Topic: PALEY Precise 2.2 7cm lengthened Q & A (Read 9446 times)

Fishing · « **on:** March 04, 2022, 12:33:05 AM »

Did precise 2.2 very recently with Paley in Florida, ask me whatever

tallmen · « **Reply #1 on:** March 04, 2022, 04:55:32 AM »

Quote from: Fishing on March 04, 2022, 12:33:05 AM

Did precise 2.2 very recently with Paley in Florida, ask me whatever

I've surgery this month. Do you have a list of items I should get before the surgery?

I am thinking about getting these:
1. wheelchair transfer board
2. toilet Saftey Frame
3. Nerve Stimulator

what else?

lengthenme · « **Reply #2 on:** March 04, 2022, 05:42:02 AM »

what is your weight pre op , what is the nail dia used ? and what is your plan and dr recommendations in terms of mobilization ?
my concern always is mobilization since I myself do weigh around 170 ibs

HateLAPELoveSTEM · « **Reply #3 on:** March 04, 2022, 06:03:41 AM »

Hey Fishing.
For Chineses do you know how to immigrate into USA for doing LL in Paley's? I come from China and I am all the time agitated about whether I can go there for LL or not due to the COVID.
And, do you know any cases of doing Paley's Option 5 which can achieve patients 16cm? I don't care being improportional or even disabled cuz I am a midget tortured by Height and Appearance dysphorias and I am reflecting on(a terminology of reflective epistemology)this world to such degree that only disfigurement is on par with or worse than being short and being disabled, having cancers or sufffering from devastating diseases like Leukemia or Quadriplegia are all better than being short so I think in the terms of impavidity I am one of the best candidates ain't I?
So my only concern is whether I can leave China for USA to obtain LL and I hope my life will not get ruined by fking COVID.

zaozari · « **Reply #4 on:** March 04, 2022, 01:05:19 PM »

Quote from: Fishing on March 04, 2022, 12:33:05 AM

Did precise 2.2 very recently with Paley in Florida, ask me whatever

What supplements has he suggested or prescribed to you?

Fishing · « **Reply #5 on:** March 04, 2022, 04:23:14 PM »

Honestly this'll sound a little silly but you figure a lot out as you go. But grabber is super important, like a long distance claw. Also lidocaine patches. Tylenol pm to sleep. Stretching strap for some but I didn't stretch with it at all.

randomperson · « **Reply #6 on:** March 04, 2022, 04:39:28 PM »

Hi Fishing

Is it at all possible to work out the upper body before full consolidation? Or is that a bad idea?

Fishing · « **Reply #7 on:** March 04, 2022, 05:12:59 PM »

Yep I went to the gym on crutches post lengthening

Fishing · « **Reply #8 on:** March 04, 2022, 05:13:46 PM »

Some super vitamin thing , calcium & vitamin D

randomperson · « **Reply #9 on:** March 04, 2022, 05:27:38 PM »

I see. What were you able to do?

I was thinking about it--Wouldn't certain upper body exercises be off limits?

For instance, could you do a lat pulldown? Your quads are underneath pads and your legs will press against the pads when pulling down. So wouldn't that be bad if bone isn't healed? Same with a cable row, where you usually use your legs to brace. I assume that you probably need to stay on machines that don't put any pressure on your legs?

Fishing · « **Reply #10 on:** March 04, 2022, 06:44:38 PM »

Funny thing is I had the exact same thought, I stayed away from those machines but when I finally did I realized that you can do the lat pull down without putting much pressure at all. The row machine is a different story tho I would be careful on that one

thaw1010 · « **Reply #11 on:** March 04, 2022, 07:23:59 PM »

Quote from: Fishing on March 04, 2022, 05:12:59 PM

Yep I went to the gym on crutches post lengthening

Are you saying you were able to workout your upper body during the lengthening phase?

Fishing · « **Reply #12 on:** March 04, 2022, 07:28:26 PM »

Typing on a phone but yes there’s tons of Chinese patients from China you should be able to get the surgery at this point. For your 16 cm dream method 5 I think only 1 or two people have ever achieved it. Quad lengthening is literately insane. The few people I saw doing quad lengthening were in absolute misery even worse than what everyone else was already going through. It’s basically insanity but if you’re insane about your height I guess you could do it.

Fishing · « **Reply #13 on:** March 04, 2022, 07:29:01 PM »

No I did not , definitley did not have the energy to

tallerwouldbenice · « **Reply #14 on:** March 17, 2022, 01:29:40 AM »

What did you use the lidocaine patches for?

Highest · « **Reply #15 on:** March 17, 2022, 02:09:59 AM »

Quote from: Fishing on March 04, 2022, 07:28:26 PM

Typing on a phone but yes there’s tons of Chinese patients from China you should be able to get the surgery at this point. For your 16 cm dream method 5 I think only 1 or two people have ever achieved it. Quad lengthening is literately insane. The few people I saw doing quad lengthening were in absolute misery even worse than what everyone else was already going through. It’s basically insanity but if you’re insane about your height I guess you could do it.

