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[Disobedient]

I had the operation 23-Dec
I started distraction  in 12th- October  stopped at mid of Dec
so it has been 6 months already since I did the operation

[BullSurfer]

Just a thought.

Wouldn't it better if the frames are removed and have the legs plastered.  You can move better since they're the shape of your leg. No standing allowed but at least you can sleep on your sides.

[Disobedient]

I don't think it's possible 
since the gap is bit too much not like a simple fraction , so there is a chance of having an extreme misalignment " I guess"
is it possible ...? I would do it if yes...

[BullSurfer]

Just ask your doctor.

I admire you, I must have said this many times. Since you're an engineer you tend to do things methodically. As for me, I could careless. My doctor would advise me to keep my leg straight, but it's so difficult at night. I can only sleep when I'm on my side. What good is it if I can't sleep, I'll just waste away and probably not able to finish my LL.

If I were you I'll have the legs plastered and head home.

[Disobedient]

Just ask your doctor.

I admire you, I must have said this many times. Since you're an engineer you tend to do things methodically. As for me, I could careless. My doctor would advise me to keep my leg straight, but it's so difficult at night. I can only sleep when I'm on my side. What good is it if I can't sleep, I'll just waste away and probably not able to finish my LL.

If I were you I'll have the legs plastered and head home.

hug your pillow tonight it gonna give you feeling like if you were sleeping in your side. . 
but you gonna remove the frame anyway after few days... 

[BullSurfer]

Yea!

Can't wait to be home. Escape from India and LIVE TO DIE ANOTHER DAY!

[RGKEY]

Just ask your doctor.

I admire you, I must have said this many times. Since you're an engineer you tend to do things methodically. As for me, I could careless. My doctor would advise me to keep my leg straight, but it's so difficult at night. I can only sleep when I'm on my side. What good is it if I can't sleep, I'll just waste away and probably not able to finish my LL.

If I were you I'll have the legs plastered and head home.

No!! Do not plast anything yet. It is a bad idea Diso!! First your callus is way to week for this. Plus you might lose height. You can get a bone fracture, and also misaligments.

[galaxy1]

I've been following your diary Diso and your doing as good as can be there.
I also agree the plaster could be disastrous and I wouldn' want to risk losing any of that hard earned height.

[Machine]

hey diso ,
i don't want to be rude but i think you still do not realize that you are in a very critical condition , i m serious .
Stop trusting your doctor and take charge of yourself , consult other doctors , take every action necessary to get back to normal again .
Be Strong ..!!

[RGKEY]

hey diso ,
i don't want to be rude but i think you still do not realize that you are in a very critical condition , i m serious .
Stop trusting your doctor and take charge of yourself , consult other doctors , take every action necessary to get back to normal again .
Be Strong ..!!

Hey Diso, unfortunately, I think he is kinda right((( you should consult with other doctors just in case.

[Polycrates.]

Yea!

Can't wait to be home. Escape from India and LIVE TO DIE ANOTHER DAY!

Escape is an understatement. I hope you decide to disseminate your journey in the future, BullSurfer. People read of the horrors performed here, but desperation is the greatest poison of the mind. People will still deceive themselves, but the more stories available, the greater the chance of saving a hapless soul.

[Disobedient]

Morning ,,

I did consult other doctors..

here is one of the replays that I received


[[


1. conversion to internal fixator with or without bone graft ? (There are lots of devices used with minimal incision.)


2. You could also try soft tissue release for adjacent joint contracture


3. Try low-wave ultrasonographic stimulation


 ]]

[Disobedient]

for point 2, I think it's better to wait till I remove the fixator, since this could solve the problem, other wise, I'll do this surgery in home my insurance cover it..

for point 3, I read that these kind of treatment is useless , anyone has experience positive outcome with this treatment?   

[IamAndrew]

Disobedient,

Quadrilateral lengthening with monorails in India....

The last two hours of reading your 6~ month saga has been an emotional roller coaster for me - disbelief, fear, concern, anger. Had I been following your story live I would've became a religious man and prayed for you (likely to some pagan god of masochism).

I am grateful that your shaman finally advised against going beyond 10-11 cm. Your new height is something to be eternally proud of. Not only are you now the global average female stature (and have longer, (someday) sexier legs than others that height) but it's also a symbol of your triumph. Your spirit was tested and you passed. You braved Hell and beyond to achieve something others are born with and take for granted. I'm so proud of you (for what it's worth from a shadowy stranger).

