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[programdude]

Weird topic I know, but I'm curious if there are any bad experiences with him that have been documented since he is considered the premier surgeon for this. I've read bad things about almost every one/place but him.

Also, how realistic is it to keep the expenses for femoral lengthening with him very close to 90k? It seems like it might be doable, but if thats the direction I go one of my chief concerns is expenses somehow piling up like crazy.

[BilateralDamage]

https://sites.google.com/site/mycrippledleg/home/dr-paley-2-html

Didn't faze me tbh.  He also gets a lot of poor reviews for bedside manner.

[KrP1]

Wow that corroborates what a forum member tell me. He asked for a problem he was having about his lengthening and he says that paley response was " you get what you are paying for"

[ChrisIsaak]

While it's mostly true that you get what you pay for, and while Dr.Paley is the premier LL surgeon in the world without any doubt, he makes it sound like he's the only one who can properly do LL surgery. I'm sure that there are good and bad experiences with every doctor. Be realistic. There are many alternatives for good LL surgeons around the world if you can't afford Dr.Paley.

[programdude]

Well, I CAN afford him technically, but I would still vastly prefer to cut the costs of course if at all possible. He does strike me as being a little egotistical, and unfortunately when I wrote my inquiry he answered only 2 of 4 questions(skipping my question about my consultation costs being put towards the operation and if there was a malfunction of the device, if i would be charged for it) and then urged me to come for a consultation. I do understand they have a lot of time wasters but it would be nice if he could have tersely touched on the topics.

While I do feel that if I am shelling out the majority of my life savings I should be respected my primary concern is certainly more with my ability to receive my desired results without serious complications.

Also, KirP1 I'm confused- Did Paley say that to a patient of his own?? Doesn't seem to make sense since he is the most expensive option.

[ChrisIsaak]

programdude,

What other options are you considering?

[programdude]

At the moment here are my other considerations and thoughts on them:

1. Dr. M- In the US and cheaper than Paley, however like Paley he seems eager to rush you into a consultation without answering question which concerns me. His diaries from what I have seen yield good result, though the controversy about his advertising methods and members of the old forum promoting him for personal gain do concern me.

2. Betz- Don't know the cost of PRECICE with him but have sent an email asking. Unsure about his other methods. Also aware of concerns about nail insertion not being angled which is of course troubling, but from what it seems most diaries reflect on him positively.

3. Bejing, XIA/PENG- Of course the most financially attractive option by miles. Wary due to lack of any recent diaries and trying to avoid the knee pain/scarring associated with LON. If convinced of its safety these aren't deal breakers for me though.

[KiloKAHN]

If you're going for tibias I think Beijing would be just as good an option as Dr Paley, probably even better. Based on Dr Paley's responses to some e-mails it doesn't look like he does cosmetic lengthening with any device outside of Precice these days, in which case you'll still have the risk for knee pain as you would with LON/LATN. Unless you're going to be hanging out in Florida or have a good option to be cared for back home while lengthening, you're going to be on your own post-op. The doctors at the Beijing clinic have the experience and you'll also have care and security while lengthening.

Now if you wanted to do femurs, Dr Paley is the much better choice.

[KrP1]

Doctor paley says that to a patient of other doctor

Well, I CAN afford him technically, but I would still vastly prefer to cut the costs of course if at all possible. He does strike me as being a little egotistical, and unfortunately when I wrote my inquiry he answered only 2 of 4 questions(skipping my question about my consultation costs being put towards the operation and if there was a malfunction of the device, if i would be charged for it) and then urged me to come for a consultation. I do understand they have a lot of time wasters but it would be nice if he could have tersely touched on the topics.

While I do feel that if I am shelling out the majority of my life savings I should be respected my primary concern is certainly more with my ability to receive my desired results without serious complications.

Also, KirP1 I'm confused- Did Paley say that to a patient of his own?? Doesn't seem to make sense since he is the most expensive option.

[programdude]

My game plan is to do about 3 inches on the femurs with internals first(recovery time being faster will help me get back in shape and working).

If I go to bejing it definitely wouldn't be for femurs, but would be as close to 3 inches on the tibs as possible(if I chose it as my first surgery).

In a totally ideal world femur lengthening would go fine and I could wait a few years to recover as close to 100% as is reasonable, and then I could consider tibia lengthening of 2 inches to be at 6 1, assuming I did about 3 my first time. The calf thickness is very desirable, although the knee pain is troubling and I might decide its not worth it when I'm actually 5 11.

I actually know a chick in FL who I think is obsessed enough to care for me for the few weeks I'd need help which could slightly mitigate costs. I'm also willing to go this summer when hotel prices are cheaper to my understanding.



At this point I've decided LL is something I am absolutely pursuing, and sooner than later... It's just a matter of where. I have 150k to my name so all options are on the table, but I really am trying to keep it as tightly to 90k total with Paley as possible, if thats the direction I go.

[Arche]

While it's mostly true that you get what you pay for, and while Dr.Paley is the premier LL surgeon in the world without any doubt, he makes it sound like he's the only one who can properly do LL surgery. I'm sure that there are good and bad experiences with every doctor. Be realistic. There are many alternatives for good LL surgeons around the world if you can't afford Dr.Paley.

Quoted for truth. When I had my phone consultation with him, he made it seem like if I go to any other surgeon I was going to get maimed. Although, his results are undeniable. I am also sure he has saved the legs/lives of many people who went abroad, so I can understand his perspective as well.

[crimsontide]

paley is always like this.... he's a jerk

[programdude]

Quoted for truth. When I had my phone consultation with him, he made it seem like if I go to any other surgeon I was going to get maimed. Although, his results are undeniable. I am also sure he has saved the legs/lives of many people who went abroad, so I can understand his perspective as well.

As a businessman, I can respect his approach here. This is especially true because certain doctors you could get maimed with, so it gives him even less reason to not be firm with promoting himself. A bigger concern would be if he is unpleasant when you are already a paying patient of his.

As another poster here said, these are your legs- your one and only pair. If you have the means, why not try and ensure the best result. An extra 20-40k is nothing when compared with damaged legs. That being said if I was convinced of other surgeons proficiency, I'm not averse to going with them, especially if it looks like Paley will cost me much past 90k.