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Author Topic: I had LL in 2007 and I'm still here. Ask me anything!  (Read 49039 times)

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HeightGain

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Re: I had LL in 2007 and I'm still here. Ask me anything!
« Reply #124 on: May 08, 2022, 07:59:27 PM »

Would you be able to share the name of the plastic surgeon you went to for scar revision?
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Medium Drink Of Water

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Re: I had LL in 2007 and I'm still here. Ask me anything!
« Reply #125 on: May 08, 2022, 11:30:41 PM »

Would you be able to share the name of the plastic surgeon you went to for scar revision?

No, but any of them can do it perfectly well.  Cutting the skin and minimizing scars is something they're all extremely good at or they wouldn't have passed the board exams for plastic surgery.  You're better off finding the cheapest doc you can find instead of paying top dollar and then some in Bevery Hills like I did.
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TranslatingWithWriting

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Re: I had LL in 2007 and I'm still here. Ask me anything!
« Reply #126 on: May 16, 2022, 12:07:54 PM »

I remember you wrote the hospital you went for was like an asylum? What did that encapsulate after all?

Tbh, how long did you take to restore your trait?

Thanks.
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Medium Drink Of Water

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Re: I had LL in 2007 and I'm still here. Ask me anything!
« Reply #127 on: May 16, 2022, 03:16:13 PM »

I meant that most people there had mental health problems.  I could say the same about this forum.  Being short leads to unhappiness, and unhappiness leads to mental issues.

I'm not sure what you mean by trait.
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TranslatingWithWriting

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Re: I had LL in 2007 and I'm still here. Ask me anything!
« Reply #128 on: May 16, 2022, 03:34:02 PM »

I meant that most people there had mental health problems.  I could say the same about this forum.  Being short leads to unhappiness, and unhappiness leads to mental issues.

I'm not sure what you mean by trait.
Sorry that was just a typo.
I mean 'gait.
Yeah that is a cruel fact.
When I feel deep down I tend to cope myself with dwafisms. they are living way more  ty lives than usand can't grow to normal heights forever.
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HeightGain

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Re: I had LL in 2007 and I'm still here. Ask me anything!
« Reply #129 on: May 16, 2022, 09:13:57 PM »

The pictures of your scars look good. Do they look that good in real life?

I'm deciding between external and internal tibias and the thing holding me back for externals are the scars
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Medium Drink Of Water

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Re: I had LL in 2007 and I'm still here. Ask me anything!
« Reply #130 on: May 16, 2022, 11:43:48 PM »

Here's a rough timeline:

June 2007: frame installation surgery.  Could only use a walker or wheelchair.
November 2007: frame removal surgery, no instant change in mobility
February 2008: crutches
April 2008: slow walking (about half speed maximum) without crutches
November 2008: my current gait, normal walking, able to run with reasonalbe confidence despite internal nail
December 2008: nail removal surgery, full confidence in running
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Medium Drink Of Water

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Re: I had LL in 2007 and I'm still here. Ask me anything!
« Reply #131 on: May 16, 2022, 11:44:22 PM »

The pictures of your scars look good. Do they look that good in real life?

I'm deciding between external and internal tibias and the thing holding me back for externals are the scars

Those pictures are true-to-life.
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somedude

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Re: I had LL in 2007 and I'm still here. Ask me anything!
« Reply #132 on: May 16, 2022, 11:48:42 PM »

how much cm do you recommend doing in the femurs? I had thought 6-7, but if I can do more I will try more, do you think it's good?
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TranslatingWithWriting

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Re: I had LL in 2007 and I'm still here. Ask me anything!
« Reply #133 on: May 17, 2022, 12:00:15 AM »

Here's a rough timeline:

June 2007: frame installation surgery.  Could only use a walker or wheelchair.
November 2007: frame removal surgery, no instant change in mobility
February 2008: crutches
April 2008: slow walking (about half speed maximum) without crutches
November 2008: my current gait, normal walking, able to run with reasonalbe confidence despite internal nail
December 2008: nail removal surgery, full confidence in running
It seems to me, that your recovery was prompt and good! I always thought external methods wouldn't permit patients to restore fundamental kinetic abilities previously.

By the way you did LL when I was 7 LOL
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Medium Drink Of Water

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Re: I had LL in 2007 and I'm still here. Ask me anything!
« Reply #134 on: May 17, 2022, 12:10:06 AM »

how much cm do you recommend doing in the femurs? I had thought 6-7, but if I can do more I will try more, do you think it's good?

