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Author Topic: I had LL in 2007 and I'm still here. Ask me anything!  (Read 49118 times)

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Medium Drink Of Water

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Re: I had LL in 2007 and I'm still here. Ask me anything!
« Reply #186 on: September 10, 2022, 02:08:51 PM »

hello, mdof
there was a discussion in the group  of a non cosmetic condition, which required all four bones(femurs and tibiae) needing implants. any idea what it is?

Never heard of it.

Thank you for staying here to help everyone :). I have the opportunity to go to Dr. Lee for surgery and lon is 40% cheaper than precise and I'm torn between the two procedures. Do you think precise(femur) has a big advantage over lon (tibia)? (I'm almost worried about permanent knee pain,health and sequelae problem)

Precise is probably better in terms of health and recovery.
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sy1555

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Re: I had LL in 2007 and I'm still here. Ask me anything!
« Reply #187 on: September 15, 2022, 09:52:09 PM »

Thank you for your reply! I'm very hesitant now. Dr. Lee's Lon (planning to do tibia 5cm) and giotikas precise (femur 6cm) are almost the same price... My budget only allows me to choose one of the two. Dr. Lee seems to have more experience and better PT but percise is better to avoid complications. Do you have any advice please?
« Last Edit: September 15, 2022, 10:16:45 PM by kio1165 »
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Medium Drink Of Water

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Re: I had LL in 2007 and I'm still here. Ask me anything!
« Reply #188 on: September 15, 2022, 11:47:32 PM »

I found PT to be unnecesary as a tibia LON patient.  Some users who've done internal femurs say it's extremely important.  So I guess Lee's PT isn't a reason to choose him if you're doing LON.  In fact you're probably wasting money by going to him since you'll be paying for the PT, unless that's optional.  Save even more by doing LON with Giotikas?  Maybe.
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sy1555

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Re: I had LL in 2007 and I'm still here. Ask me anything!
« Reply #189 on: September 16, 2022, 12:31:03 AM »

Thank you for your advice :)
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Taweel

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Re: I had LL in 2007 and I'm still here. Ask me anything!
« Reply #190 on: October 04, 2022, 09:43:44 PM »

If you had a badget and you are younger wich doctor you well choose in Europe?g nail betz,,giotikas or precise,?what do you think about quadrilateral?in the same time?or to wait between the two surgeries?
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Medium Drink Of Water

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Re: I had LL in 2007 and I'm still here. Ask me anything!
« Reply #191 on: October 04, 2022, 10:12:24 PM »

I'd choose Giotikas and Precise from those options in that situation.

I'd only do quadrilateral simultaneously if I was lengthening a small amount, like 8 or 9 cm combined.  Otherwise I'd wait between surgeries.
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Taweel

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Re: I had LL in 2007 and I'm still here. Ask me anything!
« Reply #192 on: October 04, 2022, 11:05:10 PM »

I'd choose Giotikas and Precise from those options in that situation.

I'd only do quadrilateral simultaneously if I was lengthening a small amount, like 8 or 9 cm combined.  Otherwise I'd wait between surgeries.
Thank a lot man
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Taweel

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Re: I had LL in 2007 and I'm still here. Ask me anything!
« Reply #193 on: October 04, 2022, 11:15:10 PM »

You are very helpful man and I don’t want to annoying ,my last question If you want to choose a surgeon from turkey (I am from turkey)which surgeon you  will choose in turkey?
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Medium Drink Of Water

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Re: I had LL in 2007 and I'm still here. Ask me anything!
« Reply #194 on: October 05, 2022, 12:40:05 AM »

I don't know much about the Turkish doctors.
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sy1555

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Re: I had LL in 2007 and I'm still here. Ask me anything!
« Reply #195 on: October 06, 2022, 04:18:09 AM »

.
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sy1555

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Re: I had LL in 2007 and I'm still here. Ask me anything!
« Reply #196 on: October 06, 2022, 04:18:32 AM »

I'd choose Giotikas and Precise from those options in that situation.

I'd only do quadrilateral simultaneously if I was lengthening a small amount, like 8 or 9 cm combined.  Otherwise I'd wait between surgeries.
Do you think gnail is a risky option for healthy,young people?
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Medium Drink Of Water

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Re: I had LL in 2007 and I'm still here. Ask me anything!
« Reply #197 on: October 06, 2022, 05:09:59 AM »

I think the nails have similar common risks.  I don't think it matters a lot which one you choose.  They're much more similar than they are different.
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1team

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Re: I had LL in 2007 and I'm still here. Ask me anything!
« Reply #198 on: October 09, 2022, 04:34:43 AM »

My question is about your fasciotomy. How did you know you had compartment syndrome and what tests did you have? I have seen photos of fasciotomies where the wound is left open, was yours like that or stitched up when you work up?
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Medium Drink Of Water

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Re: I had LL in 2007 and I'm still here. Ask me anything!
« Reply #199 on: October 09, 2022, 04:52:12 AM »

Those muscles got very easily/quickly fatigued when I walked.

A doctor stuck a little pressure gague into the muscle after I went walking in the hospital parking lot for a few minutes.

