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Author Topic: Stopping short of 8CM Precice 2.2  (Read 2646 times)

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uponly

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Re: Stopping short of 8CM Precice 2.2
« Reply #31 on: April 14, 2023, 05:44:36 PM »

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Thanks for the response. The input of your PT is valuable, but I will say that speaking with Dr. Assayag most of his patients that willingly stop short of 8CM are satisfied. In a weird way, your PT's opinion carries more weight with me since they are working closer with patients day in and day out.

We get caught up with numbers in these spaces: lengthening 8CM, being 180CM, 6 feet.  It's more of a feeling we should be aiming for w/ this process, or a lack of a worry about our height.

A major downside of the non-stryde nails is that you don't get to experience your new height as it comes , unless you are using your walker around other people. You're usually not out in normal social situations that would trigger your height dysphoria, so how do you know if its still there? How do we know if that "feeling" has been reached?

I am sure at your starting height you get people asking why you would even bother with this surgery, but you have the same dysphoria that anyone else getting this surgery has. In my opinion, once you've reached a point where that dysphoria is gone, you've won, and it is time to move onto other things. Statistically, going from 179 to 185 is jumping 23 percentiles in height. That is a pretty big difference. That additional 2 CM bumps you up another 4.4 percentiles. Its definitely a case of diminishing returns. Listen to your body, and do what feels right. You'll have my support regardless.

The way I look at it, is will I ever be in a situation where I will think "Darn, If I was 1.7CM taller I would feel so much better right now"? I can't see it. Its more likely I am in a situation where I think I need 4 CM more and need to go get my tibias done. I hope that day never comes, but I can't completely rule it out. Truthfully I am human and I will probably rationalize whatever decision I make.

My experience with CLL is that so many aspects are individualized: pain (I have a LOT), bone growth (mine is literally through the roof), sleep (12 hours a day with no issues other than pain), and so on. My femurs were VERY short before this procedure, so much so that people close to me observed on that, and so did Dr. Rozbruch. More than having the height increase, the procedure brought me into a better proportional ratio overall.

I walk around on my walker quite a bit. My height neurosis went away immediately after the surgery, literally, because I knew I was able to finally control the situation and do something about it. I've been very open about the surgery with many people in family and friend circle. They come over to visit and the change thus far is startling. I can actually see it myself, so I can gauge the difference on a daily basis, in real time. It's not about a number for me. It's about doing this once and putting the procedure in the rearview mirror. For that aspect, and that aspect alone, as long as my body allows, I'm going to finish. Once I'm done, I want to be able to say I did everything I set out to do.

That's it. For you, only you can know what's right. Whatever choice you make, as long as you're happy with that, it's the right one.
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Starting height: 5'10"ish (179cm).   Desired height: 6'1.5" (187cm).   Achieved on 5/31/23: 6'1.5" (187.3 cm).

Disclaimer: I am not a doctor. Nothing I post is intended to be or interpreted as medical advice. I am posting about my CLL experience for informational purposes only

p00293

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Re: Stopping short of 8CM Precice 2.2
« Reply #32 on: April 14, 2023, 08:15:48 PM »

I dislike the terms 'neurosis' and 'dysphoria'. Makes it seem like this isn't actually a real problem, and instead more like some bull  mental issue.

No, it's not all in your head. You really are at a disadvantage in a great many things in life if you're short. That's the cold hard facts.

YES, if it's got to the point you can't even walk in the street, you do have mental issues AS WELL. But as for disliking being short? No, that's not all in your head, it's because it's objectively BAD in society to be short as a man.

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FortunateSon

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Re: Stopping short of 8CM Precice 2.2
« Reply #33 on: April 14, 2023, 10:52:59 PM »

My experience with CLL is that so many aspects are individualized: pain (I have a LOT), bone growth (mine is literally through the roof), sleep (12 hours a day with no issues other than pain), and so on. My femurs were VERY short before this procedure, so much so that people close to me observed on that, and so did Dr. Rozbruch. More than having the height increase, the procedure brought me into a better proportional ratio overall.

I walk around on my walker quite a bit. My height neurosis went away immediately after the surgery, literally, because I knew I was able to finally control the situation and do something about it. I've been very open about the surgery with many people in family and friend circle. They come over to visit and the change thus far is startling. I can actually see it myself, so I can gauge the difference on a daily basis, in real time. It's not about a number for me. It's about doing this once and putting the procedure in the rearview mirror. For that aspect, and that aspect alone, as long as my body allows, I'm going to finish. Once I'm done, I want to be able to say I did everything I set out to do.

