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[TRS]

If you run semi-regularly or even want to do recreational sports or hike, CECS is freaking terrible. It starts off as not a big deal but when it happens all the time without fail you then focus on it a lot. Also, if there were ever any situation where you had to run away from someone, you'd be screwed.

It mostly happens as acute compartment syndrome after injury. CECS is very rare in the thighs because the compartments are so big compared to the ones in shins.

Did regular long distance walking or prolonged standing ever provoke the onset of CECS, for example relaxed walking for 30 mins and long duration standing?

How long would the pain last and did you take painkillers?

[cole slaws]

Thanks! 
 
One last question, is CECS common during lengthening? Im a swimmer and singapore is way to hot for climbing or sports so I think I can live with CECS.

[KiloKAHN]

Did regular long distance walking or prolonged standing ever provoke the onset of CECS, for example relaxed walking for 30 mins and long duration standing?

How long would the pain last and did you take painkillers?

Nope, it would only come around when walking up any sort of incline or running, and running on pavement made it come up faster. I could walk or stand with no issues.

Thanks! 
 
One last question, is CECS common during lengthening? Im a swimmer and singapore is way to hot for climbing or sports so I think I can live with CECS.

I'm not sure how common it is. There's probably something that makes one predisposed to getting CECS but even doctors aren't sure about it. One of my doctors told me that in theory getting your legs lengthened could make the likelihood of getting CECS higher because your muscles have to work harder to pump blood in there. If it happens, it's most common in the anterior compartment, and it can cause things like temporary mild foot drop after exercising. Happened to me a few times when I tried to push through it.

Ah, I forgot to mention that CECS will cause you pain while swimming as well. If you're an avid swimmer, it will cut your laps short.

You could see if your doctor will perform a fasciotomy during the initial surgery as a preventative measure. Dr Parihar did with me but he did it on different compartments and not the anterior. It's possible I would have had to get those done as well if he didn't do so initially.

[KiloKAHN]

Had my bilateral fasciotomy performed today. The operation took just over an hour and it all went without a hitch. They put me under general anesthesia and I woke up a couple hours after it was over. I had it done in the same OT where I had my frames removed, but with a different specialist. I have to get my stitches removed in 2 weeks and until that time I can't submerge my legs in water. I'm able to walk without support, but my legs are really sore and they want me to keep my legs elevated as much as possible for the next few weeks in order to reduce the swelling. I'm most likely not going to be allowed to run for another 6 to 8 weeks, but I'm not in any hurry. I took a single hydrocodone pill for pain relief since I paid for the prescription, although the pain hasn't gotten high enough for me to really need it so far. I'm really curious to see what the scar is like once I get these bandages removed, considering one of the main complaints patients have with fasciotomies is that the scar can get pretty big. My surgeon also said that because the lower legs have a lot of nerves in the surrounding areas, they open them up quite a bit so they can see absolutely everything and don't accidentally damage one of the nerves. One of the good things about getting this done, however is that once I'm recovered from this and able to run without pain, I'll finally be able to make a proper post-CLL recovery video.

[onemorefoot]

Did you feel a little confused like strange after you wake Up for the anesthesia? Good that they solved your problem.

[KiloKAHN]

Did you feel a little confused like strange after you wake Up for the anesthesia? Good that they solved your problem.

No side effects occurred with the anesthesia. Just had a sore throat because of the breathing tube they put in me during the op.

[KiloKAHN]

My fasciotomy scars along with my CLL scars in all their monstrous glory.

[notimportant]

I'm sorry Kilo that you had the fasciotomy but I think you'll be better soon. For scars use scaraway or similar.

[Peaceout]

May i ask why there is a curve?

[KiloKAHN]

^ I turned my legs inward to show all the scars. Also the legs are swollen and lumpy on the outher side from the fasciotomy, so it just looks like they're curved.

[Penguinn]

If you're into having heavily tattooed legs, that's one way to take care of the scars.

[alps]

is this a riskier surgery than CLL or safer?

[KiloKAHN]

Well the first few days were fine but holy hell are my legs hurting now. It might be because I started walking too early, but I can barely move my legs today. Now I'm glad that I was prescribed the hydrocodone because my legs are throbbing like crazy.

is this a riskier surgery than CLL or safer?

It's possible to get pulmonary embolism, deep vein thrombosis, or nerve damage. Probably a little safer than CLL though since it's one procedure and you aren't spending months distracting your muscles.

[KiloKAHN]

I think my incision sites are infected on each leg as the slightest movement makes them burn and I now have a high fever. On the way to the nearest Kaiser to see about getting antibiotics because tonight is my last day of coverage before the start of June since I got laid off.

[KiloKAHN]

I've just been directed to a different hospital with higher level care because the surgeon present said I need to test for deep vein thrombosis based on the symptoms I described. Even having surgery in the US doesn't prevent you from having a crap result.

[mediocre]

DVT is easy to diagnose. Just a bedside ultrasound.

All the best and hopefully you make a full recovery.

I've just been directed to a different hospital with higher level care because the surgeon present said I need to test for deep vein thrombosis based on the symptoms I described.

