Topic: Completed 6cm femur LL with dr mangal parihar using precice 2.2 (8.5mm) AMA (Read 10297 times)

tallmen · « **on:** July 29, 2022, 05:38:38 PM »

My original target was 8 cm but I got early consolidation at 6cm. Will go for rebreak in the next 6-9 months. AMA

Vogel · « **Reply #1 on:** July 29, 2022, 07:38:53 PM »

How was your overall experience with the doctor and how’s the PT over there?

How come you didn’t increase the lengthening rate to avoid early consolidation?

Thehighest · « **Reply #2 on:** July 29, 2022, 11:54:36 PM »

Is the hospital still very ugly??? Or they improved ir?? Is LON safe there?

6CMFemurs · « **Reply #3 on:** July 30, 2022, 01:47:50 AM »

How come you used 8.5 mm version of nail?

tallmen · « **Reply #4 on:** July 30, 2022, 09:11:45 AM »

Quote from: 6CMFemurs on July 30, 2022, 01:47:50 AM

How come you used 8.5 mm version of nail?

My bones are small like a child lol.

tallmen · « **Reply #5 on:** July 30, 2022, 09:13:08 AM »

Quote from: Thehighest on July 29, 2022, 11:54:36 PM

Is the hospital still very ugly??? Or they improved ir?? Is LON safe there?

It's not ugly at all. It's clean and looks fine. I don't think LON is safe anywhere. I wouldn't recommend LON.

tallmen · « **Reply #6 on:** July 30, 2022, 09:14:37 AM »

Quote from: Vogel on July 29, 2022, 07:38:53 PM

How was your overall experience with the doctor and how’s the PT over there?

How come you didn’t increase the lengthening rate to avoid early consolidation?

I was doing 0.9 mm per day initially then doc increased it to 1.2mm per day but I still got it even after 1.2 mm per day. I even stopped taking calcium supplements but couldn't stop my bones from fusing together. PT is mediocre at best. I didn't do much PT throughout the process. Overall exp with doc is pretty good they know their stuff and took all the precautions during and after the surgery.

Vogel · « **Reply #7 on:** July 30, 2022, 09:34:53 AM »

Good to hear that as I myself am considering them for CLL. Regarding PT, I think I will have to put in the extra work.

Vogel · « **Reply #8 on:** July 30, 2022, 09:43:21 AM »

what’s was the weight bearing protocol and are you weight bearing now? I remember doctor said that he will be more aggressive with weight bearing as he does more precise patients.

Now that you are 6cm taller how does it feel and what’s your starting height if I may ask?

How come you will re-break after 6-9 months and not now?

Dirona · « **Reply #9 on:** July 30, 2022, 09:51:59 AM »

Did you discuss the risk of non-union/delayed union with the doc? Is non-union treatable?

RingPacket · « **Reply #10 on:** July 30, 2022, 10:09:11 AM »

congrats

1) why rebreak? just do tibias and get good proportion
2) how did u travel outside of hotel to hospital? and did u have any other medical needs to go to a doctor?
3) what was the protocl taken to prevent blood clotting

tallmen · « **Reply #11 on:** July 30, 2022, 01:29:17 PM »

Quote from: RingPacket on July 30, 2022, 10:09:11 AM

congrats

1) why rebreak? just do tibias and get good proportion
2) how did u travel outside of hotel to hospital? and did u have any other medical needs to go to a doctor?
3) what was the protocl taken to prevent blood clotting

1. I don't have budget to buy another precice for tibia and I won't do external.
2. I am living in a rented flat with 2 flatmates/friends. I use a wheelchair taxi service called mobicab.
3. They put you on dvt pump after the surgery and prescribe blood thinners for 30 days but you can continue to take them for 3 months if you want. I didn't take any blood thinners at all.

tallmen · « **Reply #12 on:** July 30, 2022, 01:30:24 PM »

Quote from: Realistic on July 30, 2022, 09:51:59 AM

Did you discuss the risk of non-union/delayed union with the doc? Is non-union treatable?

