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Author Topic: My argument for waiting for Stryde, please weigh in  (Read 2522 times)

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one

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Re: My argument for waiting for Stryde, please weigh in
« Reply #31 on: March 09, 2021, 10:33:16 AM »

Giotikas just offered me a hybrid technique in case I want weightbearing: https://www.athensbjr.com/methods-of-bone-fixation-in-limb-lengthening/#1615151032722-7307679a-d07d

However, even though I just do 5 cm, I'd rather do femurs with Precice.

That is a really well written page.

You can change it to one leg pure external and one leg precice 2.

The scars will suck on one leg but on leg it can be explained as an accident.

I just don't know if the 2 legs will turn out to be same in alignment though haha.
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RealLostSoul

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Re: My argument for waiting for Stryde, please weigh in
« Reply #32 on: March 09, 2021, 01:20:15 PM »

Damn, 5'10 is a solid height, but mental health discriminates against no one. My philosophy is this: if it makes you happy and there is something you can do about it in a safe manner, go for it. Life and short, live it up. I hope the best for you, keep me posted.

Thanks man and yea I absolutely agree. Safety is the most important thing for me too which is why I really want to go with paley despite the fact that it's more effort (different continent, expensive, etc). I am currently planning to maybe get an x-ray here and send them so they can judge if I can fit the big diameter precice nail. if that's the case, I am 30 pounds lighter than the maximum weight limit - would be great news. if not I am maybe considering Dr Betz since I could travel to Germany by train actually (but like I said, i would prefer Paley).

Do you guys think for weight bearing does it make a difference if you have a nail in both femur and tibia or only in one? physically I think it shouldn't reduce or increase the weight bearing limit but I might be wrong here.
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BreaktoGrow

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Re: My argument for waiting for Stryde, please weigh in
« Reply #33 on: March 09, 2021, 03:15:05 PM »

Totally understand your reasoning, bro. It makes perfect sense. From my understanding, patients have to be x-rayed every two weeks for the entire course of lengthening. How are you able to stay there for only 4 weeks if you're hoping to achieve 8cm?
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BreaktoGrow

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Re: My argument for waiting for Stryde, please weigh in
« Reply #34 on: March 09, 2021, 03:26:13 PM »

No worries, bro. Height dysphoria is really hard. While I believe in therapy, I struggle to believe that therapy can fix a lifetime of insecurity about one single quality that we could never control and therefore always felt defeated by.

I'm guessing you're asking about quad-lengthening. In terms of pure technicality, the situation is such that even if you are below support line for the weight, there is apparent potential that the nail can bend at anytime. From what I've heard, quad lengthening (even with Stryde) is seriously difficult both physically and especially mentally. The pain and lack of mobility is very difficult, especially for that amount of time. The healing and risk of complications furthers as well. Even with just Precice, I'd recommend that for best results, you assume that you will be wheelchair-bound. Even if you are under the maximum-load the nail can handle, you have to consider other things such as force and external weight. Imagine this - you're standing on the nail at 115lb and you pick up a 20lb even momentarily whilst standing. To the nail, you're now 135lb. You accidentally overcompensate on the legs and add more weight through force, now you're even heavier on the nail. The displacement of weight in your body is important.

I'll say it like this - if you are honestly ready to go through several months of true immobility and serious pain and you are mentally stable and prepared, it's possible. But, at no point will it be easy. It's not impossible, though.
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RB

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Re: My argument for waiting for Stryde, please weigh in
« Reply #35 on: March 09, 2021, 03:29:03 PM »

Totally understand your reasoning, bro. It makes perfect sense. From my understanding, patients have to be x-rayed every two weeks for the entire course of lengthening. How are you able to stay there for only 4 weeks if you're hoping to achieve 8cm?

So when I fly back home, I will send x-rays from an x-ray department whenever they are required. 4 weeks is just a rough guide of when I will leave, If I still feel like I need to stay a bit longer in Germany then I'll probably extend my time here but the majority of docs (except for Paley) allow you to fly home to lengthen after 2-3 weeks if your using a weight bearing nail. As far as I am aware, Giotikas, Mahboubian, Rozbruch, Debiparshad etc all allow you to lengthen at home if you are using stryde. With precise I assume you would have to stay on-site until lengthening is completed.
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Femurs with Dr. Betz - March 2021
5'4" > 5'7.5"
Status: Consolidation phase
Diary: http://www.limblengtheningforum.com/index.php?topic=66296.0

BreaktoGrow

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Re: My argument for waiting for Stryde, please weigh in
« Reply #36 on: March 10, 2021, 06:22:01 PM »

Ahh, I didn't realize that you didn't need to be there after the first few weeks. I was under the impression that you had to stay due to bi-weekly x-rays. That makes things much easier.
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Bantem

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Re: My argument for waiting for Stryde, please weigh in
« Reply #37 on: March 10, 2021, 10:30:17 PM »

Giotikas just offered me a hybrid technique in case I want weightbearing: https://www.athensbjr.com/methods-of-bone-fixation-in-limb-lengthening/#1615151032722-7307679a-d07d

However, even though I just do 5 cm, I'd rather do femurs with Precice.
Did he mention what the price of that method is?
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Serilium

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Re: My argument for waiting for Stryde, please weigh in
« Reply #38 on: March 10, 2021, 11:00:10 PM »

Did he mention what the price of that method is?

