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Author Topic: VERY FERST STEP - INDIA - Dr. Anil Raheja  (Read 279152 times)

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JP

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Re: VERY FERST STEP - INDIA - Dr. Anil Raheja
« Reply #372 on: March 29, 2014, 09:33:28 PM »

hi

I hope you are getting somewhat of you knee ROM back now that you’ve stop lengthening.

If you could do it all over again what would you do differently?
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Disobedient

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Re: VERY FERST STEP - INDIA - Dr. Anil Raheja
« Reply #373 on: March 30, 2014, 10:11:33 PM »



interesting question,
Although my answer may changed after some months. but let's answer it now from perspective of person who has been stuck in those frame from half year..

humm, firstly.. I don't think monorail device is bad choice... you just have to choose the right doctor for it, so yes I wont chose Anil Rah ..
but I would still go for quad lengthening personally I still didn't see any critical disadvantage for that, maybe I'll have one month or two apart from the two surgeries..
and I'll choose internal for the femur.. it's hard to lose your knee ROM.. it makes you feel that you're  completely paralyzed..

 

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RGKEY

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Re: VERY FERST STEP - INDIA - Dr. Anil Raheja
« Reply #374 on: March 30, 2014, 11:40:17 PM »

Only very few people would be lucky to do Quad Lengthening and monarail without major complications. Diso you are very lucky to have pulled that off. But most people would be in a lot of trouble.  You are also a woman, usually women have loser muscles which allows better lengthening. Im serious when I say you are a very lucky girl Diso!!)) Probably as lucky as I am if not more)))
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RGKEY 2.0
Original height. 163.5cms. Current height 172.5cms
Operation on 6/4/13 Tibias 9 centimeters

Patton_Lee

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Re: VERY FERST STEP - INDIA - Dr. Anil Raheja
« Reply #375 on: March 31, 2014, 02:19:09 AM »

Disobedient,
I have read most of diaries and this is my first post on any limb lengthening forum.
You are just amazing soul and lovely person, and that compelled me to post for the first time.  :)
Quad lengthening is something no one dares to enter and you did that and with your spirit pulled it off well so far :-)
You have gained a massive respect in my heart at least.

To be honest, consolidation period is always at least twice the distraction (for external fixator). That is for single section (tibia or femur alone). For both segment it will be thrice the distraction.
So Dr Raheja was didn't told you before. Regarding misalignment of femur, it happens almost in every surgery I read across, and can only be avoided by following procedure here.

https://www.inkling.com/read/operative-techniques-orthopaedic-surgery-vol-2-1st/chapter-peds-34/technique-limb-lengthening
http://www.wheelessonline.com/ortho/limb_lengthening_of_the_femur
http://www.synthes.com/MediaBin/US%20DATA/Product%20Support%20Materials/Technique%20Guides/SUTGDORINGFemurJ7498B.pdf

So in case it is more than 10%, you need to undergo a similar operation, but this time distraction will be sidewards. So Dr Raheja is lying if he says he can solve it by any other way than that.

Even I would be doing quad lengthening, with bone graft and inserting nail if necessary. Right now I am going though to select quicker procedure or one with fewest complications. I have already saved enough but I would also appreciate if you could share 15 docs/hospitals you considered over pm  ::)

Btw, I am from Bangalore.
I hope you have a speedy recovery, but honestly, 54 days distraction implies at least 5 and half months consolidation.
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Disobedient

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Re: VERY FERST STEP - INDIA - Dr. Anil Raheja
« Reply #376 on: March 31, 2014, 06:50:34 PM »

For the last six months, I was thinking that I’m “okay”  I’m fine, and I convinced myself that I don’t need help from anyone, no need to share the secret of having LL with anyone either..
And to be honest, it wasn’t hard a lot, I mean this forum give me strength to do that , and honestly, I don’t know what would I do if I didn’t receive the invitation to LL forum.. 
But today, it was a different day, and for the first time from 6 months I felt RELIFE that I’m no longer have to carry this pardon all by myself, Now there are someone who sharing that with me.. and to be more specific it’s not a certain person, they’re group of very kind of ppl, whom I really appreciate their help.. and they’re willing to do anything just to make sure, I’m “okay” and safe just as if I was in HOME..
As I mentioned before today I have had an appointment in UAE’s Embassy.. But unfortunately I wake up at 11AM, I have less than 30min to be prepare and go to the appointment.. I called the office and asked if I can come at 12 noon, and they said they’ll call me back, cuz the person whom I’ll meet is having a lot of meetings today, and I’m supposed to meet him in 11:30 not 12..
I know it’s my mistake again, I wonder how many ton of mistakes I could do in such a short time, I just messed up my chance  again and all because I slept for an extra hour.. I started to blame myself in how I’m lazy and do all things in a very last minute, when a call interrupted all that, it was  the secretary, she told me that her boss will meet me but I have to be there in 12sharp..

