say these things to make money.

[Hobbit99]

According to doctor Halil in Turkey, their height reached 7 centimeters, but there were also individuals with bad effects in the long term. You can find it on the forums. The safe limit is 6 cm.
There are other things doctors don't tell you: As you extend your leg, you lose your ability to run, you have difficulty climbing stairs, you have difficulty walking on hills, your weight-bearing capacity decreases. Doctors generally do not say these things to make money.

I will ask the doctor about all this. He seems honest.

How much did you lengthen?

[Tovarish İlizarov]

lon 8.5 femur

[Beemer m3]

According to doctor Halil in Turkey, their height reached 7 centimeters, but there were also individuals with bad effects in the long term. You can find it on the forums. The safe limit is 6 cm.
There are other things doctors don't tell you: As you extend your leg, you lose your ability to run, you have difficulty climbing stairs, you have difficulty walking on hills, your weight-bearing capacity decreases. Doctors generally do not say these things to make money.

my doctor doesnt didnt really say anything he knows every patient wants to go 8 cm so he lets them. most of his patients does 6-8 cm. indian doctors on youtube also have patients lengthen to 7.5cm. i stopped after i had burning sensation and i also read on the forum about the limits and stuff. i sometimes feel i did way less than normal though

[Hobbit99]

Update: my knees are way better
They go full extension during PT without too much pain (I don't scream at least)
Still slightly bent when I walk
Burning pain from the left achille tendon

Also walking a lot better today

[limby101]

Do you think the knee bending limitation was due to the procurvatum ?

Good to see you're recovering

[Tovarish İlizarov]

Brother , I understand you want to be tall, but please don't go to lengths that will harm yourself.

[Hobbit99]

Brother , I understand you want to be tall, but please don't go to lengths that will harm yourself.

But I need to trust the doctor. If the doctors evaluate me and says I can..
He already took the money I don’t think he says to add 1 cm more so that I give him more money.
I will ask him about the risks of doing another cm next time.

[Hobbit99]

Do you think the knee bending limitation was due to the procurvatum ?

Good to see you're recovering

No I don’t think it’s due to procurvatum because I have it in both legs. It’s for the calf muscles contracture

[Hobbit99]

Having more pin-related pain lately. Pins are leaving scars as they pull the skin. It usually goes away if I take FANS but I try not to take them too much because I heard they can interfere with bone healing.
Tramadol also helps.

Sleeping is not as bad as people describe, since I'm sleeping with bend legs. Cannot sleep with straight legs, it's like constant stretching. I try to compensate with more stretching and walking during the day as suggested by the doctor.

Sometimes I wake up during the night. 1 or 2 times per night. I take tramadol and/or ibuprofen and return to sleep.

I can also study during the day with enought concentration.

Seriously people on the internet seems to describe this surgery, especially with external frames, as something of infernal pain. It's not. It's infernal pain during physiotherapy sessions and maybe during the first 2 weeks, but most of the time it's slight pain or no pain with painkillers.

[Hobbit99]

nothing, I replied with the same message two times

[Beemer m3]

u got lucky u didnt feel burning pain. my right leg was always a problem for me. something wasnt right for me. decided to stop early. my nerves still dont feel right at my foot.

[Hobbit99]

I just had another appointment with the doctor. He said it’s going well, callus is forming, but feet are going into varus. I wrote the other day about noticing that my feet were rotate inward. Apparently it’s varus, but not equinus (ballerina). I will need to wear some elastic band to rotate my feet the opposite way and with time they will go normal again.

I asked about the callus compression when removing the frame. He said it’s not true, you don’t lose millimeters if the callus has healed completely.
He also said that it’s true that the xrays could show more mms than real, up to 10% more. Now it’s hard to say precisely but he told that, considering it’s showing 54mms, I should count around 52 real mms.

[Hobbit99]

Regarding how much cm we should go, he said that next time I will be around 6,5cm and depending how it goes he will decide if I can go up to 7 or stop at 6,5

[limby101]

Stop at 6.5, what will an extra 0.5cm do? The risk and the longer down time isn't worth it.
6.5 is super for tibia in my opinion, if you go through it without any compromise of abilities.

I also had a bigger gain in x-ray than in real life.
I finally realized it's because of the frame, it makes your leg further away from the table, and that distance translate into a measurement error. If you do a leg length measurement with standing upright, you'll get the real measurement.

[Hobbit99]

Stop at 6.5, what will an extra 0.5cm do? The risk and the longer down time isn't worth it.
6.5 is super for tibia in my opinion, if you go through it without any compromise of abilities.

I also had a bigger gain in x-ray than in real life.
I finally realized it's because of the frame, it makes your leg further away from the table, and that distance translate into a measurement error. If you do a leg length measurement with standing upright, you'll get the real measurement.