Wishing you a great recovery. Take the path slow. Vaya con Dios.

-Andy

[BullSurfer]

Dracula has arrived. Welcome to the Underworld.

I missed Anime.

[Sweatpants]

Hi all

18th - March,  3 days left   


Sweatpants

humm no he didn't seriously Indian PT know NO THING, so I stooped my sessions few months ago.. and right now I'm doing simple stretching exercises, not aggressive one since I really want to avoid any thing could cuz the pain in my pin site, and I do stretching exercise like the one you posted in pic ( sometime with the same pose in pic I tried to lift my leg and hold it for 1 min, I feel  in this way it stretching much more muscles , try it and you'll feel different< Also,  since you still in distraction phase if you felt much pain your tibia let someone to lift/rise your legs for you'll feel much better off course in this case you wont stretch any muscle but believe me you'll feel the pain goes down immediately  >  ) 

about the splints  I got mine like after month from starting lengthening and I wear it like 2-3 h per day not more some time I don't wear it at all, yours looks much better than mine ..
this is mine



Can your splint keep your feet goes beyond 90deg?

Hi Disk,

I tried also splints like those, they do nothing, they can not hold your feet properly. I recommend splints like mine, they can go more than 90 degrees, not a lot, but can. although splints are used to prevent ballerina foot, I think they won't work when you already have one, they don't stretch you they only keep your ankle up.

[Disobedient]

Andy

thanks for your very kind words, ..
Great to see some people appreciate my insanity 

Sweatpans

I see, well you give me reason to not wearing them , so thanks   

[Disobedient]

oh I messed up my sleeping routine , I suppose to be sleeping by now, but I was watching this new series nurse Jakie, kindda like it

so no thing important happened  today, except  I tried to stand,, I put half maybe quarter of my weight into my legs ..
my heels was touching the floor so I'm not sure if I have severe ballerina foot, or maybe because my back wasn't straight..
I felt like  the blood   flow  to my feet for the first time, and my feet gonna explode in any min just like a scene from happy trees.. so I stand for half mi the rest for 3min I repeated that for an hour, I didn't feel much pain as I was expected but it was kind of itchy .. and I was so tired ... funny how simple thing like standing for 30 sec make you so tired ...
I think I need to exercise more just to make sure I have good  blood circulation in  my legs ....


Goodnight all
it's  4Am here 

[Disobedient]

so I've  received replays from the doctors that I contacted regarding my medical situation..
so I'll share some of these replies

• Firstly: Dr. Guichet
  

Hello,

You are still soon after the surgery and you need to wait longer before coming to see me. Motion comes far longer after removal of the frame, so do niot expect getting back to normal fast.

Documents yourself completely. I can see you when the frame will be off. Rushing would increase risks even more.

Yours sincerely,

Jean-Marc Guichet, MD, PhD, Doct. Sci.

• Prof. Mitkovic 

My dear,

try to resolve everything with your dr. He will help to correct misalignment. It is no big problem but you need also so much physiotherapy.

• Dr A-nake

Dear Bade,



Greetings from Vejthani Hospital!




Thank you for waiting. Your case was evaluated by our specialist, Dr. Porn A-nake Tardthong and these are the recommendation.

       

              " First you have to know that the 11.2 cm increase needs one year for total treatment. About distraction period, the doctor did his job well. This period, the consolidation period, the patient must do her part. Physiotherapy to increase range of motion at all affected joints and strengthening exercises for the whole muscle of your legs.

                Before the operation, the doctor must inform all of the problems which may occur to the patient and how to solve it.

                 The best for you now is doing the physiotherapy, both passive and active. The passive physiotherapy should be done with the aid of physiotherapist to increase the range of motion to your knees, ankle and feet. The active physiotherapy must be performed by the patient independently. The patient should try to bend her knees and ankles to overcome pain. Avoid putting your weight on both legs.

                Observe the progression of your muscle strength and range of motion of your joints. They will improve but quite slow.

               Going to study is not an excuse, your doctor knows the reason but it will still depend on how your bone adapt to change, or how your body respond to the current changes in your bone. By June, Xray finding may show that it is not the right time to walk, possibly you will be ready to walk by August 2014.

               I wish you can pass your problems so soon. Be patient.

                                             --Dr. Porn A-nake Tardthong--- "

So, in general it seems that I just have to wait and do a lot of pt...
there is hospital in Dubai called "American Hospital Dubai" they're preforming LL and so on, so I may go there if I'll back home..
I'm thinking of going back home after a month or so, I know that my medical insurance cover all expense of PT, or any further surgery I may demand in order be back normal, but returning home paralyzed make me feel like a loser ..  I'll wait a month and see what will happen ..

