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Author Topic: External Method with Dr. Pili in Lecco, Italy  (Read 7482 times)

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fivetenneeded2016

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Re: External Method with Dr. Pili in Lecco, Italy
« Reply #31 on: March 16, 2018, 01:23:01 PM »

Also have you lost(atrophy) any muscle(quads/calves) till now?
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tibias: april 2018 to july 2019 under dr pili/catagni- HEF.
femurs: feb 2021 and sep 2021 dr halil-precise 2
159-181.
came. lengthened. moving on.

fivetenneeded2016

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Re: External Method with Dr. Pili in Lecco, Italy
« Reply #32 on: March 16, 2018, 01:25:06 PM »

How do you goto your classses? crutch or wheelchair? And ntw, are you using a wheelchair as well?
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tibias: april 2018 to july 2019 under dr pili/catagni- HEF.
femurs: feb 2021 and sep 2021 dr halil-precise 2
159-181.
came. lengthened. moving on.

shadow

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Re: External Method with Dr. Pili in Lecco, Italy
« Reply #33 on: March 16, 2018, 02:24:42 PM »

How long are you able to walk for at a time?
It depends on determination. If I am on painkillers and with crutches, 1 km is not a problem.
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shadow

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Re: External Method with Dr. Pili in Lecco, Italy
« Reply #34 on: March 16, 2018, 02:26:57 PM »

Also have you lost(atrophy) any muscle(quads/calves) till now?
I cannot contract my muscle fully because there are 8 pins in each of my limb. It will cause pain or even wounds. Therefore I cannot tell that.
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shadow

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Re: External Method with Dr. Pili in Lecco, Italy
« Reply #35 on: March 16, 2018, 02:28:59 PM »

How do you goto your classses? crutch or wheelchair? And ntw, are you using a wheelchair as well?
Crutches, yes. Wheelchair, I don't think so. How am I gonna get on a tram or a bus with a wheelchair? Crutches are already much of a liability.
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fivetenneeded2016

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Re: External Method with Dr. Pili in Lecco, Italy
« Reply #36 on: March 16, 2018, 03:29:35 PM »

Thanks for your replies :)
1. 1km is pretty impressive. so you dont buy/rent a wheelchair at all?
2. are you told before hand about when to meet dr pili? And how often do you need to meet him? He said once a month till lengthening phase is done. could you confirm?
3. are you doing physios now? is it comfortable ?
4. you sure you can manage with crutches for your classes?


sorry for many questions, might ask many more :p
Mine is due next month :)
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tibias: april 2018 to july 2019 under dr pili/catagni- HEF.
femurs: feb 2021 and sep 2021 dr halil-precise 2
159-181.
came. lengthened. moving on.

shadow

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Re: External Method with Dr. Pili in Lecco, Italy
« Reply #37 on: March 16, 2018, 04:17:34 PM »

Thanks for your replies :)
1. 1km is pretty impressive. so you dont buy/rent a wheelchair at all?
2. are you told before hand about when to meet dr pili? And how often do you need to meet him? He said once a month till lengthening phase is done. could you confirm?
3. are you doing physios now? is it comfortable ?
4. you sure you can manage with crutches for your classes?


sorry for many questions, might ask many more :p
Mine is due next month :)

1. I don't have a wheelchair. But if you want, you can buy/rent one.
2. Yes, I was told beforehand. The frequency is once a month.
3. I am not assigned any physios, but I have to walk a lot. I cannot count on my friends to do everything for me.
4. I go to class only when necessary. And yes, I can manage with crutches. As you said, I have to go to hospital to meet Dr. Pili once a month. Frankly speaking, the hospital is much more far away from where I live.

Good luck with your surgery.
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MoonWalk

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Re: External Method with Dr. Pili in Lecco, Italy
« Reply #38 on: March 16, 2018, 07:04:34 PM »

I hope you make a diary too!

Will do but I plan to do the operation only at the beginning of next year !
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NightHeight : 171 (5.7.5)
Goal : 5cm External Tibia with Dr.Pili

tikal

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Re: External Method with Dr. Pili in Lecco, Italy
« Reply #39 on: March 16, 2018, 09:38:12 PM »

hi shadow
can i see ur x-ray?
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7231

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Re: External Method with Dr. Pili in Lecco, Italy
« Reply #40 on: March 17, 2018, 03:38:02 AM »

1. I don't have a wheelchair. But if you want, you can buy/rent one.
2. Yes, I was told beforehand. The frequency is once a month.
3. I am not assigned any physios, but I have to walk a lot. I cannot count on my friends to do everything for me.
4. I go to class only when necessary. And yes, I can manage with crutches. As you said, I have to go to hospital to meet Dr. Pili once a month. Frankly speaking, the hospital is much more far away from where I live.

Good luck with your surgery.

Do you hide the frames from your classmates/professors ? if so how? if not why not (I mean most people know what those frames are meant for and it is kinda odd to have classmates who know you are doing LL)?
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fivetenneeded2016

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Re: External Method with Dr. Pili in Lecco, Italy
« Reply #41 on: March 17, 2018, 03:25:01 PM »

Do you hide the frames from your classmates/professors ? if so how? if not why not (I mean most people know what those frames are meant for and it is kinda odd to have classmates who know you are doing LL)?
+1

And btw how much do you plan to lengthen?
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tibias: april 2018 to july 2019 under dr pili/catagni- HEF.
femurs: feb 2021 and sep 2021 dr halil-precise 2
159-181.
came. lengthened. moving on.

Shadow91

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Re: External Method with Dr. Pili in Lecco, Italy
« Reply #42 on: March 26, 2018, 12:26:15 PM »

Shadow have you met anyone who is doing internal femur lengthening? If so, how is it going for them?
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7231

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Re: External Method with Dr. Pili in Lecco, Italy
« Reply #43 on: April 01, 2018, 12:36:29 AM »

shadow, Do you hide the frames from your classmates/professors ? if so how? if not why not (I mean most people know what those frames are meant for and it is kinda odd to have classmates who know you are doing LL)?
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myloginacct

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Re: External Method with Dr. Pili in Lecco, Italy
« Reply #44 on: April 04, 2018, 03:54:20 AM »

Quote
I would really like to have someone to talk to talk to when I am fighting my own battle.

By the way, I read this in your OP again, and I just had to comment: I hope you've been doing well in that regard. So many LLers hire and depend on other people to take care of them, in their own countries. I hope you have been faring well and haven't been too lonely, shadow.

All the best to you and the rest of your journey.
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