Hybrid Internal External Tibia lengthening HYBIEX (learn more): 41800 Euro

Anyways, this is really cool. Never seen this before, a hybrid usage of methods. Helping weightbearing at least one side. And it looks like you got LL for limb discrepancy reasons, having frames on only one leg. Really cool by Giotikas.
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Jamesy998

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Re: My argument for waiting for Stryde, please weigh in
« Reply #39 on: March 11, 2021, 01:31:31 AM »

I honestly never understood the appeal of precise. I am doing LON femurs which is uncomfortable as hell but I would still rather this than precise as I can fully weight bear which actually keeps my muscles somewhat active rather than dormant. It also saves me the paranoia of walking. With precise I would probably be afraid to walk until the bones fully consolidated which would be much more than 6 months correct me if I am wrong. Stryde on the other hand is perfect overall. Fully weight bearing and you don't lose function, best of both worlds.
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LON method | Dr. Halil Buldu | 2021
Diary | http://www.limblengtheningforum.com/index.php?topic=66007.0

Arcon

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Re: My argument for waiting for Stryde, please weigh in
« Reply #40 on: March 11, 2021, 09:55:13 AM »

Giotikas just offered me a hybrid technique in case I want weightbearing: https://www.athensbjr.com/methods-of-bone-fixation-in-limb-lengthening/#1615151032722-7307679a-d07d


That's cool... I actually think it might be better than bilateral Precise in the tibias...You get to keep your walking and dealing with only one frame for a couple of months seems far more doable than dealing with two.
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RealLostSoul

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Re: My argument for waiting for Stryde, please weigh in
« Reply #41 on: March 11, 2021, 01:25:54 PM »

No worries, bro. Height dysphoria is really hard. While I believe in therapy, I struggle to believe that therapy can fix a lifetime of insecurity about one single quality that we could never control and therefore always felt defeated by.

Yes mate it‘s the truth. I have been in therapy for 5 years now. There is a difference with dealing with trauma or grief (for example I lost a family member not long ago and for a temporary event talking really can help. However, height dysphoria is there for a lifetime. You can‘t talk it away because you have to deal with it everyday from the beginning. LL is the biggest hope for people like me.

I am going to see if I might choose Betz over Paley bc of the stryde problem, maybe not though. Let‘s see.
« Last Edit: March 11, 2021, 02:27:06 PM by RealDamagedLostSoul »
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V21

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Re: My argument for waiting for Stryde, please weigh in
« Reply #42 on: March 11, 2021, 02:11:56 PM »

Yes mate it‘s the truth. I have been in therapy for 5 years now. There is a difference with dealing with trauma or grief (for example I lost a family member soon and for a temporary event talking really can help. However, height dysphoria is there for a lifetime. You can‘t talk it away because you have to deal with it everyday from the beginning. LL is the biggest hope for people like me.

I am going to see if I might choose Betz over Paley bc of the stryde problem, maybe not though. Let‘s see.
I agree man, I am also within average range and I have dysphoria that does not allow me to even leave my house. Went to therapy as well, and even the therapist agreed that getting the surgery would be the best hahahhaa. Fk living on defeat, the risk is worth it
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RealLostSoul

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Re: My argument for waiting for Stryde, please weigh in
« Reply #43 on: March 11, 2021, 02:26:37 PM »

I agree man, I am also within average range and I have dysphoria that does not allow me to even leave my house. Went to therapy as well, and even the therapist agreed that getting the surgery would be the best hahahhaa. Fk living on defeat, the risk is worth it

lol yea mine too. I also really struggle with it. Whenever I have to go to courses or shopping I am extremely depressed afterwards. I can't wait until this is over.
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BreaktoGrow

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Re: My argument for waiting for Stryde, please weigh in
« Reply #44 on: March 11, 2021, 07:45:42 PM »

In our society, being ridiculed for something that we literally have no control over and that has no direct relationship to our personality is very damaging. Within the terms of common physical attributes that are worth noting, you can literally work on nearly everything at a much lower risk and cost. But height, you simply cannot do anything about.
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RealLostSoul

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Re: My argument for waiting for Stryde, please weigh in
« Reply #45 on: March 11, 2021, 08:20:48 PM »

In our society, being ridiculed for something that we literally have no control over and that has no direct relationship to our personality is very damaging. Within the terms of common physical attributes that are worth noting, you can literally work on nearly everything at a much lower risk and cost. But height, you simply cannot do anything about.

that's why its so respectable to do LL.
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