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[Bob]

Hi Ted68. Just after your surgeries where you could not weight bear. Did you then did exercises with your legs lying down on your bed? Best.

[Ted68]

Hi Ted68. Just after your surgeries where you could not weight bear. Did you then did exercises with your legs lying down on your bed? Best.

Hi, Bob.
Yes, in my paid package services was included every day PT, so a guy came to me and I did right away after surgery something in bed... for 4 months and a half in Istanbul.

[dingdongditch]

Hi Ted,

Thanks for sharing your experience, it is certainly very eye-opening and we all really do appreciate it!
Best of luck on your recovery - certainly, so many obstacles but it seems that you have a strong character and will push through any challenges as they come.

Do you have any diary updates recently? How's the callus and recovery coming along? Did you get the ankle screws removed?

[Ted68]

Hi Ted,

Thanks for sharing your experience, it is certainly very eye-opening and we all really do appreciate it!
Best of luck on your recovery - certainly, so many obstacles but it seems that you have a strong character and will push through any challenges as they come.

Do you have any diary updates recently? How's the callus and recovery coming along? Did you get the ankle screws removed?

Hi, man. Thank you for your comment...
Yes, i have some sad updates...
...................................

10 Sept 2024

Because doctors in my country have s-hitty character and they think they are kind of Gods and dont want to mess helping me or because other doctors charge me an insane amount of money for a fu-cking easy 5 minutes job... I didnt remove the syndesmotic screws yet !... Unbelievable !
And i should have it done 2 months ago already !

Regarding my popping-up tibial screws... they stopped popping when i stopped the walking exercises and all the rest of muscle training. So, now my muscles got atrophy again, especially the Medius Gluteus, which is the most important muscle in walking balance and i cannot walk anymore freely.

But, the worse news is that the doctor asked me few days ago to go in Turkey for syndesmotic screws removal and for proximal PEG screws removal... and to replace them with plates !
He said also maybe he will insert iliac graft to accelerate the callus build !
When i heard these i got crazy, because that means a lot of stress to travel and another invasive surgery... which i dont want to do it !
Also, to insert plates needs long cuts, so i will have big scars and i hate that !
And, honestly, i am not sure if that plate can bear my weight (because, as i know, its one sided plate, not both sided). I am afraid to not get some deformity if the plate bend !

What is enough, is enough !
The only one surgery i want to do it is for all implants removal, done in one time surgery... the last one !

I want to know why my PEG screws are coming out, 3 of them already !
I never heard to happen such thing to other guys who did Precice on tibia !
If you know some cases, let me know, guys...

[Ted68]

23 Sept 2024

Today I got 9 months from the first surgery and i should walk freely... but i am not !
Nothing good happened, only bad news...
- No ankle screws removed yet.
- The left calf is unstable and i feel like a rotation in the implant.
- I have very big pain when standing up and walking to bathroom.
- My ankle tendons got very stiff again.
- My muscles got atrophy back !
- My knees are semi-flexed permanently.
- My left semitendinos / membranos tendon is still jumping with big pain, on every left leg motion.
- And i suspect i have few degrees Procurvatum on my tibias... as i saw on my x-rays.

In 3 days i have an air ticket, paid long time ago, and i should already walk good to fly well... but i am not !...
This is a long time flight, about 24 hours total, to a different continent, with 2 planes and lot of waiting time in airports. So i cant fly and, anyway, I dont want to go with canes and walker plus a lot of pain !
So, i tried to change the date but they give me only one month later, since are 11 months already. I asked them to give me a voucher so i can buy a new ticket in May, because i should be much better at that time, so they asked me to give them a certificate from my surgeon which saying i am not able to take long flights because my condition... I asked doctor, he sent it to me few days later and the KLM agent asked me to wait for a different department decision... I was waiting for one week and finally I found they changed their policy and they dont give vouchers anymore, so i lost my money now !

In my country we had a long and extremely hot summer and now finally is ok, so i could go out on street, park, etc, to walk... But actually i cant, because i am fu-cking handicapped and staying home in bed 99% of time !

So, all these happened because the fu-cking Precice PEG screws came out and i had to stop my walking training !

Soon i have to do a new set of x-rays, hoping the tibial callus is better, because this is my only hope to re-start walking...

Luckily i dont need to work, i dont have obligations to anybody, i am financially relaxed, i have my house paid and overall i am a tough guy  !.... But, for a weak young guy with nothing clear and nothing stable, THIS SITUATION WOULD BE IMPOSSIBLE TO MANAGE.
So, keep in mind young guys, if you are not prepared for all kind of sh-it which could happen... you will be fu-cked !

