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[TakingAction]

Thanks! I just had the femur surgery today. It went well! The nurse told me to take both Tylenol and oxy but I asked her to only give me Tylenol because oxy can be addictive. She agreed. So far, my pain level is low enough that I haven’t needed oxy since I had surgery 10 hours ago. Let’s see how long can I survive by only taking low-risk Tylenol. Has anyone gone through the whole first hell week after surgery without taking any oxy before? Is it even possible?

[thankscience]

Good luck dude! Did you have any vomiting/nausea when waking up after the surgery?

From memory one of the patients Cyborg4Life interviewed also did not take any oxy at all after the surgery (but I could be wrong)

[silverlining]

Hello TakingAction,

It's possible to never use oxycodone after the surgery and throughout the lengthening process. I had my surgery done in August and I haven't taken any oxy so far. My pain level was minimal post-op. In fact, I asked the nurse to stop injecting me with Toradol because the injection pain was the only pain I felt.

[SuchLL]

Thanks! I just had the femur surgery today. It went well! The nurse told me to take both Tylenol and oxy but I asked her to only give me Tylenol because oxy can be addictive. She agreed. So far, my pain level is low enough that I haven’t needed oxy since I had surgery 10 hours ago. Let’s see how long can I survive by only taking low-risk Tylenol. Has anyone gone through the whole first hell week after surgery without taking any oxy before? Is it even possible?

I had oxy for three weeks during femoral lengthening last year and oxy still works for me this year. You probably won’t be addicted to oxy since doctor will only give you limited amount to take after discharge. I knew someone who didn’t take any pain meds during entire lengthening process, not even tylenol.

[two]

I had oxy for three weeks during femoral lengthening last year and oxy still works for me this year. You probably won’t be addicted to oxy since doctor will only give you limited amount to take after discharge. I knew someone who didn’t take any pain meds during entire lengthening process, not even tylenol.

How was your experience with xeralto? Did you get any side effects? You took it for over 6 months in total right?

[TakingAction]

Day 2: still haven’t taken any oxy yet. We’ll see how bad the pain is when I move. I was feeling nauseous for an hour after I woke up from surgery yesterday, but it’s only an hour.

[TakingAction]

Day 2: I just did my first PT, and I passed out….it might be the blood loss from surgery that’s causing this passing out. But I recovered after about an hour.

[ryand2021]

Day 2: I just did my first PT, and I passed out….it might be the blood loss from surgery that’s causing this passing out. But I recovered after about an hour.

It's normal. Don't push too hard - your body needs time to adjust.

[TakingAction]

It's normal. Don't push too hard - your body needs time to adjust.

Really? Did you also pass out on the day after surgery? The confusing part is that one nurse is telling me it’s normal and 90% of the patients passing out. But then an OP and another nurse told me that less than 20% of the patients passing out….hopefully I’ll have a full recovery in the end..

[SuchLL]

Day 2: I just did my first PT, and I passed out….it might be the blood loss from surgery that’s causing this passing out. But I recovered after about an hour.

I would try oxy before PT next time. Fighting pain or discomfort takes a lot energy and can cause more stress and make you very tired. It’s actually bad for healing and recovery. Last year I didn’t feel much pain after the surgery but the nurse said I didn’t look good and I should take oxy. I didn’t expect oxy to make much difference because I thought I was doing ok. It turned out oxy made huge difference! I started to eat more, exercised more, and felt much better.

I only knew one person passed out during PT last year because he didn’t eat anything before PT. It’s possible that you didn’t eat enough and at the same time used too much energy to fight discomfort. Just try oxy next time you will be fine bro. Oxy can usually make people do better during PT sessions which helps recovery.

[SuchLL]

How was your experience with xeralto? Did you get any side effects? You took it for over 6 months in total right?

I have diarrhea sometimes but doctor Robbins said xeralto shouldn’t cause diarrhea. I didn’t take xeralto last year because it’s not needed with stryde. With precice 2 we need to take it for about 6 months you are right…

[TakingAction]

I would try oxy before PT next time. Fighting pain or discomfort takes a lot energy and can cause more stress and make you very tired. It’s actually bad for healing and recovery. Last year I didn’t feel much pain after the surgery but the nurse said I didn’t look good and I should take oxy. I didn’t expect oxy to make much difference because I thought I was doing ok. It turned out oxy made huge difference! I started to eat more, exercised more, and felt much better.

I only knew one person passed out during PT last year because he didn’t eat anything before PT. It’s possible that you didn’t eat enough and at the same time used too much energy to fight discomfort. Just try oxy next time you will be fine bro. Oxy can usually make people do better during PT sessions which helps recovery.

Ok, I’ll probably need to try oxy in the upcoming days. Hopefully it doesn’t hurt my liver or cause addiction. Dr. Robbins said that my nails can only support 50 pounds per leg. So I’m concerned that if my full body weight, which is 151 pounds, landed on my feet accidentally for 3 seconds, would that increase the risk of bending or breaking? 

