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Author Topic: Things I can do to increase the chances of success on the operating table?  (Read 4255 times)

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1. What should I eat for the next 3 years? Like calcium or vitamin D?

2. Should I stop consuming sugar? I am not sure but I could be mildly diabetic due to excessive sugar intake since childhood.

3. I have nasal polyps that makes it difficult to breath through nose at times. Would it be a problem during anesthesia?

4. Body better be muscled or not? I read that it's better to bulk up the thighs if doing internal femurs.

5. Could sleep deprivation or staying awake at night affect it?

6. Is unilateral worth it even with Paley?

7. Would Paley mind me not telling my family that I do LL?
« Last Edit: May 10, 2018, 08:47:22 PM by Bruce Wayne »
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justaveragedude

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My thoughts based on observations:
1. Eat healthy. Exclude junk food and soft drinks. It is always better to be in good shape when it comes to CLL. Take vitamins during your lenghtening and recovery phases.
2. Yes, well at least try for these 3 years, pretty sure it will help you in the long run.
3. (JUST SPECULATING!) If they give you the general anesthesia it can be a little problematic if you ask me, sure not a great risk but better safe than sorry, tell Paley just in case.
4. Actually for external it is better if you do not have build muscles in the legs. I assume that is also the case with internals.
5. No.
6. He is one of the best, if he can tell you he can do it, you have nothing to fear.
7. Well here I am not sure. He may agree to not tell your parents, but I am pretty sure you have to write who he has to contact if something gets complicated/wrong with you, but like I said Paley is worth the money. Also try to tell your family, it will be much better for both you and your close ones, instead of making them worrying about you and you lying to them. 100% not worth it.
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172 cm. Want to do 5 cm on tibias and 7.5-8 cm on femurs with internal PRECICE 3 (STRYDE). Hope I can do it!

MirinHeight

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1. What should I eat for the next 3 years? Like calcium or vitamin D?

2. Should I stop consuming sugar? I am not sure but I could be mildly diabetic due to excessive sugar intake since childhood.

3. I have nasal polyps that makes it difficult to breath through nose at times. Would it be a problem during anesthesia?

4. Body better be muscled or not? I read that it's better to bulk up the thighs if doing internal femurs.

5. Could sleep deprivation or staying awake at night affect it?

6. Is unilateral worth it even with Paley?

7. Would Paley mind me not telling my family that I do LL?

1. consume your normal dietary needs of calcium and vitamin d. obviously you don't want to be low in either when under going orthopedic surgery.

2. you should try your best to be as fit as possible prior to surgery. This means lower body fat. This will not only help you during recovery and weight bearing, but also it reduces the chances of fat embolism in research studies.

3. I believe you can opt for epidural anesthesia if it is a concern for the physician operating on you

4. idk about this one. You should try to be as fit and healthy as possible prior to surgery though.

5. idk what you are asking here. But this ties back to #4. You need to make sure you are as fit and healthy prior to surgery and this means you should not be sleep deprived. Your body recovers when you are sleeping.

6. Unilateral surgery cuts down the chances of you developing fat embolism drastically. Even dr. paley has seen 4 cases of fat embolism syndrome when doing cll on the femurs.  If I undergo internal femurs, it would be unilateral spread one month apart.

7. I don't think Paley would make you get validation from your parents if you are over 18.
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currently 179 cm with a 6'2 wingspan
Goal: 182-183
top 5 LL surgeons: Paley, Rozbruch, Mahboubian,  Donghoon Lee, Giotikas

- planning to have LON tibias with dr donghoon lee in summer 2021

Great321

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I'm not sure anymore he mentions that stretching isn't that important before LL(unlike Guichet)
concerning muscle mass I don't really remember anymore but he mentions that also
Paley doesn't accept patients who smoke
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myloginacct

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I think somewhere in this video Dr. Paley says that having muscled legs before is not an advantage for recovery

I believe you are referring to the point in the video he talks about Guichet. It's because Guichet gets his patients to muscle up before surgery. Paley essentially called that worthless.