[lucindaris]

Yes, I will not go to Turkey for sure just to save some money but I wish you to recover for sure.

[Ted68]

Yes, I will not go to Turkey for sure just to save some money but I wish you to recover for sure.

Thank you for your wishes !

But, guys, my messages here are not to discourage you to do LL to my doctor, or to other serious and good doctor in Turkey !
My warnings are against lacks in Precice system and to let all guys understand that they must think very well before doing LL surgery and to be prepared for all bad and worse scenarios that they could face.
This is not a joke, because is life changing... in good or bad.
Only GOD knows how will finish all these, but we have to do our best to prevent bad things !

[li2028]

Hi Ted,

Sorry to hear that. Hope you will recovery soon. Hope you can find a good doctor can solve your problems. Hope to hear your good news in a couple of months.

[Ted68]

Hi Ted,

Sorry to hear that. Hope you will recovery soon. Hope you can find a good doctor can solve your problems. Hope to hear your good news in a couple of months.

Thank you, man...

[dingdongditch]

Hey man, hope you are doing better slowly but surely! Join this d server, where there's other LLers right now and they can give you some good advice and emotional support.

https://d.com/invite/A7X4Mfzm

[Ted68]

Hey man, hope you are doing better slowly but surely! Join this d server, where there's other LLers right now and they can give you some good advice and emotional support.

https://d.com/invite/A7X4Mfzm

Thank you, man !
I dont know what kind of server is that, because it doesnt work...

[Ted68]

Hey guys...

I just did new x-rays, after 3 months of pause, because I could see there is no much difference if I do it every month.
So, the femurs looks good, I have a well formed callus, better and better.

https://photos.app.goo.gl/LYCdvAgbSgBpEAv16

https://photos.app.goo.gl/HsProH5fr7veNxMd7

But the tibias are not good... I have zero frontal callus, I vave a Procurvatum on both (the left one is much worse)... and I have a slightly bow legs, so I cannot touch my knees when standing...

https://photos.app.goo.gl/YS6zQYKmr3WZ4dwWA

https://photos.app.goo.gl/fa4C5jAP8NsLGYct9

https://photos.app.goo.gl/DDVZQSeEJWj2womWA

And here you can see the screw is clearly out of its position and wants to come out completely, thats why I stopped my walking exercises...

https://photos.app.goo.gl/AcJ5dWSQU7HCWL989

So, I was talking with doctor and he said my tibia implants are in danger to bend or brake, so i must come asap to Turkey to do grafting in my frontal tibial space and to fix the rest of the problems.
We decided to go back in Istanbul and I have to do he following procedures:
- remove all proximal screws
- mounting  double plates on my both tibias
- correct procurvatum on both
- correct bow legs
- remove syndesmotic screws in the ankles

I asked him if those plates can bear my weight and he said yes. Ok then..
He said this way I will not have problems anymore and i can restart my walking and the callus will start and accelerate in my tibias.

It will be a long and complicated surgery, guys, and I have big concerns because are all very delicate and fine tuning procedures... but I trust my doctor, because he has a long experience in orthopedic deformities...   

[erenpalo]

Good luck bro, Hope you will recovery soon 🙏

[Ted68]

Thank you, man...

[rotzputzen]

Hey man,
I do not not know why I need to tell you this but DO NOT go back to Turkey. Get a loan and get your legs fixed by a proper deformity/LL surgeon. Otherwise, you are risking permanent crippling.
You had massive problems throughout which your doctor was at fault for. How can you even trust your doctor now after all this ordeal??? Please wake up.

Also, get on teriparatide (Forteo) which may initiate callus formation without another surgery.

Good luck. Do not be stupid and please do not screw up your life for good.

[Ted68]

Hey man,
I do not not know why I need to tell you this but DO NOT go back to Turkey. Get a loan and get your legs fixed by a proper deformity/LL surgeon. Otherwise, you are risking permanent crippling.
You had massive problems throughout which your doctor was at fault for. How can you even trust your doctor now after all this ordeal??? Please wake up.

Also, get on teriparatide (Forteo) which may initiate callus formation without another surgery.

Good luck. Do not be stupid and please do not screw up your life for good.

Thank you, man, for your concerns !
After you have read in detail my story... do you really think I am stupid and I need to be woken up ?
If I am stupid, what do you think about those men who did LON, or Betz-Gnail, or who's going to india, etc ?
My doctor is good and nice, maybe the best in Turkey. Of course I would never have gone to other surgeon in Turkey, except Kucukaya... because I know they are not good.
I explained in my first page very clear and detailed why I chose this doctor. It was the only reasonable solution for me...better than Giotikas.
Who knows, maybe I am not lucky, so many bad things happened to me...

