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[rafi2296]

LON Femur - broken bones not straight

Hi everyone, i am 2 weeks post operation and i got some new x-rays and i noticed my bones are bend (not broken straight) , should i be worried?


https://ibb.co/z82pxwG
https://ibb.co/fr4LqY4

i have lengthened 1cm and i been advised to start lengthening 1.5mm / day to avoid fast consolidation. what do you guys think? thanks

[boklecrt]

>LON femur
>1.5mm per day
>obvious bilateral misalignment



gee, i wonder which doctor that might be


OP, why dont you send your xrays to a few doctors emails to ask for opinion? i hear assayag is responsive through email so he might be one of them

[we.live.once]

before the surgery, how did your legs look like when you were standing?

[boklecrt]

before the surgery, how did your legs look like when you were standing?

yeah op should ask buldu for his pre surgery xrays to compare the bone curvature

but from where im standing those bones are misaligned

i thought the nail was inserted before the osteotomy not after as it looks like here

[rafi2296]

Unfortunately i do not have the x-rays before surgery at the moment , i have those , which are right after the surgery. https://ibb.co/6Y55zSP
https://ibb.co/WHb92Vn

Unfortunately my doctor is not very communicative and i’m getting information through some associates. Answer are always “everything is normal, don’t worry” , that’s why i came here for more answers and opinions.

[Medium Drink Of Water]

It looks off to the untrained eye, but I've seen a lot of gaps like this and they're not always a problem.  It's sometimes OK for them to be a little off.

[we.live.once]

it looks like there is a lot of place in your bones, maybe the holes were drilled to big? Or  your bones inside is not strong enough

[JJ299]

>LON femur
>1.5mm per day
>obvious bilateral misalignment



gee, i wonder which doctor that might be


OP, why dont you send your xrays to a few doctors emails to ask for opinion? i hear assayag is responsive through email so he might be one of them

Which Doctot are you mentioning? Just curious.

The only Doctors I see reguarly that have problem with over lenghtening patients is Guichet and the LiveLifeTaller team. Although seeing the X-rays ( looks very familiar to many people that suffered from complication )  I would say LiveLifeTaller.

[rafi2296]

what complications i should expect? im already pretty scared and thinking to remove the device at 3 or 4 cm to have less risks as possible. not to mention the pain im already going through.

i dont want to mention doctor’s name or company yet. i dont want to get more problems beside what i have now or less communication from his side.

[boklecrt]

what complications i should expect? im already pretty scared and thinking to remove the device at 3 or 4 cm to have less risks as possible. not to mention the pain im already going through.

i dont want to mention doctor’s name or company yet. i dont want to get more problems beside what i have now or less communication from his side.

rafi you need to ask your assistant for your presurgery xrays, they are your property, do not be scared of their bullying

have in mind that buldu’s employees are notorious for always using the “everything’s fine” like even when there are current ongoing serious complications

a user here named hasaki developed an infection during the first surgery and had daily discharge of thick white pus and they kept telling him “its fine its fine”

so now, you get your pre surgery xrays and then write emails to these doctors

1 assayag
2 giotikas

and politely ask them to take a look at your xrays and share their opinion and what can be done about it right now when youre still lengthening

if this ends up as bilateral misalignment + 4cm more of bone that would turn into femoral valgus deformity

or it coulr turn into nothing at all, but who’d want to take that chance

also, dont upload screenshots of your camera roll before cropping your xrays, we see your face down in the camera roll

[Maison]

As far as I know, CLL surgery by less skilled doctors is prone to deformity(valgus-flexion deformity of the tibia, varus-flexion deformity of the femur).

Circle type frames can easily correct the deformity, but it may be difficult with monorail.

I don't know if this deformity is severe or not, but if you want treatment, I think you can have a corrective surgery after consolidation.

[boklecrt]

As far as I know, CLL surgery by less skilled doctors is prone to deformity(valgus-flexion deformity of the tibia, varus-flexion deformity of the femur).

Circle type frames can easily correct the deformity, but it may be difficult with monorail.