Whether it's a positive, a negative, or even completely irrelevant how built your legs are, I can't tell. I haven't looked up any published material on this subject.
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Great321

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Yes, at 51minutes he talks about it
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myloginacct

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You do wear down the cartilage in your bones/joints with high-intensity exercise, though, don't you? Any fact-checked replies would be much appreciated.
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Oh So Arrogant

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Flexibility is by far the best thing you can do. It wont help you lengthen additional centimeters. It will only make the process more bearable and less painful day to day. Stretching for a few months before surgery is worthless. Spend 8-12 months prior to surgery doing serious yoga, pilates or mixed martial arts.

Spending time and money to build muscle before limb lengthening surgery is beyond worthless.
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..

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My thoughts based on observations:
1. Eat healthy. Exclude junk food and soft drinks. It is always better to be in good shape when it comes to CLL. Take vitamins during your lenghtening and recovery phases.
2. Yes, well at least try for these 3 years, pretty sure it will help you in the long run.
3. (JUST SPECULATING!) If they give you the general anesthesia it can be a little problematic if you ask me, sure not a great risk but better safe than sorry, tell Paley just in case.
4. Actually for external it is better if you do not have build muscles in the legs. I assume that is also the case with internals.
5. No.
6. He is one of the best, if he can tell you he can do it, you have nothing to fear.
7. Well here I am not sure. He may agree to not tell your parents, but I am pretty sure you have to write who he has to contact if something gets complicated/wrong with you, but like I said Paley is worth the money. Also try to tell your family, it will be much better for both you and your close ones, instead of making them worrying about you and you lying to them. 100% not worth it.

Hey man, thank you for your answer. Actually I meant to say that I'm gonna do the surgery in 3 years from now so it's about these 3 years of preparation. Do you think it's necessary to start eating healthy as you described and stop consuming sugar from now on?

Paley said that unilateral is nonsense. But I still think that it minimizes the chance of fat embolism and I will have one healthy leg.

I most certainly will not tell my parents because they will be against it without doubt.

1. consume your normal dietary needs of calcium and vitamin d. obviously you don't want to be low in either when under going orthopedic surgery.

2. you should try your best to be as fit as possible prior to surgery. This means lower body fat. This will not only help you during recovery and weight bearing, but also it reduces the chances of fat embolism in research studies.

3. I believe you can opt for epidural anesthesia if it is a concern for the physician operating on you

4. idk about this one. You should try to be as fit and healthy as possible prior to surgery though.

5. idk what you are asking here. But this ties back to #4. You need to make sure you are as fit and healthy prior to surgery and this means you should not be sleep deprived. Your body recovers when you are sleeping.

6. Unilateral surgery cuts down the chances of you developing fat embolism drastically. Even dr. paley has seen 4 cases of fat embolism syndrome when doing cll on the femurs.  If I undergo internal femurs, it would be unilateral spread one month apart.

7. I don't think Paley would make you get validation from your parents if you are over 18.

Hi, thanks for answering. Actually I'm gonna do the surgery in 3 years from now so it's about these 3 years of preparation.

I've never been fat in my life. But do you mean that the lower the fat is the lower the chance of FE? In that case, I shall not eat much. :)

How does epidural anesthesia favor my nose condition?

Regarding the unilateral, Paley actually said that it's nonsense and he charges 30-40 extra k for 2-stage which means 1/3 of the original price. How difference do you think between unilateral spread one month apart and 6 months apart?

Flexibility is by far the best thing you can do. It wont help you lengthen additional centimeters. It will only make the process more bearable and less painful day to day. Stretching for a few months before surgery is worthless. Spend 8-12 months prior to surgery doing serious yoga, pilates or mixed martial arts.

Spending time and money to build muscle before limb lengthening surgery is beyond worthless.

What do yoga, pilates or mixed martial arts have to do with LL again? I am actually talking about 2-3 years prior to surgery. :)
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myloginacct

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Hey man, thank you for your answer. Actually I meant to say that I'm gonna do the surgery in 3 years from now so it's about these 3 years of preparation. Do you think it's necessary to start eating healthy as you described and stop consuming sugar from now on?

Paley said that unilateral is nonsense. But I still think that it minimizes the chance of fat embolism and I will have one healthy leg.

