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[mattcae]

Hello, My son is 12 years old and his growth plate in his right arm is shut down. We have consulted with Dr. Rozbruch and Dr. Pailey. Both agree that there is a deformity in his right shoulder and lengthening with an internal device is an option to fix his shoulder and lengthen his arm. We would love to hear from any parents that have taken this journey with their kids.

[YourSpaceBoyfriend]

I don't think you will find any parents here honestly but as someone that was very often in one of the biggest orthopedical centres in my country i can tell u that kids mostly take that surgery very lightly. It's not even near as bad as it is for adults.

[ShortArm]

I can tell you are a lucky person for a doctor to propose lenghtening. In my country doctor said that arm would not be lenghtened even one is smaller than other. Doctor said that smaller arms does not affect your daily function..i do disagree, but what do i know. To be honest i was really sad to hear this.

My problem was unfortunately 2 arms that for unknown reason stopped growing in puberty.  I had really long arms as a child, but in puberty everything else grew, but arms and hands. After puberty i been having problems with my neck and back. Also my parents did not care about this(they opted for time will make your arns grow explanation), so i was left with option to deal with it when i an strong enough as a adult. So now i am saving money to see an international Ortopedist, because i dont think my country is experienced enough in this area of medical knowledge.

I would go to Dr Rozbruch and he has informed me to be happy to have me for the consultation, but i am outside from US so for me its not a option because of the high cost.

[Sarah]

 I am almost the same  but one arm ( my parent also didn't care because they don't like surgeries ) , I am also planning to do surgery , good luck , wish you all the best

[Sarah]

I had your son probliem since I was 8 years , sorry I will not be very helpful because I didn't have my surgery yet , but I consult with Dr/ Rozbruch and I will have my surgery with him using internal nail .

[WarRose]

OVERDOZER
He did his humerus 3.5 cm

[ShortArm]

Thanks Sarah. I wish u all the best too. Dr. Rozbruch seems like a good doctor, so i think you will be in good hands.

[Sarah]

Overdoser what ?

[LongueEpopée]

What about your insurance covering the cost or something ? I have the same but i'm from Europe

[Sarah]

Yes insurance cover buy not everything

[ShortArm]

Sarah, i assume u have gone trough the consultation with Dr Rozbruch. How did it go and have you made up your mind about the trreatment? Its a life changing treatment so i can sense some emotionality. At least i have been really emotional about just finding a dock that does not say: "learn to live with it". It is kind of old fashioned way to treat a person.

I was skeptic of my countrys docs, but i found one with help of one wonderful lady. He told me to have been treating this before. I am so happy to be able to here for consultation. I am from north europe.

[Sarah]

Yes I had my surgery with him , I am happy that you found surgeon , wish you all the best

[Zeo]

Yes insurance cover buy not everything

Can you tell us how much you had to pay out of pocket after insurance covered some?

Everyone here would really appreciate as money is the number 1 thing holding most people back

[Sarah]

My surgery wasn't cosmetic .

[ShortArm]

Yes I had my surgery with him , I am happy that you found surgeon , wish you all the best

Happy to hear, i repect him high as a person and thanks also!