Do the minimum needed for you to be content with your height.
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hikui

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Re: I had LL in 2007 and I'm still here. Ask me anything!
« Reply #135 on: May 17, 2022, 04:25:13 AM »

What do you think about Android who did cross lengthening? Should he have skipped external on femur?
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Medium Drink Of Water

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Re: I had LL in 2007 and I'm still here. Ask me anything!
« Reply #136 on: May 17, 2022, 06:03:06 AM »

Yeah, should've skipped that.  External femur is just a nasty experience. :'(
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Medium Drink Of Water

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Re: I had LL in 2007 and I'm still here. Ask me anything!
« Reply #137 on: May 17, 2022, 06:08:42 AM »

It seems to me, that your recovery was prompt and good! I always thought external methods wouldn't permit patients to restore fundamental kinetic abilities previously.

By the way you did LL when I was 7 LOL

Yeah, things went all right.  If you work hard during lengthening you could probably recover at a faster rate than I did.

There was a 14 year old girl patient there.  Chinese.  I don't know why she was there; probably not CLL.  Hard to believe she's already almost 30. :o
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TranslatingWithWriting

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Re: I had LL in 2007 and I'm still here. Ask me anything!
« Reply #138 on: May 17, 2022, 06:11:00 AM »

Yeah, things went all right.  If you work hard during lengthening you could probably recover at a faster rate than I did.

There was a 14 year old girl patient there.  Chinese.  I don't know why she was there; probably not CLL.  Hard to believe she's already almost 30. :o
I think you mean a 30 year old girl as tall as 14 year old?
Some patients there were also maybe fixing bone discrepancies, I guess.
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loia5tqd001

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Re: I had LL in 2007 and I'm still here. Ask me anything!
« Reply #139 on: May 24, 2022, 03:04:46 PM »

You said you would want to do 2 inches instead of 3. A while after you wished for the 2nd surgery. Did that change your mind about wishing for 2 inches instead of 3 in the first surgery also?
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Medium Drink Of Water

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Re: I had LL in 2007 and I'm still here. Ask me anything!
« Reply #140 on: May 24, 2022, 09:52:19 PM »

You said you would want to do 2 inches instead of 3. A while after you wished for the 2nd surgery. Did that change your mind about wishing for 2 inches instead of 3 in the first surgery also?

No, those were unrelated.
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Alija2

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Re: I had LL in 2007 and I'm still here. Ask me anything!
« Reply #141 on: June 05, 2022, 10:00:52 PM »

Hey when the external fixator came off how was the pain for the first week? Can you still walk or did you need crutches?

Thank you
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Alija2

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Re: I had LL in 2007 and I'm still here. Ask me anything!
« Reply #142 on: June 05, 2022, 10:20:32 PM »

Oh! also when you had your frames removed and your legs could come closer to each other did your height slightly increase?

Thank you
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Medium Drink Of Water

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Re: I had LL in 2007 and I'm still here. Ask me anything!
« Reply #143 on: June 19, 2022, 03:06:27 PM »

Hey when the external fixator came off how was the pain for the first week? Can you still walk or did you need crutches?

Thank you

It was such a relief to get those things off.  Pain was minimal.  The doctors didn't want us to stand for a week after the second surgery, so I can't speak to that.  They always did it two weeks before patients were scheduled to leave. 

I could barely even use a walker the first time I stood.  I almost fell backwards.  One guy who did 5 cm disobeyed doctor's orders and was walking almost immediately after his 2nd surgery.  I don't know what, if any, consequences he suffered for doing so because we hated each other and weren't on speaking terms at that point.
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Medium Drink Of Water

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Re: I had LL in 2007 and I'm still here. Ask me anything!
« Reply #144 on: June 19, 2022, 03:11:00 PM »

Oh! also when you had your frames removed and your legs could come closer to each other did your height slightly increase?

Thank you

I would imagine yes, since putting the feet together makes the top of your head higher than when they're spread apart.

I didn't measure my height during the process.  The frames made it impossible to put my legs up against the wall anyway.  I only went by the measurements done on the x-rays to know how much I grew.
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Medium Drink Of Water

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Re: I had LL in 2007 and I'm still here. Ask me anything!
« Reply #145 on: June 19, 2022, 03:12:15 PM »

I think you mean a 30 year old girl as tall as 14 year old?
Some patients there were also maybe fixing bone discrepancies, I guess.

No, I mean there was a 14 year old patient at the hospital (not doing CLL obviously).  She was the baby of the group.  Now she's 30.  Time sure flies.
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liltunechi

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Re: I had LL in 2007 and I'm still here. Ask me anything!
« Reply #146 on: July 17, 2022, 05:03:13 PM »

Hey Medium,

I underwent Tibia LON 5 weeks ago.  For personal reasons, I had to stop lengthening. Overall I gained only around 0.9cm (0.6cm from lengthening and 0.3cm from gap left by surgeon). The second surgery to remove the external frames was 3 weeks ago.

Currently I am walking around with a walker. Doing 1 hour of walking a day and doing daily physio excercises.