Regarding the unilateral, Paley actually said that it's nonsense and he charges 30-40 extra k for 2-stage which means 1/3 of the original price. How difference do you think between unilateral spread one month apart and 6 months apart?

By the time you do LL, Stryde/Precice 3 will have had some good years of experience under its belt.

So theoretically you'd have "good legs" soon. We shall see how Stryde actually fares.
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..

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By the time you do LL, Stryde/Precice 3 will have had some good years of experience under its belt.

So theoretically you'd have "good legs" soon. We shall see how Stryde actually fares.

Does this have anything to do with the chances of me ending up dead/permanent disabled on the operating table compared to PRECICE 2? I thought it's just about full-weight bearing and the ability to walk immediately post-op. When I said "a good leg", actually I was referring to a leg that's not broken.

Also, do you think Paley's skills will be significantly improved by that time? Maybe there will be something even more advanced than Stryde!

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Oh So Arrogant

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Paley said that unilateral is nonsense. But I still think that it minimizes the chance of fat embolism and I will have one healthy leg.

How does epidural anesthesia favor my nose condition?

Regarding the unilateral, Paley actually said that it's nonsense and he charges 30-40 extra k for 2-stage which means 1/3 of the original price. How difference do you think between unilateral spread one month apart and 6 months apart?

What do yoga, pilates or mixed martial arts have to do with LL again? I am actually talking about 2-3 years prior to surgery. :)

Does this have anything to do with the chances of me ending up dead/permanent disabled on the operating table compared to PRECICE 2? I thought it's just about full-weight bearing and the ability to walk immediately post-op.

Also, do you think Paley's skills will be significantly improved by that time?

These questions and statements from you are frighteningly bad.
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Johnson1111

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Why is unilateral nonsense?
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..

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These questions and statements from you are frighteningly bad.

Why? lol

Why is unilateral nonsense?

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Johnson1111

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I'm thinking of doing LATN so maybe it's a bit different considering it's not weight baring?
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Oh So Arrogant

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Dr. Paley even told you that you have a lot of misinformation. Like I said, frighteningly bad.
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Android

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I'm thinking of doing LATN so maybe it's a bit different considering it's not weight baring?

I think you're considering external femurs, correct? Very different from unilateral internals.

The reason for recommending unilateral externals over bilateral externals for femurs is because your mobility is severely hindered, substantially lowering the quality of life during recovery. This is not the case for internal femurs; I would totally choose bilateral femurs over unilateral femurs with Precice.
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5'4" and 1/4" (163.2 cm) | United States | early 30s | Cross-lengthening with Dr. Solomin & Dr. Kulesh

MirinHeight

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1.6-2% chance of fat embolism syndrome which can be fatal or cause coma/brain death is actually pretty high lol.

he had same response when i bought this up in an email a while back. Yeah hospital fees will increase, but he can't deny the fact is lowers the chance of fat embolism syndrome by a lot. Makes that 2% almost non-existent.

This is why I prefer Dr. Rozbruch over Paley.. he has no problem performing unilateral and understands why a pt would want it. And you can also get a majority of the hospital fees covered with Rozbruch if you have good ppo insurance.


« Last Edit: May 11, 2018, 04:16:52 AM by MirinHeight »
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currently 179 cm with a 6'2 wingspan
Goal: 182-183
top 5 LL surgeons: Paley, Rozbruch, Mahboubian,  Donghoon Lee, Giotikas

- planning to have LON tibias with dr donghoon lee in summer 2021

Android

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I'm good with those odds. I'm probably more likely to get into a fatal car accident on the way to the clinic.
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5'4" and 1/4" (163.2 cm) | United States | early 30s | Cross-lengthening with Dr. Solomin & Dr. Kulesh

..

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1.6-2% chance of fat embolism syndrome which can be fatal or cause coma/brain death is actually pretty high lol.

he had same response when i bought this up in an email a while back. Yeah hospital fees will increase, but he can't deny the fact is lowers the chance of fat embolism syndrome by a lot. Makes that 2% almost non-existent.