I don't know if this deformity is severe or not, but if you want treatment, I think you can have a corrective surgery after consolidation.

if this turns out to be what it looks like that would be another example of shocking incompetence by the usual suspects.
you are completely correct, a full circle frame like TSF is needed to correct this, however with the osteotomy being so far up the femur perhaps a bone graft would be a better solution

giotikas would be competent enough to fix this for rafi if it comes to this

hear rafi? giotikas is your guy if you need additional surgery

[rafi2296]

rafi you need to ask your assistant for your presurgery xrays, they are your property, do not be scared of their bullying

so now, you get your pre surgery xrays and then write emails to these doctors

1 assayag
2 giotikas

and politely ask them to take a look at your xrays and share their opinion and what can be done about it right now when youre still lengthening

if this ends up as bilateral misalignment + 4cm more of bone that would turn into femoral valgus deformity

or it coulr turn into nothing at all, but who’d want to take that chance

also, dont upload screenshots of your camera roll before cropping your xrays, we see your face down in the camera roll

Looks like my xray before operation are lost. we might lost them in hospital or ambulance that tool me the the place im staying in during lengthening. i was in so much pain that trip, didn’t though of any of my belongings if they are with me.


Regarding uploading photos, luckily thats no-one even related to my story. but thank you for noticing and letting me know . i dont have a problem showing my face or telling my true experience with them after external fixator is removed. i even consider joining one if cyborg for life lives for that.

[rafi2296]

also i seen similiar x rays with not such a clean cut on AFA instagram and they advertise it as normal

https://ibb.co/fQQn7qw
https://ibb.co/JdzT3Mn

[rafi2296]

Here are my initial x-rays for anyone who asked , finally got them
https://ibb.co/dM1fJX3
https://ibb.co/kDXgyTd
https://ibb.co/V06sv5c
https://ibb.co/dLwXh7S
https://ibb.co/sv5ytgp
https://ibb.co/FVpMsM3


and here are x-rays taken today

https://ibb.co/ZGvqwWM
https://ibb.co/BBv09gR
https://ibb.co/W2H2gML
https://ibb.co/JFmbkz4

the measurements are off and done by myself in different points as by my bone cut is not straight from beginning. Pend bones cut/angle from beginning (which is my first concern)

i willing to get any medicat advice from anyone. idea opinion is very welcomed. thank you!


On external device i’m supposed to be 3.4 cm tales (minus 0.5) which they told me was the device start at beginning but i didn’t checked at the time.


I have very good flexibility on my left leg but only 90 degrees bending on my right

[Charizard]

it looks like there is a lot of place in your bones, maybe the holes were drilled to big? Or  your bones inside is not strong enough

It's looks like they drilled too much to install the nail but during installation they misplaced the nail..

[Maison]

Here are my initial x-rays for anyone who asked , finally got them
https://ibb.co/dM1fJX3
https://ibb.co/kDXgyTd
https://ibb.co/V06sv5c
https://ibb.co/dLwXh7S
https://ibb.co/sv5ytgp
https://ibb.co/FVpMsM3


and here are x-rays taken today

https://ibb.co/ZGvqwWM
https://ibb.co/BBv09gR
https://ibb.co/W2H2gML
https://ibb.co/JFmbkz4

the measurements are off and done by myself in different points as by my bone cut is not straight from beginning. Pend bones cut/angle from beginning (which is my first concern)

i willing to get any medicat advice from anyone. idea opinion is very welcomed. thank you!


On external device i’m supposed to be 3.4 cm tales (minus 0.5) which they told me was the device start at beginning but i didn’t checked at the time.


I have very good flexibility on my left leg but only 90 degrees bending on my right

Perhaps your nail diameter was thinner than the medullary canal at the osteotomy site, resulting in the varus deformity.

If you are concerned about this deformity, you should talk to your doctor about correcting it.
You could try emailing someone who seems to be a reliable doctor. For example, Dr. Paley may reply to you via email.

[boklecrt]

Perhaps your nail diameter was thinner than the medullary canal at the osteotomy site, resulting in the varus deformity.

