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[Rei]

Looks good Rei, I wonder how much you'll be able to gain before you need ATL.

Dr Pili seems positive that no matter what i’m going to need it even for 5cm.

I’m at 3,5cm now and right foot is fine but i lost the dorsiflexion in the left one, still no ballerina, but i can fix it by walking for about 5 min. Overall i’m starting to feel the side effects of the distraction phase...sometimes some pain there and there but mostly my legs feel always extremely stretched, especially when waking up in the morning, it takes some moments to start to walk.

Overall i’m walking for about an hour and standing for about 30 min everyday plus stretching every other day.

[Nameless]

Dr Pili seems positive that no matter what i’m going to need it even for 5cm.

I’m at 3,5cm now and right foot is fine but i lost the dorsiflexion in the left one, still no ballerina, but i can fix it by walking for about 5 min. Overall i’m starting to feel the side effects of the distraction phase...sometimes some pain there and there but mostly my legs feel always extremely stretched, especially when waking up in the morning, it takes some moments to start to walk.

Overall i’m walking for about an hour and standing for about 30 min everyday plus stretching every other day.

My doctor also told me I'll need ATL if I'm aiming for more than 5cm.
Definitely try to avoid that one at all costs.
I'm about a month or 2 before surgery and I'm doing my best to stretch every day, hope it'll help somehow.

[alieno]

where are you supposed to do atl, in case you're gonna have it, Lecco or Roma?

[Rei]

where are you supposed to do atl, in case you're gonna have it, Lecco or Roma?

I will have to go back to Lecco

[Rei]

Quick update.

I can fix my ballerina and knee bending by doing exercises everyday for about 30 min but everytime i wake up in the morning is worse, i need another 1 month of lenghting anyway and i will be done for, achieving about 5,8cm; also the pins are starting to burn and break my skin pretty badly since atleast 1cm ago, not all of them but a couple of each leg look pretty terrible.

Other than that my mobility always been great, atleast better than what i used to read, if i really wanted i can walk unaided (with a terrible gait) even now but i avoid to. Hopefuly the recovery will be fast if i will do 5cm only

[Nameless]

I wouldn't stop lengthening just to have a quick recovery.
I would only stop lengthening if it could hurt me in the long run.
For most people, you only get 1 shot with this surgery, you probably won't do it again. Gain the most available to you.
20% of your initial tibia's length is probably the maximum you can gain safely. Did you measure it when you first started?

[Rei]

I wouldn't stop lengthening just to have a quick recovery.
I would only stop lengthening if it could hurt me in the long run.
For most people, you only get 1 shot with this surgery, you probably won't do it again. Gain the most available to you.
20% of your initial tibia's length is probably the maximum you can gain safely. Did you measure it when you first started?

Yeah my tibias are 35 cm and 20% would be 7cm but i feel is going to be too much, i want to be conservative maybe i will change my mind but i don’t think so

[Infinity]

generally recommended is to not lengthen more than 15% of the bone length, specially in tibia.

[Nameless]

generally recommended is to not lengthen more than 15% of the bone length, specially in tibia.

True.
This is why most people lengthen 5-6 cm, which is usually around 15% of the bone length.
7 cm looks like the maximum, which not all people can reach safely. You just have to go for it and hope for the best.
I'm hoping for 7 cm, but will be satisfied with 6. Less than that will feel bad for sure.

[Rei]

Just a quick update.

I just reached 5cm and by the time i will meet Dr Pili again i will be 5,6 and i will stop the lenghtening phase. There is one of the small wires that go trough the tibia and the fibula just below the knew that recently is burning a lot, this one for some reason never healed and is always bleeding a bit and ejecting some serum everyday since 3 months; instead since 3 days ago the leg where i have the ballerina foot hurts where they break the fibula a lot every time i weight bear on it, so i couldn’t do my exercises but everyday is hurting less.

[Nameless]

Thanks for the update.
Did Dr. Pili told you to stop or did you decide based on the pain you currently feel?

[Rei]

Thanks for the update.
Did Dr. Pili told you to stop or did you decide based on the pain you currently feel?

The lengthening has been painless for a while, i only have this one been that been really hurting for some days but today is already much better and i have ballerina only on my left foot. I’m stopping because of some reasons:

 i was already really short before the LL (163cm) and the 15% of by tibias is slighty over 5cm

From what i read everywhere and especially the diaries, 5 cm seems like a balance between safety and gains and i’m pretty happy about my height now

Even if this is a one shot thing to do, i’m already tired to be on frames, at worst with 5cm i will be on frames for 10 months and at best 7/6 months, which is a lot

I want to avoid doing ATL

[Infinity]

Wise move, listening to your mind and body always pays out.

