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Author Topic: Research / studies on long term effects of LL  (Read 413 times)

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palm_trees

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Research / studies on long term effects of LL
« on: August 12, 2023, 02:42:18 PM »

I’ve seen some frequent concerns people have about LL and the long term effects. I have found some research that have given me some peace of mind.

Here is LL study and follow up on 75 patients with dwarfism, over a span of 33 year period, from 1987 to 2020.

https://www.mdpi.com/2227-9067/8/7/540


The following is from the results section:
While there were various complications during lengthening [**[4](https://www.mdpi.com/2227-9067/8/7/540#B4-children-08-00540)**,**[12](https://www.mdpi.com/2227-9067/8/7/540#B12-children-08-00540)**], for the purpose of this end-result study, we only tabulated the ones that led to permanent sequalae. One female patient, aged 16, developed paraparesis upon waking up from anesthesia at the time of removal of the external fixators after a successful second 2-segment lower-limb lengthening (total length gain was 25 cm). She did not have any neurologic dysfunction during the distraction or consolidation phases. She did have a recognized thoracolumbar kyphosis which her neurosurgeon elected not to treat since she was asymptomatic. The paraparesis was treated by decompression and fusion and did improve, although she was left with some permanent lower-limb weakness. A second patient developed RSD after humeral lengthening. This eventually resolved after decompression of ulnar and radial nerves.

Other long-term findings not directly related to lengthening included one patient who committed suicide several years after finishing lengthening. He had always expressed satisfaction with the lengthening. He apparently struggled with depression while studying in university, unbeknownst to his parents and friends. Three patients had significant hip dysplasia. Two of these were treated by periacetabular osteotomy immediately after completing lengthenings. A third patient went on to develop arthritis of one hip which will likely require a total hip replacement. **No other patients developed degenerative joints of hips, knees, or ankles. There was no evidence of radiographic deterioration of the joints after recovering from lengthening**. Five patients developed spinal stenosis requiring surgery, either prior to, during treatment, or at a later date remote from the lengthening.

Keep in mind the average lengthening in the study above was over 20 cm for patients as they have dwarfism.

==============•=========••••==

CYBORG 4 life interview with Paley:



When asked the question of possible Kate consequences from LL, dr Paley responded if you can get through the process of LL you will not see deterioration.

Says even 30 years later, patients joints still look as healthy as since right after they finished end of lengthening.


I would like for y’all to check out of my info, particularly the study I linked above, and tell me your own thoughts on the long term effects of LL. Thanks.
- check the last sections where someone asks dr. Paley of any possible long term bad effects.
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