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Author Topic: People who died after LL  (Read 15819 times)

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IwannaBeTaller

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Re: People who died after LL
« Reply #31 on: May 20, 2018, 04:57:38 PM »

I know a girl in Barcelona also died (Achondroplasia).

There is also one guy who committed suicide.

Who committed suicide?
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It's a long way to find peace of mind, peace of mind
It's a long way to find peace of mind, peace of mind.

iwontallow

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Re: People who died after LL
« Reply #32 on: May 20, 2018, 07:07:54 PM »

Who committed suicide?

Monegal patient. Many patients have posted about that.
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..

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Re: People who died after LL
« Reply #33 on: May 24, 2018, 09:59:20 AM »

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IwannaBeTaller

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Re: People who died after LL
« Reply #34 on: May 24, 2018, 11:10:02 AM »

Monegal patient. Many patients have posted about that.

Can you link some of those postings?
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It's a long way to find peace of mind, peace of mind
It's a long way to find peace of mind, peace of mind.

Hamiltonzac

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Re: People who died after LL
« Reply #35 on: June 14, 2019, 12:01:59 AM »

The amount of idiots on this forum exceeds the idiots of the entire human population. 5 confirmed deaths? Did you confirm them in person or from your mothers basement?
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Apoplectic

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Re: People who died after LL
« Reply #36 on: June 14, 2019, 12:24:09 AM »

Stupid question,I know,and probably can't be answered, but how many people have CLL a year? Hopefully there's some statistics available.
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myloginacc

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Re: People who died after LL
« Reply #37 on: June 14, 2019, 06:34:40 PM »

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Yes I do want to add, before doing this surgery, ask yourself if you have optimized your life to the fullest extent possible (job/career, personality, etc).

Apoplectic

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Re: People who died after LL
« Reply #38 on: June 14, 2019, 06:54:54 PM »

So what's the safest method? I'm planning on getting LON but these articles scare me...
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myloginacc

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Re: People who died after LL
« Reply #39 on: June 14, 2019, 07:49:54 PM »

That's why you do research before jumping into this. If at all possible, only go for Stryde femurs. Read up on pulmonary embolism and fat embolism syndrome (FES) prevention (e.g. raised legs after surgery is a form of prevention), proper pin-site care, and osteomyelitis. Also, learn what is good callus growth based on the x-rays of the diaries posted here, so as to avoid malunion or preconsolidation. Do learn the association between the distraction rate and nerve damage, too.
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Formerly myloginacct; had issues with my login account.
Yes I do want to add, before doing this surgery, ask yourself if you have optimized your life to the fullest extent possible (job/career, personality, etc).

PANDA:BEAR..

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Re: People who died after LL
« Reply #40 on: June 14, 2019, 08:15:27 PM »

That's why you do research before jumping into this. If at all possible, only go for Stryde femurs. Read up on pulmonary embolism and fat embolism syndrome (FES) prevention (e.g. raised legs after surgery is a form of prevention), proper pin-site care, and osteomyelitis. Also, learn what is good callus growth based on the x-rays of the diaries posted here, so as to avoid malunion or preconsolidation. Do learn the association between the distraction rate and nerve damage, too.

You hit it on the nail.... great advice .. my friend 
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Apoplectic

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Re: People who died after LL
« Reply #42 on: June 16, 2019, 02:25:23 AM »

Death from this surgery honestly terrifies me. Not so much for my own well-being,but I know my father would hate me for it.

I was born 3 and a half months prematurely and I've always been short relative to my peers, despite growing at a normal rate, so he believes I'm used to it.

But honestly death is somewhat preferable to a lifetime of depression.
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jaybam

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Re: People who died after LL
« Reply #43 on: June 16, 2019, 03:33:43 AM »

Death from this surgery honestly terrifies me. Not so much for my own well-being,but I know my father would hate me for it.

I was born 3 and a half months prematurely and I've always been short relative to my peers, despite growing at a normal rate, so he believes I'm used to it.

But honestly death is somewhat preferable to a lifetime of depression.

I think the chances of death are slim to none with a top surgeon. Obviously each surgery has it's risks.
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TruthBomber

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Re: People who died after LL
« Reply #44 on: June 17, 2019, 05:09:21 PM »



I respect you have your own opinions but that comment was plain stupid imho

Anyways people need to go to a credible doctor or stay short until you can. Better to be short than crippled.