What is the typical gain for femur patients and what is it for tibia patients at Paley?

Fishing · « **Reply #16 on:** March 18, 2022, 12:10:15 AM »

Mainly distraction from pain

Fishing · « **Reply #17 on:** March 18, 2022, 12:11:05 AM »

Really depends on your mental fortitude , femur gets from 6-8 cm and tibia 4-5

johnsmith202220222022 · « **Reply #18 on:** March 18, 2022, 12:09:18 PM »

Hi thanks for posting this Q&A. I'm looking at this with Dr Paley as he is generally touted as the best in the world but the price is obviously a lot compared to going to other places in Europe such as Turkey. I've generally worked it out as needing around 160-200K USD for femurs - surgery 100k, accomodation 10-15k (in recommended paley hotels), care 5k, complications back up 30k, removal 18k, plus meds, if you want to pay for more physio, etc. Do you have any recommendations on keeping the costs down where you can?

HateLAPELoveSTEM · « **Reply #19 on:** March 21, 2022, 07:45:31 AM »

Do you know how to apply for a Visa to leave from China for Paley's to do LL?
I am planning to apply for a medical visa and I will persuade my Visa Officers with rhetorics like how delibitating I am feeling about my height.

Fishing · « **Reply #20 on:** March 21, 2022, 10:48:50 PM »

My parents cooked for me so that’s somewhere I saved a bit of money. I think it cost us about 125k in total so you should be fine.

Fishing · « **Reply #21 on:** March 21, 2022, 10:51:26 PM »

No idea , sorry. Don’t know if I said but I’m Chinese myself and I’ve heard from many that this surgery is very looked down upon in China , so I would be careful with mentioning it.

HateLAPELoveSTEM · « **Reply #22 on:** March 27, 2022, 05:45:13 AM »

Quote from: Fishing on March 21, 2022, 10:51:26 PM

No idea , sorry. Don’t know if I said but I’m Chinese myself and I’ve heard from many that this surgery is very looked down upon in China , so I would be careful with mentioning it.

Alrighty then. Thx. I will find the answer myself.
Do you inquire something about the time when Stryde nails can come back into Paley's?
I hope I can do Option 5 when I hit USA.

Fishing · « **Reply #23 on:** March 28, 2022, 10:29:42 PM »

Pretty sure theyre indefinitley unavailable, expect at least a couple years

Mayday · « **Reply #24 on:** April 14, 2022, 11:09:52 AM »

Good look on your new era of your life! For how long are you supposed to use wheelchair?

Fishing · « **Reply #25 on:** April 15, 2022, 05:42:17 PM »

Wheelchair/walker for about 5 months , then crutches, then walking for me

Oswego · « **Reply #26 on:** April 17, 2022, 08:54:26 PM »

How was the care with Dr. Paley and his team? As good as its regarded, ie, "the best in business"?

Fishing · « **Reply #27 on:** April 18, 2022, 04:31:20 AM »

Can’t say best in the business as I’ve only done this surgery with him, but certainly phenomenal care. It was the scariest experience of my life but they made me feel as safe as you could possibly feel going through something like this. Medical experts are all… experts lol , very knowledgeable and can explain anything. The PT team though are fking amazing, great physical therapy and equally valuable emotional support. If you can afford it , do paley.

Oswego · « **Reply #28 on:** April 18, 2022, 06:12:56 AM »

Quote from: Fishing on April 18, 2022, 04:31:20 AM

Can’t say best in the business as I’ve only done this surgery with him, but certainly phenomenal care. It was the scariest experience of my life but they made me feel as safe as you could possibly feel going through something like this. Medical experts are all… experts lol , very knowledgeable and can explain anything. The PT team though are fking amazing, great physical therapy and equally valuable emotional support. If you can afford it , do paley.

Good to know! I am planning on going with Paley and its good to hear it wasn't a regretted choice for you. I'm not keen to pony up the $100k+ and feel like it was a fk up of a choice lol. Cheers.

Another question if thats alright - any reason you went to 7cm but not the whole 8 of the precise nail?

Dirona · « **Reply #29 on:** April 18, 2022, 01:08:18 PM »

How old are you pal? What is your pre-surgery height? Could you work/study during the lengthening phase if it is remote?

Fracturepoint · « **Reply #30 on:** April 18, 2022, 08:58:21 PM »

Hey Fishing, I’ve done the exact same amount of distraction as you and am currently in the consolidation phase. How long did each stage of your consolidation take (Walker->crutches->full weight bearing)?

Any input would be great as I’m going a little insane wasting away in this wheelchair!

Limb Lengthening Forum

Author Topic: PALEY Precise 2.2 7cm lengthened Q & A (Read 9446 times)