[Movie]

I felt like passing out the first time I stood on my legs after surgery, almost did but I sat back down and it passed, after that I didn't feel that again, you might have pushed too hard the very first time, you're still under sedatives that can cause that.

[SuchLL]

Ok, I’ll probably need to try oxy in the upcoming days. Hopefully it doesn’t hurt my liver or cause addiction. Dr. Robbins said that my nails can only support 50 pounds per leg. So I’m concerned that if my full body weight, which is 151 pounds, landed on my feet accidentally for 3 seconds, would that increase the risk of bending or breaking?

3 seconds occasionally should be safe. They told me the nails won’t be bent easily but I’m worried about bending my nails too… especially after knowing that one of Paley’s current patients has both his nails bending and he’s only 120lbs… PT will also use huge amount of force (greater than 50lbs for sure) to stretch your muscles but doctor Robbins said it’s safe. Who knows lol

[ryand2021]

I would try oxy before PT next time. Fighting pain or discomfort takes a lot energy and can cause more stress and make you very tired. It’s actually bad for healing and recovery. Last year I didn’t feel much pain after the surgery but the nurse said I didn’t look good and I should take oxy. I didn’t expect oxy to make much difference because I thought I was doing ok. It turned out oxy made huge difference! I started to eat more, exercised more, and felt much better.

I only knew one person passed out during PT last year because he didn’t eat anything before PT. It’s possible that you didn’t eat enough and at the same time used too much energy to fight discomfort. Just try oxy next time you will be fine bro. Oxy can usually make people do better during PT sessions which helps recovery.

Some patients need blood transfusion due to blood loss. You're in a much better place.

[pandemic_exploiter]

I felt like passing out the first time I stood on my legs after surgery, almost did but I sat back down and it passed, after that I didn't feel that again, you might have pushed too hard the very first time, you're still under sedatives that can cause that.

lmao I puked the first time I stood up. I think it was the Oxy

[TakingAction]

I haven’t even taken the oxy yet because of concern of the side effects. What do you all think about Tramadol? Do you think that it’s less risky than oxy?

[TakingAction]

3 seconds occasionally should be safe. They told me the nails won’t be bent easily but I’m worried about bending my nails too… especially after knowing that one of Paley’s current patients has both his nails bending and he’s only 120lbs… PT will also use huge amount of force (greater than 50lbs for sure) to stretch your muscles but doctor Robbins said it’s safe. Who knows lol

Yeah I don’t understand why do they want us to risk bending and walk on walker instead of just do PT on a table or walking in the swimming pool which are so much safer to achieve the same goals, right?

Is the first week hell week? Or the second week will get even worse? I still haven’t had number 2 yet, and this inability to get toxic out is making me feel that I’m stuck in hell, not to mention the swollen femurs and pain the ass…

[SuchLL]

Yeah I don’t understand why do they want us to risk bending and walk on walker instead of just do PT on a table or walking in the swimming pool which are so much safer to achieve the same goals, right?

Is the first week hell week? Or the second week will get even worse? I still haven’t had number 2 yet, and this inability to get toxic out is making me feel that I’m stuck in hell, not to mention the swollen femurs and pain the ass…

I’m 157lbs and I only use walker during PT because they kinda force me to use it. They say it’s good for bone generation but I don’t want to live in fear. I also don’t believe walker would make big difference in bone generation because we can only “hop”, not walk. It seems I’m the only person worried about bending nails though. Other patients I talked to were not as nervous…

When I did femurs I think the first 3-4 days were the worst. The second week was better but still bad because I hadn’t recovered from the surgery and at the same time I had to start lengthening which caused more tissue injuries. It’s just me and I don’t know about others though.

[TakingAction]

I’m 157lbs and I only use walker during PT because they kinda force me to use it. They say it’s good for bone generation but I don’t want to live in fear. I also don’t believe walker would make big difference in bone generation because we can only “hop”, not walk. It seems I’m the only person worried about bending nails though. Other patients I talked to were not as nervous…

When I did femurs I think the first 3-4 days were the worst. The second week was better but still bad because I hadn’t recovered from the surgery and at the same time I had to start lengthening which caused more tissue injuries. It’s just me and I don’t know about others though.

Have your nail had any problem so far? I’m worried about bending too because I didn’t get the 75 pound one.

You mentioned that the first 3-4 days are the worst of the whole multiple month process. Was it because of inability to poop? For me, all the pain is manageable so far but I’m very uncomfortable about the inability to poop as I feel that I’m adding toxicity in my body from all the foods I’m eating from the hospital. I usually poop once or even twice a day before the surgery. So no poop for 2 days feels terrible.

[SuchLL]

Have your nail had any problem so far? I’m worried about bending too because I didn’t get the 75 pound one.

