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Author Topic: Question About Procedure and Future Outlook  (Read 598 times)

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littleboybigdream

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Question About Procedure and Future Outlook
« on: November 08, 2022, 02:24:09 AM »

Hi Everyone.

I've lurked around on this forum for quite a bit, and I'm aware what I'm going to say goes strongly against the grain of what accepted knowledge is here.

With that said, I'll make this quick.

Me: 19M, 5'7", 145lbs, wingspan 6', can afford to burn $700k, current LBR: 0.52

I want to opt for Paley's Option 5:

4cm Femur + 4cm Tibia -> 1 Year Timeskip -> Re-break, 4cm Femur + 4cm Tibia

Totalling 16cm (6.3inch).

Dr. Paley states that separating both these procedures by a year would allow soft tissues, with the proper PT and Nutrition, to heal well, allowing the next surgery to be well-tolerated (well, at least when compared with someone who'd do all of it at once).

I'm aware Apotheosis did 20cm, and I have no intentions of going that far.

I believe my proportions should be okayish. I've uploaded a picture of an artificial mockup.

How realistic is this goal? Will my young age improve my outcome? One of my hobbies is mountaineering and I want to be able to do that after LL. Will that be possible?

Thank you!



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littleboybigdream

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Re: Question About Procedure and Future Outlook
« Reply #1 on: November 08, 2022, 02:31:16 AM »

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hippo60

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Re: Question About Procedure and Future Outlook
« Reply #2 on: November 08, 2022, 03:40:36 PM »

What makes you think/wonder it's not realistic?
Also, did you consult with Paley?
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littleboybigdream

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Re: Question About Procedure and Future Outlook
« Reply #3 on: November 08, 2022, 06:49:58 PM »

I have a consultation scheduled for next year.

I am concerned - for the most part because I believe Dr. Paley hasn't done Option 5 much, due to its incredible cost.
When he has lengthened great amounts, it has mostly been in patients with achondroplasia, who have plenty of muscular reserve slack to tolerate the lengthening.

Given that I am not achondroplastic, I am worried about range of motion and tightness in the future.
Mountaineering requires great flexibility and endurance - traits that have suffered in people doing LL.

Normally I'd let the idea go - but what makes me unsure is the staggered lengthening. I intuitively believe that the staggered lengthening will allow for much better recovery, and that I can regain athletic functioning afterwards (maybe copium, that's why I wanted 2nd opinions)

Thank you!
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littleboybigdream

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Re: Question About Procedure and Future Outlook
« Reply #4 on: November 09, 2022, 04:42:43 PM »

Sry bump
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hippo60

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Re: Question About Procedure and Future Outlook
« Reply #5 on: November 10, 2022, 03:07:03 PM »

I mean, he has done thousands of surgeries over multiple decades - I'm pretty sure he saw everything by now. If he's offering this as an option, I think it's fair to assume it's "realistic" and safe in general. If you're not a good fit (for whatever reason) then he'll let you know during the consultation.  He's not going to risk his reputation for an extra $100k, right?

I agree with you regarding staggered lengthening, that's my assumption as well. But either way, don't think anyone (including Paley) will be able to tell you with 100% certainty what the recovery is going to look like. I think going into this, you have to accept losing some level of athletic ability as a trade-off. And I'm talking about bilateral LL. The more you do, the more you'll need to accept, and if you can't? Maybe you shouldn't do it.

I wonder if you can start with 4+4 (pay for option 3) and then a year (or more) later ask to do another 4+4 and pay the delta. Feels more reasonable to me.
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SpeedDialer

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Re: Question About Procedure and Future Outlook
« Reply #6 on: November 11, 2022, 04:08:36 PM »

Hi Everyone.

I've lurked around on this forum for quite a bit, and I'm aware what I'm going to say goes strongly against the grain of what accepted knowledge is here.

With that said, I'll make this quick.

Me: 19M, 5'7", 145lbs, wingspan 6', can afford to burn $700k, current LBR: 0.52

I want to opt for Paley's Option 5:

4cm Femur + 4cm Tibia -> 1 Year Timeskip -> Re-break, 4cm Femur + 4cm Tibia

Totalling 16cm (6.3inch).

Dr. Paley states that separating both these procedures by a year would allow soft tissues, with the proper PT and Nutrition, to heal well, allowing the next surgery to be well-tolerated (well, at least when compared with someone who'd do all of it at once).

I'm aware Apotheosis did 20cm, and I have no intentions of going that far.

I believe my proportions should be okayish. I've uploaded a picture of an artificial mockup.

How realistic is this goal? Will my young age improve my outcome? One of my hobbies is mountaineering and I want to be able to do that after LL. Will that be possible?

Thank you!

You have 700k USD to burn? Then..

My vote is to do the 16cm option with Dr. Paley because Paley claims to have excellent results in returning people to full function. You can always decrease the goal slightly later if things get rough or the legs look long (ex: could do 4+4 femur, 4+2 tibia)

And Paley uses precise! So you can also reverse (shorten) if the legs start to look weird from too much length. I think if thats a concern it might be good to get one of those tall vertical mirrors to look at yourself each week to gauge if things start to look strange from too much length so you can decide if you ever want to stop/reverse

I don't know if you'll be able to do mountaineering but Paley does have videos showing his former patients running and doing other strenuous physical activities after a full recovery

« Last Edit: November 11, 2022, 05:04:52 PM by SpeedDialer »
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