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[TommyC]

阿金鼓谱

Hi guys, I am a newcomer to this forum, hopefully will be doing the surgery later this year with Dr. Paley.

2 month ago, I told my dad and mom separately that I was going to do the surgery, they initially shown some concern. I told them that I have done research, told them that the option I chose had a success rate of at least 95%, and taken considerations to minimize the risks.
- Only planning to do femur for 5.5cm, which should be relatively very low risk shown by previous experiences of fellow members of the community and information exchange with Dr. Paley’s team
- Have been stretching everyday for 4 months prior to the surgery so less strain is put on the body in the rehab stage

They ultimately agreed individually. I made my payment, and had already made arrangements for a caretaker whom I stayed with when I was very young.

However, last Tuesday my mom suddenly called me crying profusely, telling me not to get crippled over insecurity to get taller. She claimed I was jumping over a cliff, and only a mother would tell me a truth to not get into making a choice I would regret for the rest of my life, suffering after I get old. I could tell she was really emotional, and I tried discussing with her. However, calm reasoning couldn’t be done at the time. So I just listened, thought about what she said, and told her that I had taken in her concerns and will research more into this matter.

And then, I started to receive messages from my dad, telling me how painful the whole process would be, both the surgery and rehab. I had told him previously that the surgery is performed under anesthesia, and will be taking pain killers making the whole process bearable if I work hard during rehab.

I think this surgery is just really hard for parents to take in. It was like two individual magnets were pieces together, and then suddenly the parents started backing each other up. They had done no prior research whatsoever, and just simply denies me because they thought it was too dangerous and painful.

However, there were some points that they brought up which, to be honest, were also some of my biggest insecurities I couldn’t or didn’t gather enough information with patient’s past experiences from.

First of all, I read about nerve pain in the pdf booklet sent from Paley Institute.

- Nerve injury
    - Nerve injury can occur with any lengthening surgery but is quite uncommon if the rate of distraction does not exceed 1mm per day and if the amount of lengthening is restricted
    - If any motor symptoms (weakness or paralysis of muscles) occur, a nerve decompression surgery should be done as soon as possible. This is a small outpatient surgery.
    - With the PRECICE due to excellent rate control, nerve injury is very rare.
    - While this complication is very uncommon, it if does occur there is no treatment except to wait for the nerve to recover spontaneously which it usually does.
However, II also read in a patients experience diary that
- most patients will go through nerve pain during their lengthening phase.
    - Patients sprouts of nerve pain during 2-5.5cm growth.

What I am really concerned on is, and couldn’t research much information on is:

    1. Does the nerve pain really go away after 1-2 years or are there still some times zapping pain after years of the surgery? Because there are so many nerves and muscle being cut open during the surgery, can they really heal together that well? Not to mention the bone mass cut open.

    2. Especially after we get old, will the wounded areas perhaps feel a vivid amount of pain for example on a cold or humid day?

Because I am also in the acting career, I am also very concerned with:

    3. After the surgery, and perhaps 1 or several year of recovery
        - Are we able to stand up for a long time? Or will our stamina/ability to stand for long time be hindered?
        - How about running stamina?Will it also decrease a lot, speaking from experience?

Because sometimes when shooting tv shows or movies, we might need to stand up for maybe up to 7-8 hours per day. There may be also running or fighting scenes. So I am really concerned.

Thank you so much for reading through this, and I would be super thankful if you’d like to share some information or previous experience with me. There isn’t a lot of time left before the surgery, and I am so stressed… ;-;

Sincerely,
Tom

[youyin12]

Your parents are not surgeons, so they do not have relevant experience and knowledge. Regarding the topics of nerve damage and pain that you mentioned, in short, if you undergo surgery with Dr. Paley or another excellent doctor, there is a 99% chance that there will be no serious complications. However, this is still a surgical procedure, so you need to have a strong spirit.

[Bagga]

阿金鼓谱

Hi guys, I am a newcomer to this forum, hopefully will be doing the surgery later this year with Dr. Paley.

2 month ago, I told my dad and mom separately that I was going to do the surgery, they initially shown some concern. I told them that I have done research, told them that the option I chose had a success rate of at least 95%, and taken considerations to minimize the risks.
- Only planning to do femur for 5.5cm, which should be relatively very low risk shown by previous experiences of fellow members of the community and information exchange with Dr. Paley’s team
- Have been stretching everyday for 4 months prior to the surgery so less strain is put on the body in the rehab stage

They ultimately agreed individually. I made my payment, and had already made arrangements for a caretaker whom I stayed with when I was very young.