This is why I prefer Dr. Rozbruch over Paley.. he has no problem performing unilateral and understands why a pt would want it. And you can also get a majority of the hospital fees covered with Rozbruch if you have good ppo insurance.

Is the difference between unilateral and bilateral really 2% and non-existent? Probably it's worth the extra 30-40k.

I wonder why he doesn't encourage unilateral if it's good for the patients' safety and more money for him also.
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Android

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I wonder why he doesn't encourage unilateral if it's good for the patients' safety and more money for him also.

If the risk of fat embolism syndrome is that low, I'd rather decrease the number of times I get operated on under general anesthesia.
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MirinHeight

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Dr. Paley has seen fat embolism syndrome 4 times in his career. All from BILATERAL FEMOR LENGTHENING. And I don't buy him saying he's done 250 bilateral cosmetic leg lengthening surgeries. Compare that to the thousands of unilateral orthopedic surgeries for deformity and lengthening he has done up to this point without seeing a single Fat embolism syndrome.

the risk of dying from general anesthesia is 1 in 100,000. And you can't even say "but what about the risk of an allergic reaction from the anesthesia?" This won't be possible because you would have already been operated on under the same damn anesthesia the first time around. So it is foolish for anyone to not consider a unilateral lengthening because you think the risk of anesthesia is somehow higher than the risk of fat embolism syndrome from a bilateral lengthening. That must be one of the dumbest things I've read on here.

If you don't think 2% risk of fat embolism is significant, then you have little value for your life.
Fact is you won't even have to pay the 30k extra for unilateral lengthening if you have a good insurance and you go to Dr. Rozbruch...


You can do what you like man after doing your own research. I just want to get the surgery done with the lowest risk possible, even if it costs me more $..
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currently 179 cm with a 6'2 wingspan
Goal: 182-183
top 5 LL surgeons: Paley, Rozbruch, Mahboubian,  Donghoon Lee, Giotikas

- planning to have LON tibias with dr donghoon lee in summer 2021

Johnson1111

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Dr. Paley has seen fat embolism syndrome 4 times in his career. All from BILATERAL FEMOR LENGTHENING. And I don't buy him saying he's done 250 bilateral cosmetic leg lengthening surgeries. Compare that to the thousands of unilateral orthopedic surgeries for deformity and lengthening he has done up to this point without seeing a single Fat embolism syndrome.

the risk of dying from general anesthesia is 1 in 100,000. And you can't even say "but what about the risk of an allergic reaction from the anesthesia?" This won't be possible because you would have already been operated on under the same damn anesthesia the first time around. So it is foolish for anyone to not consider a unilateral lengthening because you think the risk of anesthesia is somehow higher than the risk of fat embolism syndrome from a bilateral lengthening. That must be one of the dumbest things I've read on here.

If you don't think 2% risk of fat embolism is significant, then you have little value for your life.
Fact is you won't even have to pay the 30k extra for unilateral lengthening if you have a good insurance and you go to Dr. Rozbruch...


You can do what you like man after doing your own research. I just want to get the surgery done with the lowest risk possible, even if it costs me more $..
wont the doctors look for fat embolism anyway and make sure you are okay regardless?
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Android

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Never mentioned mortality risk with general anesthesia, that's your interpretation; I just meant that it's a hassle and stressful on the body to go through additional surgeries. That being said, my grandmother died due to a mistake in administering general anesthesia; she went under and never woke up.

Not trying to have anyone agree with me, it's just my opinion of what I'd do. The odds are very good, and the reward outweigh the risks. Even if you are unlucky and get FES, your chances of survival is high.

I suppose I got subjective. I'm not answering the topic objectively.

The best way to increase the chances of success on the operating table is to consult with several doctors, get their opinions, and listen to them instead of relying too heavily on the opinions of strangers on the internet.
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5'4" and 1/4" (163.2 cm) | United States | early 30s | Cross-lengthening with Dr. Solomin & Dr. Kulesh

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Chances of dying in an airplane crash = 1 : 11.000.000

Chances of dying in a car crash = 1 : 5.000

So yes, 1-2 : 100 is real significant. But he might have meant that 1-2% is the chances of significant complications (that can be treated) and not dying.
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Android

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Chances of dying in an airplane crash = 1 : 11.000.000

Chances of dying in a car crash = 1 : 5.000

So yes, 1-2 : 100 is real significant. But he might have meant that 1-2% is the chances of significant complications (that can be treated) and not dying.