If you are concerned about this deformity, you should talk to your doctor about correcting it.
You could try emailing someone who seems to be a reliable doctor. For example, Dr. Paley may reply to you via email.

I have been thinking about rafi's situation a lot and can't imagine how this can happen in the first place

You might have a point

So buldu reamed the femur with a certain diameter tool and then inserted a thinner nail than the specifications of the newly rimmed canal? Maybe his team was unprepared or in a hurry so they grabbed whatever IM nail they had at the time of the surgery

Then they affixed the monorail on top near the hip but here is where I have an issue understanding, do you think that when he pushed with the powerdrill on the bottom femur the femur moved just a little bit and misplaced the nail inside?

And then when the monorail is attached no other adjustments can be made? I think you wouldn't be able to treat misalignment with an improperly installed monorail since it's not like a TSF frame where you can turn the frame in multiple axes

I hope rafi asks assayag or giotikas and tells us their opinion

I suppose the misalignment can be treated post consolidation by additional surgery where the surgeon would need to create a wedge in the bone and re-align it. Seems like a quick solution that can be employed in a single surgery

Sucks that rafi might have to do more surgeries and have even longer recovery, hoping assayag or giotikas have a different take here

[Charizard]

By the way whats your nail and fixator brands?

[rafi2296]

Ortovia Eksternal Fixators is the one that i have. my doctor says that during distraction the bone will align itself. if not , what would be the disadvantage? at the moment the only problem i have is that i can’t really measure how much i been lengthen due to that angle cut.

[Maison]

Ortovia Eksternal Fixators is the one that i have. my doctor says that during distraction the bone will align itself. if not , what would be the disadvantage? at the moment the only problem i have is that i can’t really measure how much i been lengthen due to that angle cut.

In my opinion, your deformity (bowleg) will not align with the natural process.
However, I do not know if the deformity will be severe enough to bother you at the end of the bone lengthening.
If you are concerned, I suggest you consult another (including foreign) doctor whom you can contact via email, not your current doctor.

[shortisnotfun]

LON Femur - broken bones not straight

Hi everyone, i am 2 weeks post operation and i got some new x-rays and i noticed my bones are bend (not broken straight) , should i be worried?


https://ibb.co/z82pxwG
https://ibb.co/fr4LqY4

i have lengthened 1cm and i been advised to start lengthening 1.5mm / day to avoid fast consolidation. what do you guys think? thanks

Hey man, how are you doing? How is your progress so far? Any complications?

[rafi2296]

Hey man, how are you doing? How is your progress so far? Any complications?

Not bad. I’m 4.6cm on external frame but i didn’t got more than 2cm in real height. My physiotherapist said that in height is not visible due to bad posture although my posture is pretty straight.

Complications not really, I lost 7kg of weight and some flexibility in right leg. Looks like in the right one, fixator nails are going through IT Bands. I don’t know if they are supposed to avoid them.

[shortisnotfun]

Not bad. I’m 4.6cm on external frame but i didn’t got more than 2cm in real height. My physiotherapist said that in height is not visible due to bad posture although my posture is pretty straight.

Complications not really, I lost 7kg of weight and some flexibility in right leg. Looks like in the right one, fixator nails are going through IT Bands. I don’t know if they are supposed to avoid them.

Sheesh. I heard that LON method makes it so you don't really gain the advertised height anyway. I'm not sure about that though. Hopefully your posture is fixed and I think the physiotherapist would know best. Good luck on the rest of your journey though, and looking forward to your end goal.

[boklecrt]

Sheesh. I heard that LON method makes it so you don't really gain the advertised height anyway. I'm not sure about that though. Hopefully your posture is fixed and I think the physiotherapist would know best. Good luck on the rest of your journey though, and looking forward to your end goal.

Where did you heard that? Maybe you dreamt it

[boklecrt]

Not bad. I’m 4.6cm on external frame but i didn’t got more than 2cm in real height. My physiotherapist said that in height is not visible due to bad posture although my posture is pretty straight.

