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[Leonardo2013]

Diso,

Hang in there. Wait the time that be necessary until you're sure your bones are strong enough to remove your frames. You definitely don't want to remove them and have a fracture and have to start consolidation all over again. BTW, how is Shorty doing? How many cms is he doing?

[Disobedient]

mediocre

thanks for your kind wish

Leo

after the removing the frame I'm not allowed to stand too they will plastered my legs with portable plaster I don't remember its name , this would help me to keep the bones  alignment till I got 100% consolidate, then I'll be able to walk and stand again , so I'm not really afraid to break my bones cuz that will not happen since I'm not gonna stand..

shorty achieved something like 5cm, and went back home

[Leonardo2013]

Diso,

You mean like 2.5cm tibias and 2.5 femurs? Was it the pain or being bed ridden that make him quit? If so, I have to tip my hat to you and tell you Diso that you are a strong woman -- both mentally and physically. Best wishes to you.

P.S. Excuse my expression but It is f@ck up that your Dr mislead you from the beginning making you believe that you would be out of the frames in short time. I guess some Drs do it for the money, don't you think?

[Claude]

Diso is strong but Zlatan > Diso, sorry. I hope Diso is not bored. Stay strong like Zlatan.

[OverrideYouGenetics]

Diso is strong but Zlatan > Diso, sorry. I hope Diso is not bored. Stay strong like Zlatan.

zlatan? seriously what are you talking about?
you need help?

[Disobedient]

Leo
no, 3 in femur and 2cm in tibia
I don't think it was just because of the pain, he started to have some complications lately, he had misalignment in his left tibia and despite the dr corrected for him, but he wasn't happy with result ..
Also, he got infection in his femur, but I have to say that the  dr took care of that, he came to the hotel to clean the pin site by himself, and he was sending the nurse regularly to change the dressing ..

and yeah I do agree with you, and I'm responsible for that too , cuz I believed what I only want to believe.

Claude

who is Zlatan? I never heard of him

[mediocre]

He's the guy on his avatar, a famous football player.

Claude

who is Zlatan? I never heard of him

[Claude]

He's the guy on his avatar, a famous football player.

Wrong Zlatan is the avatar of Sweden 

zlatan? seriously what are you talking about?
you need help?

Yes please help me dude send me 50KE and some orange juice.
DIso, i wonder how your family would react if you go back to your country, are you a little scared ?
Good luck, kisses.

[OverrideYouGenetics]

He's the guy on his avatar, a famous football player.

yes but what the hell has Zlatan to do with this thread? Claude you mental case.

[Claude]

yes but what the hell has Zlatan to do with this thread? Claude you mental case.

Thanks i know  , Diso dont disobey Zlatan or you will not have cookies   

[Smallguy]

Does Dr. Ra do internal femur? And good luck with your recovery. You have almost made it!

[Sweden]

You'll never recover past 50-60%. Just my wild guesses but that's the way it is when doing what you've done.

You have to struggle real hard in 3-4 years. Try to find a good physical therapist.
And read more about what you've done and about nutrition that can help you on your way.

I was right before regarding the nail and I'm right now. It's not that I'm throwing it in your face or anything so no need to get pissed off.

Really hope for the best outcome possible. Try to listen to your body.

[mediocre]

Hi Dis,

Are you worried about your scars when your frames are taken out? I'm sure it's big deal for everyone but more so for women.

Best.

[Taller]

How is your final alignment Diso?

Make sure it is perfect because, once your bones have consolidated past a certain point, any misalignment will become permanent.

[Disobedient]

Claude

I don't know.
I'm not planing to tell them about LL,but if they'll  notice my new height I will just say that I got HGH treatment ..
and to be honest if I have money, I wont bother myself by returning home now, maybe  after 3or4 yrs, when everybody will be almost forgot me..

Smallguy

No, he is just doing external.
I'm sure the only reason that motivate you to do it with him is because of the cost of the operation
why don't you try to contact  this hospital ?
http://www.bangalorepediatricortho.com/servicesmore.html
they're preform both Fit bone and ISKD, and since it's in India it has to be cheap.

