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Poll

Former Patients, what was the hardest part during your LL journey?

Pain during the post operative phase and nerve pain developing later during distraction
- 4 (22.2%)
Having to stretch 2 hours a day and going to physical therapy 3 times a week
- 3 (16.7%)
Social isolation and the mental strain of being disabled for at least 5 months.
- 5 (27.8%)
The time commitment of having to take 5 months out of your life to get an elective procedure
- 2 (11.1%)
I had some complication that made everything much harder
- 1 (5.6%)
other
- 2 (11.1%)
Clicking / Lengthening each day
- 1 (5.6%)

Total Members Voted: 18


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Author Topic: Hardest Part During Limb Lengething  (Read 1469 times)

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stretched

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Hardest Part During Limb Lengething
« on: January 25, 2023, 10:51:09 PM »

Hello LL Community.
So many prospective patients are curious about what they will face when undergoing LL. There are many obstacles you must overcome during LL which are no walk in the park. Hopefully this poll will better gauge what people should be prepared for when undergoing CLL.
Previous patients, What was the biggest obstacle you have encountered when undergoing CLL?

I am going to be posting and bumping a few polls in order to get more categorical data on CLL.
Feel free to elaborate
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Goal: 161cm -> 170cm Quad Lengthening ~2026

KiloKAHN

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Re: Hardest Part During Limb Lengething
« Reply #1 on: January 25, 2023, 11:32:40 PM »

Hardest part for me was the constant insomnia. Sleeping pills only helped so much and there were times I was so exhausted and wanted to sleep but just couldn't.
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Initial height: 164 cm / ~5'5" (Surgery on 6/25/2014)
Current height: 170 cm / 5'7" (Frames removed 6/29/2015)
External Tibia lengthening performed by Dr Mangal Parihar in Mumbai, India.
My Cosmetic Leg Lengthening Experience

Medium Drink Of Water

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Re: Hardest Part During Limb Lengething
« Reply #2 on: January 26, 2023, 01:56:41 AM »

Constant low-level discomfort.
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hippo60

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Re: Hardest Part During Limb Lengething
« Reply #3 on: January 26, 2023, 02:05:59 AM »

Constant low-level discomfort.

100%. Kinda interesting that nobody talks about it, and also interesting that so many years later you still remember  :-X
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readyprecisestryde

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Re: Hardest Part During Limb Lengething
« Reply #4 on: January 26, 2023, 05:33:17 AM »

Nerve pain ..it took awhile for it to go away
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Medium Drink Of Water

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Re: Hardest Part During Limb Lengething
« Reply #5 on: January 26, 2023, 07:03:53 AM »

100%. Kinda interesting that nobody talks about it, and also interesting that so many years later you still remember  :-X

Yeah, being mildly uncomfortable non-stop for 4.5 months straight really wears you down physically and mentally.
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hippo60

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Re: Hardest Part During Limb Lengething
« Reply #6 on: January 26, 2023, 03:08:50 PM »

Yeah, being mildly uncomfortable non-stop for 4.5 months straight really wears you down physically and mentally.

Tell me about it, have a long way to go  ::)
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oklama

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Re: Hardest Part During Limb Lengething
« Reply #7 on: January 28, 2023, 08:52:38 PM »

how does it compare to the constant low to high level discomfort of height dysphoria. I expect when I get this done it will honestly be less pain daily just trading mental pain for physical pain but physical pain for a purpose!
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19 yrs old
goal: 173 (8cm)
looking at giotikas or becker
maybe will get to 180cm eventually

lessthanavg8300

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Re: Hardest Part During Limb Lengething
« Reply #8 on: January 29, 2023, 01:50:57 PM »

You should have put lengthening every day (clicking).  That would be my choice.
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Gained 3.2CM on femurs for a final height of 5'8.5-5'8.75.

lessthanavg8300

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Re: Hardest Part During Limb Lengething
« Reply #9 on: January 29, 2023, 01:52:14 PM »

how does it compare to the constant low to high level discomfort of height dysphoria. I expect when I get this done it will honestly be less pain daily just trading mental pain for physical pain but physical pain for a purpose!

