Limb Lengthening Forum
Limb Lengthening Surgery => Limb Lengthening Patients Experiences => Topic started by: tolly on December 20, 2015, 10:47:56 AM
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21 Male , Indian
Original Height- 174 cm
Current Height- 183 cm
I had my Surgery in May 2015 with Dr Deepak Raina in Indian Spinal Injuries Center.The Procedure was LATIN (Tibial Lengthening using Monorail Fixator and IM Nailing after the lengthening phase was over).I Gained 9 cm (90 mm) in 108 Days.
Since, I had Plantar Fasciitis (Ballerina) about 6 cm , I Underwent Percutaneous Achilles Tendon Lengthening (They made 3 small Cuts on Tendon) along with the IM Nailing Surgery Simultaneously. I was able to Walk unaided 2 Weeks Later, which was Remarkable Considering my Lengthening (9 cm) and Severe Ballerina.(All Thanks to the Tendon Lengthening)
During the Lengthening Phase i wasn't able to Walk unaided without the Walker since my Lengthening was Quite fast (0.833 mm/Per Day) and I had Weak Quadriceps to Begin with , Moreover I developed severe Ballerina (6 cm) which made it very Difficult to Walk.
The Pain was Excruciating(Muscle,Nerve,Bone,Post Dural Puncture Headache) , Especially for the First Week after every Surgery but Considering the End Results it was all Worth it .
Dr Deepak and his Team were Great,and very Considerate.I had a very Candid Conversation with him about my Expenses since i was on a very Tight Budget.They Planned the Lengthening Process Right from the Start,So i could achieve my Goal without any Major Obstacles and any Unnecessary Expenses.He does not Prefer doing Cosmetic Procedures and the only reason he agreed to do mine was because He did not want me to get my Legs Broken by some Inexperienced Money Hungry Doctor.
FYI , The Total Cost was $6000 Approx(This Included the Initial Surgery to put the Monorail Fixator ,The Second Surgery to add Additional Pins and the Final Surgery to remove the Fixator , Insert the IM Nails and Lengthen the Tendon).I stayed in the Ward.It will go up by 30% to 50% Depending on which Room you want.
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Very good and incredible price
hope u enjoy ur new height
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Congrats tolly :D
Even I am planning to go for LL on femur probably in feb-march.
Can you provide his contact information?
Also, how are you doing now?
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@goodlucktomylegs - Thank You ! I certainly will.
@jinn169 - Thank You ! I am about 80 % . I just can't jog,but hopefully if things go as planned i should recover fully within 2-3 months.
Contact Indian Spinal Injuries Center, they will fix up your appointment.
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Hey brother congrats on your success. I am really happy for you. I am 26, male ,Indian and I an only 5'1". It is very frustrating for me and my height is becoming a cause of depression in my life. I am from a middle class family and cant afford very expensive surgery but what you paid seems affordable so i am looking forward for the surgery. Can you help me out by sharing your experiences? It would be really nice. Thanking you in advance.
Raj
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@Raj - I can understand you phase completely ! Set your priorities straight and then go ahead with it.Just remember there is no backing out once you go ahead with the surgery,Considering the Money and Time you Invest.
Its not about having a High Threshold for Pain , you really need to be Mentally Strong and most importantly you need the Support of your Family.I advice you to Stay with your Family through out the Lengthening Period otherwise your Expenses will go up Significantly and you need to take atleast 6 Months Break from Work.
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Private Message me If you want Doctor's number otherwise you can go Directly Through the Hospital.
Contact Information:
Website
http://www.isiconline.org/index.aspx
Address
Indian Spinal Injuries Centre
Sector C, Vasant Kunj,
Opp. Vasant Valley School,
New Delhi - 110070
For Doctor Appointments:
011 42255225 ext. 201 / 202
011 42255201 (Direct)
011 42255202 (Direct)
appointment@isiconline.org
E-Mail
info@isiconline.org
salesteam@isiconline.org
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Hi Tolly,
It's been a while since your last update, how are you and your recovery coming along?
I was hoping you could share more of your experiences with the doctors at the Indian Spinal Injuries Center..
As someone who's also on a tight budget, the cost of the surgery at the center seems very affordable. You said you the surgery was $6000, could you break down those expenses (food, room, etc)?
Do the center perform other methods of lengthening? what made you decide on 9 cm with LATIN (if there's an altervative)?