I remember discussing all the risks before the surgery. They try to fix non-union by some medicines first and then if it doesn't work then they do bone grafting.

tallmen · « **Reply #13 on:** July 30, 2022, 01:32:38 PM »

Quote from: Vogel on July 30, 2022, 09:43:21 AM

what’s was the weight bearing protocol and are you weight bearing now? I remember doctor said that he will be more aggressive with weight bearing as he does more precise patients.

Now that you are 6cm taller how does it feel and what’s your starting height if I may ask?

How come you will re-break after 6-9 months and not now?

I am walking with a walker and putting full weight on my legs while standing. Hopefully, I can get rid of the walker in a few weeks. I don't feel much different tbh that's why I'll go for rebreak. My initial height was 164cm.

ilovescience · « **Reply #14 on:** July 30, 2022, 01:35:45 PM »

Quote from: overandover on July 30, 2022, 01:32:38 PM

I am walking with a walker and putting full weight on my legs while standing. Hopefully, I can get rid of the walker in a few weeks. I don't feel much different tbh that's why I'll go for rebreak. My initial height was 164cm.

I hope you recover fast and everything goes well. Are you planning doing second LL after this?

Dirona · « **Reply #15 on:** July 30, 2022, 01:51:41 PM »

Did you use any caretaker service during your rehab or did one of your family members help you during the distraction process? Do you think it is required to have a family member support during this process?

tallmen · « **Reply #16 on:** July 30, 2022, 02:21:32 PM »

Quote from: Realistic on July 30, 2022, 01:51:41 PM

Did you use any caretaker service during your rehab or did one of your family members help you during the distraction process? Do you think it is required to have a family member support during this process?

I used a caretaker service. It's not possible without a caretaker or family member.

tallmen · « **Reply #17 on:** July 30, 2022, 02:23:06 PM »

Quote from: ilovescience on July 30, 2022, 01:35:45 PM

I hope you recover fast and everything goes well. Are you planning doing second LL after this?

Nope, just rebreak and more lengthening in femur for now. No immediate plans for tibia lengthening.

Vogel · « **Reply #18 on:** July 30, 2022, 02:36:57 PM »

1- How’s your range of motion with 6 cm of extra height?

2- How often you do PT?

3- if you were to redo this procedure, would you still go to Dr. Mangal?

4- do you have any advice for me regarding the procedure and this doctor?

Thank you very much for taking the time to answer these questions. I really appreciate and hope all keeps going well for you.

Dirona · « **Reply #19 on:** July 30, 2022, 02:53:57 PM »

Thanks for answering all the questions OverandOver..
Few last ones

1. How did you come to terms with the risks of the surgery? Is it by thinking that major complications are rare and other ones could be handled by a competent surgeon?

2. How long did you think/ research about this surgery before taking the plunge? Did it take time for you to come out of analysis-paralysis mode?

3. Were you scared/nervous before the procedure?

4. Is your height dysphoria almost cured?

tallmen · « **Reply #20 on:** July 30, 2022, 03:15:20 PM »

Quote from: Vogel on July 30, 2022, 02:36:57 PM

1- How’s your range of motion with 6 cm of extra height?

2- How often you do PT?

3- if you were to redo this procedure, would you still go to Dr. Mangal?

4- do you have any advice for me regarding the procedure and this doctor?

Thank you very much for taking the time to answer these questions. I really appreciate and hope all keeps going well for you.

1. If you are talking about knee bending then it's like 110 - 120 degrees.
2. 3-4 times a week (not much). My hamstrings are very tight.
3. Yes
4. Having a positive mental attitude and a good support system is very important.

tallmen · « **Reply #21 on:** July 30, 2022, 03:21:30 PM »

Quote from: Realistic on July 30, 2022, 02:53:57 PM

Thanks for answering all the questions OverandOver..
Few last ones

1. How did you come to terms with the risks of the surgery? Is it by thinking that major complications are rare and other ones could be handled by a competent surgeon?

2. How long did you think/ research about this surgery before taking the plunge? Did it take time for you to come out of analysis-paralysis mode?

3. Were you scared/nervous before the procedure?

4. Is your height dysphoria almost cured?

1. I was mainly scared of dvt and fat embolism. The risks are almost the same as getting a femur fracture so I decided to take that risk.
2. I was very clear about getting it done so the only hard part was to convince my parents.
3. Not really.
4. No, I am still short. I need to be at least 5'8 to cure my height dysphoria.That's why I'll go for rebreak.

