Limb Lengthening Forum
Limb Lengthening Surgery => Limb Lengthening Discussions => Topic started by: LLuser1 on October 12, 2016, 07:34:27 PM
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I finally got some fresh news from Barcelona guesthouse. Musicmaker was absent for a while because she was at hospital for new complication and another patient had a femur fracture and DIED. I don't know more details.
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Here we go again.
Some source please?
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People from guesthouse told one patient.
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Died???? How, how??? Oh my good!!!!!!!!!!!!!!
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People from guesthouse told one patient.
Rumours are rumours, we need some kind of confirmation.
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Dont know about the death, but if the news about MM are true, than she is a real nutcase for still being with that doc. But like, a really really bad case of nutcase
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And now MM is without complications???
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Dont know about the death, but if the news about MM are true, than she is a real nutcase for still being with that doc. But like, a really really bad case of nutcase
Thought exactly the same.
I kinda find it weird since Monegal said few days ago that musicmaker has only PT sessions now and no further surgery is planned.
If it's true then... damn.
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Man, this LLUser1 guy is so dumb. The person that died is not even a patient, the only thing they have in common is that the guy lives in Barcelona. This is like if someone random died of a gunshot wound in Florida, and he creates a new topic: "Patient dies at the Paley Institute"
LLUser1 gets bits and pieces of information in Spanish and he uses google translate to spin his tales and spits out garbage in these threads.
Probably the most negative and creepiest person on this forum. Hate this guy.
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How do you know that? That person from guesthouse told my friend a patient died from femur fracture and Musicmaker was in hospital for many days because she had a very bad complication
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The guest House is not only for LL patients. A lot of people with disabilities live there.
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Does Monegal know who that patients are telling your friend this kind of information?
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It could have been due to an accident, not surgery related at all. You really shouldn't spread half truths
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How do you know that? That person from guesthouse told my friend a patient died from femur fracture and Musicmaker was in hospital for many days because she had a very bad complication
Well . I think i know Who told you that. But let me say that you need to get better sources of information. For what i know (and i know more than you) the person Who died is not a patient of Dr Monegal.
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But what about MM??
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I don't know. They just told me one patient in the guesthouse died after femur fracture.
What about Musicmaker?
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Dudes, MM is fine she's sipping coffee somewhere maybe playing Grand Theft Auto V on her Xbox.
Let me ask you guys: why do we tolerate this kind of behavior? This guy literally divulges private medical information about ANOTHER patient with whom he has no relationship. He does not have permission to do so, and she even asked him to stop speaking on her behalf.
Ban this .
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That s absolutely disgusting.
Lluser: your sources...at The guesthouse there are 40 Rooms obviously not all LL patients. Most are disabled and elder People. I was aware an elder resident felt from his chair. Nice try not a patient of mine. I will inform managment of The guesthouse to let them know You are using The death of a person To defamate and cause negative impact On me. Maybe They will contact The family To inform This info Came out and was in The net. You went way too far This time.
MM was out for work which by The way You said she had lost 😂😂 and as LLcaptain says..too much coffee Is not healthy.
Mr Sarcastic: what kind of person would use amputated People vĂdeos To made Fun?
You can say whatever about me and other doctors. That s How This place turned into something which Is not even close To what It used To be.
I am no longer participating in here.
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. I will inform managment of The guesthouse to let them know You are using The death of a person To defamate and cause negative impact On me. Maybe They will contact The family To inform This info Came out and was in The net. You went way too far This time.
And what they are gonna do? Capslock him to death?
Like seriously.
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I am no longer participating in here.
No! Please please please please please don't leave...
The invaluable service that you provide with all your knowledge and skill simply can't be found anywhere else on the planet. What do you expect everyone here to do?
Actually question the motive and lack of skill in people like yourself, Dr. Sarin, Dr. Sringari, Dr. Betz, & Dr. Mahboubian...
C'mon that's just crazy talk. Everyone knows they are the world's best. If anyone doesn't have surgery with those doctors then they are risking leading a completely normal life after lengthening , and what person in their right mind would want those kind of results?
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No! Please please please please please don't leave...