How soon were you able to get back to "normal" life? Could you provide a brief timeline of sorts?
Do you have any tips/suggestions on what one should prepare for before surgery?
Can you PM me the doctor's number or email please?
I appreciate any help you could provide,
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Do you think you will ever be able to run again? What did the Dr. tell you about your bio mechanics? I assume your tibias are now longer than your femurs.
If, as you said he's not into cll, how did you persuade him to lengthen this much?
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A littlte more details of your experience will be much grateful...
We don't see many LATN here after all
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@Tired - I got the Surgery done during the last week of May 2015 , which was Inserting the Monorail Fixator and after a month or so ,I had another Surgery to add Additional Pins so that Pin bending does not take place and to keep a Check on the Alignment Obviously.In Mid Sept. I underwent the Final Surgery , which was Removal of the Fixator and Percutaneous Achilles Tendon Lengthening (They made 3 small Cuts on Tendon) along with the IM Nailing Surgery.
Back to your Question, You need to pay the cost of the each Surgery a Couple of days before it is scheduled.The first one cost me$3000 , the Second one $500 and the last one $3000. (Approx)
Its Cheap because I stayed in the General Ward ,if you stay in a Private Room cost can go up by 50%.I Recommend you Stay in a Private Room , Atleast you will have Privacy.
I told the Doctor to do any Method within my budget so that i could Reach my Target.It does not really matter if it is LATIN or LON , because at the end ,they are the Same Thing.I Suggest you go ahead with the Monorail Fixator , as it is Fully Weight Bearing. He can perform the surgery on Femur or Tibia its your Choice.Although Tibia is better as it is less Risky and you can Deal with Ballerina by Lengthening the Tendon.He can even Perform Internal Fixation as Long as you have that kind of Money.
I started walking properly by Nov. end.My initial target was 10 cm, but since i had Weak Quadriceps i settled for 9cm.
My Advice to you is make your Legs as Strong as Possible , especially the Quadriceps.Secondly if you want to go above 7cm ,Make sure you do Percutaneous Achilles Tendon Lengthening.It will Remove the issue of Ballerina Completel ,.No Matter how bad it is and Shorten your Recovery Substantial .Let me tell you ,This whole Process is very Painful Especially the Initial Pain after theTendon Lengthening and the knee pain after IM Nailing.
The Entire Process will drain you out Completely not just Mentally but Physically as well.I lost 8 kgs by the End.
I choose this Hospital , because its the only Hospital of its kind in India (Spine and Orthopedic Specialization) and they Recruit only the Best Doctors in India.
Will message you Doctors no.
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@Alittletooshort - Yes , My tibia is Longer than my Femur , but so Far i have not had any Issue.I can Jog but have not tried Running , Infact, I am Finding it Easier now to do Weighted Squats .
I guess , He Knew I was going to get it done by Hook or by Crook form Elsewhere if he did not Agree to Perform my Surgery , So he said its Better that we do it for you Instead of Someone Inexperienced .
You just need to have the Ability to Convince.Thats all !
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at what cm did u start getting ballerina?
do u have any misaliagnment as by fixing monorial ??
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@Dreamtaller - After 5 cm .No issue of Misalignment at any Stage.
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Hey how are you doing?
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This Diary seems very sketchy.
(approx. 2 weeks short of 4 months) - 108 days -lengthening of 9 cm - Keep in mind you do not length 7-10 days after surgery.
(108 + 14 days = 122 ) 4 month point - he is walking unaided.
lets say my calculations are off by 2 months, even then he should not be walking unaided at 6 month point.
This guy either has insane bone regeneration. Or the nail used in his LATN is very strong and reliable and you can start unaided walking 2 weeks after like he said. Or something is up.
Like the saying goes, if its too good to be true, its probably not! Would be nice if someone can confirm validity of this diary though.
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@peaceout- Good ! Just a little pain here and their.
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I´d love to see a picture of you in underwear just to see how 9cm´s look proportionswise.
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Alittletooshort- I have messaged the Admin (KiloKAHN), will Upload a Picture of the Device (Monorail Fixator).Proportion is absolutely fine.The Tibia is slightly longer than femur but quite hard to notice.
Infact , its improved my Athletic Performance, but still have a little issue while Jogging and Jumping.
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Can we have more info regarding this place?
