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[nomad13]

Day 53: started walking(frames on) with walker, would have walked for 10ft, i tried to walk in past when i started standing but it was painful back then, not much of pain this time but wasn't confident so limited with 10ft

[nomad13]

Day 54: Did x-ray today afternoon I had lengthened 4.225 by then(without considering any offset of previous x-rays or OT gap) got different figures in AP view and lateral view but am pretty much convinced I might have reached atleast 4.7 in lengthening which is quite enough for me, for now I am planning to turn(lengthen) only left leg another 2mm(0.5mm/day) from tomorrow to catch up to right and finally this metal contraptions going to come off me next week finally. I might or I might not lengthen another 1mm or 2mm both legs at end(next week) but looking at proportions as of now I am pretty satisfied with what I achieved.


https://i.imgur.com/n68wUEP


https://i.imgur.com/nh1EApu

[Adios]

wow your X-ray looks fine . your journey is going quite smooth brother keep update us .

[nomad13]

wow your X-ray looks fine . your journey is going quite smooth brother keep update us .

thanks Adios

[Smaller]

Hi nomad13
How are you ?
You doing good , your posts are really impressive.
You mind if I ask how did you paid because they are asking some booking amount online, is that safe?
Did you also paid the same way?

[Dreamer57]

Hi nomad13
How are you ?
You doing good , your posts are really impressive.
You mind if I ask how did you paid because they are asking some booking amount online, is that safe?
Did you also paid the same way?

Are you planning to do the surgery soon? In Delhi?

[nomad13]

@Smaller Hi, I am good thanks for asking, I think I was only one that did other way around, I didn't pay online I came to India(I am originally from India but I live in EU, in my case I didn't require medical visa either) I did my research met patients of Dr. Sharma whose dairies I read here, it gave me confidence to go ahead and then I paid booking amount it took them some 10 days or a week to organize the surgery. three days before I paid whole amount.

I guess if you pay early you wouldn't have to wait for surgery perhaps, for payment I used transferwise, it offered good forex, less commission to transfer and it takes some few hours to 3 days for transfer(so plan accordingly), I really appreciate both Dr, Sharma and Dr. Harry(PT) they are quite helpful in every stage and are always reachable. I liked the attitude of Dr. Sharma

[nomad13]

I be doing frame removal surgery next week

[Smaller]

Are you planning to do the surgery soon? In Delhi?

Yes I am planning.

[Smaller]

@Smaller Hi, I am good thanks for asking, I think I was only one that did other way around, I didn't pay online I came to India(I am originally from India but I live in EU, in my case I didn't require medical visa either) I did my research met patients of Dr. Sharma whose dairies I read here, it gave me confidence to go ahead and then I paid booking amount it took them some 10 days or a week to organize the surgery. three days before I paid whole amount.

I guess if you pay early you wouldn't have to wait for surgery perhaps, for payment I used transferwise, it offered good forex, less commission to transfer and it takes some few hours to 3 days for transfer(so plan accordingly), I really appreciate both Dr, Sharma and Dr. Harry(PT) they are quite helpful in every stage and are always reachable. I liked the attitude of Dr. Sharma

Whom did you paid? Because ,I guess it’s Harry whom I am talking to regarding the surgery did you also reached him?

[nomad13]

Whom did you paid? Because ,I guess it’s Harry whom I am talking to regarding the surgery did you also reached him?

I paid it to Harry, as he was dealing with everything, he also visits twice a day for PT, also during surgery time he was quite helpful

[Dreamer57]

Hey nomad your journey seems to he amazing! And your x-rays also look good....i hope your goal is reached...
Btw just one request....pls check out movie's diary....if you could upload a video like him to show your gait and walking it would be awesome...he puts videos while also keeping his identity private...also check out bluehen's video...if you could do that, it would be awesome!!! Btw best of luck

[nomad13]

Hey nomad your journey seems to he amazing! And your x-rays also look good....i hope your goal is reached...
Btw just one request....pls check out movie's diary....if you could upload a video like him to show your gait and walking it would be awesome...he puts videos while also keeping his identity private...also check out bluehen's video...if you could do that, it would be awesome!!! Btw best of luck

Sure Dreamer57 I will try uploading a video walking may be after frame removal, for now even when I stand I have to be conscious of being straight its for both my spine and knees, I only walked for few times with frames, will try if I could manage it, thanks for motivating words, it been one hell of journey, one I would have regretted if I hadn't

[Dreamer57]

Okay man, don't worry you are gonna come off alright...btw after this much of a lengthening do you feel tall...??