The invaluable service that you provide with all your knowledge and skill simply can't be found anywhere else on the planet. What do you expect everyone here to do?
Actually question the motive and lack of skill in people like yourself, Dr. Sarin, Dr. Sringari, Dr. Betz, & Dr. Mahboubian...
C'mon that's just crazy talk. Everyone knows they are the world's best. If anyone doesn't have surgery with those doctors then they are risking leading a completely normal life after lengthening , and what person in their right mind would want those kind of results?
Don't you have any friends irl that enjoy your jokes? Oh wait...
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LLuser, you're a terrible human being,
Same as well as the new troll with his 8 comments, posting videos of physically handicapped people
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This form of gratuitous humour has no place on a forum such as this; it benefits absolutely no one
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Relax guys. He wasn't making fun of them. He was just stating a point.
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Relax guys. He wasn't making fun of them. He was just stating a point.
am sure Dr Monegal laughed a bit when he saw that post
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What a "useful" thread this is. Not.
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Food for thought. In the US, this type of conjecture is prosecuted in civil court as defamation of character, etc. There is plenty of precedent out there and forum owners can be held liable - this has absolutely happened on other public boards.
Something for the mods and forum owners to think about.
Also - I believe LLUser1 and Mr. Sarcastic are one and the same person, and the videos are f*cking disgusting. On the scale of "this is low", it's subterranean. You should be ashamed of yourself.
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I have nothing to do with Mr Sarcastic. Mods can check IP. You say I'm Cooper or Mr Sarcastic or whatever and not true.
Mr Sarcastic is harsh even for me. What he does is not good. I just want to give news and information about salesmen and unethical doctors but I don't want to make fun of anybody so cruelly.
I have never done anything illegal. I have just shared information without giving names. I have never posted false information to create a bad image of a person. If there was any misunderstanding in my interpretation of the information I corrected myself. I can't be prosecuted in a foreign country. I can't be prosecuted in the USA. Tell me why I should be prosecuted if I didn't insult anybody and never revealed personal info using real names. My only purpose was to bring awareness about some unethical practices and individuals I was aware of. I can be annoying. Don't read my posts if you don't like them. But I haven't done anything illegal.
This time my source just told me a patient from the guesthouse broke his femur and died and it seems it's true. I didn't pull it out of my ass. Not a Monegal patient? I couldn't know that. I said I had no many details. My source also told me Musicmaker went to hospital because she had a very bad complication and there is no doubt about this although some people are trying to protect her and the doctor.
Don't read my posts if you don't like them but let other people learn from me about this surgery and doctors who exploit other people's insecurities to make personal profit.
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You can absolutely be held liable in the US, if someone decides to sue. I don't know the laws of foreign countries well enough to know how that would work for foreign countries.
Whatever this thing is with you and Dr. Monegal, it's obviously deeply personal to you as you've gone above and beyond to the point where it's a religious war on your part. Get help.
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I have nothing to do with Mr Sarcastic. Mods can check IP. You say I'm Cooper or Mr Sarcastic or whatever and not true.
Mr Sarcastic is harsh even for me. What he does is not good. I just want to give news and information about salesmen and unethical doctors but I don't want to make fun of anybody so cruelly.
I have never done anything illegal. I have just shared information without giving names. I have never posted false information to create a bad image of a person. If there was any misunderstanding in my interpretation of the information I corrected myself. I can't be prosecuted in a foreign country. I can't be prosecuted in the USA. Tell me why I should be prosecuted if I didn't insult anybody and never revealed personal info using real names. My only purpose was to bring awareness about some unethical practices and individuals I was aware of. I can be annoying. Don't read my posts if you don't like them. But I haven't done anything illegal.
This time my source just told me a patient from the guesthouse broke his femur and died and it seems it's true. I didn't pull it out of my ass. Not a Monegal patient? I couldn't know that. I said I had no many details. My source also told me Musicmaker went to hospital because she had a very bad complication and there is no doubt about this although some people are trying to protect her and the doctor.
Don't read my posts if you don't like them but let other people learn from me about this surgery and doctors who exploit other people's insecurities to make personal profit.
