Topic: LATN Femurs - Dr Singh (Read 101040 times)

bluebarbie · « **on:** March 07, 2015, 06:04:56 AM »

Hi, I am new to this forum. I am currently doing femurs lenghtening with LATN method done in Singapore Mount Elizabeth hospital on 10th Jan 2015. I've written a blog of my journey in the following link: https://bluebarbiedoll.wordpress.com

KiloKAHN · « **Reply #1 on:** March 07, 2015, 06:34:59 AM »

Hello Bluebarbie, welcome!

When was the surgery performed and how are you feeling now? From all I've read, femur lengthening with an external device is very difficult. You're a tough one!

This forum was a big help to me when I was going through lengthening. It helped to write when I was feeling frustrated or in pain. Hope you give us more details

bluebarbie · « **Reply #2 on:** March 08, 2015, 09:28:30 AM »

Quote from: KiloKAHN on March 07, 2015, 06:34:59 AM

Hello Bluebarbie, welcome!

When was the surgery performed and how are you feeling now? From all I've read, femur lengthening with an external device is very difficult. You're a tough one!

This forum was a big help to me when I was going through lengthening. It helped to write when I was feeling frustrated or in pain. Hope you give us more details

Thank you KiloKAHN. Im gonna be 2 months post op on 12th of this month. Yeah its a really rough journey for me. I still dont know how to use this forum well. So i'll work on it and try to share more of my experiences.

Disobedient · « **Reply #3 on:** March 08, 2015, 12:55:10 PM »

Hello bluebarbie,

hmmm.. 2months post the surgery , I guess you've done with lengthening phase , right?
I second kilo, it would be great if you can share more details with us .

I hope things will work out wonderfully with you

KrP1 · « **Reply #4 on:** March 08, 2015, 01:48:16 PM »

Bluebarbie hos many centimeters are you going to lenthen? Are the scars in femurs very big? How much range of motion have you got ? Are you able to walk? Do you think is much more dificult to do femurs than tibias?Thanks

just_me · « **Reply #5 on:** March 08, 2015, 04:05:03 PM »

Hello bluebarbie. I hope everything will be OK - Good luck.

bluebarbie · « **Reply #6 on:** March 09, 2015, 02:37:01 AM »

Hi,
I am currently in distraction phase with ex-fix on femurs.(Latn with monorail). By the time I distracted 4 cms, I found out that I have only grown 3cms on my x rays. I felt terrible. Yet my doctor ( Sarbjit Sign from Mount Elizabeth Sg) said it is normal. I found out that it is caused by slanted (bended) pins. Have anyone doing externals experienced it? Will I lose more days? What can be done about it? I am feeling very bad and stressed.

Medium Drink Of Water · « **Reply #7 on:** March 09, 2015, 03:00:48 AM »

Yes, this is normal and everyone doing externals has to deal with it. It gets to the point where you stop counting how much you've turned and just start going by what the doctor measures in the x-rays.

bluebarbie · « **Reply #8 on:** March 10, 2015, 02:26:15 AM »

Hi. Medium Drink Of Water and friends from above

Thanks for the reply and greetings. I am now doing a blog and I will try to share experiences as soon as possible.

galaxy1 · « **Reply #9 on:** March 10, 2015, 05:29:38 AM »

What's your lengthening goal Bluebarbie? Doing external femurs you must want those devices off asap, but at least I see that you plan to do the LATN method. Just remember that leg lengthening requires much patience and is not something you ever want to rush through. Make sure to check your x-rays regularly and don't lengthen too fast.

I also want to tell you that I hear alot on the forum about how femurs lengthen at an angle, unlike tibias, and therefore you might not get all the height that you have lengthened. But your 4 cm lengthening amount and the 1 cm loss that you mentioned doesn't seem all that bad and so probably the 1 cm loss would be considered within normal range. However, I am not certain how much pin loss applies when using the monorail fixator, being that the pins used are known to be larger and thicker in size.

bluebarbie · « **Reply #10 on:** March 10, 2015, 12:14:55 PM »

Thanks for ur concern, galaxy1. Yeh, living with these frames is definitely killing me. I am also having difficulty with keeping my Rom in my left knee due to a misalignment caused during operation. My goal is 7to7.5cms. And I am really anxious that I wouldn't be able to reach my goal.