[alps]

how did it all go?

[KiloKAHN]

Turned out no DVT but was given antibiotics and oxycodone along with morphine injections and stayed at the hospital overnight so they could keep an eye on me. Developed bruising that enveloped both shins and is especially prominent on the left side. The painkillers only work if my feet are elevated and as soon as I bring them down it's like I haven't taken anything and there's severe swelling and burning pains. My ortho said it's never happened to any of his prior patients and he wants to see me again in two weeks. I've had my stitches removed. It helped with pains somewhat but it's still there. The muscle in the space at the front of the ankle is all knotted and it's caused a small bit of equinus that should go away with time along with the bruising, but who knows when that will be.

[ibuse]

Thanks for keeping us up to date. I'm now very curious about this post procedure since I hope to do 7.5-8cm on my tibia. Did insurance give you crap about it since it was a post cosmetic thing?

[KiloKAHN]

Nope. It's in my medical records that I lengthened my legs for genetic short stature but I've never had an issue with my medical insurance. The doctor just puts down a recommendation for surgery and I pay based on my rate. I had a Platinum HMO plan through Kaiser Permanente so the surgery was only $150. I recommend them if you're okay with only getting medical treatment through a specific network.

Thanks for keeping us up to date. I'm now very curious about this post procedure since I hope to do 7.5-8cm on my tibia. Did insurance give you crap about it since it was a post cosmetic thing?

[YourSpaceBoyfriend]

Nope. It's in my medical records that I lengthened my legs for genetic short stature but I've never had an issue with my medical insurance. The doctor just puts down a recommendation for surgery and I pay based on my rate. I had a Platinum HMO plan through Kaiser Permanente so the surgery was only $150. I recommend them if you're okay with only getting medical treatment through a specific network.

Just out of curiosity, what's the threshold for being short stature in US?

[KiloKAHN]

Just out of curiosity, what's the threshold for being short stature in US?

In most environments, I think 5'7 is the threshold where people won't point out your height as something to ridicule, like "wow, you're really short" or "hey shorty", even though it's still shorter than average. I've been to a lot of places since my CLL and not once has my height been mentioned even though I'm rarely the tallest in a group.

For official records that list you as "genetic short stature", I'm not sure what the cutoff is. Maybe under the US average height of 5'9" I'd guess.

[Asdfgh]

Thanks for updating. You may not know, I have been reading your diary for a long time. Was worried about you. Hope you will be completely fine soon. I have even met Dr Mangal parihar and Dr suhas shah. Planning to go with dr Suhas shah since the cost of surgery is low with him.
My height is 160 cm ,Which is short even in India ( I'm from India) . But as I don't want any complications I'm only thinking of doing 5 or 6 cms on my tibias. Do you think there will be much difference if I lengthen only 5 cms?
I'm sorry for asking but you seem like the most reasonable person to ask suggestions from. Should I only target for 5 cms or 6 cms? Please answer... take care!

[paco1]

6 cm is very good amount. I think is with 6 cm when you feel taller than before.

[YourSpaceBoyfriend]

For official records that list you as "genetic short stature", I'm not sure what the cutoff is. Maybe under the US average height of 5'9" I'd guess.

I mean here to be officially short stature(at the point that you can receive hormone treatment for example) you need to be under 5'6(167cms) and people in poland are a bit taller than in US.

[IwannaBeTaller]

For official records that list you as "genetic short stature", I'm not sure what the cutoff is. Maybe under the US average height of 5'9" I'd guess.

Eh? Pretty sure at 5'8'', no doctor or medical record will ever refer to you as having "genetic short stature".

[google42]

"Compared with a well-nourished, genetically relevant population, short stature is defined as a standing height more than 2 standard deviations (SDs) below the mean (or below the 2.5 percentile) for sex."

This is a quote I got from this website: http://emedicine.medscape.com/article/924411-overview#a1

[KiloKAHN]

"Compared with a well-nourished, genetically relevant population, short stature is defined as a standing height more than 2 standard deviations (SDs) below the mean (or below the 2.5 percentile) for sxx."

This is a quote I got from this website: http://emedicine.medscape.com/article/924411-overview#a1

Looks like this is the answer then.

[Body Builder]

Genetic short stature is different of course from short or less than average.

I am sure the threshold would be 1.60 for a man or maybe even less.
An 1.65 man is completely normal, just short.
An 1.55 man on the other hand (except maybe asians) may included in what we call short stature syndrome.

[p89]

hi kilokhan. i read your diary and found that you stayed in maharana hotel. did they ask u for any proof of visit or anything like thiat for long stay? if i take a hotel i do not want to tell the hotel people i want to do surgery to increase my height   

[doomsday]

Genetic short stature is different of course from short or less than average.

I am sure the threshold would be 1.60 for a man or maybe even less.
An 1.65 man is completely normal, just short.
An 1.55 man on the other hand (except maybe asians) may included in what we call short stature syndrome.

The threshold is always below 3rd percentile for particular population. Then youre talking about short stature which in most cases is a idiopathic short stature.