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[tallmen]

https://link.springer.com/article/10.1007/s11999-014-3548-3

Dr. Lee in Korea uses it to speed up the process.

[Keynes]

Day 16: Harry removed my stitches, soon we are planning to get my 1st x-ray since distraction. Fingers are crossed, hope all goes well.

Day 17: Today I got my X-rays, as per the X-ray my total gain so far has been 1.3cm. I am still lengthening at 1mm. As per Harry, the progress is good so I plan to continue lengthening at this rate only. We also met the Doctor, as per him all is well so far. Below is the link to my X-ray.

https://imgur.com/OmvBvfX
https://imgur.com/KFLLOq1

[Keynes]

Day 21: Today was different. I have started standing with help of a walker, under the supervision of Harry. I did not put 100% weight on the legs, it was in the ratio of 40:60 distributed between legs and hands, respectively. It was a good experience to stand after a long time. After the activity there was burning in the calf muscle, it felt like all of the body's energy drained at once.

Condition of legs: Not much pain, but great amount of discomfort. Sleeping has become a lot difficult than it was earlier. Muscle tightness has increased. Harry said that going forward PT will be made more strenuous.

https://imgur.com/SuAwKr9
https://imgur.com/OVskyY9

[more]

could you share one standing picture from the front side too. Because second one is not completely front facing picture
Thanks

[canterk]

how is your pain in the pinsites specifically? are you consistently on any pain meds?

thanks for sharing your experience by the way

[Keynes]

how is your pain in the pinsites specifically? are you consistently on any pain meds?

thanks for sharing your experience by the way

Hi canterk,

There is some pain but that is not the concern really, discomfort is. I am not taking any painkillers since I started distraction. Pain around pin site is like when you keep your legs folded a little over inverted 90 degree angle lying on the bed and then when you relax your legs straight to 180 degree after sometime - you feel the pinch, but that doesn't last long. This is mainly due to tightness of soft tissue due to lengthening. Despite that, pain is nowhere near the point that you would need painkiller, at least not for me I can say.

[Keynes]

Day 17: My standing time has improved from about 30 secs to over 2 minutes now. I am doing calf raises which totally burns my calf muscles but still better compared to the first day. Today I walked a few steps using walker, first round with PTs assistance and second round a little independently, i.e. up to 4-5 feet. Sleeping remains troublesome with these heavy frames, not much improvement in that department. Due to lack of sleep i have not been able to resume work. I asked for some sleeping pills but was denied. Guess i have to do my time.

[Keynes]

.

[Keynes]

Day 17: My standing time has improved from about 30 secs to over 2 minutes now. I am doing calf raises which totally burns my calf muscles but still better compared to the first day. Today I walked a few steps using walker, first round with PTs assistance and second round a little independently, i.e. up to 4-5 feet. Sleeping remains troublesome with these heavy frames, not much improvement in that department. Due to lack of sleep i have not been able to resume work. I asked for some sleeping pills but was denied. Guess i have to do my time.

A small typo error - it should be Day 24

[Keynes]

Day 25: Here's my walking video from today's PT session. I was able to walk short distance independently with walker's support. Burning sensation in the muscles improved and was much better than previous. Both my feet were comfortably touching the floor. However, body felt exhausted after the walking activity so much that I wasn't quite able pull any exercises on my own after that, just lying on bed.

https://imgur.com/xZutdro

[tallmen]

it's kinda sad to see tbh

[tallmen]

How's the pain? The distraction phase seems to be really hard.

[more]

Bro your left leg is not Okay. You have Tibial torsion , knees moving invertly. The way you are walking , I don't think you are posting it from your desires.

[Keynes]

How's the pain? The distraction phase seems to be really hard.

Hi, pain is not really the issue. I'd say its manageable between 0-2 on a scale of 10.

Indeed, the distraction phase is harder not because of the pain but heavy frames. Frames disrupt your sleeping cycle, plus its irritating when changing from one position to another.     

[Bantem]

https://link.springer.com/article/10.1007/s11999-014-3548-3

Dr. Lee in Korea uses it to speed up the process.

Does he charge extra for it? And do you know how much it speeds up recovery?