LL is like taking all your future neurosis pain and bottling it/condensing it into a few month time frame.
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Gained 3.2CM on femurs for a final height of 5'8.5-5'8.75.

stretched

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Re: Hardest Part During Limb Lengething
« Reply #10 on: January 29, 2023, 03:02:43 PM »

LL is like taking all your future neurosis pain and bottling it/condensing it into a few month time frame.

How bad was your pain right out of surgery for its worst and how long did it last for?
And how bad was that surgical pain compared to the clicking pain? Is it the lengthening of the bone that is more painful or the clicking motion itself that hurts like a bitch?
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Goal: 161cm -> 170cm Quad Lengthening ~2026

lessthanavg8300

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Re: Hardest Part During Limb Lengething
« Reply #11 on: January 29, 2023, 07:01:16 PM »

How bad was your pain right out of surgery for its worst and how long did it last for?
And how bad was that surgical pain compared to the clicking pain? Is it the lengthening of the bone that is more painful or the clicking motion itself that hurts like a bitch?

The surgical pain doesnt matter at all.  It lasts like a few days and then its over.  It definitely sucks but it comes and goes and then its done.  The clicking however is a marathon of pain and discomfort.  Every day you have to do this sh!t.  And knowing its an everyday thing messes with your head.

Its both, the clicking hurts and feels unnatural, this is by far the worst part.  And then when you're done you have this mild distraction pain that lasts for like half the day and you also you get tight and everything you did to get loose is evaporated and you start over.
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Gained 3.2CM on femurs for a final height of 5'8.5-5'8.75.

bocklecrt3

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Re: Hardest Part During Limb Lengething
« Reply #12 on: January 29, 2023, 07:31:06 PM »

The surgical pain doesnt matter at all.  It lasts like a few days and then its over.  It definitely sucks but it comes and goes and then its done.  The clicking however is a marathon of pain and discomfort.  Every day you have to do this sh!t.  And knowing its an everyday thing messes with your head.

Its both, the clicking hurts and feels unnatural, this is by far the worst part.  And then when you're done you have this mild distraction pain that lasts for like half the day and you also you get tight and everything you did to get loose is evaporated and you start over.

youre definitely right about the initial pain that it goes away quick and its a distant memory

but about the daily clicks, how much painkillers do you take? it shouldnt be such a torturous process with the clicks, especially its said betzbone clicks easier than guichet nail


as per the topic subject, for me as a lon tibia patient, id say the hardest part was to get used to back sleeping after a lifetime of side sleeping in the fetal position. took me 3 weeks of semi-insomnia to get used to it

if i could i wouldve taught myself back sleeping for 6 months before i started the LL process
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lessthanavg8300

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Re: Hardest Part During Limb Lengething
« Reply #13 on: January 29, 2023, 07:49:20 PM »

youre definitely right about the initial pain that it goes away quick and its a distant memory

but about the daily clicks, how much painkillers do you take? it shouldnt be such a torturous process with the clicks, especially its said betzbone clicks easier than guichet nail


as per the topic subject, for me as a lon tibia patient, id say the hardest part was to get used to back sleeping after a lifetime of side sleeping in the fetal position. took me 3 weeks of semi-insomnia to get used to it

if i could i wouldve taught myself back sleeping for 6 months before i started the LL process

I think some people have an easier time with the clicking.  I just absolutely hate it.

Honestly it seems people hate different things.  Like for me the stretching is no big deal.  I did like 4 hours this morning of stretching, walking and bike riding.  Whatever, that was easy.

And I like sleeping on my back, but you hated that.  So its just individual I suppose.

I take a fentanyl before I click.  100 micrograms (not to be confused with milligrams)
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Gained 3.2CM on femurs for a final height of 5'8.5-5'8.75.

oklama

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Re: Hardest Part During Limb Lengething
« Reply #14 on: January 30, 2023, 01:13:16 AM »

LL is like taking all your future neurosis pain and bottling it/condensing it into a few month time frame.

that would require being hit by a car every single day
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19 yrs old
goal: 173 (8cm)
looking at giotikas or becker
maybe will get to 180cm eventually
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