Do keep in mind that we travel a lot more often than we get operated on. I'd take the 1-2% risk. Again, my opinion.

Correct, he has never had a person die from FES. Risk of death by FES is 10-20% if you get it at all, so mortality is fraction of a percent (20% of 2% is 0.004%). It is not a death sentence.
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fokid

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how are the odds of a car crash 1:5000?  ??? most people drive 10 times a week. so in 10-15 years everyone should have been involved in a car crash? think of third world countries like Vietnam where traffic is very chaotic.
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myloginacct

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Dr. Paley has seen fat embolism syndrome 4 times in his career. All from BILATERAL FEMOR LENGTHENING. And I don't buy him saying he's done 250 bilateral cosmetic leg lengthening surgeries. Compare that to the thousands of unilateral orthopedic surgeries for deformity and lengthening he has done up to this point without seeing a single Fat embolism syndrome.

the risk of dying from general anesthesia is 1 in 100,000. And you can't even say "but what about the risk of an allergic reaction from the anesthesia?" This won't be possible because you would have already been operated on under the same damn anesthesia the first time around. So it is foolish for anyone to not consider a unilateral lengthening because you think the risk of anesthesia is somehow higher than the risk of fat embolism syndrome from a bilateral lengthening. That must be one of the dumbest things I've read on here.

If you don't think 2% risk of fat embolism is significant, then you have little value for your life.
Fact is you won't even have to pay the 30k extra for unilateral lengthening if you have a good insurance and you go to Dr. Rozbruch...


You can do what you like man after doing your own research. I just want to get the surgery done with the lowest risk possible, even if it costs me more $..

Paley and his team consider and monitor for FE so I wouldn't be as worried about it. If it's been accounted as something that can happen and the team is prepared and takes measures for it, it doesn't seem as concerning. Compartment syndrome sounds much scarier to me.
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myloginacct

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Do keep in mind that we travel a lot more often than we get operated on. I'd take the 1-2% risk. Again, my opinion.

Correct, he has never had a person die from FES. Risk of death by FES is 10-20% if you get it at all, so mortality is fraction of a percent (20% of 2% is 0.004%). It is not a death sentence.

Isn't it 0.4%?

That is comparatively much higher than the car crash scenario (0.02%), but given that it'd be just once or twice in our whole lives... (I'm assuming removing the IM nails can also trigger FE, but I'm not sure.)
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myloginacct

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how are the odds of a car crash 1:5000?  ??? most people drive 10 times a week. so in 10-15 years everyone should have been involved in a car crash? think of third world countries like Vietnam where traffic is very chaotic.

Yeah, I'm not sure where Bruce got his numbers from.

https://www.thrillist.com/cars/nation/how-likely-you-are-to-die-in-a-car-accident-in-every-us-state-the-most-dangerous-roads-in-america

It seems it can vary drastically.

I'm not sure if Bruce's numbers refer to normal city traffic or road traffic, either. I'd say that's an important distinction to make.

Either way, it really puts driving into perspective.

https://www.iii.org/fact-statistic/facts-statistics-mortality-risk

(Lifetime chance of dying in a car accident, as the occupant, being 0.15% according to this last link.)
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myloginacct

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Do keep in mind that we travel a lot more often than we get operated on. I'd take the 1-2% risk. Again, my opinion.

Correct, he has never had a person die from FES. Risk of death by FES is 10-20% if you get it at all, so mortality is fraction of a percent (20% of 2% is 0.004%). It is not a death sentence.

Isn't it 0.4%?

That is comparatively much higher than the car crash scenario (0.02%), but given that it'd be just once or twice in our whole lives... (I'm assuming removing the IM nails can also trigger FE, but I'm not sure.)

So that's about a 1 in 250 chance of dying to FES.
                         (0.4%)
« Last Edit: May 11, 2018, 01:44:11 PM by myloginacct »
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