Limb Lengthening Forum

Please login or register.

Login with username, password and session length
Advanced search  
Pages: 1 ... 41 42 [43] 44   Go Down

Author Topic: UNICORN - Dr. Guichet Internal Femurs 8cm - Summer 2016  (Read 256652 times)

0 Members and 1 Guest are viewing this topic.

Unicorn888 by Elaine Foo

  • Sr. Member
  • ***
  • Offline Offline
  • Gender: Female
  • Posts: 436
Re: UNICORN - Dr. Guichet Internal Femurs 8cm - Summer 2016
« Reply #1302 on: June 15, 2020, 07:49:16 PM »

Oh dear lmao.... great response.

Good to see a smile on your face Unicorn, you look amazing for 44/45! After hearing your vivid horror stories I would have expected something resembling the female version of Lo Pan.

It's inspring to see you looking so happy.

Ok, I thought Lo Pan was a chinese noodle dish or perhaps the wife of Taipan. I learnt something new today :)

Unicorn888 by Elaine Foo

  • Sr. Member
  • ***
  • Offline Offline
  • Gender: Female
  • Posts: 436
Re: UNICORN - Dr. Guichet Internal Femurs 8cm - Summer 2016
« Reply #1303 on: June 15, 2020, 07:58:11 PM »

Has your surgeon given you an idea of your recovery and rehabilitation timeline?

Hi Kats20,

I didn't realize until I read through the operative reports yesterday that they had to ream my femur canal to 14mm again. So, it's gonna be 2 weeks to heal from the surgical wound sites, then 6 months of rehab to build strength and hopefully be able to bear weight.

For now, I'm not allowed to walk on the leg until the bone graft shows proper consolidation. So I truly hope I would be in a better place by christmas?

Fingers crossed!  Really!

Unicorn888 by Elaine Foo

  • Sr. Member
  • ***
  • Offline Offline
  • Gender: Female
  • Posts: 436
Re: UNICORN - Dr. Guichet Internal Femurs 8cm - Summer 2016
« Reply #1304 on: June 15, 2020, 08:03:00 PM »

dr Debiparsad discharges patients 2 days after surgery to make it cheaper. dr Paley keeps them for 5 days .

But is Dr. Debiparsad making it cheaper for his patients?  Or is he pocketing the cost savings? 

For me, that's the main ethical issue because freshly operated patients need proper monitoring. It's not even a luxury, it's pure necessity.

Unicorn888 by Elaine Foo

  • Sr. Member
  • ***
  • Offline Offline
  • Gender: Female
  • Posts: 436
Re: UNICORN - Dr. Guichet Internal Femurs 8cm - Summer 2016
« Reply #1305 on: June 15, 2020, 08:07:07 PM »

No Unicorn. Dying now wouldn't be dignified. It would be sad. Especially after all you've been through. It would be like throwing the towel after 12 boxing rounds.

Yes, but one shouldn't have to box 12 rounds in the first place. We were promised fast track 'boxing' :)

Unicorn888 by Elaine Foo

  • Sr. Member
  • ***
  • Offline Offline
  • Gender: Female
  • Posts: 436
Re: UNICORN - Dr. Guichet Internal Femurs 8cm - Summer 2016
« Reply #1306 on: June 15, 2020, 08:17:48 PM »

Guichet is an absolute butcher, he should lose his medical licence and should be jailed for what hes done to you. i hope other people learn from this and not use him in the future. i hope to hear you writing one day you recover physically and mentally 100 percent and it felt like it was a bad dream. keep fighting and hang in there. i know how it feels not to know if you will ever heal and be in limbo, when i had non union and my screws were breaking. i have almost healed myself now thanks to the help of further surgeries, once my nails are taken out and my damaged glutes are repaired that will be the last of my complications over, keep  fighting you will get there and then you can move forward with your life, there is a light at the end of the tunnel, you are in survival mode now but as soon as you feel progression bit by bit you will get stronger. please keep us all up to date with whats going on

I hear you, non-union with screws breaking and damaged glutes are part of a snowball effect when things go wrong.

