Hi Limewalk-
Good point and I don’t necessarily disagree with you. as far as the surgery goes, a NuVasive rep that I discussed the process with prior to surgery said to me that the surgery itself could be done by pretty much any competent orthopedic surgeon.
The first surgeon I consulted with was a very competent and extremely confident surgeon. I did not pick to consult with him but was referred to him by my primary physician when I asked to investigate this process. He said he would and could do it...but his recommendation was strongly to shorten my longer leg. For an LLD patient with a trauma history, touching our good leg is not something we want to do..leave my good leg alone! I also hate shoe lifts, my balance is not good and I actually would spend as much time as possible just wearing 1 flip flop that was about 1” thick. He too claimed to have some experience in his residency with limb lengthening but not clear to me when and how much. He was very skeptical TBH and especially hit on risks like nerve damage and dropped foot due to the growth...nerves don’t like to be stretched he said. He also spoke of some sort condition with the rod that some people have where they are bothered by it, something like they always feel pain/discomfort where it was inserted. When I pressed him a little on how these risks differed from shortening the good leg...most of them were the same. I think he down deep he thought the risks of either weren’t worth the reward. Basically, “you’ve lived with it for this long, just wear a shoe lift” was his opinion. I appreciated his opinion because I feel like I got a good negative opinion for me to consider. But truthfully, I didn’t like his attitude and his “I can do anything” mentality did not have the voice of experience I was looking for.
So I looked for an experienced 2nd opinion and selected my current surgeon based on the fact he was experienced (got name from NuVasive). He’s about an hour away from me but who cares! Night and day difference of opinion and he had the experience I was looking for. Any surgery has risks...trust me, I’m living proof. But he saw the risks as low risk for me and thought I was a good candidate. I raised all the concerns I had heard and he really downplayed them all. I liked his attitude and some side research came back positive with him being a well respected surgeon.
So it was up to me. My faith was a huge part of my decision...I don’t believe in coincidences and there were just so many things that miraculously lined up. Sitting between the 2 recent precice patients at an unplanned dinner was absolutely amazing and there were more things like that. After much prayer, my wife and I were at peace and here I am. But I will add, we are at peace with the risks too, meaning I’m ready to accept failure. I trust in God’s will and am ready for either good or bad outcomes.
In my reading/research, including this forum, the risks escalate with greater growth. My discrepancy is on the lower risk side from what I’ve read. 5cm seems to be a tipping point for escalation of risks and pain from what I’ve read, but there are others on the forum more researched and experienced than I on that. I haven’t heard a lot of amputations but I suppose that is an extreme risk/possibility.
That’s my perspective, hope it’s helpful.