Limb Lengthening Forum

Limb Lengthening Surgery => Limb Lengthening Discussions => Topic started by: insearchofanswers on October 30, 2016, 12:07:07 AM

Title: People who died after LL
Post by: insearchofanswers on October 30, 2016, 12:07:07 AM
What happened to MasterHY? Zaney says his is one of the many Betz' bad cases and Tibike says it's his only real bad outcome. What happened to him?
Title: Re: MasterHY
Post by: LLCaptain on October 31, 2016, 01:29:15 PM
Ban this guy. 97% sure this user is just another alias of LLUser1 & GirlOnline combined.
Title: Re: MasterHY
Post by: hanshi on October 31, 2016, 02:08:08 PM
I was in contact with MasterHY for a while. Then shortly after his 4th surgery he stopped answering.
I presume he died.
Title: Re: MasterHY
Post by: goldenegg on October 31, 2016, 06:00:38 PM
I was in contact with MasterHY for a while. Then shortly after his 4th surgery he stopped answering.
I presume he died.

Dang... I think OBG also said something terrible may have happened to him. really sad if true.
Title: Re: MasterHY
Post by: insearchofanswers on October 31, 2016, 07:42:19 PM
So it's true he died. Kaiser said there were no deaths in LL but there are some deaths reported in articles and in the boards and people crippled for life
Title: People who died after LL
Post by: insearchofanswers on October 31, 2016, 08:04:32 PM
Who died after LL? These are the examples I have found in the boards.

- Catagni's patient died from fat embolism.

- MasterHY is probably dead according to his friends. He had his surgery with Betz and then went home with the best doctors in the world and he died after his 4th surgery.

- Guy in Barcelona guesthouse died after femur fracture (not Monegal's patient)

- Young girl died in OR after LL and plaster removal and her organs disappeared in Barcelona so the authopsia couldn't be conducted.

- African Girl died in India after LL.

Are these cases of death significant?
Title: Re: People who died after LL
Post by: insearchofanswers on October 31, 2016, 08:06:07 PM
You can see I have done my homework.
Title: Re: People who died after LL
Post by: TIBIKE200 on October 31, 2016, 08:10:28 PM
MasterHY is the only case concerning CLL.
Title: Re: People who died after LL
Post by: YourSpaceBoyfriend on October 31, 2016, 08:44:50 PM
MasterHY is the only case concerning CLL.

Wasn't this girl that LLuser posted an article about a CLL patient too?
Title: Re: People who died after LL
Post by: insearchofanswers on October 31, 2016, 08:46:40 PM
Some guys and girls start being cosmetic and end up being medical cases and dying. :'(
Title: Re: MasterHY
Post by: onemorefoot on October 31, 2016, 08:57:58 PM
Probably he is dead.
Title: Re: MasterHY
Post by: BiggestProblem on October 31, 2016, 09:04:46 PM
How can you be so sure?
Title: Re: MasterHY
Post by: onemorefoot on October 31, 2016, 09:16:35 PM
The guy above said that he was in contact with him and always replied, is starnge that he had stopped replying just after surgery, dont you think? I am not sure, I should say propably he is dead.
Title: Re: MasterHY
Post by: The Kaiser on October 31, 2016, 10:04:39 PM
So it's true he died. Kaiser said there were no deaths in LL but there are some deaths reported in articles and in the boards and people crippled for life

There is no single evidence that he died, if he didn't reply that mean mostly he had serious complication. if you think he died because he didn't answer then i will say, RIP Leechet too
Title: Re: People who died after LL
Post by: The Kaiser on October 31, 2016, 10:09:18 PM
Who died after LL? These are the examples I have found in the boards.

- Catagni's patient died from fat embolism.

- MasterHY is probably dead according to his friends. He had his surgery with Betz and then went home with the best doctors in the world and he died after his 4th surgery.

- Guy in Barcelona guesthouse died after femur fracture (not Monegal's patient)

- Young girl died in OR after LL and plaster removal and her organs disappeared in Barcelona so the authopsia couldn't be conducted.

- African Girl died in India after LL.

Are these cases of death significant?