You're ruining the forum with your trolling and you can't make one post without mentioning musikmaker. You're a straight up stalker and are helping no one
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You can absolutely be held liable in the US, if someone decides to sue. I don't know the laws of foreign countries well enough to know how that would work for foreign countries.
For mentioning someone's death in the internet.
Suuuuuuuuuuuuuuuuuuuuuuuure.
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Food for thought. In the US, this type of conjecture is prosecuted in civil court as defamation of character, etc. There is plenty of precedent out there and forum owners can be held liable - this has absolutely happened on other public boards.
Something for the mods and forum owners to think about.
You can absolutely be held liable in the US, if someone decides to sue. I don't know the laws of foreign countries well enough to know how that would work for foreign countries.
(http://i46.photobucket.com/albums/f115/joeathabottom/retard.gif) (http://media.photobucket.com/user/joeathabottom/media/retard.gif.html)
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I know my rights and the USA laws. I have done nothing illegal. Freedom of speech exists here. I have just brought some facts here to expose some doctors. I haven't published personal information of anybody using their real names. I haven't insulted anybody. I have articulated my opinion and brought some real information so that you can get your own opinion.
Jbc you are selfish and arrogant. You can afford Paley but other people can't. Cheap prices attract them. Would you like to take the responsibility if they become crippled? I get many support private messages. Perhaps my posts are more useful to people than yours. Think about this.
IF you don't like my posts don't read them.
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I have never posted false information to create a bad image of a person.
You kidding right? I mean you gotta be.
The sole purpose of your account is to create a bad image of one person and this thread was started with false information.
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For mentioning someone's death in the internet.
Suuuuuuuuuuuuuuuuuuuuuuuure.
Pretty sure he has done more than that.
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Noregrets you delusional.
Isn't it true that a patient from the guesthouse died from a femur fracture (whether it was Monegal's or not)? Isn't it true Musicmaker is having a bad complication? Prove this is not true.
If you and jbc really think this is illegal you have a dictatorial mindset. Telling the truth and articulate one's opinions is not a crime.
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Dude, I know someone who owns a large forum who has been sued for far far less (and had to settle). If I were Dr. Monegal, with the compendium of evidence you left here, you and whoever owns this place would absolutely be in court.
Good luck with the insanity thing.
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Dude, I know someone who owns a large forum who has been sued for far far less (and had to settle). If I were Dr. Monegal, with the compendium of evidence you left here, you and whoever owns this place would absolutely be in court.
Good luck with the insanity thing.
Lmao. Sites like 4chan wouldn't exist then.
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Lmao. Sites like 4chan wouldn't exist then.
... and we would be much more happy.
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Noregrets you delusional.
Isn't it true that a patient from the guesthouse died from a femur fracture (whether it was Monegal's or not)? Isn't it true Musicmaker is having a bad complication? Prove this is not true.
If you and jbc really think this is illegal you have a dictatorial mindset. Telling the truth and articulate one's opinions is not a crime.
You said MM was absent for a while bcuz she was at hospital with a new complication which is a lie. She is even working when you lied to everyone saying she had lost her job. I can't even keep track of all your lies.
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Lmao. Sites like 4chan wouldn't exist then.
This is not a 4chan site though.
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... and we would be much more happy.
Normie spotted.
This is not a 4chan site though.
So what? 4chan is immune to law or something?
I just gave an example that suing for what LLuser said would be ridiculous.
I'm not defending him, only stating the facts.
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Normie spotted.
Proud normie!
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So what? 4chan is immune to law or something?
No. I'm saying that this forum has a different purpose than 4chan. Laws are more complex than you think.
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I just gave an example that suing for what LLuser said would be ridiculous.
Actually, no. Spreading false rumours about someone over the internet or anywhere else might or not be against the law. It all depends how serious these accusations are and it's consequences. We are talking about a doctors career here.
It's not the first time that IP's have been traced due to posted stuff over the internet. Hell, it happens daily in the US.
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Proud normie!
Hey 4chan wasn't all that bad, maybe /b/ was a bit... weird but not as bad as people make it up to be.