[wannagrowtaller]

The lengthening has been painless for a while, i only have this one been that been really hurting for some days but today is already much better and i have ballerina only on my left foot. I’m stopping because of some reasons:

 i was already really short before the LL (163cm) and the 15% of by tibias is slighty over 5cm

From what i read everywhere and especially the diaries, 5 cm seems like a balance between safety and gains and i’m pretty happy about my height now

Even if this is a one shot thing to do, i’m already tired to be on frames, at worst with 5cm i will be on frames for 10 months and at best 7/6 months, which is a lot

I want to avoid doing ATL

Good mindset. I think you will be fine. Better be safe than sorry.

[Sanity]

what is the amount you want to lengthen ur tibias and what have doctors told you it can be achieved?

[Rei]

So i have some bad news i guess.

Today i met Dr Pili and for some reasons he dosn’t understand my right leg is shorter than a whole cm compared to my leg and he said it never happened before.
I never stopped the lenghting i just slowed it down for a month to 2 turns everyday, we took a full X-Ray of my legs and is clear from my pelvis that something is off.
Dr Pili said from the normal X-Rays that i will post tomorrow that it dosn’t look like i pre-consolidated, even tho he said my bone regeneration is above average, he even actually touch my leg and said that is soft, bow he told me to turn my left leg for two times each day for 8 days and the right one for 3 times for 20 days and we will meet again and at worst we will have to shorten one leg and settle for 4cm.

[Rei]

Latest X-Rays that i took yesterday, do you think i got a premature consolidation on my right leg? Sorry for the crappy quality

https://imgur.com/a/Bj5DgPV

[Sanity]

ur consolidation on the right is definetely much better than the left but im not sure if thts enough to be stated as premature consolidation. Still the main resisting force would be muscles not the bone while distracting.

[Rei]

ur consolidation on the right is definetely much better than the left but im not sure if thts enough to be stated as premature consolidation. Still the main resisting force would be muscles not the bone while distracting.

Thx sanity, the fact that Dr Pili said both that he never see this happening and that he dosn’t even know if i will be able to lenghten that leg or to short the other one and having to settle for 4cm, kind left me speechless and i won’t know for another month

[Rei]

For some reason the right leg (the one stuck at 4cm) hurts everyday when i turn for the 3rd time during the day, dunno if is a good sign

[Nameless]

Did he just tell you to keep lengthening even if it hurts and check again in a month from now?

[dunghuynh2227]

how are you now , everything ok ?

[Rei]

how are you now , everything ok ?

Yeah im fine thx, bu the looks of it the right leg didnt consolidate and i will be able ti reach 5,5 cm with that leg to, no idea how i was able to lengthen a whole 1cm less

[montahn]

Yeah im fine thx, bu the looks of it the right leg didnt consolidate and i will be able ti reach 5,5 cm with that leg to, no idea how i was able to lengthen a whole 1cm less

Hello Rei, what is your situation now ?

[Rei]

Hello Rei, what is your situation now ?

Hi it’s fine, i need to lenghten for 3 more days my right leg and i will be done, i’m experiencing some terrible burning pain from a couple of pins but other than that is find i think, i will meet Dr Pili in a couple of weeks and hopefuly he will tell me the same

[alieno]

How much have you lengthened precisely? Do you measure by yourself or the doctor measured you?

[Michael01]

Does dr Pili fixate your fibula using a pin through your tibia?

[Rei]

How much have you lengthened precisely? Do you measure by yourself or the doctor measured you?

6cm but you are going to lose some when you remove the fixator, about 10/15%, i actually asked him that and he confirmed

[Rei]

Does dr Pili fixate your fibula using a pin through your tibia?

Yeah with 3 small wires below the knee and one just above the ankle

[Michael01]

Do you think for someone doing tibia, it's better stryde than HEF?
Will you do LATN or stay with frames for the whole consolidation time?
Could you post a picture of your frames later?

[Rei]

Do you think for someone doing tibia, it's better stryde than HEF?
Will you do LATN or stay with frames for the whole consolidation time?
Could you post a picture of your frames later?

I will have to stay with frames the whole time, there are pro and cons for doing pure external vs LATN and Stryde but i think if done by a reputable doctor, LATN and Stryde is always better, having frames for like 8 months straight is not a joke, is 4 months now and i can’t wait to get rid of them already.