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Author Topic: Reputable US Drs doing external methods on tibs for CLL?  (Read 672 times)

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Jayjames

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Reputable US Drs doing external methods on tibs for CLL?
« on: May 18, 2022, 01:22:25 AM »

Title says it all, I want to lengthen 4 -5cm in my tibias but want to avoid potential knee complications down the line. Have you guys heard of any of the US Drs doing externals for CLL?

I know the recovery's a bitch in comparison and frames etc but it's worth it to me to avoid potentially messing up my knees
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JJ299

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Re: Reputable US Drs doing external methods on tibs for CLL?
« Reply #1 on: May 18, 2022, 02:44:18 AM »

Title says it all, I want to lengthen 4 -5cm in my tibias but want to avoid potential knee complications down the line. Have you guys heard of any of the US Drs doing externals for CLL?

I know the recovery's a bitch in comparison and frames etc but it's worth it to me to avoid potentially messing up my knees

All the big US names, as I know, only do internal methods. Korea probably has the most experienced surgeons regarding the LON method if you are interested in that, but their prices aren't that different vs the US/Europe and they have a long wait time.
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Hagane

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Re: Reputable US Drs doing external methods on tibs for CLL?
« Reply #2 on: May 18, 2022, 04:27:40 AM »

when i first did my consultation with Dr Assayag, he said he offered LON tibs for like 36k
however following up with him recently he said the hospital increased the rate for LON to a point where it wasnt worth it
i think the current quote is like 59k
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Bilateral tibia lengthening with Dr Gdalevitch 02/2023
starting height approx 167cm ( morning height)
gained  55.55mm
End height approx just shy of 5 foot 8 ( morning height)

Medium Drink Of Water

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Re: Reputable US Drs doing external methods on tibs for CLL?
« Reply #3 on: May 18, 2022, 03:46:08 PM »

They all know how to do it, and the frames are available for purchase on the open market.  So in theory, all of them do under some circumstance.  Tell them your concerns.  Acknowledge that it's not a widely-reported complication in the literature and say that you definitely want externals anyway when they try to steer you toward internals.  It's a matter of convincing them.

when i first did my consultation with Dr Assayag, he said he offered LON tibs for like 36k
however following up with him recently he said the hospital increased the rate for LON to a point where it wasnt worth it
i think the current quote is like 59k

So as long as it's worth 59K to you, you can probably get him to do it.  Others could be convinced as well even if it's not on their menu.
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Hagane

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Re: Reputable US Drs doing external methods on tibs for CLL?
« Reply #4 on: May 19, 2022, 04:44:16 AM »

They all know how to do it, and the frames are available for purchase on the open market.  So in theory, all of them do under some circumstance.  Tell them your concerns.  Acknowledge that it's not a widely-reported complication in the literature and say that you definitely want externals anyway when they try to steer you toward internals.  It's a matter of convincing them.

So as long as it's worth 59K to you, you can probably get him to do it.  Others could be convinced as well even if it's not on their menu.

his words were that it wasnt worth it as internals were 66k
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Bilateral tibia lengthening with Dr Gdalevitch 02/2023
starting height approx 167cm ( morning height)
gained  55.55mm
End height approx just shy of 5 foot 8 ( morning height)

Hagane

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Re: Reputable US Drs doing external methods on tibs for CLL?
« Reply #5 on: May 19, 2022, 05:11:24 AM »

i jsut wanna clarify: obvs if its worth 59k you should do it
but i feel that at that price point its only 7k off from a precice nail
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Bilateral tibia lengthening with Dr Gdalevitch 02/2023
starting height approx 167cm ( morning height)
gained  55.55mm
End height approx just shy of 5 foot 8 ( morning height)

Jayjames

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Re: Reputable US Drs doing external methods on tibs for CLL?
« Reply #6 on: May 25, 2022, 01:11:36 PM »

That's a good point MdoW - it's definitely worth it to me. My family's in the medical field and chronic knee pain's something I'd pay to avoid. I'm tempted to contact Dr Salameh in Germany but there's not much recent information on his frames
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zaozari

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Re: Reputable US Drs doing external methods on tibs for CLL?
« Reply #7 on: May 25, 2022, 02:45:37 PM »

Am I wrong saying that any nailing of tibias done from the knee (the other side around seems worse and rare), even done by the best, bear the (high) risk of chronic knee pain?
I remember a study in LON (I think I can reference it another day) where its rate was around more than 60%!! The study is some years old but there are more and maybe some nails are better than others. There are also two ways to insert the nail, and one is riskier than the other.
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Jayjames

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Re: Reputable US Drs doing external methods on tibs for CLL?
« Reply #8 on: May 25, 2022, 05:47:01 PM »

Think the vets would know best but having read a lot of the early 2010s posts it's not great. Seems as if it's not a bad situation then it's a case where the pain from the knee is present for several months - years before subsiding.  It just doesn't seem necessary. Obviously it's different for the guys wanting to do 6cms+ but I think for those of us wanting 4 - 5cms in tibs it doesn't make sense to consider LON.
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Hagane

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Re: Reputable US Drs doing external methods on tibs for CLL?
« Reply #9 on: May 26, 2022, 01:12:45 PM »

That's a good point MdoW - it's definitely worth it to me. My family's in the medical field and chronic knee pain's something I'd pay to avoid. I'm tempted to contact Dr Salameh in Germany but there's not much recent information on his frames

you know LON still involves an intermedullary nail being inserted right? like they still make a cut through the patellar tendon?
i think the only way to avoid any knee pain is pure externals which im not sure any offer cosmetically
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Bilateral tibia lengthening with Dr Gdalevitch 02/2023
starting height approx 167cm ( morning height)
gained  55.55mm
End height approx just shy of 5 foot 8 ( morning height)

Jayjames

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Re: Reputable US Drs doing external methods on tibs for CLL?
« Reply #10 on: May 26, 2022, 09:15:32 PM »

How did you get the idea that I was talking about LON? Salameh's frames don't do any nailing - I've been talking about purely external frames the entire time
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Hagane

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Re: Reputable US Drs doing external methods on tibs for CLL?
« Reply #11 on: May 27, 2022, 12:54:46 AM »

because im retarded and read the title wrong  ;)
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Bilateral tibia lengthening with Dr Gdalevitch 02/2023
starting height approx 167cm ( morning height)
gained  55.55mm
End height approx just shy of 5 foot 8 ( morning height)

Hagane

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Re: Reputable US Drs doing external methods on tibs for CLL?
« Reply #12 on: May 27, 2022, 01:16:02 AM »

LMAO thats my bad   ::)
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Bilateral tibia lengthening with Dr Gdalevitch 02/2023
starting height approx 167cm ( morning height)
gained  55.55mm
End height approx just shy of 5 foot 8 ( morning height)
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