No. I'm saying that this forum has a different purpose than 4chan. Laws are more complex than you think.
God sake....
It's not about purpose but what people are actually saying. Mentioning someone's death is now a crime?
I get that he made his little crusade against Monegal but tbh he even never insulted him directly(as far as i remember).
The only thing he can get charged for is defamation but it's still his opinion and everybody has a right to say his own opinion, especially if he is still keeping borders of this forum subject.
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YSP, you get that there is actual precedent for this type of thing, right? Like, forum operators being served takedown notices, taken to court, etc.
It has happened multiple times. It happened to someone I know who owns a forum everyone would recognize if named. His mods didn't act fast enough and he was out quite a bit of money, legal fees included.
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Hey 4chan wasn't all that bad, maybe /b/ was a bit... weird but not as bad as people make it up to be.
God sake....
It's not about purpose but what people are actually saying. Mentioning someone's death is now a crime?
I get that he made his little crusade against Monegal but tbh he even never insulted him directly(as far as i remember).
The only thing he can get charged for is defamation but it's still his opinion and everybody has a right to say his own opinion, especially if he is still keeping borders of this forum subject.
You're a bit off, he has not stated his opinion but rather implied a bunch of stuff that I just couldn't keep track but I'm sure I can quote some if you really want me to. He's been trying to prove that he is a negligent docotr without the skill needed to his job and that, for me at least, is a strong accusation.
So yes, as you said he can be charged for defamation.
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YSP, you get that there is actual precedent for this type of thing, right? Like, forum operators being served takedown notices, taken to court, etc.
It has happened multiple times. It happened to someone I know who owns a forum everyone would recognize if named. His mods didn't act fast enough and he was out quite a bit of money, legal fees included.
Yes because Administrators are totally in fault of what their users are saying.
Sure thing bby.
You're a bit off, he has not stated his opinion but rather implied a bunch of stuff that I just couldn't keep track but I'm sure I can quote some if you really want me to. He's been trying to prove that he is a negligent docotr without the skill needed to his job and that, for me at least, is a strong accusation.
So yes, as you said he can be charged for defamation.
If Monegal has proof then maybe, still i didn't see it doe.
But yeah, let's play little hitlers and censor every negative opinion.
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YSP, you get that there is actual precedent for this type of thing, right? Like, forum operators being served takedown notices, taken to court, etc.
It has happened multiple times. His mods didn't act fast enough and he was out quite a bit of money, legal fees included.
So yes, as you said he can be charged for defamation.
Oh boy, clearly we are dealing with Harvard Law School trained lawyers here. Especially when they use words like "actual precendent" or "charged with defamation" The guy actually said "charged with defamation"....Hahahahaha!!
If I were the mod's i'd be real scared about being sued. These guys really sound like they know what they are talking about. In the same way an eleven year old knows about string theory.
Hey guys, can you hear that? Do you know what that is? It's the sound of the internet police coming for us all....
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No Regrets you don't have a clue. People from the guesthouse confirmed that Musicmaker was at hospital (complication). Call them if you want. I am entitled to my opinion and divulge true facts so that people can get their own. No crime here.
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Jesus Christ...
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Oh boy, clearly we are dealing with Harvard Law School trained lawyers here. Especially when they use words like "actual precendent" or "charged with defamation" The guy actually said "charged with defamation"....Hahahahaha!!
If I were the mod's i'd be real scared about being sued. These guys really sound like they know what they are talking about. In the same way an eleven year old knows about string theory.
Hey guys, can you hear that? Do you know what that is? It's the sound of no one caring about your bitching and moaning..
This guy below was so right about you ::)
There's no point you can't argue with stupidity
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YSP, you get that there is actual precedent for this type of thing, right? Like, forum operators being served takedown notices, taken to court, etc.
It has happened multiple times. It happened to someone I know who owns a forum everyone would recognize if named. His mods didn't act fast enough and he was out quite a bit of money, legal fees included.
sure anyone can sue for defamation on a forum, but I think it's incredibly difficult to win if taken to court. if you don't believe me, just do a quick google search on defamation and internet forums and you'll find plenty of legal advice supporting this. it must have been a very different situation with your friend and the nature of the content (like illegal stuff being posted) or maybe he didnt hire a decent lawyer. when lluser first appeared, monegal threatened to sue the forum (making himself look pretty bad IMO) and probably realized how expensive it would be and would have no realistic chance of winning.