However, last Tuesday my mom suddenly called me crying profusely, telling me not to get crippled over insecurity to get taller. She claimed I was jumping over a cliff, and only a mother would tell me a truth to not get into making a choice I would regret for the rest of my life, suffering after I get old. I could tell she was really emotional, and I tried discussing with her. However, calm reasoning couldn’t be done at the time. So I just listened, thought about what she said, and told her that I had taken in her concerns and will research more into this matter.

And then, I started to receive messages from my dad, telling me how painful the whole process would be, both the surgery and rehab. I had told him previously that the surgery is performed under anesthesia, and will be taking pain killers making the whole process bearable if I work hard during rehab.

I think this surgery is just really hard for parents to take in. It was like two individual magnets were pieces together, and then suddenly the parents started backing each other up. They had done no prior research whatsoever, and just simply denies me because they thought it was too dangerous and painful.

However, there were some points that they brought up which, to be honest, were also some of my biggest insecurities I couldn’t or didn’t gather enough information with patient’s past experiences from.

First of all, I read about nerve pain in the pdf booklet sent from Paley Institute.

- Nerve injury
    - Nerve injury can occur with any lengthening surgery but is quite uncommon if the rate of distraction does not exceed 1mm per day and if the amount of lengthening is restricted
    - If any motor symptoms (weakness or paralysis of muscles) occur, a nerve decompression surgery should be done as soon as possible. This is a small outpatient surgery.
    - With the PRECICE due to excellent rate control, nerve injury is very rare.
    - While this complication is very uncommon, it if does occur there is no treatment except to wait for the nerve to recover spontaneously which it usually does.
However, II also read in a patients experience diary that
- most patients will go through nerve pain during their lengthening phase.
    - Patients sprouts of nerve pain during 2-5.5cm growth.

What I am really concerned on is, and couldn’t research much information on is:

    1. Does the nerve pain really go away after 1-2 years or are there still some times zapping pain after years of the surgery? Because there are so many nerves and muscle being cut open during the surgery, can they really heal together that well? Not to mention the bone mass cut open.

    2. Especially after we get old, will the wounded areas perhaps feel a vivid amount of pain for example on a cold or humid day?

Because I am also in the acting career, I am also very concerned with:

    3. After the surgery, and perhaps 1 or several year of recovery
        - Are we able to stand up for a long time? Or will our stamina/ability to stand for long time be hindered?
        - How about running stamina?Will it also decrease a lot, speaking from experience?

Because sometimes when shooting tv shows or movies, we might need to stand up for maybe up to 7-8 hours per day. There may be also running or fighting scenes. So I am really concerned.

Thank you so much for reading through this, and I would be super thankful if you’d like to share some information or previous experience with me. There isn’t a lot of time left before the surgery, and I am so stressed… ;-;

Sincerely,
Tom

I did Femur and gained 8.5cm.
6cm should be ok

[Charizard]

Your parents are not surgeons, so they do not have relevant experience and knowledge. Regarding the topics of nerve damage and pain that you mentioned, in short, if you undergo surgery with Dr. Paley or another excellent doctor, there is a 99% chance that there will be no serious complications. However, this is still a surgical procedure, so you need to have a strong spirit.

Yeah totally. Nerve damage risk during surgery it self is highly unlikely. However it may happen if you lengthen your bones too fast.

[guy_incognito]

if you take your time with lengthening, the risk is close to zero. Just dont overdo it

[reaching_goals]

阿金鼓谱

Hi guys, I am a newcomer to this forum, hopefully will be doing the surgery later this year with Dr. Paley.

2 month ago, I told my dad and mom separately that I was going to do the surgery, they initially shown some concern. I told them that I have done research, told them that the option I chose had a success rate of at least 95%, and taken considerations to minimize the risks.
- Only planning to do femur for 5.5cm, which should be relatively very low risk shown by previous experiences of fellow members of the community and information exchange with Dr. Paley’s team
- Have been stretching everyday for 4 months prior to the surgery so less strain is put on the body in the rehab stage

They ultimately agreed individually. I made my payment, and had already made arrangements for a caretaker whom I stayed with when I was very young.

However, last Tuesday my mom suddenly called me crying profusely, telling me not to get crippled over insecurity to get taller. She claimed I was jumping over a cliff, and only a mother would tell me a truth to not get into making a choice I would regret for the rest of my life, suffering after I get old. I could tell she was really emotional, and I tried discussing with her. However, calm reasoning couldn’t be done at the time. So I just listened, thought about what she said, and told her that I had taken in her concerns and will research more into this matter.

