Where would you rank your pain on a 1-10 scale also do you plan on doing more surgeries ie femurs and hopefully you get full feeling back pretty soon
Thanks for the well wishes and I don't mean to sound mean, but you may get more out of life with much less of an investment by improving your reading comprehension and English writing skills. Anyway, I'll try to make sense of your run-on sentence and give an update on my journey so far.
Friday, June 8, 2018 - 4 weeks since stopping lengthening the tibias, 2 weeks since stopping the right femurToday concludes the lengthening phase of my process, for a total of 7.5cm (almost 3"). Here are the x-rays on the last day of lengthening:
For the last two weeks, I've only been lengthening the left femur at 0.5mm/day, in order to make up for the leg length discrepancy. As I noted in a previous post, this was due to a strategic mistake - not correcting this discrepancy at the beginning of the lengthening process. Please learn from my experience and convince your doctor that you want to correct any discrepancies at the beginning of the lengthening, when you're much more flexible, and one extra turn a day won't make much of a difference.
Surprisingly, when I asked Dr. Paley about the timeline to walking with crutches and consolidation, he cleared me for walking with crutches and sent me to PT to learn the
4-point crutch gait. He also upped my weight bearing from 100lbs (2x50 in the tibias) to 120lbs with the walker, and said I could stand straight unassisted without a time limit, as long as the heels, knees and hips were stacked. Was anyone else using PRECICE cleared to walk with crutches the day of their last turn? I had stopped tibias 4 weeks ago, and the right femur 2 weeks ago, but I've still been lengthening the left femur, and indeed, it doesn't show any consolidation in the x-rays:
So that's what two weeks of consolidation in one femur looks like.
Anyway, trying to walk with crutches after not walking for three months, was really scary. Even standing on my own two feet was a balance challenge. I'll stick with the walker for a while.
Today I also flew back home.
The flying process was pretty streamlined: you show up at the airline's "special services / wheelchair requests" counter and they'll
take care of you. As in, someone will ask for your ID, give you the boarding pass, then someone else will wheel you into security, take any carry-ons you might have, hand you over to TSA for a pat down, then get your carry-ons back and wheel you to the gate. From there, a gate attendant will wheel you to the plane, help you transfer into a special narrow wheelchair, then transfer you to your seat. Tip: get the wheelchair cushion with you! The plane seat was surprisingly stiff - because I had lost so much of my glutes.
In theory, as a wheelchair passenger you can get upgraded for free to first class in order to be closer to the bathrooms, but that didn't happen in my case (JetBlue), likely due to a certain rude gate attendant (who will be mentioned in a complaint letter to JetBlue). Bathroom proximity was irrelevant in my case, since I couldn't fit the walker in the aisle anyway, so I used the restroom just before boarding, and stopped drinking an hour earlier. I did sip some water during the flight, but not much, so that I could last 6-7 hours without needing the restroom.
During the next few weeks I'll be focusing on improving my ankle dorsiflexion and regaining my balance while standing straight. I also plan to buy a stationary bike, since I suspect that cycling will improve knee flexibility quite a lot, and because I need the cardio exercise.
Over the past several weeks, I haven't been in pain at all, except when stretching. I'll be tapering off Gabapentin/Neurontin over the next 10 days, and will be taking two monthly x-rays to send to Dr. Paley. He said that I could be walking unassisted within the next 4-6 weeks.