You're a bit off, he has not stated his opinion but rather implied a bunch of stuff that I just couldn't keep track but I'm sure I can quote some if you really want me to. He's been trying to prove that he is a negligent docotr without the skill needed to his job and that, for me at least, is a strong accusation.
So yes, as you said he can be charged for defamation.
Not really. yeah lluser sometimes implies stuff without support and he definitely spams the forum a lot, but legally I think it would be almost impossible to charge him. First, you'd first have to identify him (it's an anonymous internet forum and even if you traced his IP, you'd have to tie a person to that IP which can also be difficult). Second, for defamation you also have to prove A) publication of fact (which posts on an internet forum don't count in the legal definition of a publication) and B) these facts are false (his favorite topic is musicmaker and her complications, which to my knowledge has mostly been true so far). To do all of these steps needed is practically impossible.
Not here to defend lluser and don't care either way if he gets banned. Just wanted to correct some misconceptions here about free speech and the internet.
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Mr Sarcastic is right here. If you make up stories it could be a crime but if those stories are real there is no defamation, and I got my information from real people who told me the truth. Sometimes I misinterpret but I always apologize if I'm wrong. I have 2 examples of confusions:
1) I said there was a Monegal patient whose implant failed and had to be exfixed and had to pay again and finally got a new implant. I understood this patient was the American guy but it was Musicmaker. Musicmaker got everything in this lottery. The American guy had also problems with implants but he didn't have to be exfixed. I got confused and then apologized.
2) I said there was a patient who died in the guesthouse and MM had a complication again. Was it false? No. No defamation then. It's true there was a guy in the guesthouse who died from a femur fracture and that Musicmaker had a new complication. When people said the guy who died was not a Monegal patient I accepted that because I don't know more details than that but I cannot accept new lies about Musicmaker because I know she is having complications and went to hospital because people from the guesthouse confirmed this.
Those are the 2 cases where I got confused. The rest of the information I have posted here is right. No defamation then. You have no case.
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Mr Sarcastic is right here. If you make up stories it could be a crime but if those stories are real there is no defamation, and I got my information from real people who told me the truth. Sometimes I misinterpret but I always apologize if I'm wrong. I have 2 examples of confusions:
1) I said there was a Monegal patient whose implant failed and had to be exfixed and had to pay again and finally got a new implant. I understood this patient was the American guy but it was Musicmaker. Musicmaker got everything in this lottery. The American guy had also problems with implants but he didn't have to be exfixed. I got confused and then apologized.
2) I said there was a patient who died in the guesthouse and MM had a complication again. Was it false? No. No defamation then. It's true there was a guy in the guesthouse who died from a femur fracture and that Musicmaker had a new complication. When people said the guy who died was not a Monegal patient I accepted that because I don't know more details than that but I cannot accept new lies about Musicmaker because I know she is having complications and went to hospital because people from the guesthouse confirmed this.
Those are the 2 cases where I got confused. The rest of the information I have posted here is right. No defamation then. You have no case.
I think that you are unable to understand what's the fuss with you...
Me personally, I dont care if you open million of threads about monegal or MM. You have every right to do so... The problem is simple... Stop posting about Monegal/MM in threads which has nothing to do with these two (especially non monegal diaries or threads like jbc about deciding to go with Paley).. And also stop bumping up threads from 3-4 years ago about betz or monegal....
Dont do those two and everything's fine
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Mr Sarcastic is right here. If you make up stories it could be a crime but if those stories are real there is no defamation, and I got my information from real people who told me the truth. Sometimes I misinterpret but I always apologize if I'm wrong. I have 2 examples of confusions:
1) I said there was a Monegal patient whose implant failed and had to be exfixed and had to pay again and finally got a new implant. I understood this patient was the American guy but it was Musicmaker. Musicmaker got everything in this lottery. The American guy had also problems with implants but he didn't have to be exfixed. I got confused and then apologized.