[jerry]

I am impressed by -Dr  A-nake reply, he gives much details and concern.  Take it slow and listen to professional advice from the Doctors.   Stay strong. 

[KiloKAHN]

Don't be too hard on yourself Disobedient. You're not a loser for going home while still recovering. You lengthened four bones along with all the soft tissues so it's only natural recovery will take a long time.

Btw, I like how Dr. Tardthong always seems to give a detailed response to emails. He's been thorough in email convos with me and it looks like it's the same with you. Wish there was a cosmetic lengthening patient under his care currently.  It would be great to hear that person's opinion of him. As of now he costs around the same as the Beijing clinic for LON. He does Fitbone also. Plus the hospital he practices at looks very high quality.

[BullSurfer]

I like dr. Porn A nake Tart Thong. His name screams sex.

Sorry for the bad joke, how are you my dear? Strong woman like yourself shouldn't have done LL,  you would've accomplished anything with your tenacity and patience.

Life is funny, one can only see a certain angle at a time.

[Polycrates.]

Hey Diso,

Did you send x-rays to these doctors, and are their responses in reaction to the x-rays?

[Disobedient]

Jerry

yup it seems he is very reliable doctor, I mean the doctor who show lot of concern for the email, he must be so much caring about his patients
BTW, I remembered you stated once that you'll do LL in March, did you decide with whom you'll have it ?

Kilokahn

well at least 2 member in my family would say I'm loser to do such a thing and back in this pathetic situation, anyway I agree with u he seems very caring doctor, and  in my opinion Thailand in general make a good choice for LL " I mean comparing to India", at least their PT so advanced, not like India..

BullSurfer

I'm not regretting doing LL, but If I could turn back time, I guess I would make different choices


Polycrates

yup, I sent my last x-ray,,,




 

[RGKEY]

hey Diso sorry i havent gotten to you sooner, but between me going out early and coming back when everyone is gone and the fact that my internet connection in the mornings is slow and when i wanted to show my doc your xray i could only upload the front ones but not the side view. Anyway Ill show them tomorrow to my doc. He saw the front and he needed to see the sides, In any case he says he really recommends to you to stay on your devices. I saw your xrays and they look good!! for all the LL that you did and the device that is not so great it is not bad at all!!)) i have seen worse with less lengthening than you!! i was glad to see you X-rays!!!
so ill get back to you since im with pain now and probably spend all day inside tomorrow.

[Disobedient]

hi there
sorry to hear about your pain,  don't worry at all you can ask him even after  a week I'm not in a rush.. 

[RGKEY]

HI DISO::: so i asked,

the good news, he actually thinks your consolidation looks good, coming from him, this is really good)))) he also thinks your bones look straight enough for plates.

the encouraging news::: he thinks you should do it with your own doctor, and the risk with plates are that they can break. i asked him if he can do the plates, and he responded "i can but i really dont want to do it" with a kind of sad face expression. I think he doesnt really want to touch other doctors job. In any case he thinks you are far better just keeping your devices on. I asked him to estimate how long you would wear your current devices, he said "its hard to tell, but anywhere from 2 to 6 months"

well Disobedient girl)) thats all from my end)))

Rgkey

[Disobedient]

God , 2-6 months , such a long time, Dr rah would say the same number but he'll replace weeks instead months!.. stupid Indian doctors
I really appreciate your  help, Regky,.. thanks to you and to your doctor too..

[Disobedient]

update

so I've contacted the med department in my Embassy.. told them about my situation , I don't know what kind of help they may offer ... but as far from I know, they could do some arrangements to let the pt and medicine covered by the government health insurance , since my insurance  now only covered that but inside UAE, and only the Emergency situations overseas ...
so they asked me to sent some documents, and info, and told me to come in Mon, ..

if that doesn't work, I think I fly back home, I wont stay in my parent's house, I may take an apartment , I still don't want  anyone to know about the LL, but GOD apartment in Dubai! that would be costly ..

[stevecap88]

Hello diso. I havent read your entire patient diary but may I ask how much you had to pay for food and accomodation or was this all included in the package. I understand your issues with your limb lengthening however would you still reccomend dr anil??

[Disobedient]

so if I said I do recommend dr anil, you'd consider having LL with him?
I spend around 1000-1200USD/monthly ,for (food, accommodation, medicine, caretaker.. )