Its all bull , if some LLer died in an accident or something that doesn't mean he died because of LL. there is no any verified case of death in cosmetic LL yet
Title: Re: People who died after LL
Post by: insearchofanswers on November 03, 2016, 01:10:26 AM
All these people died during LL (cases 1, 2, 4 and 5). Not sure about what 3 was doing but not Monegal's patient, just patient in guesthouse.
Title: Re: People who died after LL
Post by: onemorefoot on November 03, 2016, 04:08:47 AM
Fat embolism is easy to fix now and prevent now through venting methods, that is the worst thing that can happen during LL.
Title: Re: People who died after LL
Post by: blahblah on November 03, 2016, 07:23:38 AM
Why does everyone say MasterHY died? I looked at his diary on the old forum and OBG says he suspects something has happened to him, why is this fact?
Title: Re: People who died after LL
Post by: The Kaiser on November 03, 2016, 08:21:44 AM
Why does everyone say MasterHY died? I looked at his diary on the old forum and OBG says he suspects something has happened to him, why is this fact?

I told you its funny and they took his word very seriously and he had no clue. people are crazy
Title: Re: People who died after LL
Post by: Koi on November 03, 2016, 08:30:45 AM
- Young girl died in OR after LL and plaster removal and her organs disappeared in Barcelona so the authopsia couldn't be conducted.
I talked with this girl's family and I can tell this casw is real, BUT she didn't die because of the LL procedure itself. There was a negligence measuring the dose of anesthesia, and she died from a heart attack (she was 11 y.o.). And no, Monegal was never involved into this incident since he stopped working with that medical team before.

We still have no proof MasterHY died, though.
Title: Re: MasterHY
Post by: Koi on November 03, 2016, 08:56:35 AM
There's no proof that MasterHY died, but this scares me honestly... How come that he had a FOURTH surgery?
Title: Re: People who died after LL
Post by: hanshi on November 06, 2016, 07:56:02 AM
There is no final proof that he died, however there is no reason to believe he is still alive either. As already mentioned i was in contact with him and there was no reason for him to stop answering me. He wanted to sue Betz and i promised to help him.
In his 4th surgery he got his 4th nail plus a bone graft for his left leg. The bone was taken from his hip. It was a big surgery because they had to fill a 10cm gap. He wrote to me :“ I am recovering from the surgery, it was pretty intense, I had a lot of pain and my leg seemed to be reacting a bit strange to the bone graft.  I also have a lot of discomfort in the hip area where the bone graft was done, and I think it will be awhile before get somewhere with all of this.” 

There was much more in his email. Shortly afterwards he stopped replying to me. That was in May 2015. So i'm quite convinced he died.
Title: Re: People who died after LL
Post by: The Kaiser on November 06, 2016, 09:32:07 AM
There is no final proof that he died, however there is no reason to believe he is still alive either. As already mentioned i was in contact with him and there was no reason for him to stop answering me. He wanted to sue Betz and i promised to help him.
In his 4th surgery he got his 4th nail plus a bone graft for his left leg. The bone was taken from his hip. It was a big surgery because they had to fill a 10cm gap. He wrote to me :“ I am recovering from the surgery, it was pretty intense, I had a lot of pain and my leg seemed to be reacting a bit strange to the bone graft.  I also have a lot of discomfort in the hip area where the bone graft was done, and I think it will be awhile before get somewhere with all of this.”

There was much more in his email. Shortly afterwards he stopped replying to me. That was in May 2015. So i'm quite convinced he died.

