Limb Lengthening Forum
Limb Lengthening Surgery => Limb Lengthening Patients Experiences => Topic started by: dragonslayer on April 05, 2023, 08:21:04 PM
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Precice 2.2
Every night before sleeping, my toes very pain, pain killer doesn't work.
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U might have lengthened too long for tibias and nerve might have damaged.
Did u even lengthen in a very fast rate
What did u have for tibias? LoN? Precice?
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changed to quote 👇🏻
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U might have lengthened too long for tibias and nerve might have damaged.
Did u even lengthen in a very fast rate
What did u have for tibias? LoN? Precice?
The toes pain started from the second week, less then 2cm, and 0.99mm per day.
Before the lengthening started, after surgery my heels pain very much every night, like many needles stabbing. After took vitamin B1+B6+B12 some days, heels pain is gone, but toes pain even I still take vitamin B everyday.
Now the doc is giving Pregabalin, I'll use it after I get it.
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i think you should slow down the lengthening to 0.5mm per day
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Precice 2.2
Every night before sleeping, my toes very pain, pain killer doesn't work.
possibly because you're lengthening at 1 mm/day.
try to slow down to .75 or even .05
i'd say stop lengthening for 3-5 days, once the pain subsides, start lengthening at 0.5 and then 0.75
don't do 1mm
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Who is your doctor?
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possibly because you're lengthening at 1 mm/day.
try to slow down to .75 or even .05
i'd say stop lengthening for 3-5 days, once the pain subsides, start lengthening at 0.5 and then 0.75
don't do 1mm
forgot to mention, the pain only happens if I keep my legs straight and hold for a while (like 20 or more minutes), it starts. So if I sleep with benting my knees, no pain. But I don't know if sleep with benting my knees would allow me reach the goal (6.5cm)
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i think you should slow down the lengthening to 0.5mm per day
forgot to mention, the pain only happens if I keep my legs straight and hold for a while (like 20 or more minutes), it starts. So if I sleep with benting my knees, no pain. But I don't know if sleep with benting my knees would allow me reach the goal (6.5cm)
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After I kept my legs straight for a while, if I try to bend them, the knees pain. and sometimes if I want to straighten them pain too. I need do it very slowly, don't know if something about Patellar tendinitis or not. But I only in my 2.4cm now and forgot when this pain starts.
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btw, I already decided reduce the goal from 7cm to 6cm after the same day I posted this then read a lot of posts here. just for the safety. and I was planning to do second surgery for 8cm, reduced the goal to 7cm too.
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Do you have to use a caretaker?
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Do you have to use a caretaker?
I think you will need a caretaker for first weeks. But after you can easily bend your knees it's okay by your own.
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6cm is the max number for precice2 tibia patient, how to get 7cm with precice?
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6cm is the max number for precice2 tibia patient, how to get 7cm with precice?
You mean for the nail? The max number is 8cm, nail limit.
After I read 9 hours in this forum, the limit of your lengthening should be your body, your soft tissues, if you started foot drop, you should stop, even if only 3cm, otherwise you are trading off your functions for height, and in opposite, if you reached 6cm without foot drop and lift 15 degree, you can safely continue to 7cm, and if you still can lift 15 degree, you can continue to 8cm without problem. According to a Paley's patient quoted what's Paley said, it makes sense after all.
As I said before:
btw, I already decided reduce the goal from 7cm to 6cm after the same day I posted this then read a lot of posts here. just for the safety. and I was planning to do second surgery for 8cm, reduced the goal to 7cm too.
I'm going to try to do 6cm, if I don't have foot drop and can lift a lot, I will try to do 6.5cm.
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I think you will need a caretaker for first weeks. But after you can easily bend your knees it's okay by your own.
Just the first week or the first few weeks?
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Just the first week or the first few weeks?
First 2 or 3 weeks would be enough and depends on your recovery, for most speed is first 2 weeks.
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I hope you reach your goal without any problems. Stretch a lot and don't gain weight you'll be fine ;)
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I hope you reach your goal without any problems. Stretch a lot and don't gain weight you'll be fine ;)
Thanks man, I will do more stretching, just find the right way to do it (paley's way), thanks to this forum.