And, regarding Forteo hormone, I am not taking medicines by myself, like an idiot... Every medicine is recommended by doctor, otherwise you can disturb or even ruin your health. This is the reason doctors spend so many years in medicine university, so they can avoid this !

[rotzputzen]

ALL these Turkish doctors should go to prison for what they do to people. Your doctor is no exception.

But I guess you need more bad things to happen before you learn your lesson. Good luck!

[Ted68]

I got 11 months from femur surgery and 10 months from tibia surgery... and I cannot walk and I have non union on tibias, plus procurvatum and right tibia's proximal screw popped-up !

After so much suffering I am 80% happy with my femurs and 50% with my tibias.
The femur is healing, so no chance to be more happy than I am...because is too late to change something.
But i hope I can change something for my tibias, so I can be at least 90% happy...

Here you can see the differences between left and right tibias and the severe procurvatum I have, 7 degrees !

https://photos.app.goo.gl/QL6riGGTQxu6H2ZV8

And here I simulated how it should be after straightening the left tibia...

https://photos.app.goo.gl/BoPLZThjWSEQttiN8

I realized that Procurvatum got much worse  after removing my left tibia proximal screw, so the proximal part of tibia bent and the fibula is not in line anymore too (on left tibia the procurvtum was there from the beginning after surgery, but was kept in some limits till the moment of removing the screw).

Now I need to undergo another painful surgery, plus bone graft. And these are with lots of extra money... and that makes me angry because I should already walk normally, not to have another invasive surgery with another 6 monthas of pain, suffering and more scars !

...And these are my (almost) beautiful legs. Pictures taken few days ago.

https://photos.app.goo.gl/DMuUB5XGotFj7gjZ7

https://photos.app.goo.gl/zzCiVybumR2LU7yp6

[1team]

Did any of your nails bend or break? Either the tibia or femurs?

[Ted68]

Yes, one of my nail bent and they had to replace it.
If you read my diary, you will find which one and what hsppened...

[1team]

Do you think it was to do with how they were implanted or just from standing/walking too much on them?

They were the 10.7mm implant size?

[Ted68]

Do you think it was to do with how they were implanted or just from standing/walking too much on them?

They were the 10.7mm implant size?

Do you mean about femur nail bending ?.... If yes, I can tell that nobody could explain what was happened... nor doctors, nor the factory, nor me... because I am the most carefully person !
The right one never had big problems, only a slight curvature, as you could see in my xrays.

As you have read, yes, I have 10 mm nails.

[Bob]

'

[dingdongditch]

hey man! sorry to hear of your woes. we are hoping for your best recovery!
we have a group on d of people who have done LL and been through it all.
you should make an account and join, and im sure there are people there who would be able to give you good advice on what you options you can pursue next.

https://-/HMkTTCB6

Do join and we hope you recover asap!

[Ted68]

Thank you, man, for your wishes.
You sent me 2 links already, but no one works...

[dingdongditch]

Man, that sucks! This forum deliberately chops off parts of the link so that it doesn't work. I think it's their way of keeping users on their app.

Try this:

1. Go on YouTube and Search for the YouTuber 'Cyborg 4 Life'.
2. Find one of his videos titled '3 types of prospective limb lengthening patients'
3. Check the description of this video. You will find something called "Join Limb Lengthening d for Free: *link*"
4. Click on the link. It will take you to a d server. Join it and introduce yourself. Ask for dingdongditch or LT or ChrisOP or DJ Cyborg or John or Dango or Kilokahn. Someone will help you!

Best of luck!

[Ted68]

Man, that sucks! This forum deliberately chops off parts of the link so that it doesn't work. I think it's their way of keeping users on their app.

Try this:

1. Go on YouTube and Search for the YouTuber 'Cyborg 4 Life'.
2. Find one of his videos titled '3 types of prospective limb lengthening patients'
3. Check the description of this video. You will find something called "Join Limb Lengthening d for Free: *link*"
4. Click on the link. It will take you to a d server. Join it and introduce yourself. Ask for dingdongditch or LT or ChrisOP or DJ Cyborg or John or Dango or Kilokahn. Someone will help you!

Best of luck!

Hello, man and thank you.
I found there the link to  "Join Limb Lengthening d for Free"... but still doesnt work in Firefox.
I tried in Chrome and opened very slow, in 2 minutes and then it asked me to verify me by phone. But now I am in Turkey and I cant, so I will check again when back in my country...