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Slim_tim- Anything specific you want to know ?
Contact Information:
Website
http://www.isiconline.org/index.aspx
Address
Indian Spinal Injuries Centre
Sector C, Vasant Kunj,
Opp. Vasant Valley School,
New Delhi - 110070
For Doctor Appointments:
011 42255225 ext. 201 / 202
011 42255201 (Direct)
011 42255202 (Direct)
appointment@isiconline.org
E-Mail
info@isiconline.org
salesteam@isiconline.org
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Slim_tim- Anything specific you want to know ?
Contact Information:
Website
http://www.isiconline.org/index.aspx
Address
Indian Spinal Injuries Centre
Sector C, Vasant Kunj,
Opp. Vasant Valley School,
New Delhi - 110070
For Doctor Appointments:
011 42255225 ext. 201 / 202
011 42255201 (Direct)
011 42255202 (Direct)
appointment@isiconline.org
E-Mail
info@isiconline.org
salesteam@isiconline.org
Yes, why is it so cheap and why have we never heard of this place before?. Also i would like pictures of people who had done LON or LATIN with the doctors there. "Some Proof"
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Slim_tim - I have no idea about past patients.I went there for my surgery and am sharing my Experience.Fyi, this along with AIIMS are the the most well know Govt. Funded hospitals with this one having specialization in Orthopedics and Spine.Indian Spinal Injuries Center was partially Funded by Govt.initially and Partially by FDI.
Its cheap because , as i have mentioned several times, i stayed in the General Ward.If you stay in a Private Room, your cost will surely go up by 50% but its worth it after you look at the rooms.
The Reason Majority of you, have not heard of this place is becuse you all have a habit of going to Doctors who are only concerned with money & love to Ripe of patients especially Foreigners.
As, I have mentioned before, Dr Deepak & his team dont prefer to perform Cosmetic Surgery , you might have to sound really convincing for him to agree.
"The only Reason, I am sharing my Experience , is because i Reached 9cm Against all Odds.(Budget, Time,Pain) even though Several People Discouraged me from doing 9cm."
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Slim_tim - I have no idea about past patients.I went there for my surgery and am sharing my Experience.Fyi, this along with AIIMS are the the most well know Govt. Funded hospitals with this one having specialization in Orthopedics and Spine.Indian Spinal Injuries Center was partially Funded by Govt.initially and Partially by FDI.
Its cheap because , as i have mentioned several times, i stayed in the General Ward.If you stay in a Private Room, your cost will surely go up by 50% but its worth it after you look at the rooms.
The Reason Majority of you, have not heard of this place is becuse you all have a habit of going to Doctors who are only concerned with money & love to Ripe of patients especially Foreigners.
As, I have mentioned before, Dr Deepak & his team dont prefer to perform Cosmetic Surgery , you might have to sound really convincing for him to agree.
"The only Reason, I am sharing my Experience , is because i Reached 9cm Against all Odds.(Budget, Time,Pain) even though Several People Discouraged me from doing 9cm."
Either Dr deepak is using google translate. Or your honest. I'll linger in the shadows in the meanwhile......
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Slim_tim- Believe what you want.I honestly dont care, I have reached my goal. Enjoying my height !
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Hey Tolly,
could you please provide proof, x ray, picture of your legs etc. As well could you provide us with a time line of your journey with dates.
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Will upload the Pictures , but this will be the last time , i Justify Myself !
I Expect a Apology from TrueSpartan & Slim_tim
http://www.imageno.com/43ymxrglg0ahpic.html
http://www.imageno.com/c5f41ntlodwnpic.html
(IM Nailing & Percutaneous Achilles Tendon Lengthening)(Mid Sep)
http://www.imageno.com/1tlggd671uuopic.html
(Additional Pins) ( Early July Approx)
http://www.imageno.com/iyiv9jd1dj46pic.html
(While Sitting)
http://www.imageno.com/ze1in2m8j2a4pic.html
(After 1st Surgery) (May End )
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Great Pics - Thanks Tolly,
I wonder is LOP (Lengthen over plate) an options with Dr Raina ?.
All the Best.
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AimHigh- No idea, but he prefers Nailing over Plating as there is very little chance of breakdown due to bodyweight.It all depends on your rate of Bone Regeneration.
Besides , he prefers LATIN over LON and Monorail over Ilizarov or any other Fixator.