[nomad13]

at 165/166 might be still short for few, but I am happy with it, don't want to push it more and end up with long legs, I workout so it should compensate a bit

[Dreamer57]

at 165/166 might be still short for few, but I am happy with it, don't want to push it more and end up with long legs, I workout so it should compensate a bit

165 is average in India, even Amir Khan is 5'5"....so atleast you have come in the average group , and probably height is relative ...cuz there r some ppl on this forum who 5'10 and 6" by still they want to do the surgery....

I meant to ask that do you feel taller than before....if yes then that's all that matters...

[nomad13]

165 is average in India, even Amir Khan is 5'5"....so atleast you have come in the average group , and probably height is relative ...cuz there r some ppl on this forum who 5'10 and 6" by still they want to do the surgery....

I meant to ask that do you feel taller than before....if yes then that's all that matters...

I didn't even start walking to feel tall, and rest this is going to be relative now, majority  of people who go through CLL doesn't do to feel tall rather to overcome their height dysphoria and feel better

[Dreamer57]

Yeah you are pretty much right...bt I meant to say...by the phrase "feel tall" that taller than what you were before , which will indeed kill your height dysphoria.

[nomad13]

Yeah you are pretty much right...bt I meant to say...by the phrase "feel tall" that taller than what you were before , which will indeed kill your height dysphoria.

Yeah

[Smaller]

I paid it to Harry, as he was dealing with everything, he also visits twice a day for PT, also during surgery time he was quite helpful

Thank you for the reply.

[Dreamer57]

Hey man.... Jo hua so hua , ab bhool jate hai....
what's your status now? Hope you're doing well ...

[nomad13]

Hey man.... Jo hua so hua , ab bhool jate hai....
what's your status now? Hope you're doing well ...

All good i be doing frame removal surgery tomorrow

[Dreamer57]

All good i be doing frame removal surgery tomorrow

Cool man!  Best of luck....a new phase begins tomorrow!

[nomad13]

Cool man!  Best of luck....a new phase begins tomorrow!

Thanks man

[nomad13]

Day 61: Came to hospital around 06:46AM with Harry, for frame removal had surgery at 08:30, this time they had general anesthesia as I was supposed to discharge on same day, met Dr. Sharma in OT, was feeling cold in OT they kept some device with pipe around my chest that passed warm air. I woke up in post-OT at around 10:30 had some terrible pain, didn't had this much of pain in first surgery as i had spinal anaesthesia, they gave me painkiller in IV liquids, it took some 10 minutes to kick in and pain went down from around 8 to 3 out of 10, now I am in my room in hospital.

I already feel better without frames feel much lighter, didn't had much of pain with frames but wasn't comfortable especially sleeping in them was like hell(not as in pain but in terms of discomfort), in last days frames felt pretty much part of my body didn't had pain but still wasn't comfortable for nothing and my legs felt heavy as i already lost weight.

Looking back from the day of first surgery, it was one hell of a journey  by frame removal feels like another milestone in this journey, couldn't thank enough Dr. Harry and Dr. Sharma in this low time of my life for their support and availability.

[nomad13]

Day 61: When I was in hospital I slept most of the time, I came guest house around 16:00, tried to watch some movie, but eyes were shut most of the time, and I slept waking up every two hours or so, but going back to sleep till next day morning 11:00 I woke up for breakfast and slept again till 14:00, I guess anesthesia/pain-killers started fading off by time I reach at my place, I started feeling pain as much as during first surgery, but my legs I can move them which was not possible during first surgery

in hospital

https://i.imgur.com/qtEyKeU

Day 62: I woke up at around 07:00 had pains, had some quick snack and medicines(including pain killers Flexura D and Ultracet) slept again I sweat like as if I am in sauna, pain went down to pretty minimal but I could still feel around

[Smaller]

Day 61: When I was in hospital I slept most of the time, I came guest house around 16:00, tried to watch some movie, but eyes were shut most of the time, and I slept waking up every two hours or so, but going back to sleep till next day morning 11:00 I woke up for breakfast and slept again till 14:00, I guess anesthesia/pain-killers started fading off by time I reach at my place, I started feeling pain as much as during first surgery, but my legs I can move them which was not possible during first surgery

in hospital

https://i.imgur.com/qtEyKeU

Day 62: I woke up at around 07:00 had pains, had some quick snack and medicines(including pain killers Flexura D and Ultracet) slept again I sweat like as if I am in sauna, pain went down to pretty minimal but I could still feel around

Congratulations brother ,you are free from frame .
How you feeling now?

[nomad13]

Congratulations brother ,you are free from frame .
How you feeling now?

Quite light than past

[Adios]

Congratulations nomad13.
Keep work hard 

[Adward]

Stay fit and on track....u r in safe hands.

[Great321]

Congrats! Looking forward to read about your progress in the future