And then, I started to receive messages from my dad, telling me how painful the whole process would be, both the surgery and rehab. I had told him previously that the surgery is performed under anesthesia, and will be taking pain killers making the whole process bearable if I work hard during rehab.

I think this surgery is just really hard for parents to take in. It was like two individual magnets were pieces together, and then suddenly the parents started backing each other up. They had done no prior research whatsoever, and just simply denies me because they thought it was too dangerous and painful.

However, there were some points that they brought up which, to be honest, were also some of my biggest insecurities I couldn’t or didn’t gather enough information with patient’s past experiences from.

First of all, I read about nerve pain in the pdf booklet sent from Paley Institute.

- Nerve injury
    - Nerve injury can occur with any lengthening surgery but is quite uncommon if the rate of distraction does not exceed 1mm per day and if the amount of lengthening is restricted
    - If any motor symptoms (weakness or paralysis of muscles) occur, a nerve decompression surgery should be done as soon as possible. This is a small outpatient surgery.
    - With the PRECICE due to excellent rate control, nerve injury is very rare.
    - While this complication is very uncommon, it if does occur there is no treatment except to wait for the nerve to recover spontaneously which it usually does.
However, II also read in a patients experience diary that
- most patients will go through nerve pain during their lengthening phase.
    - Patients sprouts of nerve pain during 2-5.5cm growth.

What I am really concerned on is, and couldn’t research much information on is:

    1. Does the nerve pain really go away after 1-2 years or are there still some times zapping pain after years of the surgery? Because there are so many nerves and muscle being cut open during the surgery, can they really heal together that well? Not to mention the bone mass cut open.

    2. Especially after we get old, will the wounded areas perhaps feel a vivid amount of pain for example on a cold or humid day?

Because I am also in the acting career, I am also very concerned with:

    3. After the surgery, and perhaps 1 or several year of recovery
        - Are we able to stand up for a long time? Or will our stamina/ability to stand for long time be hindered?
        - How about running stamina?Will it also decrease a lot, speaking from experience?

Because sometimes when shooting tv shows or movies, we might need to stand up for maybe up to 7-8 hours per day. There may be also running or fighting scenes. So I am really concerned.

Thank you so much for reading through this, and I would be super thankful if you’d like to share some information or previous experience with me. There isn’t a lot of time left before the surgery, and I am so stressed… ;-;

Sincerely,
Tom

Your parents are just being parents. You need to be strong and stick with this if this is really what you want cause you could very easily feel an emotional rollercoaster through this procedure. If you're doing precise 2 than youll be wheelchair bound for 4 months best case scenario and that can be tough for even the most mentally strong ppl like me. Im very strong mentally but almost broke down 100x's during it. Being handicapped is a huge adjustment. If youre going with the weighbearing nail which i doubt cause its not even out yet unless the Paley Inst has it then it'll be slightly easier. This procedure isnt easy especially for those who aren't 100 percent sure in on it. From my experience every patient i knew out of 12 they all got nerve pain including myself. they all got it at different times but they all experienced different pain levels. Some could handle it others couldn't but they all endured and reached their goal altho some stopped earlier thaan they previously stated but claimed nerve pain wasnt the issue. You will also get tired of the routine of stretching everyday, doing pt everyday, and just the grind which is why its very important to have a good support system. This is why its very good you told your parents know you just got to get them to see this procedure is not what they think. Best of Luck.

[TommyC]

Thank you so much for sharing with me in my post. After reading the posts, I only have one more concern:
- will my lower body stamina fully recover after perhaps 1 year of surgery? For example, will I be able to stand or run for quite a period of time? I remember seeing a post of someone skiing after surgery. This is really important because I am pursuing in the acting career and in the future, I may need to stand up for a long time.

Thank you so much!

[TommyC]

I did Femur and gained 8.5cm.
6cm should be ok

Thank you so much for sharing with me in my post. After reading the posts, I only have one more concern:
- will my lower body stamina fully recover after perhaps 1 year of surgery? For example, will I be able to stand or run for quite a period of time? I remember seeing a post of someone skiing after surgery. This is really important because I am pursuing in the acting career and in the future, I may need to stand up for a long time.

Thank you so much!

[TommyC]

Yeah totally. Nerve damage risk during surgery it self is highly unlikely. However it may happen if you lengthen your bones too fast.

Thank you so much for sharing with me in my post. After reading the posts, I only have one more concern:
- will my lower body stamina fully recover after perhaps 1 year of surgery? For example, will I be able to stand or run for quite a period of time? I remember seeing a post of someone skiing after surgery. This is really important because I am pursuing in the acting career and in the future, I may need to stand up for a long time.

Thank you so much!