I will add another 0,5 only if the doctor says there are no risks depending how this next cm goes.
Don’t care about the longer downtime, only about risks

Limby what was shown in your xray compared to real life?

[limby101]

All the x-rays showed 4 cm but I never was able to see it in real life measurement... Until I did total leg length x-ray while standing upright and that one showed 3.5cm.
It's because previous x-rays laying down, the leg was raised from the table, I think something like 6-7 cm, because of the bulky frame. If the skin was flat on the table it would probably show the accurate measurement

[Hobbit99]

All the x-rays showed 4 cm but I never was able to see it in real life measurement... Until I did total leg length x-ray while standing upright and that one showed 3.5cm.
It's because previous x-rays laying down, the leg was raised from the table, I think something like 6-7 cm, because of the bulky frame. If the skin was flat on the table it would probably show the accurate measurement

So according to your experience in order to do real 6,5 cm I need to go to 7

edit: in another post you said your real gain was around 3cm
maybe you were not standing straight when measuring yourself?

[limby101]

I think it depends on the x-ray technique. The bulkiness of the frame may also change a bit the situation.
But honestly I think it's for 0.5cm changes you shouldn't be concerned. If you did 6 cm so 0.5 less or more really doesn't change a thing. It's even less than gain you get by just changing your posture to appear taller in everyday situation

[Hobbit99]

Int the xray machine I lay down on a bed with a mechanical arms that the operator moves around, can also goes farther or closer. They lift my legs today with some pillows because I could not straighten the legs fully. It shows 54mm. Doctor says it’s maybe 52mm in reality. I’ll see next time.

[liltunechi]

Hey man.

I hope your doing well.

I’m currently doing tibia deformity correction and also lengthening too. I’m either going to lengthen 1cm or 2cm. TSF frame. It’s via my country’s health care service, that’s why I can’t lengthen a lot.

I’d love to hear your opinion and also your Dr’s opinion on this.

How long would I need to stay in frames for, for either 1cm or 2cm?

I hate being in these frames, I can only imagine the will power you have to have lengthened 5cm and knowing that you’ll be in the frames for a long time.  You’re a hero man.

But yeah, I’d love to hear your thoughts and also, would love to know what you are doing diet/supplement/devices/treatment wise to speed up your bone healing?

[Body Builder]

Hey man.

I hope your doing well.

I’m currently doing tibia deformity correction and also lengthening too. I’m either going to lengthen 1cm or 2cm. TSF frame. It’s via my country’s health care service, that’s why I can’t lengthen a lot.

I’d love to hear your opinion and also your Dr’s opinion on this.

How long would I need to stay in frames for, for either 1cm or 2cm?

I hate being in these frames, I can only imagine the will power you have to have lengthened 5cm and knowing that you’ll be in the frames for a long time.  You’re a hero man.

But yeah, I’d love to hear your thoughts and also, would love to know what you are doing diet/supplement/devices/treatment wise to speed up your bone healing?

You will need about 45 days for each cm. So 90 days for 2 cm.

[Hobbit99]

Hey man.

I hope your doing well.

I’m currently doing tibia deformity correction and also lengthening too. I’m either going to lengthen 1cm or 2cm. TSF frame. It’s via my country’s health care service, that’s why I can’t lengthen a lot.

I’d love to hear your opinion and also your Dr’s opinion on this.

How long would I need to stay in frames for, for either 1cm or 2cm?

I hate being in these frames, I can only imagine the will power you have to have lengthened 5cm and knowing that you’ll be in the frames for a long time.  You’re a hero man.

But yeah, I’d love to hear your thoughts and also, would love to know what you are doing diet/supplement/devices/treatment wise to speed up your bone healing?

I need to have my frames on 8-9 months for 6cms. I think it’s about what body builder said

[liltunechi]

You will need about 45 days for each cm. So 90 days for 2 cm.

Thank you so much. I asked this question to Dr. Assayag, and he said to expect to be in frames for 6 months. I asked him again, to make sure he didn’t misunderstand…again he said to expect 6 months. 

I was so confused. 

What do you guys think?

[liltunechi]

I need to have my frames on 8-9 months for 6cms. I think it’s about what body builder said

I know this is a strange request, but if you get the chance, could you please ask your Dr this questions? How long to expect to be in TSF frames for a slight procurvatum deformity correction and 2cm lengthening? Male, 28 years old.

Thank you!

[Hobbit99]

I know this is a strange request, but if you get the chance, could you please ask your Dr this questions? How long to expect to be in TSF frames for a slight procurvatum deformity correction and 2cm lengthening? Male, 28 years old.

Thank you!

How well maybe with procurvatum it's longer? Anyway I also have procurvatum that I need to fix as soon as I finish lengthening.
It's a bit weird to ask my doctor how much time for another patient from another country cured by another doctor, but I'll see next time.