You mentioned that the first 3-4 days are the worst of the whole multiple month process. Was it because of inability to poop? For me, all the pain is manageable so far but I’m very uncomfortable about the inability to poop as I feel that I’m adding toxicity in my body from all the foods I’m eating from the hospital. I usually poop once or even twice a day before the surgery. So no poop for 2 days feels terrible.

I’m only at 1.8 cm so far. I’m worried about bend mostly because of PT. They use huge amount of force to stretch my calf. I have to hold the message table tight otherwise my whole body would be moved…. That’s how much force they use on my legs and it always makes me scared.

The first 3-4 days were worst mostly because my legs were super heavy and I couldn’t move them easily. They were also swelling badly. Incisions also felt like burning so I iced my incisions almost 24 hours a day.

[two]

I have diarrhea sometimes but doctor Robbins said xeralto shouldn’t cause diarrhea. I didn’t take xeralto last year because it’s not needed with stryde. With precice 2 we need to take it for about 6 months you are right…

I meant 6 months for both segments. You are being asked to take it for 6 months for just tibias?

[SuchLL]

I meant 6 months for both segments. You are being asked to take it for 6 months for just tibias?

Yes they told me to take it until full consolidation, which is about 6 months (3 months lengthening + 3 months consolidation)

[TakingAction]

Day 3: I passed out AGAIN today during the morning PT. But I didn’t pass out during the afternoon PT. My legs are getting better now as they can more up & down and left & right now. Still haven’t taken number 2. I might need to try either coffee or the poop medicine to get it going. The only concern is that it’d be difficult to clean up if I take number 2 on my hospital bed instead of a regular toilet.

[TakingAction]

Day 4: I had a better sleep (7 hours) last night due to less pain. So I even decided to skip the low-risk Tylenol for the first time this morning after surgery. But I’ll take it right before the PT later today to help me do better. Hopefully I don’t pass out today. I’ll certainly take it slow this time without rushing PT to reduce the risk of passing out. I feel lucky that I don’t have much pain, but also unlucky that I pass out more often than most people. I guess everyone is different but I believe that everyone will eventually all get better.

[AimHigh]

Yeah, for both my CLL's i found Tramadol easier to stop using than Oxy, and Tramadol was almost as effective as Oxy for me.

[TakingAction]

Day 4 new update (11:16am): I did it! Just finished a small PT session without passing out! And I’m moving on the wheelchair for the first time! Amazing improvement! This feels like the happiest day of the month because I thought I’d pass out again today. I wanted to thank my physical therapist Justine!

[SuchLL]

Day 4 new update (11:16am): I did it! Just finished a small PT session without passing out! And I’m moving on the wheelchair for the first time! Amazing improvement! This feels like the happiest day of the month because I thought I’d pass out again today. I wanted to thank my physical therapist Justine!

Happy to hear you are doing great!!

[alwayslucky]

I'm really happy for your smooth operation, friend. I wish you a smooth recovery!

[TakingAction]

Day 5: everything is good and normal. Today, I had my number 2 twice for first time since surgery. Also, I’m discharged from the hospital. The caregiver who picked me up from the hospital to my hotel was gorgeous like a Victoria Secret model. She gave me a ride to my hotel with her fancy Range Rover. She said that she used to work at a large corporation but started a caregiver company with a partner. She was probably referring to JP Morgan or some kind of large investment banks. The experience with this gorgeous lady also help remind me one of the key reasons of the surgery: to find a great and gorgeous wife after I become taller physically and mentally.

[TakingAction]

Day 6: Today, I did a reflection on my surgery experience. Before the surgery, I had lots of ideas about what's life like after the surgery by reading journals from lots of other people on the forum. I thought I'd go through the similar experiences. However, it turned out that my experiences are so different from others.

Before the surgery, I thoughts:
1. I'll have a   ton of pain like level 9 or 10 after surgery.
2. My brain won't work on any work or planning on my laptops.
3. I'll probably need to take oxy and possibly develop the risk of addiction.

After the surgery, what happened so far is that:

1. My pain level is 2-5, not like some other posts stating VERY PAINFUL on the forum.
2. My brain could actually work on pretty complex cognitive tasks just a few days if not a few hours after the surgery (especially with the help of just one cup of coffee)
3. I didn't even take oxy even after I moved to the hotel for more than a day and night.

Those experiences above are good surprises. So far, I really just had one small negative surprise, which is the passing out twice on the days right after surgery because of the surgery damage to my body. This negative surprise is very short-term and also positive too because I learned the value of life. Before I passed out, I took life for granted because I had never really passed out in a hospital with a nurse asking me "are you with me?" before. It felt like I was dead for a few seconds in a movie or something lol The passing-out experience taught me how amazing life is. After I recovered, the passing out reminded me that life is limited so we must do what matters to us. What truly matters to me is to find a wife to build a future big family. I also realized that all the seemingly huge discomfort/stress from my job is as tiny as a little star in the universe after you passed out and survived again.