KrP1 · « **Reply #11 on:** March 10, 2015, 12:56:37 PM »

hey bluebarbie , why did you do femurs and not tibias?

Disobedient · « **Reply #12 on:** March 10, 2015, 02:21:32 PM »

Quote from: bluebarbie on March 10, 2015, 12:14:55 PM

Thanks for ur concern, galaxy1. Yeh, living with these frames is definitely killing me. I am also having difficulty with keeping my Rom in my left knee due to a misalignment caused during operation. My goal is 7to7.5cms. And I am really anxious that I wouldn't be able to reach my goal.

Your knee ROM ? well take it easy .. after removing the frame , You will get the knee range with proper PT . you need just to give it a time .

did they fix the alignment for you??? or would they fix it when they will insert the nail?.. you should fix it NOW, or right away after finishing the distraction .. don't wait a day after that. then they would tell you we can't fix it , cuz it would disturb the callus

hmmm what else, will about the 7cm .. usually you lose 1cm in femur lengthening so be aware of that ..

femur lengthening shouldn't be that painful. the frames is pain in the ass , but the lengthening process for the femur is easier than tibia .. either way .. give yourself rest , this would help you a lot to continue with your goal,.. and anyway in your xray it's seems you don't have that much of strong callus so you won't risk preconsildation .. ask your doctor about that and see what he would suggest for you ..

ItsMyLife · « **Reply #13 on:** March 10, 2015, 02:38:36 PM »

Hey blue, I am from Singapore too. I posted an x-ray here, but I realised it had my name. Your x-ray has your name too so u might wanna take it down or censor it. I think most x-rays from here have names.

bluebarbie · « **Reply #14 on:** March 11, 2015, 05:13:43 AM »

Quote from: Disobedient on March 10, 2015, 02:21:32 PM

Your knee ROM ? well take it easy .. after removing the frame , You will get the knee range with proper PT . you need just to give it a time .

did they fix the alignment for you??? or would they fix it when they will insert the nail?.. you should fix it NOW, or right away after finishing the distraction .. don't wait a day after that. then they would tell you we can't fix it , cuz it would disturb the callus

hmmm what else, will about the 7cm .. usually you lose 1cm in femur lengthening so be aware of that ..

femur lengthening shouldn't be that painful. the frames is pain in the ass , but the lengthening process for the femur is easier than tibia .. either way .. give yourself rest , this would help you a lot to continue with your goal,.. and anyway in your xray it's seems you don't have that much of strong callus so you won't risk preconsildation .. ask your doctor about that and see what he would suggest for you ..
[/quote

Thanks for your care and information. You can check out my blog I juz finished.

bluebarbie · « **Reply #15 on:** March 11, 2015, 05:15:12 AM »

Quote from: ItsMyLife on March 10, 2015, 02:38:36 PM

Hey blue, I am from Singapore too. I posted an x-ray here, but I realised it had my name. Your x-ray has your name too so u might wanna take it down or censor it. I think most x-rays from here have names.

Thanks for ur help.

KiloKAHN · « **Reply #16 on:** March 11, 2015, 12:44:47 PM »

I just read through your blog, Bluebarbie. Great info. You'll feel much better when this is all over with. You're in a battle now, but keep fighting and know that you'll be free of pain one day

bluebarbie · « **Reply #17 on:** March 13, 2015, 05:47:49 AM »

Quote from: KiloKAHN on March 11, 2015, 12:44:47 PM

I just read through your blog, Bluebarbie. Great info. You'll feel much better when this is all over with. You're in a battle now, but keep fighting and know that you'll be free of pain one day

Thanks Kilokahn. Yesterday I got my xrays. Nearly 4cms now and feeling great to find out pin bending isn't going any further.
How about u? How are u doing now?
Wishing u fastest recovery too?

