Very good comment. There's a clear bias in the forums not to show the complications. I have been attacked several times for writing about what i have seen at a very popular doctor. Nobody gets attacked for writing nice things. Even patients with diaries try to hide negative things (they are still under treatment , how could they dare openly criticise their doctors? ) . They rather stop writing or simply don't tell the truth.
I personally believe if i went to India my experience wouldn't have been worse than what has happened to me in Germany.
Unfortunately many people do dismiss things they don't want to hear. I'm really sorry for what you have gone through and I hope you do recover soon.
Questions rising shorty,
1. Why will non-union lead to amputation? Worst case let it stay unconsolidated, walk with crutches all your life.
Not all non-unions will lead to amputation. These days many cases are resolved with proper Ilizarov techniques, stem cells and growth factors but for some people non-union can last for many years or even life time and face complications such as fractures and infections. So they opt for amputation. Here is a study on non-unions
http://actaorthopaedica.be/acta/download/2000-3/laursen-lass.pdf. There is one patient who requested amputation because he suffered from non-union, complications, disability and severe pain for 15 years.
2. Are there sudden "signs" of these dangers: nerve damage and compartment syndrome? So that you can stop lengthening in a timely fashion? It's not like you go to bed doing 1mm and the next morning it's over, right?
Yes, there are sudden signs of compartment syndrome and embolism
Here are some notes I prepared before my surgery and stored in my laptop for reference. You can call me crazy lol.
Compartment Syndromehttp://www.medicinenet.com/compartment_syndrome/article.htmSigns: Bleeding causes compartment pressure to rise and diminishes blood supply to nerves and muscles leading to:
-Pain exceeding the expectation of trauma
-Paresthesia (change in sensation) e.g tingling, tickling, prickling or burning of skin, pins and needles
-Paralysis of limb
-Tightness
-Bruising
-Swelling
Risks:-Occurs hours or days after trauma
-Trauma include surgery, muscle, vascular damage
-Person with a history of anticoagulants
-Dressing, casts, splints constricting affected parts
-Permanent nerve and muscle damage mostly occur if patient is unconscious or heavily sedated, failing to report pain. Can occur 12-24 hours after compression
Treatment:-Fasciotomy (making long incision on skin and fascia to release pressure)
-Removing cast, splints and dressing
Prevention:-Early diagnosis and treatment should prevent complications
-People with cast should report pain under cast due to swelling, despite taking pain medications
Fat Embolismhttp://www.ncbi.nlm.nih.gov/pmc/articles/PMC2700578/Signs: -Occurs 24-72 hours after surgery/trauma (maximum at 48 hours)
-Tachypnea (rapid breathing)
-Dyspnea (shortness of breath)
-Cyanosis (blue/purple discolouration of skin) in head, neck, thorax, sub conjunctiva, underarm
-Hypoxia (oxygen deprivation in body or region of body) Maybe detected hours before respiratory problems
-Cerebral problems e.g. confusion, drowsiness, rigidity, convulsions(rapid muscle contraction and relaxation)
-Tachycardia (rapid resting heart rate)
-Jaundice
Risks:-Trauma of pelvis and long bones
-Overzealous nailing of the medullary canal
-Reaming the medullary canal
-Increased velocity of reaming
-Increase in gap between nail and cortical bone
Treatment:-Mechanical ventilation to maintain arterial oxygenation
-Albumin with electrolyte solution to restore blood volume and bind to the fatty acids to decrease lung injury
Prevention:-The use of plates and external frame or smaller diameter nails decreases FES by reducing injury instead of nailing and reaming the medullary canal
-Using a pulse oximeter to monitor 02 saturation in blood therefore early desaturation will allow early oxygenation treatment to decrease hypoxic and systemic damage
-Preoperative use of methylprednisolone may prevent FES
Pulmonary EmbolismCauseBlockage of lung artery from a blood clot developed in the deep leg veins.
Signs: -Sudden shortness of breath
-Sharp chest pain and worse especially after cough or deep breath
-Pink foamy mucous cough/bloody cough
-Sweat a lot
-Anxiety
-Light headedness/faint
-Fast heart rate/breathing rate/irregular heart beat
-Heart palpitation
-Signs of shock
Risks: - Surgery involving both legs/breaking bones where arteries/veins are affected
-Inherited risk of developing clots
-Slowed blood flow from long term bed rests after surgery, sitting for a long time, leg paralysis
-Abnormal blood clotting from blood vessel injury
-Not taking anticoagulents
Treatment: -Anticoagulants (3 months after embolism or through life if risk remains high)
Hospital use of IV or shots/Home use via tablets
Slow down clot development and prevent clots getting bigger. But do not break up or dissolve existing blood clots
-Thrombolytics for extreme life threatening situations
All thrombolytics are capable of causing serious bleeding and capable of causing stroke and death.
-Embolectomy via surgery or catheter into the blood vessel
For patients with life threatening clots and cannot wait for medicine to work or for other failed treatments. Increases chance of developing more clots.
-Vena cava insertion into large central abdominal vein after failed anticoagulant treatment or bleeding risks fem anticoagulants. Or if a patient has an increase risk of death or restricted lifestyle for a recurrent emboli. Can break or be blocked with blood clots.
Prevention: -Daily use of anticoagulants stops formation of new blood clots and prevents further growth of existing clots.
-Movement after surgery
-Compression stockings
For nerve damage, signs will be tingling, severe pain, loss/abnormal sensation, paralysis and loss of motor control.
3. You seem to have a tone of someone prepared for this kind of stuff? Could you have really lived through if you faced a leg amputation? I don't understand how someone who feels so unhappy being short and considers a ridiculously crazy procedure can accept such an adverse outcome. No offense, just curious.
Good question.
Yes I did prepare myself for the worst and I feel that in order to be ideal candidate for LL, people must consider whether they will be able to cope with the worst case scenario of amputation and whether others will cope in an unfortunate event of death. You may laugh at me but I made a will before I left for SA just to prepare for the worse. Personally, if I did lose my limbs then I would try and find solace knowing that I did try my best to fight the constant heightism I suffered for the past 20 years. I would then try and find happiness while being an amputee and not go straight into taking my own life.