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[Want-3-inches]

One of the options I am considering is doing bilateral femurs with Precice with Dr Parihar.

I have heard that India is extremely lacking in accessibility for disabled people. So going around in a wheelchair is not even possible in most cases. I have thought about hospital to hotel and back transfers: I will use the hotel's cab service and make the driver wait for me. Going by Kilokahn's diary, once I reach the hospital, someone will take me upstairs to the hospital when I reach the outside. And when I reach the hotel, I am sure the staff will help me get to my room.

Inside the hotel room, I will have to manage while being on my wheelchair. Brushing teeth seated, taking a shower seated, cooking seated all this would probably be manageable.

Caretakers are quite affordable in India and there were many services I could find on Google. Trust becomes an issue here (would they be kind, what if they are careless, what if they steal or take advantage of me) but I think could use them on demand (like when I have to go and see Parihar or to some other doctor or buy some grocery). It would be challenging if I get a complication (like blood clot) and have to rush to the hospital but I haven't booked a caretaker.

The flight back home will not be fun, but if I can avoid using the toilet it should be manageable.

It's very daunting to think of this even when all goes as per plan. Would you call me crazy for attempting something like this?

[tallmen]

One of the options I am considering is doing bilateral femurs with Precice with Dr Parihar.

I have heard that India is extremely lacking in accessibility for disabled people. So going around in a wheelchair is not even possible in most cases. I have thought about hospital to hotel and back transfers: I will use the hotel's cab service and make the driver wait for me. Going by Kilokahn's diary, once I reach the hospital, someone will take me upstairs to the hospital when I reach the outside. And when I reach the hotel, I am sure the staff will help me get to my room.

Inside the hotel room, I will have to manage while being on my wheelchair. Brushing teeth seated, taking a shower seated, cooking seated all this would probably be manageable.

Caretakers are quite affordable in India and there were many services I could find on Google. Trust becomes an issue here (would they be kind, what if they are careless, what if they steal or take advantage of me) but I think could use them on demand (like when I have to go and see Parihar or to some other doctor or buy some grocery). It would be challenging if I get a complication (like blood clot) and have to rush to the hospital but I haven't booked a caretaker.

The flight back home will not be fun, but if I can avoid using the toilet it should be manageable.

It's very daunting to think of this even when all goes as per plan. Would you call me crazy for attempting something like this?

I am also planning for doing this with parihar. Would be great if 2 or more people can do it together. I am an Indian but I live outside India. You are right about the trust issue. Ambulance services work great in India (not during covid crisis) so if you get a clot you can call an ambulance. I was able to find few physiotherapy places with swimming pools so there you can go and walk in the pool.

[Want-3-inches]

I am also planning for doing this with parihar. Would be great if 2 or more people can do it together. I am an Indian but I live outside India. You are right about the trust issue. Ambulance services work great in India (not during covid crisis) so if you get a clot you can call an ambulance. I was able to find few physiotherapy places with swimming pools so there you can go and walk in the pool.

Yes if you find a trusted partner patient then it would make this less fearful.

I wish there was some kind of rehab place in Mumbai which took care of you completely like they do in Korea and in Greece and in Germany (Elke's home). That would be the best. Do you know of any? More than having a swimming pool, I would like it if there were some nurses and caretakers who took basic care of you and served you food.

[tallmen]

Yes if you find a trusted partner patient then it would make this less fearful.

I wish there was some kind of rehab place in Mumbai which took care of you completely like they do in Korea and in Greece and in Germany (Elke's home). That would be the best. Do you know of any? More than having a swimming pool, I would like it if there were some nurses and caretakers who took basic care of you and served you food.

There are some nursing services that you can subscribe to and live in an Airbnb. I think I'll do that if I do it alone. You can find and choose based on google reviews.

[Want-3-inches]

There are some nursing services that you can subscribe to and live in an Airbnb. I think I'll do that if I do it alone. You can find and choose based on google reviews.

Thanks. Yes I am aware of this. I think this is where the question of trust comes up as you are left to yourself to work with a caretaker while you are confined to a wheelchair.

That is why if there is an establishment which takes care of people with disabilities (like a retirement home) then you can be more reassured that you will more safe and can complain to the management if something goes wrong.

[tallmen]

Thanks. Yes I am aware of this. I think this is where the question of trust comes up as you are left to yourself to work with a caretaker while you are confined to a wheelchair.

That is why if there is an establishment which takes care of people with disabilities (like a retirement home) then you can be more reassured that you will more safe and can complain to the management if something goes wrong.

There are nursing homes but they only accept old people. You just have to take the risk with the nursing home. Maybe hire a nurse and one another person to check on you now and then as a backup option. Nurses will be background verified and it's unlikely that they'll risk their job and life by doing something criminal. Better to not keep too much cash with you. If your airbnb is in an apartment then they have security guards and you can pay something to him (maybe like 20 USD per month) and ask him to check on you once in a while.

[Want-3-inches]

There are nursing homes but they only accept old people. You just have to take the risk with the nursing home. Maybe hire a nurse and one another person to check on you now and then as a backup option. Nurses will be background verified and it's unlikely that they'll risk their job and life by doing something criminal. Better to not keep too much cash with you. If your airbnb is in an apartment then they have security guards and you can pay something to him (maybe like 20 USD per month) and ask him to check on you once in a while.

Thanks for all the tips! You are right, nothing terrible would happen with the nurse. He might only be a bit inattentive or rude worst case.

I think staying in a hotel room would be all the more safe. Staying in a hotel near a major hospital in Mumbai would be the best. Maybe Mangal Anand Hospital is not that adequate for general medical needs.

[KiloKAHN]

When I stayed at Hotrl Maharana Inn, each of the staff essentially acted like caregivers in certain ways. Like, I was always able to scoot to the toilet on my hands and raise myself up, so I didn't need help with the bathroom, but for things like food ordering, sheet or mattress changing, bug squishing, elevator assistance, or escorting me to the ATM machine, that was all taken care of. Hotels want good reviews and for you to continue to stay there and spend money, so they're often very reliable and on good behavior.

[Want-3-inches]

When I stayed at Hotrl Maharana Inn, each of the staff essentially acted like caregivers in certain ways. Like, I was always able to scoot to the toilet on my hands and raise myself up, so I didn't need help with the bathroom, but for things like food ordering, sheet or mattress changing, bug squishing, elevator assistance, or escorting me to the ATM machine, that was all taken care of. Hotels want good reviews and for you to continue to stay there and spend money, so they're often very reliable and on good behavior.

Yes I think hotel staff can be very kind especially in the more expensive hotels.

I don't think you realise being on precice is much worse than being on externals. You could stand up and put load on your legs. Even if you raised yourself up to the toilet from the ground, that would have been possible because you used your legs a little. It would be a very difficult manoeuver with precice. Being off the wheelchair on the ground without anyone for help could turn out to be catastrophic with precice.

[tallmen]

I was saving money for so long so that I can afford stryde but now I have money but stryde is gone. Bad feking luck. Stryde is so much more convenient than all other methods.

[Want-3-inches]

I was saving money for so long so that I can afford stryde but now I have money but stryde is gone. Bad feking luck. Stryde is so much more convenient than all other methods.

Yep you have to divert some of that money for caretakers, a good hotel and whatever else you can use to pamper yourself while going through this ordeal.

Or do external tibias like Kilokahn.