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Kees Pain
I had keens pain, today is the worst, yesterday and the day before yesterday, I had medial knees pain while I straighten or bend my knees, but if I stop moving, pain was gone. Before that, I don't remember how long, I had anterior knees pain while I straighten or bend my knees. But today after my PT even if I didn't move my knees, still pain. And while I tried to stand up straight my knee after PT, there's much pain. So my physical therapist helped me taped my knees.
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Kees Pain
I had keens pain, today is the worst, yesterday and the day before yesterday, I had medial knees pain while I straighten or bend my knees, but if I stop moving, pain was gone. Before that, I don't remember how long, I had anterior knees pain while I straighten or bend my knees. But today after my PT even if I didn't move my knees, still pain. And while I tried to stand up straight my knee after PT, there's much pain. So my physical therapist helped me taped my knees.
Who is your doctor? What did he say?
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the solution is to stop lengthening for few days - you will feel much better and less pain
after that, slow down to 0.5mm per day.
It seemed that he was going to continue at 0.75mm or 1mm per day.
Pain is good then :)
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Update:
the toes pain had gone long time ago, and knees pain were much better too
but forgot starts when, the physicians grab my lower legs muscles, will feel pain.
and lower legs skin, sometimes feel pain too.
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Reached 4.1 cm.
These days I cannot full straight my legs easily, but the limit is not like others, I think caused by upper side muscles instead of bottom like others, and after long time put my legs, it will be straight, but keeping that makes my knees inner side uncomfortable.
And I think I have developed ballerina, but I still don't know how to test it. But finally during the PT I can feel my Achilles tendon being stretched, and I can easily to stretch it myself too. I cannot stretch it with the same actions before.
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There is a girl who had reached her 6cm in 50 days, with LON tibia. But she said she only do 3~4 times and 90 degree……
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Reached 4.3cm yester night
Forgot to mention, haven't use painkiller for a week, bc previously only used it before sleeping to prevent pain, and someday I decided not to prevent but take it if really pain. then results a week without painkiller.
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whats your initial starting height DragonSlayer?
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whats your initial starting height DragonSlayer?
17% of initial tibia length
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I decided to low down the rate to 0.66mm/day since today, to help recovery, and wish to keep no paining to the end.
btw I noticed my toes up, pressed them and felt tight.
and keeping my legs full straight for a while made top of my right foot numbness and after more time it started burning, but no pain, keeping longer burning more. Quickly gone if I relaxed it. I think it's stretching my nerve, so I did twice today.
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Another update:
now I can easily full straight my legs like in my 3cm. Human's body is interesting.
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Another update:
now I can easily full straight my legs like in my 3cm. Human's body is interesting.
It helps a lot if you slow done the LL rate for the muscles and nerves to catch up
You should slow down to prevent ballerina feet
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It helps a lot if you slow done the LL rate for the muscles and nerves to catch up
You should slow down to prevent ballerina feet
Thanks, but that is before I slow down.
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finally know the reason:
Tendon adhesion
and
Ankle adhesion
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Really hope you to be fine. Wainting for your update.
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Really hope you to be fine. Wainting for your update.
Thanks
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Could you tell me who is your doctor? How soon does he think you'll recover?
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past 5cm on tibia it's probably a good idea to slow down to 0.75 or even 0.5.
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If you have nerve pain, you should not lengthen for some days, like 3. And then, start lenghtening again
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The toes pain started from the second week, less then 2cm, and 0.99mm per day.
Before the lengthening started, after surgery my heels pain very much every night, like many needles stabbing. After took vitamin B1+B6+B12 some days, heels pain is gone, but toes pain even I still take vitamin B everyday.
Now the doc is giving Pregabalin, I'll use it after I get it.
that’s too fast for a tibia lengthening.
My advice is to shorten until the pain disappear, and then slow down lengthening
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How is the pain so far? Does the nerve pain make the process really hard? How do you manage your nerve pain?
