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[Yau]

Wanna to know have anyone regret of doing CLL?
Any advice to prospective patients?
If I can afford enough money with premium surgeon, do u guys recommend a caring surgeon.
I am considering Dr Assayag, Dr Paley and Dr Lee. Please give me some opinions.

[uponly]

I have no regrets from doing LL. It's the best decision I've ever made.

Every doctor you listed is very credible. I would definitely add Dr. Rozbruch to that list. Along with Dr. Paley, he is considered the best in the world at this procedure. I can tell you from personal experience that he very much cares about his patients, and his team is top-notch. He is also the head of orthopedics at arguably the best orthopedic hospital in the world (HSS).

You're on the right track. Do not compromise on Dr. quality, and using the right nail (Precise 2.2 is the best available on the market as of now). I would consult with all of them, and then decide where to do the surgery. In Asia, Dr. Lee is obviously the first choice. In the US, it depends on whether you would be more comfortable on your own or prefer to stay locally, which Drs. Paley and Assayag require. For me, Dr. Rozbruch's approach to PT, his patient demeanor, and the fact that I could go home and be in an environment that was more conducive for me to thrive in sealed the decision.

But really, you can't go wrong with any of those doctors. Have a healthy diet and good Vitamin D and Calcium levels before the surgery, take the recommended supplements and eat lots of protein, and follow the Dr.'s protocols to the letter, and you will have a successful outcome.

[Yau]

I have no regrets from doing LL. It's the best decision I've ever made.

Every doctor you listed is very credible. I would definitely add Dr. Rozbruch to that list. Along with Dr. Paley, he is considered the best in the world at this procedure. I can tell you from personal experience that he very much cares about his patients, and his team is top-notch. He is also the head of orthopedics at arguably the best orthopedic hospital in the world (HSS).

You're on the right track. Do not compromise on Dr. quality, and using the right nail (Precise 2.2 is the best available on the market as of now). I would consult with all of them, and then decide where to do the surgery. In Asia, Dr. Lee is obviously the first choice. In the US, it depends on whether you would be more comfortable on your own or prefer to stay locally, which Drs. Paley and Assayag require. For me, Dr. Rozbruch's approach to PT, his patient demeanor, and the fact that I could go home and be in an environment that was more conducive for me to thrive in sealed the decision.

But really, you can't go wrong with any of those doctors. Have a healthy diet and good Vitamin D and Calcium levels before the surgery, take the recommended supplements and eat lots of protein, and follow the Dr.'s protocols to the letter, and you will have a successful outcome.

Thanks a lot!
Your advice helps me a lot. Yes, Dr R is one of the best. I have already contacted Dr Donghoon Lee. His staff said” Since a lot of international patients ask for more availability for surgery, Dr. Lee has created another operation room and more facilities; therfore, you can make an appointment even this year if you want.” It is so good! I watched most of videos in Dr Lee’s YouTube channel. I think he is a caring and experienced doctor. I also contacted Dr Paley’s staff. The cost of Paley institute includes PT sessions, it is 5 sessions per week during lengthening phase. He has a reliable PT team.
After I talked with them, I believe that  I can’t go wrong with those great doctors and PT.

[tempthrowaway]

What is the average wait time on docs in USA? Do most docs require you to book surgery a year+ in advance?

[Yau]

What is the average wait time on docs in USA? Do most docs require you to book surgery a year+ in advance?

I have already asked the Paley institute’s staff, they said 2-3 months in advance.

[tempthrowaway]

I have already asked the Paley institute’s staff, they said 2-3 months in advance.

That’s not too bad. Thanks

[tallerwouldbenice]

No regrets. One of the best things I did in my life. Bilateral femurs with Paley about a year ago

[Yau]

No regrets. One of the best things I did in my life. Bilateral femurs with Paley about a year ago

After 1 year, how is your current  recovery condition? Do u walk normal? Do u try running or playing sports? While u have stayed in WPB, other patients in Paley institute s also did well?

[Sigma]

There are many patients with CLL. Most do not publish diaries. As long as you don't experience complications, you will never regret it. Some people have 2 surgeries and they are out of proportion, so there are those who regret it.

[tallerwouldbenice]

After 1 year, how is your current  recovery condition? Do u walk normal? Do u try running or playing sports? While u have stayed in WPB, other patients in Paley institute s also did well?