Sweden

if I'll be able to walk decent after 3or 4 months , that would be enough for me right now ..
and I can give myself some months more till I can be able to run again, and when that will  happen I'll consider that I recovered 90%.. it's not that I was athletic before LL
 
and I'm not regretting choosing just external  cuz as I read the nail inside cuz a permanent knee damage, nor regretting doing quad lengthening cuz Paley is doing it right now ..
it just I thought it wouldn't take such long time to remove the frame...

you know that Indian PT are suck and know nothing, beside I want to give myself a rest till they remove the frame, so yeah after that I should find a good PT


medicore

after removing frame I'll start using silicone gel sheets till I save some money to have surgical scar removal. it's not so expensive in India though, but having multiple scars that would be costy..


Tall

humm I still have misalignment in my right femur, according to Dr rah he'll fix it later, cuz he don't want to disturb that callus right now.
and he told me that if the misalignment was 10-30% it could be fixed by the time like after 1.5 yrs

[Taller]

he told me that if the misalignment was 10-30% it could be fixed by the time like after 1.5 yrs

I don't think this is true. A bone can't be moved at all when it's fully consolidated. I can't change the shape my never-broken femurs at all now without breaking them. However, I'm not an expert so if someone else could chime in, it would be very helpful.

[mediocre]

30% malalignment is huge!

[Disobedient]

Yeah , I didn't find this convincing too, and I'm kind of worried about it since I read carzy6 has knee pain because of the misalignment. To be honest I believe Dr Rah will not fix it, cuz he is keep saying that the misalignment is okay and not bad!   


and just to be accurate

((Dr rah said this "he'll fix it later, cuz he doesn't want to disturb that callus right now.
and its okay if the  misalignment was 10%

Dr Kumar said " if the misalignment was 10-30% it could be fixed by the time like after 1.5 yrs  " ))

but that wont make any difference since both of them work at the same hospital

[Smallguy]

Crazy 6 has all sorts of pain... not just knee pain. And his opinion of doctors reflects who he is currently working for.

I just looked at your x-ray. I have seen worst, including myself. And it is already what it is. Your bone is consolidating so there is no chance of fixing anything now.

I don't think you'll have arthritis.. if you keep to a healthy nutrition that includes a lot of leafy green vegetables, anti-oxidant and omega 3. I haven't felt any pain since I came back home. And I think the indian diet is very bad.

Maybe you don't feel it now. But you are 5'4 now? That's a perfect height for a girl. Whatever pain and difficulty you have endured, when you stand up, it will be a world of difference. Just make sure you pop those calcium tablets and do some exercises like sit-ups in your bed. That way you'll recover more quickly.

12cm.. in 2 segments. That's a remarkable achievement. Just make sure you do everything as told by your doctor at this point on.

[Leonardo2013]

Diso,

Just to know your opinion since you've had both tibias and femurs lengthened and almost for the same amount 5.5cm. If you were to have lengthening again with monorail frames but just one segment, which one would you choose tibias or femurs. In other words, which one was easier for you and why? Thank you.

[Disobedient]

Small Guy

Maybe you're right about crazy6, and it is relieve to know that your x-ray was worse than mine, and yet you can walk,exercise normally without pain. but maybe the misalignment in the tibia is different than femur. Anyway.. I think I have to be less worry about that right now.


Leo

I'll list the advantages,and drawbacks for each part.