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OP is likely a Live Life Taller victim. They are notorious for pushing patients to lengthen 1 mm per day on tibias when the absolute max you should do is .75 mm per day. LON method for tibia is the other dead giveaway.
DO NOT GO TO TURKEY FOR LIMB LENGTHENING
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that’s too fast for a tibia lengthening.
My advice is to shorten until the pain disappear, and then slow down lengthening
+1
Once you’ve shortened and the pain disappears proceed at .7mm in 3 sessions a day. Have you been in for X-rays recently?
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Do you have a report, analysis or 10 years ongoing research stating that no more than a distraction rate of 0.75 mm per day should be done from the Tibia? Because if you say that, it seems certain. I thought that the standard distraction limit is 1 mm, and can be decreased or increased depending on the individual. Please I need to see concrete evidence behind your statement. I have spoken more than 5 doctors and they all told me they distract 1 mm a day. 3 of them were American, and probably you must know some of them. I planned my lengthening time according to 1 mm. Please send those evidence, please. Thanks in advance. (Article or reports would be good)
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that’s too fast for a tibia lengthening.
My advice is to shorten until the pain disappear, and then slow down lengthening
Do you have a report, analysis or 10 years ongoing research stating that no more than a distraction rate of 0.75 mm per day should be done from the Tibia? Because if you say that, it seems certain. I thought that the standard distraction limit is 1 mm, and can be decreased or increased depending on the individual. Please I need to see concrete evidence behind your statement. I have spoken more than 5 doctors and they all told me they distract 1 mm a day. 3 of them were American, and probably you must know some of them. I planned my lengthening time according to 1 mm. Please send those evidence, please. Thanks in advance. (Article or reports would be good)
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+1
Once you’ve shortened and the pain disappears proceed at .7mm in 3 sessions a day. Have you been in for X-rays recently?
7 mm?
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If you have recent imaging data please put it at this thread. Redact any information that could be used to dox you.
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Update:
I took my newest x-ray this morning.
The Precice is not "precice", by the machine I have lengthened 57.26mm. But the gap of my bones is 6.2xcm (the gap was less than 2mm after surgery), and the nails in my x-ray lengthened 6-6.1cm. So I decided stop lengthening from today.
Even I almost didn't work at all, but my nails bent still (and was at very early stage), but fortunately the bent degree didn't go much worse. Just a little.
My ankle cannot do much move, but it's since after surgery, not developed in lengthening time.
And the most annoy complication is my tendon adhesion, if I do less practice few days it's become worse, and even I do much practice everyday, it still cannot gone by soon.
Back to the first complication toes pain, it only happened for dozens days and it's gone totally even I didn't stop or slow down the lengthening, but I slow down the lengthening after I nearly reach 5cm.
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Met someone who did Precice on Femur last year, came here to fix non-union problem. And he told me he walked for few months without any support, but the nails didn't bent.
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About Precice flight:
I just read that somebody claims there may be severe pain in flights, but I did 2 times and beyond 10hours, no problem.
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A bit painfull, nothing too bad, I did multiple 10/15 hour flights during CLL, just get an aisle seat with leg room (usually in economy these seats are up front near toilets), airline stewards are very helpful with putting crutches and ur stuff in overhead storage and will remove for you for toilet etc, keep some endone or tramadol (not illegal usually) in ur wallet and ur good to go.
Bring a water bottle fill it and maybe an empty one too, you can pee in it (cover up with the blankets they provide), if needed.
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17% of initial tibia length
no i mean what was your height before the surgery
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A bit painfull, nothing too bad, I did multiple 10/15 hour flights during CLL, just get an aisle seat with leg room (usually in economy these seats are up front near toilets), airline stewards are very helpful with putting crutches and ur stuff in overhead storage and will remove for you for toilet etc, keep some endone or tramadol (not illegal usually) in ur wallet and ur good to go.
Bring a water bottle fill it and maybe an empty one too, you can pee in it (cover up with the blankets they provide), if needed.
This is I wanted to know too. Using the restroom during long flight. And having ur crutches around.
I did lon tibia too and also got pain on my toes and top foot during 4cm stage.