Recovery very good. I have lost a ton of flexibility, but I don't care. It might come back, it might not. I never wanted to run marathons anyway

[Siegfried]

Only regret is not doing it 5 years earlier! Best thing I ever did

[Yau]

Recovery very good. I have lost a ton of flexibility, but I don't care. It might come back, it might not. I never wanted to run marathons anyway

U said u have lost a ton of flexibility, please tell me some details. I like swimming and playing tennis, can I do these after recovery?

[Yau]

Only regret is not doing it 5 years earlier! Best thing I ever did

Wow!👍How is your athletic ability now?

[p00293]

I don't know why so many are so concerned with their 'athletic ability'. You see some weirdos on here who are hesitant to get surgery cos muh I won't be able to squat again.

Who gives a fk about your squat? It's much more beneficial to life to be 2-3 inches taller than be able to squat any amount of weight, or play some stupid amateur sports or whatever. Who cares if you can't run 100 metres as quickly as you used to, 99% of the time legs are used for walking or climbing stairs, and I honestly can't remember the last time I had to run somewhere.

Just get it, be taller, enjoy your increased social opportunities and just live with the TINY fking tradeoff that your leg days aren't going to be anything impressive going forward.

[lessthanavg8300]

If you keep the femur/tibia ratio within the normal distribution you can gain most of your atheletic ability back.  The people who dont are those who throw their ratio way off.  Key word being "can".  You have to work to gain muscle and its not easy when you're older.

[Yau]

I don't know why so many are so concerned with their 'athletic ability'. You see some weirdos on here who are hesitant to get surgery cos muh I won't be able to squat again.

Who gives a fk about your squat? It's much more beneficial to life to be 2-3 inches taller than be able to squat any amount of weight, or play some stupid amateur sports or whatever. Who cares if you can't run 100 metres as quickly as you used to, 99% of the time legs are used for walking or climbing stairs, and I honestly can't remember the last time I had to run somewhere.

Just get it, be taller, enjoy your increased social opportunities and just live with the TINY fking tradeoff that your leg days aren't going to be anything impressive going forward.

Ok! I understand. Different people have different mindsets. Some people enjoy “playing some stupid amateur sports or whatever”. Yes, I play sports every weekend and enjoy it, so I concern “athletic ability” and want to get back. Some people like playing online games or addict the internet world or other indoor hobbies, so they don’t care “athletic ability. I understand it is a trade off and accept losing some athletic ability(maybe 10-20%). But I will also try my best to recover my athletic ability.

[tallerwouldbenice]

I'm quite active, meaning I work out. LL does not stop me from working out. I am essentially back at my previous personal record on the main machine that I used to track my ability.

You won't be able to run marathons though.

[Siegfried]

I'm quite active, meaning I work out. LL does not stop me from working out. I am essentially back at my previous personal record on the main machine that I used to track my ability.

You won't be able to run marathons though.

I fully intend on running marathons again though, however i already did this before surgery. I do not see a reason why, I should not be able to do this again. However I probably wont be breaking any personal records though

[Yau]

I'm quite active, meaning I work out. LL does not stop me from working out. I am essentially back at my previous personal record on the main machine that I used to track my ability.

You won't be able to run marathons though.

So you regained your athletic ability after consolidation phase? U totally recovered now?

[Yau]

I fully intend on running marathons again though, however i already did this before surgery. I do not see a reason why, I should not be able to do this again. However I probably wont be breaking any personal records though

Looking forward you run marathons again! Wish u recover well!

[trademitech]

I’ll put it this way - I woke up for 3 months lengthening my femurs. Extremely painful nerve pain in my tibias, my feet swell up to the size of baseballs, and I woke up puking every single morning for 4 months straight. I lost 35lbs of muscle mass, and I lost nearly all of my range of motion in my legs.

It changed my life completely, and I am still on the shorter side @ 5’6 post femur lengthening. I would 100% do it all again.

[junior006]

most say it was the best decision in their lives and that they'd do it again. as long as they didn't end up with major complications (osteomyelitis, nonunion, etc)

[sphenopetroclival]

I would definitely add Dr. Rozbruch to that list.

It's unlikely that OP would fit into the patient profile that Doctor Rozbruch would elect to treat. Referrals would likely be made to Betz, Paley, or Kandemir.