A lot of people going into leg lengthening underestimate how much non-union can fk up their lives because it's not something one can predict/prevent on the onset. And after, there's little one can actively do to speed up or control their bone consolidation rate. You can't will your bones to fuse. It's pure nail-biting waiting.

An analogy to this non-union lottery is altitude sickness. You can't tell from the get-go if you'll suffer from acute mountain sickness until you're halfway up the mountain. And the grisly result is pulmonary or cerebral edema. It's kinda ironic to drown when you're actually on top of a mountain.

And it doesn't matter how fit or strong you are. It's part of your genetic makeup. 

Hence, it's an important risk factor to take into account because it can be a serious impediment to your life, like it is to mine.

Arrogance

  • Newbie
  • Offline Offline
  • Posts: 52
Re: UNICORN - Dr. Guichet Internal Femurs 8cm - Summer 2016
« Reply #1307 on: June 15, 2020, 08:36:08 PM »


This picture is better for the Fundraising
Logged
Resignation is my virtue. Like water I ebb and flow. Defeat is simply an addition of time to a sentence I never deserved, but you imposed

Unicorn888 by Elaine Foo

  • Sr. Member
  • ***
  • Offline Offline
  • Gender: Female
  • Posts: 436
Re: UNICORN - Dr. Guichet Internal Femurs 8cm - Summer 2016
« Reply #1308 on: June 15, 2020, 08:55:02 PM »

This picture is better for the Fundraising

Thanks, done and done! Any ideas you guys have is most welcomed. My payment holidays run out end of this month, and thereafter, it's literally hand-to-mouth. I'd be totally screwed if it were leg-to-mouth.

Also, if you think I can be of service to anyone with questions about leg lengthening via live video, I'm always happy to lend a leg.

I've got 4 years of leg up... ok no more leg puns, promise.

Kenda

  • Full Member
  • **
  • Offline Offline
  • Posts: 253
Re: UNICORN - Dr. Guichet Internal Femurs 8cm - Summer 2016
« Reply #1309 on: June 15, 2020, 09:05:01 PM »

I really feel for you for what you been through. as i have been butchered and had to have several correction surgeries after. you have had such a rough road and probably the longest road to recovery out of all of us, i really hope you will have a full recovery now, with quick progression, i hope you can sue the doctor. we must always keep active on the forum so people are constantly reminded about the names of the doctors that butcher us, so everyone will always know these are the scum that just care about profit margin and not their patients

By who? and what happened exactly friend?
Logged

seriouslyinjured

  • Newbie
  • Offline Offline
  • Posts: 53
Re: UNICORN - Dr. Guichet Internal Femurs 8cm - Summer 2016
« Reply #1310 on: June 15, 2020, 11:32:52 PM »

Hi Kenda this is unicorns diary so i will just leave the link for my diary,

http://www.limblengtheningforum.com/index.php?topic=64740.0

if you want to post on it we will chat there
Logged

Polvorón

  • Jr. Member
  • *
  • Offline Offline
  • Gender: Male
  • Posts: 173
Re: UNICORN - Dr. Guichet Internal Femurs 8cm - Summer 2016
« Reply #1311 on: June 16, 2020, 02:42:12 AM »

This is the reason because reversible nails are better, because they can help in case of non union.

(If I am wrong, please, quote me with correct info, and I will strike the text)
Logged
Note: at this moment I'm only a "pretender", I want to know more about this interesting procedure. Hopping to become 185 cm (6'1'') from 174 cm (5'8 ½''), but it is too expensive.
My sitting height is 92½ - 94 cm (36''½ 37''), my length of legs is 81 cm (32'') and my armspan is 180 cm (70'' 7/8).

BetzLandLiberator

  • Full Member
  • **
  • Offline Offline
  • Posts: 224
Re: UNICORN - Dr. Guichet Internal Femurs 8cm - Summer 2016
« Reply #1312 on: June 16, 2020, 03:41:57 AM »

This is the reason because reversible nails are better, because they can help in case of non union.

