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Author Topic: Is nerve injury a very serious concern for internal femur lengthening?  (Read 1204 times)

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Dirona

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I was reading this article - https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3851673/ ..Can nerve injuries be permanent?
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readyprecisestryde

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Re: Is nerve injury a very serious concern for internal femur lengthening?
« Reply #1 on: February 01, 2021, 10:50:16 PM »

Nerve pain appeared for me around 30mm and It is common amongst lengthening patients to start getting nerve pain around past 30 mm. I stooped lengthening a few months ago and only have numbness around my left tibia  and minor nerve pain in the same area (not super painful and more annoying than painful). I don't have any nerve pain on top of my feet and only localized in the left tibia. My doctor told me that it can take weeks/months to improve. The doctors usually stop patients immediately who start losing function in the limb, toe or feet.
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Dirona

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Re: Is nerve injury a very serious concern for internal femur lengthening?
« Reply #2 on: February 02, 2021, 03:30:06 AM »

Careful monitoring during lengthening is a must as sometimes these can go unnoticed I guess..Can this be permanent though? Any idea?
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readyprecisestryde

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Re: Is nerve injury a very serious concern for internal femur lengthening?
« Reply #3 on: February 02, 2021, 03:51:32 AM »

Yes and I slowed down lengthening to 0.75mm a day. Nerves grow 1mm per day. It has improved since I stopped lengthening but there is also possibility of it not 100% going away. Usually these type of localized numbness and nerve irritation heal themselves with time🤞I will keep everyone posted and hope this helps :)
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BelowTheMean

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Re: Is nerve injury a very serious concern for internal femur lengthening?
« Reply #4 on: February 02, 2021, 04:18:52 AM »

Careful monitoring during lengthening is a must as sometimes these can go unnoticed I guess..Can this be permanent though? Any idea?

It won't go unnoticed lol. You'll definitely notice it when your skin goes numb or your nerves starts hurting.
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Dirona

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Re: Is nerve injury a very serious concern for internal femur lengthening?
« Reply #5 on: February 02, 2021, 07:09:26 AM »

Crazy stuff..If detected, they could be treated permanently right? Or even after detection, the issues could be permanent?
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BelowTheMean

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Re: Is nerve injury a very serious concern for internal femur lengthening?
« Reply #6 on: February 02, 2021, 03:25:11 PM »

Crazy stuff..If detected, they could be treated permanently right? Or even after detection, the issues could be permanent?

I’m actually not sure. My shin numbness is persistent and based on what others have experienced post-distraction, it could be years before it goes away, or it may even be permanent. I would hope that chronic nerve pain would cause the lengthening process to stop before it becomes permanent, but again I’m seeing some journals talk about persistent nerve pain after the distraction phase. If you get persistent nerve issues during lengthening it seems like they could stick around for a while.
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Dirona

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Re: Is nerve injury a very serious concern for internal femur lengthening?
« Reply #7 on: February 03, 2021, 08:33:16 PM »

Does it affect you while doing your work or is it a mild discomfort?
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BelowTheMean

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Re: Is nerve injury a very serious concern for internal femur lengthening?
« Reply #8 on: February 04, 2021, 01:11:33 AM »

Does it affect you while doing your work or is it a mild discomfort?

I've had a large range of nerve issues, as I've written in detail in my journal.
At the lowest end, some minor numbness in my shins is not really noticeable at all.
At the highest end, I've had severe acute neuralgia to the point where I can only lay in bed curled up in fetal position in 8/10 pain for over an hour straight.

So as I've said before it really depends on the person and situation. You'll have to work it out with your doctor as issues come up. Overall, I've been able to work during the distraction phase, but my productivity is much lower than usual.
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Dirona

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Re: Is nerve injury a very serious concern for internal femur lengthening?
« Reply #9 on: February 04, 2021, 07:39:17 PM »

Let me peruse your diary :)
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Tokito_Ohma

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Re: Is nerve injury a very serious concern for internal femur lengthening?
« Reply #10 on: February 04, 2021, 11:00:50 PM »

From keeping up with all the stryde diaries, it seems majority of guys with a few exceptions,  who lengthened more than 7cm seem to be suffering from lomger term nerve pain. I personally would also love to lengthen 8cm later this year, but recovery is also important for me so I will opt for 7cm. Any more height= a second tibias operation will be a safe 5cm.
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Vibes

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Re: Is nerve injury a very serious concern for internal femur lengthening?
« Reply #11 on: February 05, 2021, 12:40:27 AM »

From keeping up with all the stryde diaries, it seems majority of guys with a few exceptions,  who lengthened more than 7cm seem to be suffering from lomger term nerve pain. I personally would also love to lengthen 8cm later this year, but recovery is also important for me so I will opt for 7cm. Any more height= a second tibias operation will be a safe 5cm.