Show us the email
Title: Re: People who died after LL
Post by: Datum on February 26, 2017, 01:37:51 AM
All these stories! your friends are dying! not abstract individuals but real people you met- this scares me a lot
Title: Re: People who died after LL
Post by: DreamOf180cm on February 26, 2017, 03:52:12 AM
The posts on this forum keep on getting more ridiculous as each day passes.
Title: Re: People who died after LL
Post by: 0184946 on February 26, 2017, 10:05:19 PM
If masterHY lost access to the email he was replying in he could have still made a account on old forum  or here saying his still alive
Title: Re: People who died after LL
Post by: vegeta24 on February 26, 2017, 10:51:32 PM
It seemed he had just very rough experiences with his multiple surgeries and he could of just stopped replying because he wants to leave it all behind him. It's possible he died but it's also possible he just wants to be left alone and wants to forget all about limb lengthening, hence not being active on this forum or replying to emails.
Title: Re: People who died after LL
Post by: Datum on February 27, 2017, 01:21:24 AM
I can understand he doesnt post in the forum but I think he wouldnt stop relying to his friends unless something serious happened
Title: Re: People who died after LL
Post by: myloginacct on May 19, 2018, 08:57:25 PM
There is no final proof that he died, however there is no reason to believe he is still alive either. As already mentioned i was in contact with him and there was no reason for him to stop answering me. He wanted to sue Betz and i promised to help him.
In his 4th surgery he got his 4th nail plus a bone graft for his left leg. The bone was taken from his hip. It was a big surgery because they had to fill a 10cm gap. He wrote to me :“ I am recovering from the surgery, it was pretty intense, I had a lot of pain and my leg seemed to be reacting a bit strange to the bone graft.  I also have a lot of discomfort in the hip area where the bone graft was done, and I think it will be awhile before get somewhere with all of this.”

There was much more in his email. Shortly afterwards he stopped replying to me. That was in May 2015. So i'm quite convinced he died.

That'd make 5 confirmed deaths stemming from CLL that I know about.
Title: Re: People who died after LL
Post by: justice on May 19, 2018, 11:15:05 PM
I know a girl in Barcelona also died (Achondroplasia).

There is also one guy who committed suicide.
Title: Re: People who died after LL
Post by: iwontallow on May 19, 2018, 11:34:33 PM
I heard that Musicmaker was about to die too in one of the surgeries. She had a very bad reaction to anesthesia and blood loss. Other people developped blood clots. They are very dangerous. These patients didn't die but death is a risk you have to face with this surgery. Doctors who underplay risks should be discarded as options for LL.
Title: Re: People who died after LL
Post by: IwannaBeTaller on May 20, 2018, 04:57:38 PM
I know a girl in Barcelona also died (Achondroplasia).

There is also one guy who committed suicide.

Who committed suicide?
Title: Re: People who died after LL
Post by: iwontallow on May 20, 2018, 07:07:54 PM
Who committed suicide?

Monegal patient. Many patients have posted about that.
Title: Re: People who died after LL
Post by: .. on May 24, 2018, 09:59:20 AM
(https://image.ibb.co/iDf1ao/solomin.jpg)
Title: Re: People who died after LL
Post by: IwannaBeTaller on May 24, 2018, 11:10:02 AM
Monegal patient. Many patients have posted about that.

Can you link some of those postings?
Title: Re: People who died after LL
Post by: Hamiltonzac on June 14, 2019, 12:01:59 AM
The amount of idiots on this forum exceeds the idiots of the entire human population. 5 confirmed deaths? Did you confirm them in person or from your mothers basement?
Title: Re: People who died after LL
Post by: Apoplectic on June 14, 2019, 12:24:09 AM
Stupid question,I know,and probably can't be answered, but how many people have CLL a year? Hopefully there's some statistics available.
Title: Re: People who died after LL
Post by: myloginacc on June 14, 2019, 06:34:40 PM
The amount of idiots on this forum exceeds the idiots of the entire human population. 5 confirmed deaths? Did you confirm them in person or from your mothers basement?

https://onlinelibrary.wiley.com/doi/abs/10.1111/1556-4029.13769

https://www.ncbi.nlm.nih.gov/pubmed/6705403/?ncbi_mmode=std

https://www.allkpop.com/article/2018/06/musical-actor-trainee-suddenly-dies-after-limb-lengthening-surgery

https://www.vanguardngr.com/2016/01/they-let-my-daughter-die-as-i-watched-in-horror-mother-of-uniabuja-graduate/?amp

https://www.researchgate.net/publication/225890120_Strategia_nel_trattamento_chirurgico_degli_acondroplasici_tecniche_applicate_nel_Dipartimento_di_Ortopedia_e_Traumatologia_dell'Ospedale_di_Lecco