(If I am wrong, please, quote me with correct info, and I will strike the text)

You're right. It's one of advantages of Precice/Stryde in comparison to Betzbone and the Guichet Nail.
Logged

Unicorn888 by Elaine Foo

  • Sr. Member
  • ***
  • Offline Offline
  • Gender: Female
  • Posts: 436
Re: UNICORN - Dr. Guichet Internal Femurs 8cm - Summer 2016
« Reply #1313 on: June 16, 2020, 01:58:51 PM »

Hi Kenda this is unicorns diary so i will just leave the link for my diary,

http://www.limblengtheningforum.com/index.php?topic=64740.0

if you want to post on it we will chat there

Wow, I went through your journal and you and I had so many similar 'complications'. Chin up and keep fighting ok? We'll get there eventually and will be made whole again.

Unicorn888 by Elaine Foo

  • Sr. Member
  • ***
  • Offline Offline
  • Gender: Female
  • Posts: 436
Re: UNICORN - Dr. Guichet Internal Femurs 7cm - Summer 2016
« Reply #1314 on: June 16, 2020, 02:05:58 PM »

You're right. It's one of advantages of Precice/Stryde in comparison to Betzbone and the Guichet Nail.

In the past, for those of you born after Stryde came out :), we had a choice of either :

1)  Guichet Nail = Fully weight bearing but manual lengthening (painful as crap)

2)  Precice =  Non weight bearing but remote lengthening (in wheelchair for months)

Hence, with Stryde which is the new Precice nail with weight bearing features, it renders the Guichet/Betz nails obsolete. Stryde is fully weight bearing AND remote lengthening. So you get the best of both worlds.

In addition, Stryde/Precice nails allow you to stop and reverse, which comes in crazy handy when you have non-union because you can shorten and wait for calluses to grow. This saves you from having to undergo further unnecessary surgeries unlike with the Guichet nail, you need to be operated on to shorten/stop (if even possible).

Further, Stryde/Precice nails don't runaway whereas the Guichet nail cannot be reversed, stopped and worst of all, in the case of non-union, it can runaway to its maximum length (10cm).

So in a medical paper published in the '90s, the correct way of using the Guichet nail is actually to maximize the nail to your agreed length goal before insertion. Hence, since my length goal was 7cm, Guichet being the 'inventor' of this nail should have known better to take the extra precaution to click away 3cm, so that the max lengthening for me would only be 7cm.

But of course, throw caution to the wind... and here I am, 4 years and 5 surgeries later...

There're many reasons why doctors don't take this precaution and one of them is the fact that there are actually repeat LL patients who lengthen to 5cm, recover but not remove the nail. And several years later, undergo another osteotomy to lengthen the rest of the 5cm to a total of 10cm before removing the nail.

This is an incredibly easy repeat business / double profit for doctors, hence, they'll always leave that option open at the expense of runaway risks.
« Last Edit: June 16, 2020, 02:59:11 PM by Unicorn888 »
Logged

Unicorn888 by Elaine Foo

  • Sr. Member
  • ***
  • Offline Offline
  • Gender: Female
  • Posts: 436
Re: UNICORN - Dr. Guichet Internal Femurs 8cm - Summer 2016
« Reply #1315 on: June 16, 2020, 04:07:09 PM »

I just got the operative report from my 5th surgery and one thing that jumps out is significant metallosis.

https://en.wikipedia.org/wiki/Metallosis

Over time, some implant nails can corrode and degrade releasing metallic debris that gets circulated throughout the body via the bloodstream. The metal material can accumulate at the original implant site as well as in adjacent or distant tissues and organs in other parts of the body which can lead to significant health problems for patients including metal toxicity/poisoning, inflammation, pain and even cause various diseases and disorders.

Apparently, the Guichet nail shed significant metal debris that required reaming and debridement of my femur bone area. In some ways, I'm thankful that the Guichet nail broke and I needed to expel it from my body, once and for all. The long term consequence can lead to necrosis of the bone and tissue around the nail, blood poisoning and who knows what else after that? Sepsis? Amputation?