You call my opinion "stupid", but wait to refute in what way it is "stupid"? Ad hom much?
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TruthBomber

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Re: People who died after LL
« Reply #45 on: June 17, 2019, 05:10:19 PM »

Death from this surgery honestly terrifies me. Not so much for my own well-being,but I know my father would hate me for it.

I was born 3 and a half months prematurely and I've always been short relative to my peers, despite growing at a normal rate, so he believes I'm used to it.

But honestly death is somewhat preferable to a lifetime of depression.
You're too short because of your fathers genetics partly, so it is his own fault.
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angryfem

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Re: People who died after LL
« Reply #46 on: June 18, 2019, 12:46:10 AM »

Can you link some of those postings?


Notatroll said he was his friend
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Montreal172

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Re: People who died after LL
« Reply #47 on: November 14, 2019, 01:02:58 AM »

are you saying LON has greater risks of fat embolism ?
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..

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Re: People who died after LL
« Reply #48 on: November 14, 2019, 07:06:38 AM »

Death is honestly not that bad.

You cease existing. No more worries, no more depression. For some people death could be a life improvement if their normal life happiness index was negative. Let us say you have life happiness index of -100. When you are dead it is 0. So you have gained +100 happiness points.

Anyway, what is worse to be left crippled.

How many happiness points you'd gain when you burn in hell?

Death from this surgery honestly terrifies me. Not so much for my own well-being,but I know my father would hate me for it.

I was born 3 and a half months prematurely and I've always been short relative to my peers, despite growing at a normal rate, so he believes I'm used to it.

But honestly death is somewhat preferable to a lifetime of depression.

You wouldn't know if your father hated you because you're dead.
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soitchi

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Re: People who died after LL
« Reply #49 on: November 14, 2019, 08:08:19 AM »

How many happiness points you'd gain when you burn in hell?
You believe in hell?
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rip edwardv6

slayer of the ll clown

ghkid2019

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Re: People who died after LL
« Reply #50 on: November 24, 2020, 06:36:59 AM »

LL danger sum people do die

Is masterHY alive? Sightings or not...
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precice strider

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Re: People who died after LL
« Reply #51 on: November 24, 2020, 08:53:56 PM »

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Height dysphoria since 2008. (age 5)
Hoping to undergo STRYDE 8cm femurs when I can afford it.
164 cm with a wingspan of 166cm
Goal: 5'7.5 (172+) or taller, but hopefully 5'8 (173)
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Humanoid

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Masteryourlife

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Re: People who died after LL
« Reply #53 on: November 15, 2021, 06:04:26 PM »

The posts on this forum keep on getting more ridiculous as each day passes.

Agree with this .

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OnceADay

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Re: People who died after LL
« Reply #54 on: November 17, 2021, 12:16:17 AM »

FYI I am having surgery with Betz tomorrow. If I don't reply to this thread in a month them I'm for sure dead.
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LU213

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Re: People who died after LL
« Reply #55 on: November 17, 2021, 08:54:43 AM »

You will survive.  I wish you the best recovery.
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Masteryourlife

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Re: People who died after LL
« Reply #56 on: November 17, 2021, 10:52:37 AM »

Please check the story of the guy who died under giotikas in Greece in the "limb lengthening patient experience" .
Not enough details but we all need to know !
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OnceADay

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Re: People who died after LL
« Reply #57 on: November 17, 2021, 11:13:45 PM »

You will survive.  I wish you the best recovery.

I had the surgery and didn't die (yet lol). Thanks for the support!
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chicitita

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Re: People who died after LL
« Reply #58 on: November 17, 2021, 11:35:45 PM »

Can you provide the link??? Havent heard about any Giotikas patient who has died.

Do you kno anything about dr Betz?
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zaozari

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Re: People who died after LL
« Reply #59 on: November 24, 2021, 11:45:54 AM »

Saffest method is still externals  classic or adapted Ilizarov, altough very difficult and painfully if done in femurs.
(Answer to apoplectic, 2019)
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Jake24

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Re: People who died after LL
« Reply #60 on: November 26, 2021, 06:24:13 AM »

Precice?? Isnt precise the safest
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zaozari

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Re: People who died after LL
« Reply #61 on: November 26, 2021, 08:19:05 AM »

In tibias external rings are still the saffest for example because are more stable and very effective in preventing and correcting many complications, difficulties and obstacles.
In femurs is debatable because patient cooperation is more difficult  but there is also less risk for example of thrombosis.
Externals allways have more risk of infection but allmost always treatable.
This seems to be the general scientific currrent conclusion, but different surgeons, with different experiences, have sometimes different preferences because internal nails are simpler to be implanted and prefered by patients.
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