RingPacket · « **Reply #22 on:** July 30, 2022, 06:10:28 PM »

you were afraid of dvt but did not take any blood thinners??

did you inform this to the team and they said ok?

RingPacket · « **Reply #23 on:** July 30, 2022, 06:17:48 PM »

why not rebreak now itself? you are anyway kind of disabled right now. why recover and then again use weelchair?

tallmen · « **Reply #24 on:** July 30, 2022, 07:36:33 PM »

Quote from: RingPacket on July 30, 2022, 06:17:48 PM

why not rebreak now itself? you are anyway kind of disabled right now. why recover and then again use weelchair?

Doc said he'll not rebreak the regenerate part and I think it'll be better to do stretching so that I can go full 8cm and even more if possible. I don't want to rebreak and stop again because of some muscle or nerve issue so better to take some time to stretch.

tallmen · « **Reply #25 on:** July 30, 2022, 07:38:03 PM »

Quote from: RingPacket on July 30, 2022, 06:10:28 PM

you were afraid of dvt but did not take any blood thinners??

did you inform this to the team and they said ok?

I had some kind of allergic reaction to both aspirin (aspirin-induced asthma) and Xarelto (stomach issues) so I was using a DVT pump instead.

RingPacket · « **Reply #26 on:** July 31, 2022, 03:51:20 AM »

Quote from: overandover on July 30, 2022, 07:36:33 PM

Doc said he'll not rebreak the regenerate part and I think it'll be better to do stretching so that I can go full 8cm and even more if possible. I don't want to rebreak and stop again because of some muscle or nerve issue so better to take some time to stretch.

how can you go even more if the nail cannot extend beyond 8cm? you wll have to change the nail to a new one.

RingPacket · « **Reply #27 on:** July 31, 2022, 03:54:37 AM »

Quote from: overandover on July 30, 2022, 07:38:03 PM

I had some kind of allergic reaction to both aspirin (aspirin-induced asthma) and Xarelto (stomach issues) so I was using a DVT pump instead.

did you inform the doctor about this?

its quite serious to not take blood thinners. i hope you figure something out before your next surgery if u get dvt the treatment is mainly blood thinners.better to find a medication that works for u. why not take injections that will prevent stomach issues?

RingPacket · « **Reply #28 on:** July 31, 2022, 04:02:44 AM »

what support system did u have for mental support? is it too difficult to endure this alone with just a hired helper?

were u properly examined by the doctor during follow up visit? did he check for flexibility, nerve damage, and so on or just xrays?

did you have any other medical needs during lengthening like visiting a general physician or something? did u use that mobile cab service for that also?

did you get general anesthesia or spinal? was it horrible to wake up from general?

tallmen · « **Reply #29 on:** July 31, 2022, 06:09:13 AM »

Quote from: RingPacket on July 31, 2022, 04:02:44 AM

what support system did u have for mental support? is it too difficult to endure this alone with just a hired helper?

were u properly examined by the doctor during follow up visit? did he check for flexibility, nerve damage, and so on or just xrays?

did you have any other medical needs during lengthening like visiting a general physician or something? did u use that mobile cab service for that also?

did you get general anesthesia or spinal? was it horrible to wake up from general?

1. I had a helper and I was living with 2 friends. Parents used to call me every day.
2. He examined flexibility and xrays.
3. I had stomach issues and some allergic reactions. I used remote consultation for that.
4. I took spinal and I was awake during the surgery.

ilovescience · « **Reply #30 on:** July 31, 2022, 07:17:34 AM »

Quote from: overandover on July 31, 2022, 06:09:13 AM

1. I had a helper and I was living with 2 friends. Parents used to call me every day.
2. He examined flexibility and xrays.
3. I had stomach issues and some allergic reactions. I used remote consultation for that.
4. I took spinal and I was awake during the surgery.

That sounds very complicated. I hope everything goes well.

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Author Topic: Completed 6cm femur LL with dr mangal parihar using precice 2.2 (8.5mm) AMA (Read 10297 times)