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Author Topic: Did 7 cm on Tibia, developed crazy nerve pain after frame removal.  (Read 837 times)

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saltedchocolate

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NO DOCTORS WILL BE MENTIONED.
Hi there everyone,
I did LON on my tibias and since I had a 1 cm discrepancy on my left leg, I lengthened it to 7 cm and right leg to 6.
So Up until 5 cm, everything was aight. My right leg had reached 6 cm and we stopped lengthening it. ( I was lengthening 1mm per day). so after that my doctor told me to speed up my left leg's lengthening to 1.25 mm per day and he told me that we'd slow down as soon as i get nerve pain. So about after 5-6 days of doing 1.25, I got nerve pain and then he didn't ask me to stop but told me that i should lengthen at 1 mm again. I didn't know about this forum back then or else i could do proper research that we should do only .75 or .66 for the tibias. However, I was given gabapentin and the nerve pain went away. cool!

Another thing to note is that I had a lot of ballerina so I got ballerina surgery too, on the same day as the frame removal.
Right after frame removal. I noticed that my toes are CLAWED. and i had crazy nerve pain in my foot , it felt like its on fire and that something very tight is squeezing it. After that i notice that the sole of my left foot is fully numb. but i have nerve pain there.

It's now been 2 months since my frame removal. I'm definetly better than before but the nerve pain is still there. I'm taking gabapentin for nerve pain and Ibuprofen for normal pain.

My question is, What is causing this foot numbness? my sole is still completely numb and when will the nerve pain go away? It's super uncomfortable
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7 cm gained on tibias via LON .  Had complications, Healed and moved on with life.

LIVELIFETHEWAYIWANT

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Re: Did 7 cm on Tibia, developed crazy nerve pain after frame removal.
« Reply #1 on: November 30, 2022, 06:24:53 PM »

7 cm is maxed out , you LLed too fast , nerve pain can not be treated .In your case , just hope your muscle heals then the pain goes away .

When I was doing femur and I had knee pain . I told my PT , he told my doctor , my doctor's assistant told me to stop LL just to be safe , I declined .

My doctor took a knee X ray after and told me I was fine  . Then my knee pain went away after I get home .

One thing I learned from my experience is that if anything happens , take a break from LL and let your body catch up .
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Asian male 36 LL 04/01-07/03 2022 FEMUR 8CM/3" Precise2.2
Hardware removal July 24th 2024 .
height 5'10"  wingspan 5'10"
Should I do tibia next ?

QuarkSoup

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Re: Did 7 cm on Tibia, developed crazy nerve pain after frame removal.
« Reply #2 on: December 01, 2022, 08:24:16 PM »

"I had a lot of ballerina so I got ballerina surgery too" wouldn't that be fixed by itself just by walking around?
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Pre-surgery Height: 173.5cm (5'9)
New Height: 182cm (6'0), gained 8.5cm on Femurs
Surgery Dates: 22 Nov 2022 LON on Femurs,  device removal on 9th Feb 2023
Surgeon: Yunus Oc, wannabetaller, Istanbul Turkey
http://www.limblengtheningforum.com/index.php?topic=78384.0

Charizard

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Re: Did 7 cm on Tibia, developed crazy nerve pain after frame removal.
« Reply #3 on: December 02, 2022, 10:26:30 AM »

NO DOCTORS WILL BE MENTIONED.
Hi there everyone,
I did LON on my tibias and since I had a 1 cm discrepancy on my left leg, I lengthened it to 7 cm and right leg to 6.
So Up until 5 cm, everything was aight. My right leg had reached 6 cm and we stopped lengthening it. ( I was lengthening 1mm per day). so after that my doctor told me to speed up my left leg's lengthening to 1.25 mm per day and he told me that we'd slow down as soon as i get nerve pain. So about after 5-6 days of doing 1.25, I got nerve pain and then he didn't ask me to stop but told me that i should lengthen at 1 mm again. I didn't know about this forum back then or else i could do proper research that we should do only .75 or .66 for the tibias. However, I was given gabapentin and the nerve pain went away. cool!