The symptoms of metallosis are:

  • Pain around the site of the implant (even when not moving)
  • Pseudotumors (a mass of inflamed cells that resembles a tumor but is actually collected fluids)
  • Necrosis
  • Loosening of the implant
  • Osteolysis
  • Metal toxicity
  • Blood poisoning
  • Neurological damage

This probably explains why my right leg hurt so much during these 4 years even though it is the leg that didn't fracture and had no activity nor bone fusion. It really feels like the Guichet nail is the gift that keeps on giving... Please, stop already with the endless generosity :)

I think I truly won the jackpot in terms of worst-case scenario of a lengthening patient. Or I'm suffering the onset of 'neurological damage', worst basket case of a lengthening patient :)
« Last Edit: June 16, 2020, 04:43:00 PM by Unicorn888 »
Logged

Unicorn888 by Elaine Foo

  • Sr. Member
  • ***
  • Offline Offline
  • Gender: Female
  • Posts: 436
Re: UNICORN - Dr. Guichet Internal Femurs 8cm - Summer 2016
« Reply #1316 on: June 16, 2020, 04:24:27 PM »

WHAT YOUR TISSUE LOOKS LIKE WHEN REMOVED



THIS 2018 XRAY COULD BE A PSEUDOTUMOUR FROM METALLOSIS

 

Arrogance

  • Newbie
  • Offline Offline
  • Posts: 52
Re: UNICORN - Dr. Guichet Internal Femurs 8cm - Summer 2016
« Reply #1317 on: June 16, 2020, 10:06:08 PM »

WHAT YOUR TISSUE LOOKS LIKE WHEN REMOVED


Necrosis. Is that......yours?
Logged
Resignation is my virtue. Like water I ebb and flow. Defeat is simply an addition of time to a sentence I never deserved, but you imposed

Unicorn888 by Elaine Foo

  • Sr. Member
  • ***
  • Offline Offline
  • Gender: Female
  • Posts: 436
Re: UNICORN - Dr. Guichet Internal Femurs 8cm - Summer 2016
« Reply #1318 on: June 16, 2020, 10:24:18 PM »

Necrosis. Is that......yours?

Top is not my photo, bottom is my xray. Easier to show what metallosis looks like since it’s the latest thing I’ve discovered that’s plaguing my leg. Life is like a box of cocoa, or rather caca 💩 in my case.

I feel like one of those police officers who scare high school kids with grisly photos to deter them from reckless behavior, like leg lengthening 😂

Eureka! We can post emojis? 💸🦵🪓🦿🤕👩‍🦽🚑 🏨💉💊🚷🖤☠️
« Last Edit: June 16, 2020, 11:37:59 PM by Unicorn888 »
Logged

Arrogance

  • Newbie
  • Offline Offline
  • Posts: 52
Re: UNICORN - Dr. Guichet Internal Femurs 8cm - Summer 2016
« Reply #1319 on: June 16, 2020, 11:06:56 PM »

Top is not my photo, bottom is my xray. Easier to show what metallosis looks like since it’s one new thing I’ve discovered that’s plaguing my leg.

I feel like one of those police officers who scare high school kids with grisly photos to deter them from reckless behavior, like leg lengthening 😂

Eureka! We can post emojis? 💸🦵🪓🦿🤕👩‍🦽🚑 🏨👩🏽‍⚕️💉💊🚷🖤☠️
Oh thank God. You had me worried for a second. Jokes on you these days huh?  ;D ;D ;D
On a serious note though, yeah you definetly saved some people from Guichet and maybe others from doing leg lengthening alltogether
Logged
Resignation is my virtue. Like water I ebb and flow. Defeat is simply an addition of time to a sentence I never deserved, but you imposed

seriouslyinjured

  • Newbie
  • Offline Offline
  • Posts: 53
Re: UNICORN - Dr. Guichet Internal Femurs 8cm - Summer 2016
« Reply #1320 on: June 17, 2020, 12:59:44 AM »