[Keynes]

Bro your left leg is not Okay. You have Tibial torsion , knees moving invertly. The way you are walking , I don't think you are posting it from your desires.

Bro - are you a Doctor, prospective Patient or Veteran LL'r?? Just wanna assess your credibility on the forum.
Would have taken you seriously but I read your earlier posts on the forum, all are quite common and predictable. You seem to be targeting against a certain set of Drs.
Anyways I discussed your comment with my doctor, and you are wrong medically. I have just started walking after about 1 month with frames on, its really exhausting. This should be seen as a PT rehab and not my normal walking.

[tallmen]

No, he doesn't charge extra for it and it doesn't make that big of a difference maybe few weeks or so. There's a paper published by Dr. lee on this topic if you'll google it you'll be able to find it.

[more]

Bro - are you a Doctor, prospective Patient or Veteran LL'r?? Just wanna assess your credibility on the forum.
Would have taken you seriously but I read your earlier posts on the forum, all are quite common and predictable. You seem to be targeting against a certain set of Drs.
Anyways I discussed your comment with my doctor, and you are wrong medically. I have just started walking after about 1 month with frames on, its really exhausting. This should be seen as a PT rehab and not my normal walking.

It is upto you  . I already exposed many marketing patients and patients who really have problems .

[more]

I am sorry if you are hurted ,will never comments on any diary of Dr. Pradeep. This forum to discuss the problems and share the journey.
Good luck

[Keynes]

It is upto you  . I already exposed many marketing patients and patients who really have problems .

Well sir the picture you painted is completely different from the reality I am witnessing here. Understand the point, if u can - if anyone puts on a diary without posting pictures and only text, it'll will surely make u question its credibility; similarly if you are criticizing a qualified, experienced doctor, just words are not enough, you must provide a little background of yours for us to take you more seriously. We can't just take a word from any unqualified, random person surfing the forum with no medical knowledge.

And what do mean by marketing patients? If a patients appreciates his doctor, according to you he must have encountered a complication - is that u infer? are even for real?

I am localite here since birth, I know my city and I have a support system. Although I am confident about my choice, just to share, there is not just one doctor in the country, unlike the others I have the luxury of  borrowing second opinion. Based on this view, your comment on my diary earlier about some tibial torsion is not logical. I could dive deeper into this with you, now that I have discussed it with my doctor and a few others, but no point.

But please do answer the question raised earlier, for I am curious - are you doctor, prospective patient, or a vetran LL'r??

[Keynes]

I am sorry if you are hurted ,will never comments on any diary of Dr. Pradeep. This forum to discuss the problems and share the journey.
Good luck

Don't be apologetic, and I am not hurt. You can comment on my diary as much as you like; besides, it is an open forum with no restrictions. However, if you genuinely have a query I am more than happy to help, and even borrow the doctors opinion for you on the respective concern. Understand sir, you pointed a complication (not even related to LL), which I had to clarify with a Doctor.

And I request you to please don't make it sound like Dr. and I are relatives. I paid the Dr. for his services, and I am getting the services. This is a professional relationship. If I am appreciating their work, please read that as my feedback.

If anywhere down the line I am not satisfied with their work I will definitely post it on the forum with same honesty. 

According to you - the so called marketing patients, if any (I doubt), (I assume) who encounter complications and hide them and still appreciate their Doctors in hope for rectification (in my opinion) are nut cases. A doctor who has  wronged you once can do it again, better not to take any chances and consult a different doctor.

Request you to please answer the question raised earlier - are you doctor, prospective patient, or a vetran LL'r??

[Jamesy998]

Don't be apologetic, and I am not hurt. You can comment on my diary as much as you like; besides, it is an open forum with no restrictions. However, if you genuinely have a query I am more than happy to help, and even borrow the doctors opinion for you on the respective concern. Understand sir, you pointed a complication (not even related to LL), which I had to clarify with a Doctor.

And I request you to please don't make it sound like Dr. and I are relatives. I paid the Dr. for his services, and I am getting the services. This is a professional relationship. If I am appreciating their work, please read that as my feedback.

If anywhere down the line I am not satisfied with their work I will definitely post it on the forum with same honesty. 