ItsMyLife · « **Reply #18 on:** March 13, 2015, 07:29:57 AM »

Hi can u pls help me ask sarbijit about how much he charges for ex-fix removal tibia?

KrP1 · « **Reply #19 on:** March 13, 2015, 09:32:48 AM »

How are the scars in the pin sites?

ItsMyLife · « **Reply #20 on:** March 13, 2015, 11:01:17 AM »

Also, can I ask:
1. is this monorail
2. what is the price (inclusive of the nails)...this price excludes medicine?
3. would singaporeans get lower price?

bluebarbie · « **Reply #21 on:** March 14, 2015, 04:38:00 AM »

Quote from: ItsMyLife on March 13, 2015, 07:29:57 AM

Hi can u pls help me ask sarbijit about how much he charges for ex-fix removal tibia?

Hi,ItsMyLife
I will not be seeing him until around 10th of next month. So maybe u could ask yourself through his email below.

sarbjit1@singnet.com.sg

bluebarbie · « **Reply #22 on:** March 14, 2015, 04:41:33 AM »

Quote from: KirP1 on March 13, 2015, 09:32:48 AM

How are the scars in the pin sites?

The scars are quite big in my eyes. It is the pins cutting through the skin. I may have to get scar removable surgery after this is over. I'll try to share the pics when I can, too.

bluebarbie · « **Reply #23 on:** March 14, 2015, 04:44:48 AM »

Quote from: ItsMyLife on March 13, 2015, 11:01:17 AM

Also, can I ask:
1. is this monorail
2. what is the price (inclusive of the nails)...this price excludes medicine?
3. would singaporeans get lower price?

1.Yes, monorails
2.around 650$.
3.Sorry,I don't know about this.

ItsMyLife · « **Reply #24 on:** March 14, 2015, 07:29:44 PM »

Quote from: bluebarbie on March 14, 2015, 04:44:48 AM

1.Yes, monorails
2.around 650$.
3.Sorry,I don't know about this.

sorry BB, did you mean $65000?

$650 for surgery is impossible in singapore

bluebarbie · « **Reply #25 on:** March 15, 2015, 02:43:29 AM »

Quote from: ItsMyLife on March 14, 2015, 07:29:44 PM

sorry BB, did you mean $65000?

$650 for surgery is impossible in singapore

Yes..I mean 65000$. =)

ForcedPuberty · « **Reply #26 on:** March 15, 2015, 03:36:31 AM »

65,000$ makes me cry

that price can get you internal.

bluebarbie · « **Reply #27 on:** March 15, 2015, 03:44:04 AM »

Quote from: ForcedPuberty on March 15, 2015, 03:36:31 AM

65,000$ makes me cry that price can get you internal.

Yeh.. I didn't know it then. =(. I suffered from loads of pain and discomfort from my frames. I wished I had found out b4.

ForcedPuberty · « **Reply #28 on:** March 15, 2015, 03:57:47 AM »

well girls are capable of lengthening more than men due to various reasons such as hormones.

however are you sure the Goal of 7 to 7.5cms is a good idea?

what are you at now? (don't worry I read it: Nearly 4cms now )

what is your knee flexibility at?

Quote

I am also having difficulty with keeping my Rom in my left knee due to a misalignment caused during operation.

can you give us numbers/degrees for your knee rang eof motion for left and right leg. thank you.

knee contracture is difficult to fix?

ForcedPuberty · « **Reply #29 on:** March 15, 2015, 04:16:27 AM »

https://bluebarbiedoll.wordpress.com/

my spider sense is tingling............ something seems very wrong about that website.

ItsMyLife · « **Reply #30 on:** March 15, 2015, 04:26:58 AM »

Quote from: bluebarbie on March 15, 2015, 02:43:29 AM

Yes..I mean 65000$. =)

Singapore dollars?

Limb Lengthening Forum

Author Topic: LATN Femurs - Dr Singh (Read 101040 times)

just_me