2) I said there was a patient who died in the guesthouse and MM had a complication again. Was it false? No. No defamation then. It's true there was a guy in the guesthouse who died from a femur fracture and that Musicmaker had a new complication. When people said the guy who died was not a Monegal patient I accepted that because I don't know more details than that but I cannot accept new lies about Musicmaker because I know she is having complications and went to hospital because people from the guesthouse confirmed this.
Those are the 2 cases where I got confused. The rest of the information I have posted here is right. No defamation then. You have no case.
Dood, we all want to read what information people have about the doctors but you have taken it 1 step too far. You just keep spamming the same thing over and over and that's annoying. It's hard to believe in what you say because you clearly want Monegal's career to take a hit rather than provide all the truth.
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I am entitled to my opinion and divulge true facts so that people can get their own. No crime here.
You're a real life stalker, and you've been doing it for over 2 years now in this forum. Dude you even have a photo of her big pool and her million dollar house.
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You're a real life stalker, and you've been doing it for over 2 years now in this forum. Dude you even have a photo of her big pool and her million dollar house.
2 years? He registered december 2015
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2015 = year 1, 2016 = year 2. Thats how he measured MM's 2 years, so I am doing the same rounding up.
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Jbc you are selfish and arrogant. You can afford Paley but other people can't. Cheap prices attract them. Would you like to take the responsibility if they become crippled? I get many support private messages. Perhaps my posts are more useful to people than yours. Think about this.
IF you don't like my posts don't read them.
You miss the point. It's not an issue that you bash monegal. Maybe your posts are more useful. However, jbc has been planning on doing a diary which is the exact opposite of selfish. However your hijacking others threads to bash monegal is an issue. You have a vendetta and you are the one being selfish. If you made a thread monegal is a monster let's discuss and left your bashing to that thread I doubt people would be constantly complaining about you but you seem to only care about your vendetta which might be a justified one and might be helping others. But the ends don't always justify the means and you show no respect to the forum or its users by constantly hijacking threads.
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You miss the point. It's not an issue that you bash monegal. Maybe your posts are more useful. However, jbc has been planning on doing a diary which is the exact opposite of selfish. However your hijacking others threads to bash monegal is an issue. You have a vendetta and you are the one being selfish. If you made a thread monegal is a monster let's discuss and left your bashing to that thread I doubt people would be constantly complaining about you but you seem to only care about your vendetta which might be a justified one and might be helping others. But the ends don't always justify the means and you show no respect to the forum or its users by constantly hijacking threads.
Thanks EndGame, I appreciate your thoughts. I'm honestly done with all this. Just not worth the mental effort to be here anymore and see this crap.
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Hello, I just read this post. I'm new here (althogh I've been reading posts from these forums and thinking about getting LL in the future for a long time) and these kind of posts scare me a lot... I live near Barcelona so it may be my first option... if someone could vouch those people are fine and alive... I'd appreciate it. Really. I hope he's just a troll or a person whi just heard a rumour. :-\
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Hello, I just read this post. I'm new here (althogh I've been reading posts from these forums and thinking about getting LL in the future for a long time) and these kind of posts scare me a lot... I live near Barcelona so it may be my first option... if someone could vouch those people are fine and alive... I'd appreciate it. Really. I hope he's just a troll or a person whi just heard a rumour. :-\
don't worry there are no any single case that someone died from this surgery since 1960s.
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don't worry there are no any single case that someone died from this surgery since 1960s.
Yup, that's what I read. Thank you very much, The Kaiser. I guess that if such person died, it didn't have to do anything with LL. Just because you die while doing something, it doesn't mean that thing killed you.
Best regards,
Koi.
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Yup, that's what I read. Thank you very much, The Kaiser. I guess that if such person died, it didn't have to do anything with LL. Just because you die while doing something, it doesn't mean that thing killed you.
Best regards,
Koi.
The only possible way to die is by doing three surgeries at one time (femur, tibia and arm)
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The only possible way to die is by doing three surgeries at one time (femur, tibia and arm)
There was a paper by Dr Catagni showing that a patient died during an Achilles Tendon Lengthening, so the risk is still there, however minute, even doing only one leg lengthening.
