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[cheekycabs]

Currently I've lengthened 5.5cm and out of literally nowhere I am experiencing incredible nerve pain in my right leg. The location sort of travels, from the point of the break in my tibia, and moving upwards past my knee. The pain is worse than anything experienced during lengthening. So far, I am able to cut the pain with Ibeuprofin, I have requested my doctors advice and as usual, it's crap. Take painkillers, maybe open the apparatus.

I am in dire need of advice or help on what to do, I have booked to see some neuropaths this week to get to the root of the problem, but any advice is welcome. I cannot sleep, and can barely lie down in one place without painkillers.

[takura]

I recall this problem with a guy lengthening with Dr.Kulesh where they had to distract him 2.5mm per day due to his premature consolidation and he felt death

Anyway try not distracting for a few days and then get back on track and see if that helps

[7231]

Currently I've lengthened 5.5cm and out of literally nowhere I am experiencing incredible nerve pain in my right leg. The location sort of travels, from the point of the break in my tibia, and moving upwards past my knee. The pain is worse than anything experienced during lengthening. So far, I am able to cut the pain with Ibeuprofin, I have requested my doctors advice and as usual, it's crap. Take painkillers, maybe open the apparatus.

I am in dire need of advice or help on what to do, I have booked to see some neuropaths this week to get to the root of the problem, but any advice is welcome. I cannot sleep, and can barely lie down in one place without painkillers.

I am so sorry hear this my friend, I wish to god that all becomes well soon (being from a family of priests I will make a special prayer for you) , please consult your surgeon as well as another good nerve specialist. Did you do internal or external and tibia or femur?

[wannagrowtaller]

How much distraction per day are you doing?

[TemakiSushi]

Currently I've lengthened 5.5cm and out of literally nowhere I am experiencing incredible nerve pain in my right leg. The location sort of travels, from the point of the break in my tibia, and moving upwards past my knee. The pain is worse than anything experienced during lengthening. So far, I am able to cut the pain with Ibeuprofin, I have requested my doctors advice and as usual, it's crap. Take painkillers, maybe open the apparatus.

I am in dire need of advice or help on what to do, I have booked to see some neuropaths this week to get to the root of the problem, but any advice is welcome. I cannot sleep, and can barely lie down in one place without painkillers.

Don’t they give you Lyrica, pregabarin for nerve pain?

[cheekycabs]

How much distraction per day are you doing?

Im consolidating. I've already lengthened 5.5.

[cheekycabs]

Don’t they give you Lyrica, pregabarin for nerve pain?

I have lyrica, but strangely 75mg didn't do enough to stop the pain, and I needed 2 tabs 400mg of neurofen to stop it. Thank God the pain has stopped, but it was easily the worst experience of the 4 months doing this.

I have yet to have the pain come back, but also I have literally not moved in a whole day. I feel like I crushed a nerve or something, it was awful. Throbbing, stabbing pain every time my heart beat. I am going to get back onto PT but very very very very slowly.

[takura]

I have lyrica, but strangely 75mg didn't do enough to stop the pain, and I needed 2 tabs 400mg of neurofen to stop it. Thank God the pain has stopped, but it was easily the worst experience of the 4 months doing this.

I have yet to have the pain come back, but also I have literally not moved in a whole day. I feel like I crushed a nerve or something, it was awful. Throbbing, stabbing pain every time my heart beat. I am going to get back onto PT but very very very very slowly.

Neurofen = iboprofen?

[cheekycabs]

yes

[TemakiSushi]

I have lyrica, but strangely 75mg didn't do enough to stop the pain, and I needed 2 tabs 400mg of neurofen to stop it. Thank God the pain has stopped, but it was easily the worst experience of the 4 months doing this.

I have yet to have the pain come back, but also I have literally not moved in a whole day. I feel like I crushed a nerve or something, it was awful. Throbbing, stabbing pain every time my heart beat. I am going to get back onto PT but very very very very slowly.

Maybe its not really nerve pain
Could be inflammation caused by infection if ibuprofen worked but not Lyrica
You may need to check for sepsis and get antibiotics
Sepsis is scary.  Death rate is quite high with advanced sepsis
I really hope you get better soon

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3535127/

[Big Decision]

Hey Jcayabo.

I'm dr kulesh patient,  have lengthened near 5 cm,  and my left foot Is on fire  I have taken 3 pain killers and yet feeling so much pain

[cheekycabs]

Which painkillers are you taking? If it's painful around your ankle, just stop lengthening for awhile and recover. It's so much harder once you pass 5cm

[California2]

You write that you are consolidating.

What lengthening procedure did you undergo?

When (what date) did you complete distraction/correction?

Are you experiencing any other unusual or new symptoms other than what you perceive to be nerve pain in your right leg?

[cheekycabs]

You write that you are consolidating.

What lengthening procedure did you undergo?

When (what date) did you complete distraction/correction?

Are you experiencing any other unusual or new symptoms other than what you perceive to be nerve pain in your right leg?

External Ilivarov, 7 days ago.

No other symptoms.

[Constantine]

I had the same problem . Nerve pain was the worst of all. But lyrics helped me a lot. But it takes time until it works maybe 3-4 days . Because of the nerve pain my lengthening was much longer. Every time I had the nerve paint I stopped clicking immediately. I mean clicking in the beginning was so painful anyway but with nerve pain not possible. Couldn’t turn my leg even 20° When I is nerve pain. I remember that dr Betz told me that he’s patient never had damage. Also me and I was really fighting with the nerve pain a lot. After 3-4 cm When I lengthened more than 7 days without a rest it started again. I lengthened 8,3cm and I dont have any nerve damage 

[California2]

Purely external?  Meaning no LON or LATN and you are still in frames for consolidation?