Mine was all stitched up.  I think the only reason they don't stitch some of them up is because they can't on those.  Mine were only an inch long.
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sy1555

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Re: I had LL in 2007 and I'm still here. Ask me anything!
« Reply #200 on: October 09, 2022, 08:30:56 PM »

What is the difference between g-nail and betzbone?Thanks!
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Medium Drink Of Water

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Re: I had LL in 2007 and I'm still here. Ask me anything!
« Reply #201 on: October 09, 2022, 08:37:32 PM »

I don't know much about those.
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1team

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Re: I had LL in 2007 and I'm still here. Ask me anything!
« Reply #202 on: October 18, 2022, 06:11:59 AM »

When you did your cosmetic scar revision was it done all in one surgery for both legs?
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Medium Drink Of Water

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Re: I had LL in 2007 and I'm still here. Ask me anything!
« Reply #203 on: October 18, 2022, 10:13:38 AM »

Half the scars on each leg were done per surgery.
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1team

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Re: I had LL in 2007 and I'm still here. Ask me anything!
« Reply #204 on: October 18, 2022, 07:41:05 PM »

Half the scars on each leg were done per surgery.

So for example the left half of the left leg in the first surgery then the right half of the left leg in the second? Was this due to not putting tension on all the scars at once?

How long between surgeries?
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Medium Drink Of Water

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Re: I had LL in 2007 and I'm still here. Ask me anything!
« Reply #205 on: October 18, 2022, 08:50:12 PM »

It was more spread out than doing one side and then the other of each leg.  Yes, you don't want the wounds pulling on each other.

I think you can do them 3-6 months apart.  I don't remember how long I waited.
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lessthanavg8300

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Re: I had LL in 2007 and I'm still here. Ask me anything!
« Reply #206 on: October 19, 2022, 03:33:25 PM »

I have lengthening in January.  We are the same starting height, im a tad over 5 foot 7. 

Im debating if I do 2 inches and maybe can keep it a complete secret including from family members.  Or do 3 inches and just have people find out.

Wondering on your perspective since you did 3 inches.  Would 5 foot 9 have cured your height issues?  Is 2 enough?  Or is being 5'10 worth the extra time, effort, and having pretty much no chance of keeping it a secret.  If everyone finds out in the end I might wish I just went for 5'10.
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Gained 3.2CM on femurs for a final height of 5'8.5-5'8.75.

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Re: I had LL in 2007 and I'm still here. Ask me anything!
« Reply #207 on: October 19, 2022, 07:39:46 PM »

I think 5'9 would have been OK, and if I had it to do over again I'd only do 2 inches.  I was even considering that much in 2007, but what made me go for that extra inch was my 29" inseam.  32" is a commonly made size of pants so I went for it for the sake of fashion.

I'm not sure if 2 inches is below the threshold of being noticed.  Maybe some distant cousins you don't see very often might not think anything weird is going on, but your mom/dad/siblings/bff will definitely notice you're suddenly 2 inches taller.
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lessthanavg8300

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Re: I had LL in 2007 and I'm still here. Ask me anything!
« Reply #208 on: October 19, 2022, 11:38:14 PM »

Rather 2 inches because you didnt fully recover?  Was hoping to get away with it because I had a recent spine surgery and could use that as an excuse.
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Gained 3.2CM on femurs for a final height of 5'8.5-5'8.75.

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Re: I had LL in 2007 and I'm still here. Ask me anything!
« Reply #209 on: October 20, 2022, 02:36:40 AM »

You'll never fully recover.  It's all a matter of degree.
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lessthanavg8300

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Re: I had LL in 2007 and I'm still here. Ask me anything!
« Reply #210 on: October 20, 2022, 09:28:47 AM »

You're giving me all the answers I dont want to hear lol.  But I appreciate realistic feedback.
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Gained 3.2CM on femurs for a final height of 5'8.5-5'8.75.

sixfootandhalf

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Re: I had LL in 2007 and I'm still here. Ask me anything!
« Reply #211 on: October 20, 2022, 12:58:37 PM »

If i lengthen 7.5cm Femurs, weight bearing nail, and get a proper ITB (not a soft ITB) release to begin with, how long realistically before i can walk with a gait nobody can detect is off? 90/95% normal gait? It might not be the smoothest, but nobody would say what is with his walk?

Time from surgery

And time after i stop lengthening

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Current height: 174.5cm  evening (175.3m left leg 174.5 left leg). Lengthening: 7cm
Final height 182-183cm afternoon height with glucosamine, stretching and posture.

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Re: I had LL in 2007 and I'm still here. Ask me anything!
« Reply #212 on: October 20, 2022, 01:27:46 PM »

I don't know much about internal femurs.
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liltunechi

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Re: I had LL in 2007 and I'm still here. Ask me anything!
« Reply #213 on: October 24, 2022, 10:15:53 AM »

Hey

When you had your surgery, did the surgeon use syndesmosis screw? If so, what was the positioning of it?  Was the end on the fibula lower or higher than the end on the tibia? Or was it horizontal?

Thank you
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Medium Drink Of Water

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Re: I had LL in 2007 and I'm still here. Ask me anything!
« Reply #214 on: October 24, 2022, 02:32:41 PM »

Don't know, don't remember.
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liltunechi

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Re: I had LL in 2007 and I'm still here. Ask me anything!
« Reply #215 on: October 24, 2022, 02:44:48 PM »

That’s fine. Do you still have any X-rays?
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Medium Drink Of Water

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Re: I had LL in 2007 and I'm still here. Ask me anything!
« Reply #216 on: October 24, 2022, 03:18:31 PM »

No.
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