Complications not really, I lost 7kg of weight and some flexibility in right leg. Looks like in the right one, fixator nails are going through IT Bands. I don’t know if they are supposed to avoid them.

rafi did you speak with any other surgeons for second opinion on your potential misalignment

be very wary of the things the physio says - these people are notorious for lying to patients telling them "its ok dont worry, its normal dont worry etc" while there are serious problems present. just saying, obviously i may be wrong and it also could be that your posture is not that straight as you think it is


try to eat more food, 7 kg loss in 1 month is an extreme amount, thats a massive caloric deficit which is the last thing you need during LL


post your latest xray to see whats going on with the femurs


fixator going through the IT band is unavoidable, you got 4 pins ripping through muscles and tendons and stretching them for months. just one of the many "pleasures" of LON femur

[rafi2296]

https://ibb.co/mXXKkJG
https://ibb.co/NrdVcKj


x-rays taken today. does anyone know a way to measure them more precise? looks like my left leg is a bit shorter so i’m thinking to lengthen left leg a bit more.

[boklecrt]

https://ibb.co/mXXKkJG
https://ibb.co/NrdVcKj


x-rays taken today. does anyone know a way to measure them more precise? looks like my left leg is a bit shorter so i’m thinking to lengthen left leg a bit more.

rafi whats happening with this misalignment, did you speak with any other doctors for additional opinion?

and the measurement is done by the xray machine itself, it seems that the technician didnt turn on the measuring option in his settings

just ask them to start measuring the gap when you get an xray, dont put a ruler on your laptop's display and try to measure the screen or something

[rafi2296]

rafi whats happening with this misalignment, did you speak with any other doctors for additional opinion?

and the measurement is done by the xray machine itself, it seems that the technician didnt turn on the measuring option in his settings

just ask them to start measuring the gap when you get an xray, dont put a ruler on your laptop's display and try to measure the screen or something

Hi! I check with dr. Mustafa Uysal. He ensured me that the misalignment won’t affect my physical abilities or affect my legs appearances. I also asked another physiotherapist who told me that my bones will realign once i will start to gain muscles back on my legs.

I have the measurements provided by my doctor. the machine does not measure itself, measurements are done after via computer software and i was wondering for another opinion to compare how precise they are.

[boklecrt]

Hi! I check with dr. Mustafa Uysal. He ensured me that the misalignment won’t affect my physical abilities or affect my legs appearances. I also asked another physiotherapist who told me that my bones will realign once i will start to gain muscles back on my legs.

I have the measurements provided by my doctor. the machine does not measure itself, measurements are done after via computer software and i was wondering for another opinion to compare how precise they are.

rafi you should have laughed at that physiotherapist in his face when he said that

it doesnt cost you anything to write emails to a bunch of LL docs and ask for this misalignment issue. Visually there is misalignment, its plain as day. You want to avoid misalignment because it would lead to X-legs which is very unsightly and can lead to early arthritis. Do not take the word of the doctor at face value, yes, he might not be purposely misleading you but in the end of the day you see your xrays, we see your xrays, it looks misaligned

and yes, software measures your distance. what is worrying you about this? If you need a SUPER precise measurement you need a lower body CT Scan which will measure to tenth of a millimeter

[shortisnotfun]

rafi you should have laughed at that physiotherapist in his face when he said that

it doesnt cost you anything to write emails to a bunch of LL docs and ask for this misalignment issue. Visually there is misalignment, its plain as day. You want to avoid misalignment because it would lead to X-legs which is very unsightly and can lead to early arthritis. Do not take the word of the doctor at face value, yes, he might not be purposely misleading you but in the end of the day you see your xrays, we see your xrays, it looks misaligned

and yes, software measures your distance. what is worrying you about this? If you need a SUPER precise measurement you need a lower body CT Scan which will measure to tenth of a millimeter

I agree, boklecrt on LL Forums knows more than an qualified physiotherapist. Make sure to laugh at every doctor and physiotherapist, and only get your advice from members on this forum.