Even without knowing the above yet, let's think things through to see if you can rule out any of your concerns. 

Nerves can grow up to 1 mm per day and because you have not distracted or corrected in 7 days, it seems unlikely that you caused any new damage--right?

So, what changed?  You stopped distraction 7 days ago and your legs are beginning to heal.

Each time you distract you cause trauma which likely produces swelling.  Swelling can compress nerves and block transmission of the pain impulse. 

If you are doing purely external, some of the swelling caused by distraction is likely going away now that you are 7 days trauma-free.  If so, your legs are regaining feeling and coming back to life.  Unfortunately, this can also mean that you are beginning to feel pain that was previously blocked by swelling.  This is so even if you do not see swelling--it's there.

If so, your pain should begin to diminish over the next week as your legs begin to heal.

Naturally, if your pain increases or you experience significant swelling or redness, you should notify your MD again.

[cheekycabs]

Maybe its not really nerve pain
Could be inflammation caused by infection if ibuprofen worked but not Lyrica
You may need to check for sepsis and get antibiotics
Sepsis is scary.  Death rate is quite high with advanced sepsis
I really hope you get better soon

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3535127/

This probably would have been my next step, thanks for the info. I did a cycle of antibiotics as early as a month ago due to a cold/flu, so it couldn't have been advanced sepsis.

Purely external?  Meaning no LON or LATN and you are still in frames for consolidation?

Even without knowing the above yet, let's think things through to see if you can rule out any of your concerns. 

Nerves can grow up to 1 mm per day and because you have not distracted or corrected in 7 days, it seems unlikely that you caused any new damage--right?

So, what changed?  You stopped distraction 7 days ago and your legs are beginning to heal.

Each time you distract you cause trauma which likely produces swelling.  Swelling can compress nerves and block transmission of the pain impulse. 

If you are doing purely external, some of the swelling caused by distraction is likely going away now that you are 7 days trauma-free.  If so, your legs are regaining feeling and coming back to life.  Unfortunately, this can also mean that you are beginning to feel pain that was previously blocked by swelling.  This is so even if you do not see swelling--it's there.

If so, your pain should begin to diminish over the next week as your legs begin to heal.

Naturally, if your pain increases or you experience significant swelling or redness, you should notify your MD again.

Diary is here, detailing what pain I was experiencing previously and most recently. Full external with no nail.

http://www.limblengtheningforum.com/index.php?topic=9418.msg97760#msg97760

Literally nothing has changed, except for possibly walking less. This week without distraction has been a lazy one, purely coincidental. One day I was lying on my stomach doing ROM knee PT, which seems to be the last thing I remember, and pain was slowly building up to my knee and lower hamstrings. Then when the evening came it was impossible to sleep, so I took a diclophenac shot to get me through, it was brutal. Before the shot I could feel my leg pulsing uncontrollably at the speed of a heartbeat.

Anyway, was able to walk a little bit yesterday, and the pain hasn't blown up again. Legs are a bit weak but maybe because I've done nothing for days.

You may be right about strange pains coming up as I consolidate, I'll keep it in mind.

[California2]

You may want to think twice about diclophenac -- it is an NSAID (non-steroidal anti-inflammatory drug) (like Ibuprofen).  NSAIDs are reported to retard bone regeneration.

An acetaminophen-based pain reliever might be better overall.

[cheekycabs]

I've been on it for 4 months and my callous is great.

[California2]

Please understand I am not trying to tell you what to do--we all must make own own choices.  I am merely sharing some generally accepted medical information for your consideration.

Some MDs from Asia and Europe do not accept this information about NSAIDs.  However, perhaps your callus would have been even better had you avoided NSAIDs?

Who knows?  Nonetheless, in my experience, better information generally leads to better decisions.

I accept the research about NSAIDs but even knowing it, I took massive doses of NSAIDs at one point because I had nothing else to fight the pain.

[cheekycabs]

Please understand I am not trying to tell you what to do--we all must make own own choices.  I am merely sharing some generally accepted medical information for your consideration.

Some MDs from Asia and Europe do not accept this information about NSAIDs.  However, perhaps your callus would have been even better had you avoided NSAIDs?

Who knows?  Nonetheless, in my experience, better information generally leads to better decisions.

I accept the research about NSAIDs but even knowing it, I took massive doses of NSAIDs at one point because I had nothing else to fight the pain.

Yeah fair. My doctor follows similar practices as Russian doctors, I was originally prescribed panadols and other drugs that had limited effect. Anyway, yes callous is good. But, I am definitely feeling a lot weaker behind my knees in my tendons almost to the point of making walking impossible. Not sure if it's normal during consolidation but it's a pain in the ass.

[notatroll]

Nerve pain / damage is one of the worst possible complications with this surgery. Some Monegal patients can't walk properly 3 years post op due to nerve damage

[Astronomy]

I recall this problem with a guy lengthening with Dr.Kulesh where they had to distract him 2.5mm per day due to his premature consolidation and he felt death
Anyway try not distracting for a few days and then get back on track and see if that helps

I think theyre pushing him to death!1mm per day is the limit of daily lengthening!