Wow, I went through your journal and you and I had so many similar 'complications'. Chin up and keep fighting ok? We'll get there eventually and will be made whole again.

we did have similar complications but you endured this for 4 years you are extremely tough, this is the worst thing i have been through its a living hell until you get union and then it still takes time to recover.  we keep fighting and we will have a full recovery
Logged

Batu

  • Visitor
  • Offline Offline
  • Posts: 20
Re: UNICORN - Dr. Guichet Internal Femurs 8cm - Summer 2016
« Reply #1321 on: June 17, 2020, 02:46:19 AM »

Quote
Ok, I thought Lo Pan was a chinese noodle dish or perhaps the wife of Taipan. I learnt something new today

I should clarify, it is David LoPan I'm referencing, not the weird headdress guy that shoots light out of his eyes.

Wow metallosis sounds fun 🤢

"Do not pray for an easy life, pray for the strength to endure a difficult one" you definitely proved ur mettle, keeping pushing 💪
Logged

kats20

  • Newbie
  • Offline Offline
  • Posts: 35
Re: UNICORN - Dr. Guichet Internal Femurs 8cm - Summer 2016
« Reply #1322 on: June 17, 2020, 09:03:17 AM »

I'm happy for you unicorn. Although it's not going to be easy,it sounds like you're finally on the road to recovery. You're getting cared for by proper doctors and at least now you have some sort of timeline/prognosis to look forward to. I'm wishing all the best for you.
Logged

Unicorn888 by Elaine Foo

  • Sr. Member
  • ***
  • Offline Offline
  • Gender: Female
  • Posts: 436
Re: UNICORN - Dr. Guichet Internal Femurs 8cm - Summer 2016
« Reply #1323 on: June 17, 2020, 11:20:48 AM »

POPEYE

Ok, chatty again since Class A drugs are coursing through my veins...

Actually, if you wanted to prepare for LL, the one thing that actually gets you ahead once your legs are freshly broken is arms of steel 💪. Work out your arms as that will save you many times over. And stretch like mad, even if it seems too late coz to gain extra flexibility, you do need years to torture your soft tissues, but something trumps nothing. And Trump IS nothing 🤡

Strong arms literally save you with every little movement because you're shifting pressure off your weak legs, and anyone with a broken bone can vouch that unnecessary movements are a killer. You'll need to lift your ass off the bed so many times a day, from fitting the bedpan under you, changing sheets, shifting from bed to transport for xrays/scans/tests, from even going to the loo coz who's gonna be there to lift your ass off the toilet seat? Definitely not Elon Musk 🚀

Furthermore, crutching is purely arm strength. The stronger you are, the more effortless crutching becomes. This sounds really easy when written but in actual fact, when your arms tire quickly from crutching, your body auto shifts and compensates with your legs. And that is exactly what we don't want, to take additional risks on your legs when they're still jelly. Think of your arms as Uber, if that's unavailable, your next option is walking on stilts.

It's kinda like having 2 screaming babies when both your legs are burning. And if your arms are strained as well, that's 2 more screaming babies = 4 screaming babies. Enough to drive anyone mad!

And being in pain is the last thing your foggy brain needs as you waste precious mental capacity on your throbbing limbs instead of the countless dangers lurking around you. Anyone who's gone through LL can tell you that EVERYTHING is a hazard and an obstacle course, when your legs are broken.