In LATIN, However he might consider Plating over Nailing if you have had many Pin site Infections.Nailing actually exposes the deep bone to bacteria's.
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Thank you for providing some picture proof tolly. I apologize if it seems I have offended you. That was not my intention. I am happy you have introduced a diary of a new doctor to this forum and this kind of information is invaluable to all of us future LLers.
However I have to admit i am still not convinced and I will just keep my opinion to myself. From tons of diaries I have read, It is very rare see a person who does 5cm and walk unaided after 4 Months even with the nail. Maybe on crutches but not unaided lIke you. Someone who does 9 cm and unaided after 4 Months is unheard of. 9 cm will take 14.5 to 18 months for bone consolidation. I seriously don't understand how you have been walking or jogging unassisted without consolidated bone. Anyways I will keep my opinion to myself and this will be my last post here.
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Hey man thans for pics.If its not too much can you post a picture of your whole body?Im wondering how proportions look after 9 cm.
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Tolly can you provide any xrays?
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@doomsday- Sure ! I will upload them.
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@doomsday- Sure ! I will upload them.
Hello?`can you upload pictures please 8)
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Would love to see some pictures too :)
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Hmm, kind of curious about this hospital. Do they offer Illizarov procedure? IF so, I'm definitely considering going here.
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Vendetta I would seriously reconsider. His dates don't match up. A new doctor shows up.... only diary... perfect recovery... with insanely fast recovery. He could be telling the truth but in my opinion unlikely.
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I see then. Looks like Dr.Talwar is the only reliable one in India.
Forgot about Dr.Parihar
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Wow you have a +13cm wingspan? :O that is incredible. Have people ever said anything about your long arms/broad shoulders?
Edit: wopps so sorry, i thought Vendetta113 was the OP lol...
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He said it already. at 6cm
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Don't have all the X Rays with me.Could find only this.
http://www.imageno.com/h0c0gp1k3xafpic.html
( This is Approx. Mid August.) (Approx. 7.25 to 8.0 cm)
(Used Pull Back method for Fast bone Growth)
Not sure about the exact Date or Length, as i have Relocated Elsewhere.Dont have medical Records with me.
Only issue i am facing is , Tight Quad. Muscles , and bit of knee pain while doing squats or trying to walk the Stairs fast.It comes & goes, but i should be 100% in the next 2 months Give or Take.
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I look a bit out of Proportion , as i already had long legs to Begin with , but honestly i dont care.
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will you provide proportion pics?
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@Peaceout- Will Post Pictures.
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@Peaceout- Will Post Pictures.
thanks.
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There are 5 pictures(After Surgery's)on Page 1.
The following are pictures of proportions.
http://www.imageno.com/9xm4n4s6jto9pic.html
http://www.imageno.com/emtlou4kn7a3pic.html
I dont see this forum much, trying to get over Height Neurosis.However, i will try my best to answer your questions when ever possible.
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I am quite late, nevertheless, A special Thanks to @Medium Drink Of Water & @bluebarbie For all your advice.There are few others but since my inbox gets deleted after every few months, i dont remember their names.
These are the links to my previous Diaries.
http://www.limblengtheningforum.com/index.php?topic=2619.msg40988#msg40988
(Should i get achilles tendon lengthened ?)
(Earlier, Doctor recommended Plating instead of Nailing .However,Later he decided to carry on with Nailing since i had no deep Bone Infection)Opening the Patella tendon some times exposes the Pin site Bacteria to the deep bone during Nailing.
http://www.limblengtheningforum.com/index.php?topic=1492.msg24003#msg24003
(Can tibial lengthening be done to 10cm)
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When it is possible for a person to walk normally after LL lon or latn surgery after doing 6cm tibia?
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When it is possible for a person to walk normally after LL lon or latn surgery after doing 6cm tibia?
The same as without LON or LATN. These nails are just "cosmetic", they don't improve your healing rate. Their only advantage is, that you don't need to wear a ilizarov device after the lengthening anymore.
You will still need to walk with crutches and your bone will take as long to heal as if you were keeping the ilizarov device on.
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@Dishant- Each body reacts in a different manner.However, u can Walk ( Slowly ) within a month if you Lengthen your Achilles Tendon ( Its very Painful but will remove Ballerina ) & your Bone growth is Good.