A- The disadvantages of Lengthening Tibia by the monorail

• During the distraction the pain in your tibia would be much worse than the in femur, like by ten times
• The pin sites are problem especially when they stretch  because of either the lengthening or the exercising, but comparing to femur the pain in pin sites is less to be occurring
• You can feel that the monorail device is so heavy, since it's perpendicular to your tibia

B-The good points of lengthening tibia over the femur using the monorail

• much comfy in sleeping since you can sleep in your side
• the pain in pin sites is less to be occurs than the femur.
• Much easier and almost wont bother you at all in wearing clothes or even in siting on the chair

C-The drawbacks of lengthening femur over the tibia using the monorail

• You have to lay in your back while sleeping (no sleeping in your side), which was (still) very tiring for me
• It's hard to wear clothes, and very uncomfortable to be sit on the chair with rail in your femur
• The pain in pin site is much worse than tibia and more likely to be occur
• you'll lose your ROM in your knee gradually and this really hard, cuz this will limit your mobility

D-The good points of lengthening femur over the tibia using the monorail

• there is almost no pain during distraction phase or very slight pain comparing to the tibia

so if I was plan to do two surgeries like doing one with monorail and saving some money to do the other one just internal . then I would choose monorail for the tibia, and internal method for femur

However if I was plan to do just one surgery..and that by monorail . I would  choose lengthening the femur, just to avoid looking disproportional,  as I noticed even though I lengthened almost same amount in both part but my tibia kinda looks taller, and you can't really notice the different  in appearance  on femur part after lengthening .. 

[Leonardo2013]

Diso,

What was your distraction rate per day? I heard that femurs consolidate faster than tibias, is it true? BTW, have you had any issues after they performed manual manipulation in your knees? I've heard this sometimes can be more bad than good. Thank you and please keep updating us.

[Disobedient]

Hi leo

-  Dr Rah advised me to do 1mm/day for each part
- I think this is right since I had pre-consolidation in my femur in the beginning of distraction phase
- not really, rather than the pain that I felt after the surgery, there were no complications or side-affects that I could mention .

[Disobedient]

2 weeks left to remove the fixator, I couldn't be happier .. 
to be honest now at the end of my journey with these fixator I feel I can stand them  one month more  ...   even staying here in India, one month more wouldn't be exhausted to me at this point. ..
funny thing , I found out that I was expecting to stay here in India for 8-9 months. when I read my post i was really surprised lool, 9 months! WTF, when did I think of that ??

I'm Engineer, and I have been deal with numbers mostly in my life and this surgery to me is like mathematical problems that deals with many numerical value......
I may take few months more so I may take 8 or9 months but it's not bad too
cuz I'll suffer just for one time, I

anyway 2 weeks more, and I'll be fixator free, there should be a word describe the person after removing the fixator like sober with alcohol case

[Blackhawk]

Congrats Diso!

What is the plan when the frames are removed?  Will you be in a wheel chair for a while?  When will you be able to walk with crutches?

[BullSurfer]

Good news that you'll be free of frames soon. It sucks to be in bed all the time.

When you were distracting,  what is the time interval for each .25 mm? 3hrs or 4?

Always admiring your courage.  Im a dude, still enough is enough. Cant wait to go home.

[Smallguy]

Woohoo... It must be a great feeling to finally see a glimpse of light at the end of a dark tunnel. You are certainly more brave than I am. I wish I have lengthened as much as you did all in one go.

Bullsurfer... divide your waking hours by 4. Lengthen one in the morning, lunchtime, supper and before going to bed by .25

[mediocre]

I hope everything is good.

You'll have that willy-wonka feeling after you removed them.

[KiloKAHN]

Are you going to wear a protective cast or anything for a while after fixator removal?

[Disobedient]

MORNING
12 days left.. 


Blackhawk

thanks, I'm not advised to walk immediately.. perhaps after a month or so I'll start standing..



BullSurfer

You'll be home soon just focus to not have any further problem in your right femur...
what smallguy said is  a right way to not disturb your sleeping, otherwise if you did a turn every 6hours you would have to wake up to just do a turn.. but since you're doing 1.25mm, do  1 turn every 5 hours..
to be honest for me most of time I did all the four turns at one time (morning after taking pain killer)..

Smallguy & mediocre

Yes indeed it is amazing feeling .. although I'm still with the frame, but just imagining that after 12days I wont see these frames again, make me feeling  so high

Kilokahn

yes, I don't remember its name though, it is a portable things I can take it off whenever I want ..

[Disobedient]

something like this one




it looks uncomfortable , but sure better than frames