That's it. For you, only you can know what's right. Whatever choice you make, as long as you're happy with that, it's the right one.

Very well put my friend. If you said you were going to do the full 8 CM prior, go for it. I will keep following your progress and wish you the best!
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throwaway123456

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Re: Stopping short of 8CM Precice 2.2
« Reply #34 on: April 26, 2023, 12:59:55 PM »

Hi, Yes at 5.6 cm I was far more flexible, those last few cm to reach 8cm almost did me in lol, I was lengthening only 0.25 mm some days and took a few days off.
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ballsackoffury123

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Re: Stopping short of 8CM Precice 2.2
« Reply #35 on: April 26, 2023, 05:55:53 PM »

Hi, Yes at 5.6 cm I was far more flexible, those last few cm to reach 8cm almost did me in lol, I was lengthening only 0.25 mm some days and took a few days off.

I'm so sad Im at 34 mm right now and started doing 0.75mm a day on my femurs already because of nerve pains. I'm not tight, but the nerve issues makes my sleep miserable. I feel like not sleeping on my back (with my legs straight) also makes my hamstring tighter since sleeping with your legs straight is like a free stretch. If i continue at 0.75mm a day I will have almost 60 days until i hit 8cm. fking miserable 60 days, I dont even want to know how bad it'll get when I hit 70mm.
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hippo60

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Re: Stopping short of 8CM Precice 2.2
« Reply #36 on: April 26, 2023, 06:59:24 PM »

I'm so sad Im at 34 mm right now and started doing 0.75mm a day on my femurs already because of nerve pains. I'm not tight, but the nerve issues makes my sleep miserable. I feel like not sleeping on my back (with my legs straight) also makes my hamstring tighter since sleeping with your legs straight is like a free stretch. If i continue at 0.75mm a day I will have almost 60 days until i hit 8cm. fking miserable 60 days, I dont even want to know how bad it'll get when I hit 70mm.

Hang in there! That 2.5cm to 4mm is quite brutal mentally, but it's gets easier after that. It's very individualistic, but 6cm to 8cm wasn't a huge difference for me. Keep stretching and it'll make things easier. Talk to your PT about your nerve pain, he might be able to release it, and if not - you can take Gabapentin (if you're not taking already). And last, I suggest don't count the days yet, it's a bit early for that  ;)
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uponly

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Re: Stopping short of 8CM Precice 2.2
« Reply #37 on: April 26, 2023, 09:11:37 PM »

I'm so sad Im at 34 mm right now and started doing 0.75mm a day on my femurs already because of nerve pains. I'm not tight, but the nerve issues makes my sleep miserable. I feel like not sleeping on my back (with my legs straight) also makes my hamstring tighter since sleeping with your legs straight is like a free stretch. If i continue at 0.75mm a day I will have almost 60 days until i hit 8cm. fking miserable 60 days, I dont even want to know how bad it'll get when I hit 70mm.

Bro, sleeping on my back but with my legs bent (pillow under my knees) was a godsend when I had nerve pain. This was a tip from Moshe, the famous LL PT - I had a consult with him because my nerve pain was skyrocketing. He said you need to give your nerves a break and a chance to heal, and this will do it. You can go back to straight legs once this is done.

He was right. I did this and this "hack" was magic. Nerve pain went away that night through the night, and went away totally in a week and a half. Hippo06 is right that 2.5 to 4 is the worst. You get a grab bag of different pain every day and it's super frustrating.

Believe it or not, 5 to 6 has been smooth sailing for me thus far, and I don't expect that to change through 8cm. Hang in there!!
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Starting height: 5'10"ish (179cm).   Desired height: 6'1.5" (187cm).   Achieved on 5/31/23: 6'1.5" (187.3 cm).

Disclaimer: I am not a doctor. Nothing I post is intended to be or interpreted as medical advice. I am posting about my CLL experience for informational purposes only

ballsackoffury123

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Re: Stopping short of 8CM Precice 2.2
« Reply #38 on: April 26, 2023, 11:26:33 PM »

fk these are some solid tips.  Yeah that mental barrier where I’m like ..bruh I’m not even half way stinks. And yes taking gaba 300mg 3x per day.  It’s gotten better over the last week though not gone.
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hippo60

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Re: Stopping short of 8CM Precice 2.2
« Reply #39 on: April 27, 2023, 12:31:19 AM »

fk these are some solid tips.  Yeah that mental barrier where I’m like ..bruh I’m not even half way stinks. And yes taking gaba 300mg 3x per day.  It’s gotten better over the last week though not gone.