@Cheez- You need to walk with crutches, only for 2 Weeks after the Final Surgery.Atleast , i did that since my Quad muscles were very weak to hold my knees Striaght & Achilles Pain was Excruciating.
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@Dishant- Each body reacts in a different manner.However, u can Walk ( Slowly ) within a month if you Lengthen your Achilles Tendon ( Its very Painful but will remove Ballerina ) & your Bone growth is Good.
@Cheez- You need to walk with crutches, only for 2 Weeks after the Final Surgery.Atleast , i did that since my Quad muscles were very weak to hold my knees Striaght & Achilles Pain was Excruciating.
Hey tolly,i see that for the price uve paid its a very good outcome and as i too am from india i know that the hospital from which u have undergone this surgery is highly reputed one.But since this is a life altering surgery id like to meet u and discuss about this.Because i dont want to be crippled listening to one diary on this forum.If ud pm me we can arrange the meetup.Dont worry i will be the one who will get to u.Also after you have done the surgery are your femurs lost some weight??! In the sense have they become thin?! Or tibia's are the only part that have thinned?
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@Charis - I have sent you a PM. Since , i reached 9cm even the femurs became very thin & weak along with my Tibia's .I could barely keep my knee straight while walking.
The only way to tackle this is to make your Quadriceps as strong as possible.My Quadriceps were quite weak to begin with & secondly i did not do any Physio.
However, within 2 to 3 weeks after the Final Surgery ( Fixator Removal, IM Nailing & Achilles Tendon Lengthening ) gradually my Quadriceps began to gain strength.
Basically , once you stop Lengthening the muscles on their own begin to Develop and adjust to the new Length.
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Hey everyone i think this guy is surely faking something.Stay away from him and that doctor till we get some solid proof.He hasn't even responded to my message when i told that i would like to meet him.
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@Charis- FYI. I have received your notification just now.
I am not active here any more, as it really messes with my mind & because of people like you, who discredit all my pain & hardwork I have been through.Despite proof ( Pictures & old Diaries ) & who dont appreciate the knowledge i am sharing.
Trust me mate, the knowledge i am giving you & everyone else is priceless, without this you & the rest will be walking in the O.T like a Headless Chicken. Nevertheless, best of luck in case you go ahead with the surgery.
I am staying in Banglore & Pune and you are more than welcome to come here. I can explain the whole process in person.
On second thoughts, F**k off. I cannot go own sharing my no. with every Tom & Harry because they 'MIGHT' one day undergo the procedures.
Even i have a Life, and have to make a living.However,I am more than happy to answer your questions here.
I only share my no. if someone is seriously in need of guidance while 'UNDERGOING' any of the Lengthening Procedures.
@OregonMade- Call me on Whatsapp.I have messaged my no.
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Are you an Indian staying in India or abroad? If it's the first...how the hell did you feel short at 5'8.5? Lol
Congratulations on your journey & new height!
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@Penguinn- Indian, living in India. Actually, everyone in my Family is 6 Feet.
Thank You.
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I am not active here any more, as it really messes with my mind & because of people like you, who discredit all my pain & hardwork I have been through.Despite proof ( Pictures & old Diaries ) & who dont appreciate the knowledge i am sharing.
I feel yah bro. This is why I will never share my experience with the people here. I am thankful for those who have come before me, but there are so many uninformed and angry people here who will put you down to feel better about themselves. After consolidation, I don't really see a point to stick around.
Good luck on your recovery!
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@LLCaptain- Thank you. Its good to know some genuine people like you exist here. I am now seriously considering weather i should ever visit this site again or not.
There are too many idiots on this Forum, especially inexperienced people, who think they are doctors after reading about LL here & on Google. They dont know ABC about LL & post useless comments not appreciating & realizing the knowledge we LL veterans are sharing.
@Admin aka KiloKAHN - You seriously need to look into this issue.These people who have No Experience on LL should be given either limited access to post or their posts should be run by you before being actually posted.
You are promoting them to Sr. Member, in spite of the fact that they have no LL experience & they are misleading others by posting multiple baseless comments.They are ruining to many Diaries.
Actual LL veterans here are Newbie's, because we post limited but relevant data.
Seriously ? Please do the needful.
For instance, here are some of the little twats , Slim_tim , TrueSpartan etc.The list goes on & on.Where did you 2 get your LL experience ? Reading about it ?Google i suppose ?