Ok I can make it, I dress up so quickly and got ready in 40min, of course my caretaker helped me but 40min is such a short time for someone who is paralyzed… so I got into the cab then immediately to the Embassy.. I reached there at 12:15… entered the building .. the ppl over there welcomed me and was so passionate asking me if I’m okay and what happened to me?  And as soon as I started to speak Emeriti they draw a smile on their face and become more welcoming.. you know  it’s a different when you’re in foreign country, and when you see someone from your nationality you feel somehow that you belong to him/her.. ~! I don’t know if I was over emotional.. but that’s what I felt at that time.. 

After 2min the colonel came, he greeted me and asked me how am I doing, I replayed as you see I CANT WALK.. Then I started to talk about my situation, how dr. lied to me about the duration of the treatment and how am I right now paralyzed and in the verge of being broke..  Although, the col. wasn’t so agreed to have LL from beginning but he didn’t talk much about that he focused in my health situation,  how he could help, and what the best thing for me to do right now,.. He asked me why didn’t I came from beginning..  where am I staying right now, and who take care of me…

So long story short, they gave me some cash, told me from tmw they’ll start to send my report to another hospital, and they’re thinking of changing my hotel, to be sure I’m staying  in clean and safe area.. and asked me to have an escort, I explained that I kept all the thing from my family.. and I want to keep it that way.. but they insist since I’m not in a very good health condition.. so when I went back to hotel I called my sister, told her that I’m disabled because I had a surgery, then she asked if it’s LL surgery (thanx oprah!!!  ppl know about LL bcuz of ur show) anyway I answered  by yes,, but Don’t Tell Anyone.. she was cool, didn’t nag too much “maybe bcuz it was over the phone” and she said she’ll come whenever I say so.. ..

So In next few days it will be clear for me what will happen next

I may sound so weak and dependent, but yeah I need help now, and it's better to ask for help when you need it..  :)
« Last Edit: March 31, 2014, 06:56:35 PM by Disobedient »
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RGKEY

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Re: VERY FERST STEP - INDIA - Dr. Anil Raheja
« Reply #377 on: March 31, 2014, 07:17:45 PM »

Awesome Diso!)) Im glad you got out and saw some familiar faces!)) Yeah and there is nothing wrong with asking for help!!))) Sometimes when you spend such a long time inside and without any action it can be depressive at times. Connecting and interacting with people is such a huge help!)
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RGKEY 2.0
Original height. 163.5cms. Current height 172.5cms
Operation on 6/4/13 Tibias 9 centimeters

jerry

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Re: VERY FERST STEP - INDIA - Dr. Anil Raheja
« Reply #378 on: March 31, 2014, 10:13:04 PM »

hey Diso  it's normal that you feel homesick after being away so long!   I am glad the embassy and family (thanks to oprah ha ha) are supporting you, the loneliness is often harder than the physical pain of LL.     Rgkey is right.   It's good to have people to talk to and not carry everything inside.  Best wishes.
 
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Sweatpants

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Re: VERY FERST STEP - INDIA - Dr. Anil Raheja
« Reply #379 on: April 01, 2014, 02:33:43 PM »

Disk,

I am very glad for you, these are  wonderful news. You are very strong and independent, but even very strong person needs support and care of other people, especially in situations like this. Hope now things will get better for you.
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Disobedient

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Re: VERY FERST STEP - INDIA - Dr. Anil Raheja
« Reply #380 on: April 12, 2014, 10:48:55 AM »

So here what’s happen, as I mentioned b4 that I told my sis about the surgery and how it’s compulsory to have an escort for at least few days in order to get permeation so the gov will  pay for all medical expanse + accommodation..
Well my sis came (she was here 10min ago), but not b4 telling everyone in home! She said  I did what the best for you! She completely denied the fact that I told her million times that I don’t want anyone to know..!
Her intention was to make me back to home, set for few weeks then fly to Germany or US to get better treatment.. of course dad, bro all of them would help in that… sound good, right?!!!
No, not for me, god …how much I hate the censorship !  why do they think that I’m really in need for their help! And why in the hell they think I won’t survive without them! I told her no, I’m not going back home! Not now..! and not after you told my everyone… we spent around 3hours just arguing about this ..
And she told me something like I’m kind of selfish to not consider their feeling and do what I want ..!!
So now I won’t get the help from gov since I don’t have escort..! and I’ll defiantly not gonna agree to get back home to let my family take care of me and send me to US or Germany..
It’s not that I don’t want to get better treatment, but not in this way.. I could accept help from the gov cuz that consider as my right, but I’ll never accept it from my family.. !!
God, the next few days will have so much drama , I knw that .. ! I’m not even doubt that all my family could come here just to convenes me to go back.. !