Wet crutches are evil, furniture corners a devil's delight. Try manouevering a swing door or chasing a rotating door. The last time I had to go through one, the compartment behind me resembled a Tokyo subway during rush hour. There was a pile up of 20, crushed face-to-glass, cursing at me to hustle a little faster. That's one place you don't wanna get stuck in. The collective death stare from 40 eyeballs alone could paralyze Usain Bolt ⚡️
« Last Edit: June 17, 2020, 02:25:55 PM by Unicorn888 »
Logged

Unicorn888 by Elaine Foo

  • Sr. Member
  • ***
  • Offline Offline
  • Gender: Female
  • Posts: 436
Re: UNICORN - Dr. Guichet Internal Femurs 8cm - Summer 2016
« Reply #1324 on: July 01, 2020, 01:25:03 AM »

THE GOOD, THE BAD AND THE UGLY

Posting some timeline photos of the past 3 weeks. I never realised hip grafts take up to 3 months to heal. I'm on my 4th week of OxyCodone now and it scares the hell out of me because each time I try to stop, I'm overwhelmed with pain and severe withdrawal symptoms like a proper drug junkie 💉💊😖

You can find new posts on https://www.instagram.com/unicorn_gets_taller/?hl=en as I attempt to let you step into my shoes with uncensored realities of LL; good, bad, ugly and all...

GRAFT FROM THE HIP BONE 🦴💣💥


🧟‍♀️ UGLY HIP GRAFT SCARRING AND ECZEMA TO BOOT... BUY-ONE-GET-ONE-FREE 🎁



TOTAL LENGTH OF INCISIONS 🔪 58CM, THAT'S ACTUALLY 1/3 OF MY STARTING HEIGHT ♿️



I AM THE REAL HOUSEWIFE OF 👰🏻 FRANKENSTEIN



SURVIVING ALONE AFTER SURGERY... ☣️☠️⛔️






HEY, I SAID UNICORN CAKE... 🌈🎂🦄




« Last Edit: July 01, 2020, 03:45:51 AM by Unicorn888 »
Logged

Arrogance

  • Newbie
  • Offline Offline
  • Posts: 52
Re: UNICORN - Dr. Guichet Internal Femurs 8cm - Summer 2016
« Reply #1325 on: July 01, 2020, 10:00:49 AM »

Yes, I checked your Instagram last night and saw the pictures. I wish I could have left a comment and some likes but I opted out of social media a long time ago.  Regardless, I think you still look great and I see you have a great sense of fashion.
How are you recovering now? Can you walk?
Logged
Resignation is my virtue. Like water I ebb and flow. Defeat is simply an addition of time to a sentence I never deserved, but you imposed

Unicorn888 by Elaine Foo

  • Sr. Member
  • ***
  • Offline Offline
  • Gender: Female
  • Posts: 436
Re: UNICORN - Dr. Guichet Internal Femurs 8cm - Summer 2016
« Reply #1326 on: July 01, 2020, 11:24:45 AM »

Yes, I checked your Instagram last night and saw the pictures. I wish I could have left a comment and some likes but I opted out of social media a long time ago.  Regardless, I think you still look great and I see you have a great sense of fashion.
How are you recovering now? Can you walk?

It's been pretty bad still.  I can barely walk but I can move better now sitting or lying down.

Walking is near impossible because our back is riddled with muscles and that's where I got sliced open. So any movement I make literally pulls at the weeping wound site and causes both skin and bone pain.

In addition, Oxycodone causes hypotension in me (low blood pressure), so I black out often. Hence, the blood transfusion in hospital - my blood pressure hovers btw 65 to 90 at best. I'm told it can take up to 3 months to heal from hip grafts.

I'm also suffering from Oxycodone dependency because everytime I try to reduce it, the pain comes charging back with a vengeance in addition to opioid withdrawal symptoms. So I'm not out of the woods yet. I never realized how invasive this surgery was. But when I think about it, it's unnatural to remove a chunk of your hip bone and have your entire femur canal drilled 14mm and debrided, to remove metal debris contamination.

And I was sliced open 58cm, which is a 3rd of my body length. No wonder my body is protesting. I do feel like a seabass being sliced open lengthwise and even had a nightmare of being marinated in salt, lime juice and jalapeno - to be served as a raw ceviche dish.