I currently have pain in my knees when I walk and when I lift and move my legs when I’m laying down. Also I have pain in calves when walking and moving legs around.

Is all this normal considering I’m only 5 weeks from initial surgery?

Also, I am terrified of the possibility of having chronic knee pain. What are the chances you think that I get it?  Also, how bad is the chronic knee pain?  Is it constant or only when you do hard excercises? 

When do you think I should be able to walk without any assistance and when will I feel back to normal again?

What advice would you have for me?

Thanks a lot!

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Medium Drink Of Water

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Re: I had LL in 2007 and I'm still here. Ask me anything!
« Reply #147 on: July 17, 2022, 05:57:58 PM »

Yes, that is normal for almost everyone at this point.

I don't know the chances of getting it.  Check my stickied post called My Knee Issues in the Information section to read up more about it.

I'm not sure how long it will take you to walk without assistance.

My condition improved once I got the frames off, then more when doctors removed the intenal nail.  Then it stopped improving and I have slight issues to this day.  So the only advice I have is to wait and hope.
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liltunechi

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Re: I had LL in 2007 and I'm still here. Ask me anything!
« Reply #148 on: July 17, 2022, 06:12:03 PM »

Yes, that is normal for almost everyone at this point.

I don't know the chances of getting it.  Check my stickied post called My Knee Issues in the Information section to read up more about it.

I'm not sure how long it will take you to walk without assistance.

My condition improved once I got the frames off, then more when doctors removed the intenal nail.  Then it stopped improving and I have slight issues to this day.  So the only advice I have is to wait and hope.

Could you please describe the ‘slight issues’ you feel today? Is it constant and always painful or easily bearable? Or do you only feel it when you do certain movements?
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Medium Drink Of Water

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Re: I had LL in 2007 and I'm still here. Ask me anything!
« Reply #149 on: July 17, 2022, 06:48:05 PM »

Easily bearable and I usually only notice it when I kneel on a hard surface.
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liltunechi

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Re: I had LL in 2007 and I'm still here. Ask me anything!
« Reply #150 on: July 17, 2022, 06:57:07 PM »

Easily bearable and I usually only notice it when I kneel on a hard surface.

Ahh, I’m so glad to hear that. Sounds like it’s not a big deal then.

Lastly, based on others you may have spoken to, to what degree is their knee pain? Is it similar to yours or worse?

I just want to get a rough idea of what the typical ‘chronic knee pain’ after LON Tibia is like. Is it similar to yours or usually much worse? What’s been your consensus on this?

Thanks again buddy
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Medium Drink Of Water

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Re: I had LL in 2007 and I'm still here. Ask me anything!
« Reply #151 on: July 17, 2022, 07:09:38 PM »

I have the worst knee issues of anyone I know, except for people whose surgeries were botched.
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liltunechi

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Re: I had LL in 2007 and I'm still here. Ask me anything!
« Reply #152 on: July 17, 2022, 07:19:43 PM »

I have the worst knee issues of anyone I know, except for people whose surgeries were botched.

I guess that’s… good news then?  If you said your issues are easily manageable and it’s the worst from what you know, I guess everyone else’s knees are pretty much normal then?

Could you please take a look at my X-rays and let me know what you think?

These are 1 week old. Thanks a lot man, you are honestly really giving me peace of mind.

What do you think of them in terms of nail position, screws etc.

https://pasteboard.co/AC1Mnmoz0cYQ.jpg

https://pasteboard.co/dGEupDtqyXpZ.jpg

As I said, at the moment I’m in pain when I stand up, sit down, walk and raise my leg. My knees hurt.

Thank you again Medium
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Medium Drink Of Water

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Re: I had LL in 2007 and I'm still here. Ask me anything!
« Reply #153 on: July 17, 2022, 09:09:20 PM »

I don't notice anything wrong with them.  They look pretty similar to my x-rays.  The first few weeks after surgery, it felt like the internal nail was sticking way up into the knee and would burst out if I bent my leg.
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liltunechi

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Re: I had LL in 2007 and I'm still here. Ask me anything!
« Reply #154 on: July 17, 2022, 09:28:27 PM »

I don't notice anything wrong with them.  They look pretty similar to my x-rays.  The first few weeks after surgery, it felt like the internal nail was sticking way up into the knee and would burst out if I bent my leg.

Fingers crossed, I hope I end up healing well without any knee issues. Hopefully the pain I have in knees atm goes away soon.

And same!  I feel the same way! It feels like the internal rod is sticking out for me, but I am able to bend my knees fully.

I know it’s difficult to say, but what do you think Medium. Do you reckon I’ll end up getting chronic knee pain or not?

And when should the current knee pain that I have, go away?

Thanks again!
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