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There was a paper by Dr Catagni showing that a patient died during an Achilles Tendon Lengthening, so the risk is still there, however minute, even doing only one leg lengthening.
Damn, what caused the death?
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There was a paper by Dr Catagni showing that a patient died during an Achilles Tendon Lengthening, so the risk is still there, however minute, even doing only one leg lengthening.
if he died by car accident or something, we can't blame LL
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if he died by car accident or something, we can't blame LL
Hey The Kaiser, You can't possibly be that dumb?! Can you....
The quote is "Died during Achillies Tendon Lengthening" Here, read the quote again.
There was a paper by Dr Catagni showing that a patient died during an Achilles Tendon Lengthening
You would be doing everyone a favor if read more and posted less. Thanks.
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LL and Achilles lengthening aren't the same thing. This big difference that separates them and stay with me here this is where it gets complicated one involves breaking and separating a bone and the other involves cutting and lengthening a tendon? Understand the difference? I could draw you a picture but I'm not a very good artist so that probably wouldn't help
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Damn, what caused the death?
if he died by car accident or something, we can't blame LL
Paper says it was due to pulmonary embolism, which can happen with internal methods that don't require ATL. BilateralDamage had one after his surgery with Dr Paley and had to be monitored.
Strategy in the surgical treatment of achondroplasia: techniques applied in the Department of Orthopedics and Traumatology Hospital of Lecco
M.A. Catagni, F. Guerreschi, L. Lovisetti
Between 1982 and 2007, 128 patients with achondroplasia were treated in the Lecco Hospital. 100 of these were treated with sequential bilateral limb lengthening and seven with crossed lengthening. The average tibial lengthening was 14.1 centimeters (range: 6 to 19 cm). The average femoral lengthening was 9.8 centimeters (range: 8 to 12 cm), and the average humeral lengthening 8.3 centimeters (range: 8 to 12 cm).
...
The complications were classified as minor, moderate, and severe. Minor complications were those which required only modification of the apparatus during treatment. Twenty-three percent of the lengthenings required some modification of the device during treatment. Moderate complications were those which required additional procedures during lengthening. Forty-two percent of patients fell into this category. Finally, severe complications were those which required another surgery following treatment or had lasting sequelae of the treatment. Twenty-one percent of patients fell into this category. The most common complication was equinus contractures of the ankle which required treatment by tendoachilles lengthening. Two pulmonary emboli were sustained following percutaneous tendo-achilles lengthening. One patient died as a result of this complication.
http://link.springer.com/article/10.1007%2Fs10261-009-0032-9
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And it was someone with dwarfism, damn that just sad.
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One LL achondroplasia patient from Ginebreda also died. It was published in the Spanish newspapers and in this forum some months ago. It was a very bad case because the organs of the girl were made disappear so that the cause of the death couldn't be determined and doctors could escape jail. It's a case of negligence now being investigated court.
Some people said patients from Paley and Betz also died but just hearsay in the boards. One person from this forum told me a patient from Betz went to Paley and he died in Operatig room but I haven't proofs of that.
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One LL achondroplasia patient from Ginebreda also died. It was published in the Spanish newspapers and in this forum some months ago. It was a very bad case because the organs of the girl were made disappear so that the cause of the death couldn't be determined and doctors could escape jail. It's a case of negligence now being investigated court.
Some people said patients from Paley and Betz also died but just hearsay in the boards. One person from this forum told me a patient from Betz went to Paley and he died in Operatig room but I haven't proofs of that.
WTF. That's horrible.
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One LL achondroplasia patient from Ginebreda also died. It was published in the Spanish newspapers and in this forum some months ago. It was a very bad case because the organs of the girl were made disappear so that the cause of the death couldn't be determined and doctors could escape jail. It's a case of negligence now being investigated court.
Some people said patients from Paley and Betz also died but just hearsay in the boards. One person from this forum told me a patient from Betz went to Paley and he died in Operatig room but I haven't proofs of that.
Its people trying to scare members to not do the surgery. Paley regards safety as the most important thing.