Anyway, I'm just taking this down time to highlight the realities of this surgery, answer questions and to promote better awareness/understanding of what CLL procedures entail and our anatomical reactions to them.
« Last Edit: July 01, 2020, 11:52:14 AM by Unicorn888 »
Logged

ghkid2019

  • Sr. Member
  • ***
  • Offline Offline
  • Gender: Male
  • Posts: 930
  • Inactive account
Re: UNICORN - Dr. Guichet Internal Femurs 8cm - Summer 2016
« Reply #1327 on: July 01, 2020, 11:57:42 AM »

I am sorry all this happened to you unicorn. When you started the surgery I was in middle school. Today, I have graduated highschool and your recovery is still pending. Surely this will be the last procedure you need? Bone graft to fill in the gap in legs? Hopefully you will recover, and need not to suffer any more
Logged
This account is no longer in use.

User requested self-ban.

Arrogance

  • Newbie
  • Offline Offline
  • Posts: 52
Re: UNICORN - Dr. Guichet Internal Femurs 8cm - Summer 2016
« Reply #1328 on: July 01, 2020, 03:32:47 PM »

What did the doctors say about your final stage of recovery? Will you be back to normal?
Logged
Resignation is my virtue. Like water I ebb and flow. Defeat is simply an addition of time to a sentence I never deserved, but you imposed

Unicorn888 by Elaine Foo

  • Sr. Member
  • ***
  • Offline Offline
  • Gender: Female
  • Posts: 436
Re: UNICORN - Dr. Guichet Internal Femurs 8cm - Summer 2016
« Reply #1329 on: July 01, 2020, 10:01:46 PM »

I am sorry all this happened to you unicorn. When you started the surgery I was in middle school. Today, I have graduated highschool and your recovery is still pending. Surely this will be the last procedure you need? Bone graft to fill in the gap in legs? Hopefully you will recover, and need not to suffer any more

OPPORTUNITY COSTS

CONGRATS!!!🎉🎊🎈 Are you relieved? Happy to embark on your new journey? This was probably THE most exciting time of my life, flying the coop and going to college. If anyone had asked me to jump, I'd have said How High? (Debbie Gibson song... very telling of my old age 👵🏻).

Last procedure? Maybe not. In the best case scenario, this could be the 2nd last surgery. Even if everything heals and fuses perfectly on the right leg, I still need to remove the Guichet stainless steel nail from my left leg because it has already proven to slough significant metal debris and cause contamination of the bone and soft tissues on my right leg. It's just that due to the severity of my current condition, the mere thought of removing a fully fused left leg nail is pure luxury (risk of fracture at removal because the Guichet nail is slightly too big for my asian femur diameter. Hence, while fused, my cortices are appallingly thin).

Your observation about the huge milestones you passed in the last 4 years is poignant. Because in contrast, my life was paused on every level, I achieved nothing in this entire time and the quality of life deteriorated with each passing year. I feel like Job in the Book of Job (not Steve) but the poor dude definitely lost way more cattle than my one cat. So he did suffer a worser fate than me and I'm probably taller than he'd be today, so that's some consolation 🥶

That said, an interesting analogy to your remark is this. While 4 years would have represented 1/4 of your entire life, which is too much to lose at such a crucial age, it only robbed 1/10th of my life. So anyone planning to do LL should really consider the risks of having their lives put on hold for way longer than expected. It's one of the key risks to factor in alongside reserve funds, doctor, internal/external, femur/tibia, support network etc etc etc.

Why do I say this? Because without sufficient reserve/repair funds, if you run into trouble, very few people would be willing to help you. Even in the UK, it was a long shot to be accepted at the NHS because I voluntarily inflicted this on my healthy body, cosmetically, privately and foolishly. So, don't expect charity from anyone who's never considered/done LL. The world is not that sympathetic to our plight. To many, it’s a first world problem of the privileged few.

Same thing, missing out 1/4th of your life at such a critical juncture (high school, university, career, marriage, children etc) poses life-changing opportunity costs. If someone goes through LL between high school and university, and their life is frozen for several years... the impact it'll have on their fate is definitely more significant than it is for me in my 40s.

Remember that last scene in Back To The Future when Michael J Fox helped his teenage father overcome his bully? It was a life defining moment like many things are at your age. And the impact was huge, propelling his life to change 180 degrees from literally 'poor dad' to 'rich dad'.