According to you - the so called marketing patients, if any (I doubt), (I assume) who encounter complications and hide them and still appreciate their Doctors in hope for rectification are nut cases. A doctor who has  wronged you once can do it again, better not to take any chances and consult a different doctor.

Request you to please answer the question raised earlier - are you doctor, prospective patient, or a vetran LL'r??

Ignore him, he virtually comments the same negative opinions on most peoples diary. I am also in his head rent free just come look at my diary, haha. Anyway man, good luck to you, wish you for the best recovery.

[Keynes]

Ignore him, he virtually comments the same negative opinions on most peoples diary. I am also in his head rent free just come look at my diary, haha. Anyway man, good luck to you, wish you for the best recovery.

I know man. Don't mind at all. Stay strong and wish you all the best.

[tallmen]

Where are you staying? How much are you paying to stay? Do you have any helper?

[Keynes]

Where are you staying? How much are you paying to stay? Do you have any helper?

I am staying in a private room in a hotel.

Yes, u get a helper.

For price related queries, please reach out Harry. He is supervising everything here. Plus, I don't want to open any figures myself or do any kind of advertising on the my timeline.

[Keynes]

Hi, can anyone suggest how can I better my sleep in these heavy frames, especially during night time. Would be really helpful to hear from current patients or veteran patients of LON.

Just to share, there is no pain as such but a huge discomfort when changing from one position to another. I am not quite used to sleeping straight, on my back for long time. While shifting positions, I have to be really careful of the alignment of the frames, otherwise I feel soreness around pin sites, which kind of feels like some pressure on knee. I tried using pillow as a support under the knee, but it does not seem like a lasting solution.

Thanks in advance.

[Unknown]

Hey bro, just wanna say your so brave for getting this done! How's your walk so far, any updates in walking since your last vid? Any issue with constant pain? I'm looking to have LON for Tibia too, just wanted to hear more about the experiences with patients. Hope you have a smooth recovery!

[Keynes]

Hey bro, just wanna say your so brave for getting this done! How's your walk so far, any updates in walking since your last vid? Any issue with constant pain? I'm looking to have LON for Tibia too, just wanted to hear more about the experiences with patients. Hope you have a smooth recovery!

Hey man, thanks for the kind words. Walking has been definitely better since the last video, however still using the walker's support. Just to share, I have not done much walking over the last couple of days as my PT advised to wait until the next x-ray, which is scheduled for this weekend. There is no report of constant pain. I have not taken any pain meds since the start of distraction phase, so pain is not much of an issue so far. In my opinion, Tibia LON is much safer and aesthetically better than lengthening femurs. Take care.

[Keynes]

Day 35: Hi, could not update for a long time, the last week went pretty heavy. I was under the weather since Thursday. Suffered high fever which lasted for almost 3 days. Due to weakness, I could not follow much exercises. Most of the time I was resting lazy on the bed. Also took break from lengthening. Extra points for the staff, which was very caring. Harry paid multiple visits to check on my condition, which was comforting. Doctor Sharma also paid a visit, he confirmed viral fever and advised a few medics to better the condition. Dr. examined and assured that my legs are in good condition. I felt a little anxious here as I was feeling very low out of the fact that I could not pull even an inch of exercise. I thought all my progress got pushed behind but Dr. assured that strength in legs will rebound once fever settles and weakness subsides. Today feeling is much better, legs are feeling stronger, also started mild workout. Today resumed distraction at the rate of 1 mm.

Day 36: Today I got my X-rays done, also met the Dr. according to him we are on the right track and all is well.  There is also some callus build-up that can be seen in between the bone gap. From tomorrow onwards, I will slow down the distraction rate to 0.75mm per day. Below is the link to my X-rays.

Left: https://imgur.com/LMAUjfi
Right: https://imgur.com/2KCkiJr

[Keynes]

Day 38: Started standing against the wall since yesterday. However, today's standing was much better and longer. While standing against the wall legs were 98% - 99% weight bearing (taking into factor the wall support).

https://imgur.com/8t1XZGF

[Surfer]

Hey Keynes, good to see you got through the fever and progressing towards your goal.  I’ll be joining you shorting as I’m arriving on 4/2.  Looking forward to meet you and become your LL mate;)