But hey, have fun calling others names, and thinking that crippling your legs for a year and surviving solely due to antibiotic abuse (in the case of externals) is just part and parcel of a normal cosmetic surgery.
Title: Re: People who died after LL
Post by: Apoplectic on June 14, 2019, 06:54:54 PM
So what's the safest method? I'm planning on getting LON but these articles scare me...
Title: Re: People who died after LL
Post by: myloginacc on June 14, 2019, 07:49:54 PM
That's why you do research before jumping into this. If at all possible, only go for Stryde femurs. Read up on pulmonary embolism and fat embolism syndrome (FES) prevention (e.g. raised legs after surgery is a form of prevention), proper pin-site care, and osteomyelitis. Also, learn what is good callus growth based on the x-rays of the diaries posted here, so as to avoid malunion or preconsolidation. Do learn the association between the distraction rate and nerve damage, too.
Title: Re: People who died after LL
Post by: PANDA:BEAR.. on June 14, 2019, 08:15:27 PM
That's why you do research before jumping into this. If at all possible, only go for Stryde femurs. Read up on pulmonary embolism and fat embolism syndrome (FES) prevention (e.g. raised legs after surgery is a form of prevention), proper pin-site care, and osteomyelitis. Also, learn what is good callus growth based on the x-rays of the diaries posted here, so as to avoid malunion or preconsolidation. Do learn the association between the distraction rate and nerve damage, too.

You hit it on the nail.... great advice .. my friend 
Title: Re: People who died after LL
Post by: Hamiltonzac on June 15, 2019, 12:36:52 PM
https://onlinelibrary.wiley.com/doi/abs/10.1111/1556-4029.13769



I'm doing tibia and femur both internal.

https://www.ncbi.nlm.nih.gov/pubmed/6705403/?ncbi_mmode=std

https://www.allkpop.com/article/2018/06/musical-actor-trainee-suddenly-dies-after-limb-lengthening-surgery

https://www.vanguardngr.com/2016/01/they-let-my-daughter-die-as-i-watched-in-horror-mother-of-uniabuja-graduate/?amp

https://www.researchgate.net/publication/225890120_Strategia_nel_trattamento_chirurgico_degli_acondroplasici_tecniche_applicate_nel_Dipartimento_di_Ortopedia_e_Traumatologia_dell'Ospedale_di_Lecco

But hey, have fun calling others names, and thinking that crippling your legs for a year and surviving solely due to antibiotic abuse (in the case of externals) is just part and parcel of a normal cosmetic surgery.
Title: Re: People who died after LL
Post by: Apoplectic on June 16, 2019, 02:25:23 AM
Death from this surgery honestly terrifies me. Not so much for my own well-being,but I know my father would hate me for it.

I was born 3 and a half months prematurely and I've always been short relative to my peers, despite growing at a normal rate, so he believes I'm used to it.

But honestly death is somewhat preferable to a lifetime of depression.
Title: Re: People who died after LL
Post by: jaybam on June 16, 2019, 03:33:43 AM
Death from this surgery honestly terrifies me. Not so much for my own well-being,but I know my father would hate me for it.

I was born 3 and a half months prematurely and I've always been short relative to my peers, despite growing at a normal rate, so he believes I'm used to it.

But honestly death is somewhat preferable to a lifetime of depression.

I think the chances of death are slim to none with a top surgeon. Obviously each surgery has it's risks.
Title: Re: People who died after LL
Post by: TruthBomber on June 17, 2019, 05:09:21 PM


I respect you have your own opinions but that comment was plain stupid imho

Anyways people need to go to a credible doctor or stay short until you can. Better to be short than crippled.

You call my opinion "stupid", but wait to refute in what way it is "stupid"? Ad hom much?
Title: Re: People who died after LL
Post by: TruthBomber on June 17, 2019, 05:10:19 PM
Death from this surgery honestly terrifies me. Not so much for my own well-being,but I know my father would hate me for it.

I was born 3 and a half months prematurely and I've always been short relative to my peers, despite growing at a normal rate, so he believes I'm used to it.

But honestly death is somewhat preferable to a lifetime of depression.
You're too short because of your fathers genetics partly, so it is his own fault.
Title: Re: People who died after LL
Post by: angryfem on June 18, 2019, 12:46:10 AM
Can you link some of those postings?


Notatroll said he was his friend
Title: Re: People who died after LL
Post by: Montreal172 on November 14, 2019, 01:02:58 AM
are you saying LON has greater risks of fat embolism ?
Title: Re: People who died after LL
Post by: .. on November 14, 2019, 07:06:38 AM
Death is honestly not that bad.

