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Author Topic: Free limb lengthening in clinical trial  (Read 1643 times)

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Tarczer

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Free limb lengthening in clinical trial
« on: November 09, 2023, 10:40:31 PM »

Hi, i was acceped to take part in clinical trial of limb lengthening in Poland. Company is called orthoget and its some sort of internal nail. I am however not an ideal patient but doctor told me because of lack of ideal candidates he would performance surgery on me. The problem is with my femurs. For one they are slightly bowed and second my Channel inside bone is 14,2mm, /11,1 mm and the nail requires 12 mm. Is widening the Channel inside the bone to fit the nail a very bad idea? I really need to know!
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Acemace86

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Re: Free limb lengthening in clinical trial
« Reply #1 on: November 10, 2023, 01:44:44 AM »

I sent an email trying to sign up for this but I didn’t get a response. I did send it in English however.
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Tarczer

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Re: Free limb lengthening in clinical trial
« Reply #2 on: November 10, 2023, 04:44:26 AM »

ThIs trial takes over 1 year to complete where you are being monitorem, i dont think they accepted outside of country
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Staystrong

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Re: Free limb lengthening in clinical trial
« Reply #3 on: November 10, 2023, 06:39:44 AM »

Are you Polish?
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Tarczer

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Re: Free limb lengthening in clinical trial
« Reply #4 on: November 10, 2023, 07:08:07 AM »

Yes
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Tarczer

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Re: Free limb lengthening in clinical trial
« Reply #5 on: November 10, 2023, 07:27:57 AM »

Sińce i was already accepted spots must have filled up, Just So no one gets their hopes up
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Tarczer

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Re: Free limb lengthening in clinical trial
« Reply #7 on: March 06, 2024, 06:55:51 PM »

Hi update. Lenghtening device was not working properly and legs consolidated, others had simmilar issues but some managed to lenghten using new device, im now waiting for date of new surgery to recut bone and check if nails are working properly if not they will be changed too. Theres susspicion with me specifically they might be faulty as theres not much consolidation visible on xray and strong magnet should be able to pull bones apart. Its been 2,5 months and im still at starting point, Horror i know
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Tarczer

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Re: Free limb lengthening in clinical trial
« Reply #8 on: March 06, 2024, 06:56:37 PM »

On the bright side i could walk with crutches from next day from surgery
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Tarczer

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Re: Free limb lengthening in clinical trial
« Reply #9 on: March 06, 2024, 07:00:31 PM »

No they are not, if it was precice i would have bend it long time ago lol
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lucindaris

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Re: Free limb lengthening in clinical trial
« Reply #10 on: March 06, 2024, 07:16:53 PM »

I did register for this lol
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Tarczer

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Re: Free limb lengthening in clinical trial
« Reply #11 on: March 06, 2024, 07:20:58 PM »

dont worry it works now its just theres issue with some that bone consolidated i suppose, also some had worse but for me pain lvl was quite comfortable. Cant say about lenghtening phase as i never entered it lol
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Tarczer

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Re: Free limb lengthening in clinical trial
« Reply #12 on: March 06, 2024, 07:21:50 PM »

Where are you frome? do you plan to stay in poland for lenghtening phase? We have to do xrays every 2 weeks
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lucindaris

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Re: Free limb lengthening in clinical trial
« Reply #13 on: March 09, 2024, 08:14:28 AM »

I grew up in Poland, but I don't live there anymore just casually visiting my friends family from time to time. This clinic was in Kraków and I was invited to it as well. If you say it's already 2.5 months and still not in the stage i don't want to even be invited. I am thinking of doing it in Benz Institute in Germany because finally i have financial stability and a lot of stable income to do whatever I want.
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lucindaris

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Re: Free limb lengthening in clinical trial
« Reply #14 on: April 01, 2024, 07:47:54 PM »

Any info? Wszystko w porządku?
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Staystrong

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Re: Free limb lengthening in clinical trial
« Reply #15 on: April 02, 2024, 12:35:41 AM »

somebody got infection with Betz 10 years ago and possibly died.
it's crazy to have it with this type of nail and it looked like betz didn't care
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