阿金鼓谱
Hi guys, I am a newcomer to this forum, hopefully will be doing the surgery later this year with Dr. Paley.
2 month ago, I told my dad and mom separately that I was going to do the surgery, they initially shown some concern. I told them that I have done research, told them that the option I chose had a success rate of at least 95%, and taken considerations to minimize the risks.
- Only planning to do femur for 5.5cm, which should be relatively very low risk shown by previous experiences of fellow members of the community and information exchange with Dr. Paley’s team
- Have been stretching everyday for 4 months prior to the surgery so less strain is put on the body in the rehab stage
They ultimately agreed individually. I made my payment, and had already made arrangements for a caretaker whom I stayed with when I was very young.
However, last Tuesday my mom suddenly called me crying profusely, telling me not to get crippled over insecurity to get taller. She claimed I was jumping over a cliff, and only a mother would tell me a truth to not get into making a choice I would regret for the rest of my life, suffering after I get old. I could tell she was really emotional, and I tried discussing with her. However, calm reasoning couldn’t be done at the time. So I just listened, thought about what she said, and told her that I had taken in her concerns and will research more into this matter.
And then, I started to receive messages from my dad, telling me how painful the whole process would be, both the surgery and rehab. I had told him previously that the surgery is performed under anesthesia, and will be taking pain killers making the whole process bearable if I work hard during rehab.
I think this surgery is just really hard for parents to take in. It was like two individual magnets were pieces together, and then suddenly the parents started backing each other up. They had done no prior research whatsoever, and just simply denies me because they thought it was too dangerous and painful.
However, there were some points that they brought up which, to be honest, were also some of my biggest insecurities I couldn’t or didn’t gather enough information with patient’s past experiences from.
First of all, I read about nerve pain in the pdf booklet sent from Paley Institute.
- Nerve injury
- Nerve injury can occur with any lengthening surgery but is quite uncommon if the rate of distraction does not exceed 1mm per day and if the amount of lengthening is restricted
- If any motor symptoms (weakness or paralysis of muscles) occur, a nerve decompression surgery should be done as soon as possible. This is a small outpatient surgery.
- With the PRECICE due to excellent rate control, nerve injury is very rare.
- While this complication is very uncommon, it if does occur there is no treatment except to wait for the nerve to recover spontaneously which it usually does.
However, II also read in a patients experience diary that
- most patients will go through nerve pain during their lengthening phase.
- Patients sprouts of nerve pain during 2-5.5cm growth.
What I am really concerned on is, and couldn’t research much information on is:
1. Does the nerve pain really go away after 1-2 years or are there still some times zapping pain after years of the surgery? Because there are so many nerves and muscle being cut open during the surgery, can they really heal together that well? Not to mention the bone mass cut open.
2. Especially after we get old, will the wounded areas perhaps feel a vivid amount of pain for example on a cold or humid day?
Because I am also in the acting career, I am also very concerned with:
3. After the surgery, and perhaps 1 or several year of recovery
- Are we able to stand up for a long time? Or will our stamina/ability to stand for long time be hindered?
- How about running stamina?Will it also decrease a lot, speaking from experience?
Because sometimes when shooting tv shows or movies, we might need to stand up for maybe up to 7-8 hours per day. There may be also running or fighting scenes. So I am really concerned.
Thank you so much for reading through this, and I would be super thankful if you’d like to share some information or previous experience with me. There isn’t a lot of time left before the surgery, and I am so stressed… ;-;
Sincerely,
Tom