I think you are correct; also most patients I spoke with at Paley had some level of nerve issues (from slight to moderate/severe) except for only 2 patients.
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BelowTheMean

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Re: Is nerve injury a very serious concern for internal femur lengthening?
« Reply #12 on: February 05, 2021, 12:48:16 AM »

From keeping up with all the stryde diaries, it seems majority of guys with a few exceptions,  who lengthened more than 7cm seem to be suffering from lomger term nerve pain. I personally would also love to lengthen 8cm later this year, but recovery is also important for me so I will opt for 7cm. Any more height= a second tibias operation will be a safe 5cm.

My shin numbness started at 3.5cm. Even if yours doesn't start until later on in the distraction phase, once you have it, it probably won't go away for a while. I highly doubt that shin numbness will end up being a determining factor for whether you decide to go to 8cm or not. Once you start the act of lengthening your thought process will be very different than pre-LL. I also think only the very determined would consider going for a second surgery after suffering through the first one. Also, don't forget that both femur and tibia lengthening are stretching the same nerve, so even if you do less on femurs and do tibias later, it's ultimately still the same sciatic nerve getting stretched beyond it's limits.
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Stryde Femurs - Debiparshad - Nov 2020
Nail Removal - Downey - Apr 2022
Journal (169cm -> 177cm) http://www.limblengtheningforum.com/index.php?topic=65617

Current Status: Recovered, moving on

Dirona

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Re: Is nerve injury a very serious concern for internal femur lengthening?
« Reply #13 on: February 05, 2021, 07:51:38 AM »

I would not go beyond 6 cm personally...
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Jamesy998

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Re: Is nerve injury a very serious concern for internal femur lengthening?
« Reply #14 on: February 07, 2021, 07:07:43 PM »

When one of your nerves is cut or damaged, it will try to repair itself. The nerve fibres shrink back and 'rest' for about a month, then they begin to grow again. Axons will regenerate about 1mm per day. The extent to which your nerve will recover is different for everyone. Nerve healing can take months and longer than a year even so just keep that in mind. If you do want a more detailed answer regarding nerve injury than consult a doctor because we only have general knowledge on the forum.
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MakeMeTallAF

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Re: Is nerve injury a very serious concern for internal femur lengthening?
« Reply #15 on: February 07, 2021, 10:28:46 PM »

When one of your nerves is cut or damaged, it will try to repair itself. The nerve fibres shrink back and 'rest' for about a month, then they begin to grow again. Axons will regenerate about 1mm per day. The extent to which your nerve will recover is different for everyone. Nerve healing can take months and longer than a year even so just keep that in mind. If you do want a more detailed answer regarding nerve injury than consult a doctor because we only have general knowledge on the forum.

Do you have a source for this info? I'm interested in reading more about this
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permanentlybanned

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Re: Is nerve injury a very serious concern for internal femur lengthening?
« Reply #16 on: February 07, 2021, 10:34:18 PM »

Anything more than 1.0mm a day for extended periods of tiempo is serious risk of nerve injury. 1.5mm total or more a day like how they do it in Soviet Russia is asking for nerve injury like Android cross lengthening. No, you cannot "willpower" you're way out of nerve damage from fast lengthening
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Jamesy998

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Re: Is nerve injury a very serious concern for internal femur lengthening?
« Reply #17 on: February 11, 2021, 03:04:38 PM »

Anything more than 1.0mm a day for extended periods of tiempo is serious risk of nerve injury. 1.5mm total or more a day like how they do it in Soviet Russia is asking for nerve injury like Android cross lengthening. No, you cannot "willpower" you're way out of nerve damage from fast lengthening

He is right. You would have to be a buffoon to manage and damage your nerves. Nerve damage pain is excruciating and you see it coming a mile off. I increased to 1.25mm at one point for only 3 days and I could feel that the nerves were hating it so I stopped and went back to 1mm. You listen to your body and you will succeed without these complications. There are unavoidable complications at stake too but nerve damage is something that you can see coming if you listen to your body well. Nerve pain becoming really bad? just take a break and continue later, and so on.

That is the reason I completely disregarded Russia before coming to Turkey. What clown lengthens 1.5mm per day, and you also had a few others reporting upwards of 2mm per day, ridiculous.
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