Hi everyone,
Since the last update, I've been doing quite well, and have been transferred from the hospital to the rehab clinic.
POD 5-10
I was discharged from the hospital on POD 5, after some baseline bloodwork and x rays of my bilateral legs. Getting out of the hospital has been great for my mental health, as there's not too much for you to do in your hospital room. Also the hospital food was starting to get kind of boring. The rehab center is actually quite nice, and is attached to the hotel. My room is an upgraded hotel one, with accommodations for disabilities, which has been nice. The room is quite spacious, and there is pretty good Wi-Fi access here. The rehab center/hotel is equipped with a fairly robust gym and physiotherapists. You have the option of eating included meals at the clinic, but I would highly recommend paying the extra 71 EUR per day to switch to the hotel meal plan. There's nothing quite as demotivating as finishing 4 hours of stretching, then physio, then cardio to eat cold bread and canned fish for dinner. The food at the hotel side, however, is fantastic.
My mobility has continued to improve since the surgery on two crutches. I am able to move short distances on one or zero crutches, however, my gait is quite poor, and I find it to be highly energy consuming, so this is something that I will have to train more later. I find that my mobility can vary highly depending the amount of sleep I've been getting (more on this later), as well as levels of pain/stiffness, so there are always dips and peaks with this, but overall, I am happy with my progress at POD 10.
As far as pain goes, I found that the surgical pain actually decreased significantly by POD 5. Due to my rapid progress, Dr. Becker suggested that I start clicking earlier, on POD 5, and so I did. As of POD 8 I have been doing 20 clicks a day, and I am now experiencing fairly deep, boring, persistent bony pain, about 4-10 in character. This can be managed with the tilidine that is prescribed, however, this becomes a larger issue at night, where higher potency opioids have been required.
Sleep has been quite poor since I have started clicking. It's often hard to fall asleep if you are in pain, and I find that I am woken up by pain around 0300. Further complicating things are the sweats that I have been experiencing with tilidine, which make sleeping quite uncomfortable. I had tried sleeping on my side one night, and this was a huge mistake due to the resultant pain I experienced upon wakening.
Clicking was initially quite difficult and incredibly painful for me on the first few days, however, now both the motion and the pain have been quite manageable. It takes me about 20 minutes to complete my clicking, however, the first click on each leg can take up to 3 minutes of loosening myself up. I find that this is easier after showering and stretching rather than attempting to do this cold.
Stretching is prescribed to you 4 hours a day. It is highly recommended that you do at least this amount, otherwise you may develop complications such as unremitting stiffness, wide legs, or anterior-pelvic tilt. I won't lie, it does get pretty drab at times, however, I can often watch TV while stretching which is nice. I will stress that the stretching should be at an intensity where you won't be able to focus completely on the screen, but having something on does help pass the time.
The care by Dr. Becker and his team remains excellent. Dr. Becker has continued to round on me every day except Sunday, which was Christmas. He takes my concerns regarding sleep and pain quite seriously, and will work out solutions with me. He is also involved in teaching you proper stretching maneouvers. He also continues to perform wound checks appropriately. Dr. Becker is assisted by Tonja, who is able to help you with everything else associated with your stay, such as getting items that you need or lending you her theragun. She's quite uplifting. I was also visited by their personal trainer David today, who pushes me to perform the stretches more accurately and intensely.
Overall, things are looking good, but there's still a very long road ahead. I'm actually most concerned about dealing with the airports on the way back!
Questions for other LLers:
1) How do you deal with getting your luggage checked in, getting through security, and physically getting on and off the plane?
2) I'm only prescribed 400 IU of Vitamin D daily, which is quite low. Dr. Becker states that he is concerned with pre-consolidation, so he would prefer a smaller amount at least for the first 4 cm, but 400 IU is even less than the daily recommended amount in my country, and also much lower than what other surgeons prescribe. I trust Dr. Becker, but I was hoping to get everyone else's thoughts on this.