You cease existing. No more worries, no more depression. For some people death could be a life improvement if their normal life happiness index was negative. Let us say you have life happiness index of -100. When you are dead it is 0. So you have gained +100 happiness points.

Anyway, what is worse to be left crippled.

How many happiness points you'd gain when you burn in hell?

Death from this surgery honestly terrifies me. Not so much for my own well-being,but I know my father would hate me for it.

I was born 3 and a half months prematurely and I've always been short relative to my peers, despite growing at a normal rate, so he believes I'm used to it.

But honestly death is somewhat preferable to a lifetime of depression.

You wouldn't know if your father hated you because you're dead.
Title: Re: People who died after LL
Post by: soitchi on November 14, 2019, 08:08:19 AM
How many happiness points you'd gain when you burn in hell?
You believe in hell?
Title: Re: People who died after LL
Post by: ghkid2019 on November 24, 2020, 06:36:59 AM
LL danger sum people do die

Is masterHY alive? Sightings or not...
Title: Re: People who died after LL
Post by: precice strider on November 24, 2020, 08:53:56 PM
Yush Gupta: https://jezebel.com/stories-about-my-brother-1835651181
Title: Re: People who died after LL
Post by: Humanoid on November 14, 2021, 10:14:16 AM
http://www.limblengtheningforum.com/index.php?topic=68419.msg207244#msg207244
Title: Re: People who died after LL
Post by: Masteryourlife on November 15, 2021, 06:04:26 PM
The posts on this forum keep on getting more ridiculous as each day passes.

Agree with this .

Title: Re: People who died after LL
Post by: OnceADay on November 17, 2021, 12:16:17 AM
FYI I am having surgery with Betz tomorrow. If I don't reply to this thread in a month them I'm for sure dead.
Title: Re: People who died after LL
Post by: LU213 on November 17, 2021, 08:54:43 AM
You will survive.  I wish you the best recovery.
Title: Re: People who died after LL
Post by: Masteryourlife on November 17, 2021, 10:52:37 AM
Please check the story of the guy who died under giotikas in Greece in the "limb lengthening patient experience" .
Not enough details but we all need to know !
Title: Re: People who died after LL
Post by: OnceADay on November 17, 2021, 11:13:45 PM
You will survive.  I wish you the best recovery.

I had the surgery and didn't die (yet lol). Thanks for the support!
Title: Re: People who died after LL
Post by: chicitita on November 17, 2021, 11:35:45 PM
Can you provide the link??? Havent heard about any Giotikas patient who has died.

Do you kno anything about dr Betz?
Title: Re: People who died after LL
Post by: zaozari on November 24, 2021, 11:45:54 AM
Saffest method is still externals  classic or adapted Ilizarov, altough very difficult and painfully if done in femurs.
(Answer to apoplectic, 2019)
Title: Re: People who died after LL
Post by: Jake24 on November 26, 2021, 06:24:13 AM
Precice?? Isnt precise the safest
Title: Re: People who died after LL
Post by: zaozari on November 26, 2021, 08:19:05 AM
In tibias external rings are still the saffest for example because are more stable and very effective in preventing and correcting many complications, difficulties and obstacles.
In femurs is debatable because patient cooperation is more difficult  but there is also less risk for example of thrombosis.
Externals allways have more risk of infection but allmost always treatable.
This seems to be the general scientific currrent conclusion, but different surgeons, with different experiences, have sometimes different preferences because internal nails are simpler to be implanted and prefered by patients.
Title: Re: People who died after LL
Post by: mazr922 on May 02, 2023, 07:24:49 AM
Saffest method is still externals  classic or adapted Ilizarov, altough very difficult and painfully if done in femurs.
(Answer to apoplectic, 2019)

How are safest methods the externals? Less chance of embolism?
Title: Re: People who died after LL
Post by: kamaruusman on May 02, 2023, 03:47:34 PM
How are safest methods the externals? Less chance of embolism?

Yes, much less chance
Title: Re: People who died after LL
Post by: DanishViking on May 02, 2023, 03:56:37 PM
Do you have any evidence or source? Or is this just what you think? :)
Title: Re: People who died after LL
Post by: sphenopetroclival on May 07, 2023, 11:28:25 AM
Do you have any evidence or source? Or is this just what you think? :)

+1