Exactly! Don't think about the end, just think about making 4cm. Things will start to turn around then ;)
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Kanye Western

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Re: Stopping short of 8CM Precice 2.2
« Reply #40 on: April 27, 2023, 04:26:21 AM »

Bro, if you feel good after 6cm and notice it’s getting harder definitely stop at now. 6cm is a lot, and people who tend to do 6cm and under not only recover faster, get on and enjoy life.

179cm is a perfect height, you know how brutal this surgery is, don’t risk it for the sake of people able to say I’m 181cm lol.

Anyways it’s your body, listen to your body. 
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ballsackoffury123

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Re: Stopping short of 8CM Precice 2.2
« Reply #41 on: April 27, 2023, 04:55:36 AM »

Bro, if you feel good after 6cm and notice it’s getting harder definitely stop at now. 6cm is a lot, and people who tend to do 6cm and under not only recover faster, get on and enjoy life.

179cm is a perfect height, you know how brutal this surgery is, don’t risk it for the sake of people able to say I’m 181cm lol.

Anyways it’s your body, listen to your body.

nah dumb mentality. I’m going for the full 8 to get 182 for sure. I’ll listen to my body and slow down if I have to, but even at 79mm there’s 0 chance of me stopping. I don’t care if people will notice a 1mm difference.
I’m totally fine with settling for 0.25mm a day if god forbids but there’s no reason I’d have to stop 2 cm short of what my potential is.
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Kanye Western

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Re: Stopping short of 8CM Precice 2.2
« Reply #42 on: April 27, 2023, 05:02:20 AM »

nah dumb mentality. I’m going for the full 8 to get 182 for sure. I’ll listen to my body and slow down if I have to, but even at 79mm there’s 0 chance of me stopping. I don’t care if people will notice a 1mm difference.
I’m totally fine with settling for 0.25mm a day if god forbids but there’s no reason I’d have to stop 2 cm short of what my potential is.

You’re not doing this to cure your height dysphoria then, you’re just doing to be able to say you’re 6’0”.

Anyways your body, your choice. Your doctor does his job prescribing the pain medication, organising the necessary PT requirements and performing the surgery successfully.

If patients ignore listening to their body (and have to slow down lengthening,etc), should embrace you’ll be talking a few extra months of recovery and hardship, and for what extra 2cm? When you can reach 6cm almost issue free and recovery super quick!
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p00293

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Re: Stopping short of 8CM Precice 2.2
« Reply #43 on: April 27, 2023, 05:37:34 AM »

You’re not doing this to cure your height dysphoria then, you’re just doing to be able to say you’re 6’0”.

Anyways your body, your choice. Your doctor does his job prescribing the pain medication, organising the necessary PT requirements and performing the surgery successfully.

If patients ignore listening to their body (and have to slow down lengthening,etc), should embrace you’ll be talking a few extra months of recovery and hardship, and for what extra 2cm? When you can reach 6cm almost issue free and recovery super quick!

'A few extra months' (let's say 3) for a 2cm gain is absolutely worth it. I'd cancel a year of my life no problem to be 8cm taller so sure I'd do 3 months/2cm which is probably about what we're looking at here.

And yes 2cm is noticeable and will make a difference before the usual suspects come in.
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ballsackoffury123

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Re: Stopping short of 8CM Precice 2.2
« Reply #44 on: April 27, 2023, 05:51:22 AM »

yeah wtf. i already went through the hardest part (surgery + 2 weeks after) and paid my $70k. Why tf would i stop short of 2 cm, if it means i have to take an extra 1 month of lengthening to slow down.

It's like you saying you studied really hard for the test, but since your burnt out after studying. youre only going to take half the test and let your brain rest for the other half. No bro, you went through the hardest part. you had a goal, now suck it up and get to your goal. Listening to the doctor/body means slowing down when necessary. Not giving up.
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Kanye Western

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Re: Stopping short of 8CM Precice 2.2
« Reply #45 on: April 27, 2023, 06:07:48 AM »

Well that’s fair, everyone’s different!

I just want more success stories from people where they recovered fully and on time. I’m a couple days after surgery and I feel good, but my goal still is 6cm.
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