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BullSurfer

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Re: VERY FERST STEP - INDIA - Dr. Anil Raheja
« Reply #381 on: April 12, 2014, 02:22:15 PM »

Hey Diso,  I think it's time you accepted your family help. Every one needs help sometimes, it's not a sign of weakness. I wish you the best.
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Disobedient

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Re: VERY FERST STEP - INDIA - Dr. Anil Raheja
« Reply #382 on: April 12, 2014, 05:00:06 PM »

oh believe me they don't wanna help....
they want to convenience me that I'm not good enough to handle or to make my own Decision!

and funny how UAE  seems to be so close to India ! dad just arrived 2h ago 
he came kissed my forehead, said that he is sorry to see me like that and guess what he wants me of course to go back NOW! no matter what

so do they care about me !! I would say fk no! he just don't want ppl to say that he's
careless to let his daughter had surgery in India !!!

so I told them that I'll go back but this would be the last thing I would obey him on, and I don't want to see him or anyone again.. and it would be better if I'd mange to change my family name ..
don't want to relate to him anymore... fk I'm not 12 yrs old !!
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Disobedient

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Re: VERY FERST STEP - INDIA - Dr. Anil Raheja
« Reply #383 on: April 12, 2014, 05:04:42 PM »



loaded with ultracet , have plane to catch in the morning .. so better to sleep now
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Blackhawk

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Re: VERY FERST STEP - INDIA - Dr. Anil Raheja
« Reply #384 on: April 12, 2014, 05:40:10 PM »

Hey Diso,

I understand your feelings I think.  I am independent and I'm not going to tell my family when I do this procedure.  But it sounds like your family really wants to help you.  Your dad got on plane to a foreign country to come and help you.  Of course he cares.  Right now you need to focus on what is best for you long term.

Best of luck to you Diso.  I hope you can get the proper medical treatment soon.
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Disobedient

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Re: VERY FERST STEP - INDIA - Dr. Anil Raheja
« Reply #385 on: April 13, 2014, 12:58:00 PM »

Update :

since my visa expired , I couldn't go home  ;D, Huh.. so dad and sis returned without me..


Hi Blackhawk, you're right I should focus on what the best for me.. that's why I would try to get a report from hospital (medical advice) stated that it's better for me to stay here rather than going to anyplace without prior medical plan from other hospital or clink.. ..
and that would help me... in which way? well just in case if I thought to sue dad in future.. 
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Medium Drink Of Water

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Re: VERY FERST STEP - INDIA - Dr. Anil Raheja
« Reply #386 on: April 14, 2014, 12:54:12 AM »

You sure are disobedient. :)
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hadi

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Re: VERY FERST STEP - INDIA - Dr. Anil Raheja
« Reply #387 on: April 19, 2014, 04:04:35 PM »

Hello diso,
Im from kuwait im intersting in doing the surgery in india
Can you send me your email

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Disobedient

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Re: VERY FERST STEP - INDIA - Dr. Anil Raheja
« Reply #388 on: April 19, 2014, 06:35:22 PM »

hi hadi

I'm not sure if I'm in position to give you any advice since obviously I made a bad choice to choose rah.
« Last Edit: April 19, 2014, 06:39:24 PM by Disobedient »
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Disobedient

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Re: VERY FERST STEP - INDIA - Dr. Anil Raheja
« Reply #389 on: April 19, 2014, 07:01:26 PM »

no thing new to say..

I just fixed an appointment with Dr. Naveen this Monday at 11:30AM

and I visited some doctors one is in forti, the other is in Apolo hospital, all of them agreed that the best thing to do right now is to do more pt, and do bone graft .. and wait for 6-7months more..

if dr naveen will suggest the same, I will go to forti hospital and start pt, and bone graft.. I will stay there too since it's seems to be much better than hotel..

I think I can stay 6 months more here in india, if that would ended up with good outcome..
« Last Edit: April 19, 2014, 07:07:39 PM by Disobedient »
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Claude

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Re: VERY FERST STEP - INDIA - Dr. Anil Raheja
« Reply #390 on: April 19, 2014, 11:18:48 PM »

"Apolo Hospital", they have some funny names, they should have an LL hospital called "Pistorius Best Hospital"  8) and Dr Pornanakethong should work there.