Another thing to note is that I had a lot of ballerina so I got ballerina surgery too, on the same day as the frame removal.
Right after frame removal. I noticed that my toes are CLAWED. and i had crazy nerve pain in my foot , it felt like its on fire and that something very tight is squeezing it. After that i notice that the sole of my left foot is fully numb. but i have nerve pain there.

It's now been 2 months since my frame removal. I'm definetly better than before but the nerve pain is still there. I'm taking gabapentin for nerve pain and Ibuprofen for normal pain.

My question is, What is causing this foot numbness? my sole is still completely numb and when will the nerve pain go away? It's super uncomfortable


Probably your doctor irritated or damaged the peroneal nerve during fixator removal. I believe there is no treatment for that. Usually inexperienced surgeons does that mistake Dr Paley was mentioned about it once.
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Current Height:5ft9''
Target Height:6ftAge:32
Stretching my legs everyday
I’m exposing scammer limb lengthening clinics in my Twitter account.
https://x.com/charizard780

HeightGain

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Re: Did 7 cm on Tibia, developed crazy nerve pain after frame removal.
« Reply #4 on: December 02, 2022, 01:14:14 PM »

Might be more to it than just perineal nerve. If the whole of the sole is numb then there must be an issue with the tibial nerve. This suggests more of a global nerve picture due to fast lengthening, but could be a bit of both
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Charizard

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Re: Did 7 cm on Tibia, developed crazy nerve pain after frame removal.
« Reply #5 on: December 02, 2022, 05:00:35 PM »

Might be more to it than just perineal nerve. If the whole of the sole is numb then there must be an issue with the tibial nerve. This suggests more of a global nerve picture due to fast lengthening, but could be a bit of both

I do not think so, if it was more than his leg would have paralysed.
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Current Height:5ft9''
Target Height:6ftAge:32
Stretching my legs everyday
I’m exposing scammer limb lengthening clinics in my Twitter account.
https://x.com/charizard780

saltedchocolate

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Re: Did 7 cm on Tibia, developed crazy nerve pain after frame removal.
« Reply #6 on: December 04, 2022, 03:51:36 PM »

When can i expect the pain to go away? the nerve pain is super annoying. I'm getting an MRN (Magnetic Resonance NEUROGRAPHY) soon to see what the hell is actually going on
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7 cm gained on tibias via LON .  Had complications, Healed and moved on with life.

saltedchocolate

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Re: Did 7 cm on Tibia, developed crazy nerve pain after frame removal.
« Reply #7 on: December 04, 2022, 03:52:56 PM »

Yeah, Seems like the tibial nerve is disturbed or damaged. i had a NCS conducted which showed Dysfunction of the same. Getting an MRN soon to get a clear picture
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7 cm gained on tibias via LON .  Had complications, Healed and moved on with life.

saltedchocolate

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Re: Did 7 cm on Tibia, developed crazy nerve pain after frame removal.
« Reply #8 on: December 04, 2022, 04:00:00 PM »

Maybe the tibial nerve is compressed through the tarsal tunnel only. IN that case i'd need decompression
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7 cm gained on tibias via LON .  Had complications, Healed and moved on with life.

HeightGain

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Re: Did 7 cm on Tibia, developed crazy nerve pain after frame removal.
« Reply #9 on: December 04, 2022, 04:06:41 PM »

I do not think so, if it was more than his leg would have paralysed.

You can't explain the sensory loss without the tibial nerve being affected.
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saltedchocolate

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Re: Did 7 cm on Tibia, developed crazy nerve pain after frame removal.
« Reply #10 on: December 04, 2022, 04:17:16 PM »

Yup! Exactly my point. I will update y'all after the MRN. I hope The nerve is not cut or anything.
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7 cm gained on tibias via LON .  Had complications, Healed and moved on with life.

saltedchocolate

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Re: Did 7 cm on Tibia, developed crazy nerve pain after frame removal.
« Reply #11 on: December 04, 2022, 04:17:50 PM »

You can't explain the sensory loss without the tibial nerve being affected.
yea
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7 cm gained on tibias via LON .  Had complications, Healed and moved on with life.
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