At my age, while the opportunity costs are way less critical than yours, my biggest regret of these 4 years is my loss of ability to have children. While I was already at 11:59pm of my biological clock when I started LL, I was still hoping to meet someone, get married and have a family... or at least manage the one part I can control, have my own kid.

This is the opportunity cost of pivotal timing that I had colossally underestimated, doing LL surgery in 2016. I foolishly lapped up all of Guichet's fast track 3-months sales pitch instead of wisely assessing the long-term consequences should things go horribly wrong. Like in a Sliding Door moment. (another old movie 👵🏻).. I could be a happy single mum today having chosen to have a baby on my own in 2016 vs becoming taller albeit crippled in every way. It's this one lapse of judgement that will forever taint my life.

So today, I brace myself for the harsh reality of 'not having anything at all' (vs the smug aspiration of 'having it all'). Even if I could biologically conceive a baby at this age and poor health, I can't even afford to feed it. Alone, I'm merely surviving on £40 per week of groceries and making ends meet to pay my monthly mortgage to avoid becoming homeless too. Everything else is really optional. My eBay site literally lists everything I own at 50% off because nothing in there could heal me any sooner.

Anyway, not to drag you through my pity party, I'm just making a point that timing to do LL is just as crucial as having enough reserve funds for repairs. Just because the opportunity costs could be damning high and we end up metaphorically ‘paying’ for our mistake for the rest of our lives. Think Poor Dad, Rich Dad...
« Last Edit: July 02, 2020, 01:13:42 AM by Unicorn888 »
Logged

DreamerLL

  • Newbie
  • Offline Offline
  • Posts: 54
Re: UNICORN - Dr. Guichet Internal Femurs 8cm - Summer 2016
« Reply #1330 on: July 02, 2020, 05:02:38 AM »

All best wishes is for you. please stay strong and get recovery soon.
Logged

Ayesha12345

  • Newbie
  • Offline Offline
  • Posts: 77
Re: UNICORN - Dr. Guichet Internal Femurs 8cm - Summer 2016
« Reply #1331 on: July 03, 2020, 01:09:35 AM »

Hey Unicorn! Came on this platform after a year maybe and your updates got my attention. Firstly I’m sorry you’re having to endure all this for so long. The part I can relate with you is how my life also seems to have stopped but that’s for another day.
I have such a short attention span yet whatever you write has me hooked, please save all of what you have written here and publish it? If nothing you can have it published via amazon I’ll be your first customer! Woman you have a gift, what amazing wit!
I guess everyone’s dreams are different, I personally would never want to opt to have a baby in a time like this when climate change is upon us, different kinds of cruelty, fraud, pandemics, a world full of narcissists the new generation wouldn’t be prepared for.
We think people are the way we are, but very few are sympathetic, let alone be empathetic. Next time someone tells you you did this to yourself open up this platform and show them how many lives you saved by having them reconsider Guichet, or how normal it is to feel a complex and want a change, or how people are inspired by your journey and strength. I’ll Instagram you sharing my number- if you’re down please never hesitate to call! Sending prayers!
Logged

ghkid2019

  • Sr. Member
  • ***
  • Offline Offline
  • Gender: Male
  • Posts: 930
  • Inactive account
Re: UNICORN - Dr. Guichet Internal Femurs 8cm - Summer 2016
« Reply #1332 on: July 03, 2020, 11:25:49 AM »

Thanks for the congratulations unicorn. And yeah I'm excited for college even with this covid thingy going on.

I agree with you as well, if I do the surgery in my 20s and things go south it would make up a rather big portion of my overall life at the time compared to a later age.

Hopefully to be safe I'll be doing it at 25 with an American doctor for sure and with an fda approved nail.

As you point out, timing and money is important, I hope you can get back on your feet soon. 4 years is long overdue.

Best wishes unicorn
Logged
This account is no longer in use.

User requested self-ban.
Pages: 1 ... 41 42 [43] 44   Go Up