Its nice that you've talked to someone.
How is your mood doing, are you feeling bored, do you need steaks ?
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Sweden

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Re: VERY FERST STEP - INDIA - Dr. Anil Raheja
« Reply #391 on: April 20, 2014, 02:33:51 PM »

Don't you regret yourself so bad??

Is it a pain in the butt that everyone who warned you ended up being right and you being wrong?

You should be very happy if you are able to walk close to well next year.

Best of luck.
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173cm before LL with Sarin, jan -13. Now 180cm tall. Considering 5cm on femurs.

hadi

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Re: VERY FERST STEP - INDIA - Dr. Anil Raheja
« Reply #392 on: April 20, 2014, 04:51:11 PM »

Hope you doin well
Best of luck
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Blackhawk

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Re: VERY FERST STEP - INDIA - Dr. Anil Raheja
« Reply #393 on: April 20, 2014, 06:32:37 PM »

Don't you regret yourself so bad??

Is it a pain in the butt that everyone who warned you ended up being right and you being wrong?

You should be very happy if you are able to walk close to well next year.

Best of luck.

Sweden,

Do you regret yourself so bad?
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Claude

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Re: VERY FERST STEP - INDIA - Dr. Anil Raheja
« Reply #394 on: April 20, 2014, 06:38:36 PM »

I dont see the point of having regrets, now its done anyway, isn't it ? Best of luck Diso... dont Diso too much -)
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Sweden

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Re: VERY FERST STEP - INDIA - Dr. Anil Raheja
« Reply #395 on: April 20, 2014, 08:18:42 PM »

Sweden,

Do you regret yourself so bad?

Certainly not.
I ran very well yesterday and I can do my Taekwondo.

I'm sorry to say Diso will never be able to run well again.
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173cm before LL with Sarin, jan -13. Now 180cm tall. Considering 5cm on femurs.

Orlando

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Re: VERY FERST STEP - INDIA - Dr. Anil Raheja
« Reply #396 on: April 20, 2014, 08:39:54 PM »

Sweden, all you come to post in this diary is repeatedly tell Diso that she will be crippled and never run.  You did the same thing in another thread about Shorty.  Wtf is the problem with you loser? 
   
I don't need to point out how many times you been moaning and bitching about how your life is ruined and you are depressed.  Now you come here taunting Diso about whether she regret LL.  You have problems man.
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Blackhawk

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Re: VERY FERST STEP - INDIA - Dr. Anil Raheja
« Reply #397 on: April 20, 2014, 09:45:28 PM »

Certainly not.
I ran very well yesterday and I can do my Taekwondo.

I'm sorry to say Diso will never be able to run well again.

I'm sure Diso will be able to run fine eventually.  In fact I think can probably run better than Sweden right now.  :)
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Sweden

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Re: VERY FERST STEP - INDIA - Dr. Anil Raheja
« Reply #398 on: April 20, 2014, 11:14:06 PM »

You are both idiots.
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173cm before LL with Sarin, jan -13. Now 180cm tall. Considering 5cm on femurs.

Claude

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Re: VERY FERST STEP - INDIA - Dr. Anil Raheja
« Reply #399 on: April 20, 2014, 11:50:43 PM »

You are both idiots.

Muhahaha man i missed those consctructive comments  8)
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Ronaldo

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Re: VERY FERST STEP - INDIA - Dr. Anil Raheja
« Reply #400 on: April 20, 2014, 11:51:16 PM »

You are both idiots.

In case you are not aware, your remarks toward Diso are malicious and not coming from a good place.  Stop posting in here and making people uncomfortable.    Are you a LL Doctor?  If not keep the unconstructive opinion for yourself.

« Last Edit: April 21, 2014, 12:03:43 AM by Ronaldo »
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Sweden

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Re: VERY FERST STEP - INDIA - Dr. Anil Raheja
« Reply #401 on: April 21, 2014, 12:03:24 AM »

I don't fancy sugar coating when someone is destroying themselves.

Some other fool might take it for a good idea.
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173cm before LL with Sarin, jan -13. Now 180cm tall. Considering 5cm on femurs.

Ronaldo

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Re: VERY FERST STEP - INDIA - Dr. Anil Raheja
« Reply #402 on: April 21, 2014, 12:05:34 AM »

I don't fancy sugar coating when someone is destroying themselves.

Some other fool might take it for a good idea.

You been saying this since page 1 and we are on page 27.    Have you got anything new and constructive to say? 
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