Well, i got mine because i underwent 3 LL Surgeries.
( Monorail Fixator )
( Additional pins )
( Fixator Removal, IM Nailing , Achilles Tendon Lengthening )
Next time, you 2 ( Slim_tim , TrueSpartan ) & the rest of your gang decide to post some bulls**t & criticize people do keep this in mind.
FYI- Never compare 2 Diaries, as they are 2 different people who have different bodies & each body reacts differently to LL. Some can recover fast , while others take their sweet time.
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@Charis- FYI. I have received your notification just now.
I am not active here any more, as it really messes with my mind & because of people like you, who discredit all my pain & hardwork I have been through.Despite proof ( Pictures & old Diaries ) & who dont appreciate the knowledge i am sharing.
Trust me mate, the knowledge i am giving you & everyone else is priceless, without this you & the rest will be walking in the O.T like a Headless Chicken. Nevertheless, best of luck in case you go ahead with the surgery.
I am staying in Banglore & Pune and you are more than welcome to come here. I can explain the whole process in person.
On second thoughts, F**k off. I cannot go own sharing my no. with every Tom & Harry because they 'MIGHT' one day undergo the procedures.
Even i have a Life, and have to make a living.However,I am more than happy to answer your questions here.
I only share my no. if someone is seriously in need of guidance while 'UNDERGOING' any of the Lengthening Procedures.
@OregonMade- Call me on Whatsapp.I have messaged my no.
Do u think its a joke for me?? For gods sake i asked your number because if all turns out legit i was planning on having surgery with him and suddenly you dissapear and bullcrapting me??? .Lots of other diaries???This is first diary on Dr.Raina and you want me to blindly trust on this 2 page diary??Its my god damn llegs for god's sake and also you aren't a girl that i would be begging to have your number.I thought fellow LL'ers would help me in this.Damn i was wrong.If u didn't want to give your number you could have atleast replied me that but you didn't respond.Stop bullcrapting fella.How do u want me to come to bangalore or pune without your contact no. ? Stand in the middle of an unknown city?? Use your brain for god's sake.Dumb people.
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@tolly
Thank you very much for your diary, I really appreciate your personal experience with CLL and the ISIC that you have been sharing with us.
@all
I searched for reliable information about the ISIC and even talked to someone who was a patient there (not LL unfortunately).
It is a reputable clinic which is (partly) funded by the government and they indeed employ only good doctors.
If there is a place in India where they won't milk you like a foreign cash-cow and where definitely are no butchers at work, it's the ISIC.
My own research has convinced me enough to actually make me want to go there in mid December 2016 (instead of January 2017).
I'm gonna be the guinea pig and contact them sometime in August and then we will see what will happen.
I'm also going to make my own diary, a long one with lots of pictures and x-rays for everyone, so if you are considering the ISIC in 2017 or later, stay tuned.
I've already posted some mockups, where you can see my chubby body :P and I've been posting in this forum for some time now, so I'm legit too ;)
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@Chris- All the best Brother ! Tell Doctor, tolly says Hello :P
We will touch base via whatapp once you decide to go ahead with the LL surgery. I will do my best to guide you, if and when possible.
Inform me once you start your diary & send me the Link.
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Do u think its a joke for me?? For gods sake i asked your number because if all turns out legit i was planning on having surgery with him and suddenly you dissapear and bullcrapting me???
tolly, it's comments like these that makes one never want to contribute to this forum. You owe this forum nothing and it sounds like there are some extremely ungrateful people here who expect you to answer personal questions at your time and expense.
Most of the people who ask stupid questions are not even serious about doing LL. If they were actually hell bent on doing LL, they'd shut their mouths, stop asking dumb questions, read the diaries, and go visit a guesthouse. I don't understand the hostility towards you, even though you took the time to write something, if anything.
I personally think that 95% of the diaries on this forum are factual, sometimes sugarcoated because they are still under the care of the doctor, but for you to provide X-rays and have doubters, it blows my mind.
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@LLCaptain- Appreciate the Support ! Incase you need any advice, dont hesitate to touch base.
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You can check all number from Saroj Hospital Website http://www.sarojhospital.com (http://www.sarojhospital.com) or Mumbai Hospital Dr L H Hiranandani Hospital http://hiranandanihospital.org/ (http://hiranandanihospital.org/)